📢Today is #InternationalSelf-CareDay. Those who help other patients and are patients themselves, risk burnout if they do not practice #self-care. 📱Watch this amazing guide video from Amanda Stork from NeuroEndocrine Cancer Australia: incalliance.org/self-care/ #LetsTalkAboutNETs

Phase II clinical trial for ACC now open in 3 UK centres. #ACC #adrenocorticalcancer #adrenalcancer @accsupportuk.bsky.social @cancerresearchuk.org 📲 accsupport.org.uk/new-phase-ii...

New Phase II Clinical Trial in ACC - ACC Support UK

Cancer Research UK launches a new Phase 2 clinical trial for people with advanced adrenocortical carcinoma, a rare and aggressive cancer. The study will test the effectiveness and safety of Cytovation...

accsupport.org.uk

👏Kudos to AMEND UK @amenduk.bsky.social and Neuroendocrine Cancer UK @neuroendo-can-uk.bsky.social for the successful Neuroendocrine Life Alliance (NLA) Patient Summit 2026! 👉An impressive 97% rated the summit positively. ✅Find out more: incalliance.org/neuroendocri... #LetsTalkAboutNETs

Congratulations and deepest thanks to our wonderful band of runners in today’s #LondonMarathon 🙏🥳💛. Sponsor here www.amend.org.uk/fundraisers-...

Get hormone healthy: follow the 10 recommendations for good hormone health, inc: ⚠️ be aware of early signs + symptoms of endocrine disease ⚠️ adopt a healthy lifestyle ⚠️ eat healthy to avoid preventable vitamin deficiencies ⚠️ avoid plastic packaging #WorldHormoneDay2026 #becausehormonesmatter

It's #WorldHormoneDay! We are highlighting the work we do at the Society to raise awareness about the important role hormones play in our health and the steps we can all take to improve #HormoneHealth. Listen to this snippet from our award-winning podcast. More details on this in the thread below⬇️🧵

Decisive action in the UK re forever chemicals ie endocrine-disrupting chemicals (EDCs) like PFAS - progress urgently needed to protect the next generations #becausehormonesmatter #worldhormoneday #WHD2026 Ban 'forever chemicals' in uniforms and frying pans, MPs urge www.bbc.co.uk/news/article...

Help support AMEND's work and raise awareness of our rare endocrine conditions by sponsoring one of our four (yes 4!) London Marathon runners who get their shoes on this Sunday in aid of AMEND. Thanks! #LondonMarathon2026 #MEN1 #MEN2A #MEN2B #SDHB www.amend.org.uk/fundraisers-...

📣 World Hormone Day is approaching on 24 April! We will share: ℹ️ what hormones are and what they do ℹ️ what symptoms occur when things go wrong, and ℹ️ how to keep 'hormone healthy' Get involved at 📲 shorturl.at/sjtpz #BecauseHormonesMatter #worldhormoneday @esendocrinology.bsky.social

Off to a strong start at #SFEBES2026 in Harrogate this week with a special Patient and Public Involvement and Engagement session on Sunday and an update on the #UKISAT registry for metastatic #ACC and #paraganglioma, the advisory committee of which AMEND is a member.

Please pop by to see Sally's work if you can. Open until 20th February. Thank you to Sally's family and friends for their continued support of our ACC Community through their fundraising. 💚 #AdrenocorticalCancer #adrenalcancer #ACC @accsupportuk.bsky.social

Tim Thomas@timofnewbury.bsky.social · 6mo ago

The Base, Greenham, nr Newbury. Celebrate the life and art of Sally Zelenczuk (1993-2024), who, through her passion for printmaking and mixed media explores themes of nature, pattern and texture. Sally was diagnosed with adrenocortical cancer (ACC) in 2024. thebasegreenham.co.uk/event/beginn...

Here’s a sneaky peek of our brand new #MEN1 members’ smartphone app. Information + support in one quick access resource, even offline. Available to all registered MEN1 members. Membership is free. www.amend.org.uk/patients/joi...

Cancer turned my world upside down - twice. After battling a #phaeo, I was told that I also had medullary thyroid cancer (as part of #MEN2A), followed a few years later by an #MTC metastasis. Each cancer journey is unique, even more so when it's a #RareCancer. AMEND CEO, Jo Grey #WorldCancerDay

On #WorldCancerDay, we support @ncukcharity in shining a light on #neuroendocrinecancer, an invisible and complex cancer that continues to be missed/misdiagnosed. Read their new report here: bit.ly/4a8r4aw

🚀 Our new app for MEN1 members launched today! The app replaces the MEN1 Member Pack and ensures that patients and carers received the information and support they need as quickly as possible. More information on our website: www.amend.org.uk/new-men1-app...

Knowledge is power. The multilingual #NETInfo factsheet on #RadioligandTherapy helps you understand the treatment and feel ready for it. Available in 15 languages. ✅Download in your language: incalliance.org/net-info-pac... #LetsTalkAboutNETs

Delighted to been involved in this.

International Neuroendocrine Cancer Alliance (INCA)@inca-netcancerday.bsky.social · 9mo ago

📌Take your time and watch the recording of the @enets.org ENETS&INCA NET Cancer Day 2025 Educational Webinar: incalliance.org/the-recordin... 👉Delve in patient-friendly discussions about carcinoid syndrome & heart disease, NEC & genetic syndromes. #LetsTalkAboutNETs #MultipleEndocrineNeoplasia

If anyone is looking for Christmas cards, my partner has made some based on his sister, Sally's, art designs to raise money for the Adrenal Cortical Cancer Support charity (@amenduk.bsky.social). All proceeds go to the charity. sallyz-art.square.site

AMEND Patient Webinar on Medullary Thyroid Cancer (endorsed by the BTA). Expert talks, and a live Q&A from 19:00-20:30 on Wednesday 19th November. Registration essential: zoom.us/webinar/regi... #MTC #MedullaryThyroidCancer #sporadicMTC #medullarythyroidcancer #thyroidcancer

Please complete the 2nd SCAN survey. Please particularly for health professionals. 📊

International Neuroendocrine Cancer Alliance (INCA)@inca-netcancerday.bsky.social · 11mo ago

The #SCAN2025 Global Survey gives patients the chance to highlight challenges & improve care across the world. • Questionnaires available in 15 languages. • Spare 20 minutes to be a changemaker! ✅Take the #SCAN2025 Global Survey today: incalliance.org/scan2025/ #LetsTalkAboutNETs #WeSCAN

Great to be here representing GenNETs, MEN and PPGL syndromes. Wonderful collaborative organisation driven by so many passionate advocates 💪

International Neuroendocrine Cancer Alliance (INCA)@inca-netcancerday.bsky.social · 11mo ago

#INCASummit2025 kicked off in Sofia, Bulgaria, on Sept 8th, gathering representatives of 25 INCA member organizations from all continents, as well as ENETS @enets.org and NANETS @nanets.bsky.social chairs and guests, for 2 inspiring and productive days. #LetsTalkAboutNETs

📢 SAVE THE DATE - The 10th International Adrenal Cancer Symposium #IACS will take place in Brescia (Italy) 16-18 October 2026! Mark your calendars and spread the voice #cureACC #adrenocorticalcarcinoma #adrenaltumour #ENSAT @a5-adrenal.bsky.social @amenduk.bsky.social

Such a fantastic, inclusive and supportive community. Together with our incredible speakers, staff and volunteers, they make the Annual Information Day so special! Huge thanks to all involved. Until next year all! #MEN1 #MEN2 #MEN3 #PPGL #ACC.

Here at #ESE/ESPE2025 in the patient experience zone and always happy to chat. We even have video today! @esendocrinology.bsky.social

📌Join the amazing group of #PrimaryCarePhysicians from 35 countries worldwide who already completed the free online CME-accredited #ThinkNENs Global Educational Program for Primary Care Physicians! ✅Check here and enroll: incalliance.org/think-nens/ #LetsTalkAboutNETs

Just one week left to book FREE 2025 Annual Patient Information Day tickets! Central London, Saturday 31st May. Check out our website for programme and bookings. www.amend.org.uk/patients/sup... #MEN1 #MEN2 #MEN2A #MEN2B #PPGL #phaeopara #pheopara #ACC #adrenocorticalcancer #patientinformation

Research funding opportunity 🔽 @youngdiablo.bsky.social @thyroidbritish.bsky.social @nzammitt.bsky.social @simonhspearce.bsky.social @drpetetaylor.bsky.social @vickiesmith.bsky.social @pituitaryorg.bsky.social @amenduk.bsky.social #thyroid #endocrinology #ResearchFunding #thyroid #endocrinology

Society for Endocrinology@socendocrinology.bsky.social · last yr.

Are you a UK-based researcher? You are eligible to apply for the @britishthyroid.bsky.social #ResearchAward. 📋 There is one month remaining to apply - make sure you don't miss out! ⏰ Find out more and apply by 12am on Saturday 31 May 2025 👉 bit.ly/3YoKEcr

AMEND is pleased to offer this FREE webinar for anyone affected by sporadic #MedullaryThyroidCancer from 19:00-20:30 on 18 June with two premiere medical experts from The Royal Marsden. Register via the following link: shorturl.at/CyFOg #MTC #patienteducation

📌Paul from USA experienced shortness of breath. It took 6 doctors and 3 years before he first learned that he had #pheochromocytoma. 👉Shortness of breath is a very common symptom that can mislead physicians. ✅Get a snapshot in 11 languages: incalliance.org/net-info-pac... #LetsTalkAboutNETs

‼️ Just one month to go until our 2025 Annual Patient Information Day! FREE event for patients with multiple endocrine neoplasia, inherited paraganglioma syndromes and adrenocortical cancer. 💛 www.amend.org.uk/patients/sup... #MEN #PPGL #ACC #patienteducation