AHRQ grant cancellations are no longer theoretical, they're happening. We've heard from many researchers and institutions affected by notices ending continuation funding for ongoing projects. Read what we know so far, why these cancellations matter, and how we're responding.

AHRQ Has Begun Canceling Research Grants. Here's What We Know.

Researchers across the country have begun receiving official notices from AHRQ informing them that continuation funding for their grants will not be awarded.

buff.ly

Looking forward to sharing our work on how telemedicine waiver expiration could contribute to increased burden of in-person care in older adults, recently published in @jamanetworkopen.com: jamanetwork.com/journals/jam...

Jeffrey Pearson@jpearson.bsky.social · 3mo ago

Come to a great session at #ARM26 today at 4pm PT in 4C-1 on access to home health, dental, and telehealth services! academyhealth.confex.com/academyhealt...

Great to present our work on the potential impact of telemedicine waiver expiration on increasing in-person burden of care for older adults in traditional Medicare at #SGIM26!

How would older adults’ burden of care change if Medicare telemedicine waivers expired? Our new @jamanetworkopen.com study examines this question among older adults in traditional Medicare. With @katemmorgan.bsky.social @ishaniganguli.bsky.social: jamanetwork.com/journals/jam...

Telemedicine Reimbursement Changes and Health Care Contact Days for Older Adults

This cross-sectional study examines the extent to which telemedicine days experienced by traditional Medicare beneficiaries may supplement in-person health care contact days and how telemedicine waive...

jamanetwork.com

Attention all who have ever received AHRQ funding to fuel #healthcare research: You have 6 days left to submit expert testimony to the House Appropriations Committee as they consider the agency's future funding. @academyhealth.bsky.social has tips: ahsituationreport.substack.com/p/academyhea...

AcademyHealth Action Resource: Submit Testimony to Congress on AHRQ Funding

Our new resource offers tips and best practices to help you contact lawmakers and advocate for a fully-funded AHRQ.

ahsituationreport.substack.com

My book Coverage Denied: How Health Insurers Drive Inequality is out on 4/23! It’s available through @cambup-polsci.cambridge.org and Amazon, Strand, Powell’s, etc. Out in less than 3 weeks, it combines survey & interview research to explain health ins barriers. www.cambridge.org/core/books/c...

Coverage Denied

Cambridge Core - Epidemiology Public Health and Medical Statistics - Coverage Denied

cambridge.org

darth™️@darthbluesky.bsky.social · 4mo ago

who has a book coming out that people can preorder so they have something to look forward to and then be pleasantly surprised when the book just shows up on their doorstep

🚨 New paper: As a PCP, I often hear from patients that managing their health care feels like a full-time job. To understand this better, we analyzed the first nationally-representative US survey of older adults’ self-reported treatment burden: agsjournals.onlinelibrary.wiley.com/doi/10.1111/...

Treatment Burden Among Older Adults in the United States, 2022

Background Treatment burden refers to the patient-perceived effort of managing health and health care, which impacts quality of life and engagement in care. International studies of treatment burden...

agsjournals.onlinelibrary.wiley.com

ICYMI, out in print this week. While we framed this Viewpoint with optimism, it can conversely be said that eroding health survey infrastructure means we’re flying a little more blind each day on priorities like chronic disease, maternal health, and substance use: jamanetwork.com/journals/jam...

Enhancing Health Survey Infrastructure for Chronic Disease

This Viewpoint discusses an opportunity to promote safeguarding, expanding, and modernizing the national health survey infrastructure as a crucial part of a comprehensive approach to address chronic d...

jamanetwork.com

NSDUH is one of the only ways we can track trends in substance use in the US. NSDUH is one of the only ways we can track adolescent mental health problems in the US. We cannot afford to fly blind on these critical issues.

@reginalabelle.bsky.social · last yr.

The entire SAMHSA staff that manages the National Survey on Drug Use and Health has been terminated. This is the only survey that tracks mental health and substance use trends in the US. We really are flying blind now.

One big thing that AHRQ does is run the Medical Expenditures Panel Survey. This may sound like a trivial thing if you are outside the field. But the Congressional Budget Office relies on this information when modeling health policy changes. That is a huge deal.

Adrianna McIntyre@adrianna.bsky.social · last yr.

Missed this story last night portending something bad for AHRQ AHRQ fills a hugely important void in the medical and health care research space: it funds work that doesn't map cleanly to a disease, body part, or special population (e.g., older Americans) www.politico.com/news/2025/03...

Many more pieces like this could be written to show the impact of sustained federal investment in US biomedical research. This one has a great table highlighting the role of NIH funding in some of our greatest gains against chronic disease in the past 80 years. www.ahajournals.org/doi/full/10....

1. Today the NIH director issued a new directive slashing overhead rates to 15%. I want to provide some context on what that means and why it matters. grants.nih.gov/grants/guide...

We just launched a 16TB archive of every dataset that has been available on data.gov since November. This will be updated day by day as new datasets appear. It can be freely copied, and we're sharing the code behind it to help others make their own archives of data they depend on.

Announcing the Data.gov Archive | Library Innovation Lab

Today we released our archive of data.gov on Source Cooperative. The 16TB collection includes over 311,000 datasets harvested during 2024 and 2025, a complet...

lil.law.harvard.edu

The intensity and seriousness of cancer care has prompted attention to the wide-ranging impact of "time toxicity" of care on patients and caregivers. We would benefit from improved understanding of such burdens and their tradeoffs in other areas as well: jamanetwork.com/journals/jam...

Patient, Caregiver, and Clinician Perspectives on Time Burdens of Cancer Care

This qualitative analysis explores time-consuming aspects of cancer care that were perceived as burdensome, identifies the individuals most affected by the time burdens of cancer care, and evaluates t...

jamanetwork.com

"If someone had asked us in the summer of 2021 what we most needed to facilitate Mom’s healing and well-being, our wish list would have been modest." So often our health care system fails to live up to its name of providing care: www.healthaffairs.org/doi/full/10....

The Idea Of A Good Daughter | Health Affairs Journal

A public health professor and her mother failed to receive long-term care support from the health care system when they needed it most.

healthaffairs.org

Want to see if your research has had an impact on public policy? Enter your info in SagePolicyProfiles to see the citations of your own publications in policy documents. You get a profile page. Here is mine as an example: policyprofiles.sagepub.com/profile/5920...

I didn't know any of this policy story - worth the read. TL;DR 1980s regulatory changes enabled monopsony behavior by big chains, basically destroying the small local grocer.

Stacy Mitchell@stacyfmitchell.bsky.social · 2y ago

1. The conventional explanation for food deserts—that these places are too poor or too rural to generate enough spending on groceries, or too Black to overcome racist corporate redlining — fail to grapple with a key fact: food deserts didn’t used to exist. My new piece in The Atlantic.

As the baby boom generation enters its prime years for long-term care needs, its difficult to come up with a more challenging backdrop than an immigration system about to be cut off at its knees (think: nursing home aides) and states having to fill in funding gaps from Medicaid spending shortfalls.

Joan Alker@joanalker1.bsky.social · 2y ago

As press reports continue to highlight the debate within GOP Congressional leaders as to whether they should block grant Medicaid to pay for their tax cuts, it is worth highlighting that there are 11.7 million seniors/PWD on Medicare + Medicare. The so-called "Dual-eligibles".

A lot to think about in this review from a research perspective - what are the essential components of the underlying concept of "decision fatigue"? How do we operationalize that definition? How does this concept apply not only to clinicians, but to patients and caregivers?

Samir S. Shah@samirshahmd.bsky.social · 2y ago

1/🧵 Exploring #DecisionFatigue in 🏥 settings I found this scoping review interesting. Although this topic is important, I hadn't given it much thought despite feeling its weight on many occasions while attending on clinical service #MedSky shmpublications.onlinelibrary.wiley.com/doi/full/10....

#NewLitHighlights #HealthPolicy Nurse practitioners and physician assistants are now responsible for over a quarter of outpatient visits in traditional Medicare - still a lot of room to understand how to optimize their role in clinical care: www.bmj.com/content/382/...

Great advice on making the most of the shifts between clinical and research time as a clinician-investigator, applicable to folks at multiple levels. Wish I'd seen some of these tips before learning them the hard way! (via @BryantShuey) jamanetwork.com/journals/jam...

Preparing to Attend on the Inpatient Medical Wards

Transitions are a way of life in academic medicine. While much has been written about these changes, less attention has been devoted to a more common shift: the

jamanetwork.com

If you've got any research (even in the pipeline) that might help better understand the effects of anti-obesity medications on health care and other federal spending, CBO wants to see it: www.cbo.gov/publication/...

Not so many people here discussing #FDAPolicy #RxPolicy yet, but this one will be one to follow - for the first time, FDA exercises its FDORA power to expedite withdrawal of drugs initially approved via accelerated approval: www.bloomberg.com/news/article... #HealthPolicy

FDA Tests New Power to Pull Some Fast-Tracked Drugs Off Market

Its first target is a cancer treatment from Oncopeptides given accelerated approval in 2021, which has since faced a study questioning its effectiveness.

bloomberg.com

PSA: deck.blue is basically a clone of Tweetdeck for BlueSky—it even lets you curate personal lists, independent of feeds If you haven't used any bsky apps before, you need to create an "app password" (under Settings > Advanced) to log in

This looks like it will be an excellent opportunity to better understand how a wide and diverse range of people contribute to dementia care and its associated outcomes - I'll be looking forward to getting my hands in the data.

Donovan Maust@dtmaust.bsky.social · 3y ago

Working with the tremendous Dr. @joannespetz.bsky.social at UCSF, the survey pros UM SRC, and a superstar team of co-investigators, we have the extraordinary privilege of launching the National Dementia Workforce Study (NDWS). You can read more at the other place: x.com/dtmaust/stat...

#HiSciSky! I'm an #PrimaryCare physician and health services researcher studying prescribing and medication use to improve quality of care for older adults. Interests include #GIM #Geriatrics #Deprescribing #RxEpi #HealthPolicy #RxPolicy. Looking forward to connecting with friends old and new!

Any time you are tempted to dismiss descriptive research as unimportant, keep in mind: a medical diagnosis is a description. "You have lymphoma" seems like an important thing to know, right? Describing our world is important.

Great to see our recent study covered in ⁦@statnews⁩ by @TaraBannow⁩ - we found over 1/3 of both physicians and APCs received industry payments in 2021: https://www.statnews.com/2022/10/31/advanced-practice-clinicians-industry-funding/

Advanced practice clinicians slightly more likely to take...

A slightly higher share of advanced practice clinicians t...

statnews.com

We know industry payments to physicians are common, but what about the nurse practitioners, physician assistants, and other APCs critical to patient care? New paper out in @JAMA_current with @TimAndersonMD: https://jamanetwork.com/journals/jama/fullarticle/2798217

"Recommendations for outcome measurement for deprescribing intervention studies" (@DeprescribeUS Measures Working Grp) - lack of standardization in deprescribing measures poses challenges to interpretation, with many opportunities for further development:...