Benjamin Stecher

@benjaminstecher.bsky.social

Associate Director of the Silverstein Foundation for Parkinson's with GBA as well as Chair of the Patient Advisory Board to Rune Labs.

What a huge contrast between their bravery & the lack of courage in the field to admit that the reason there are no therapies might be that our favorite theories are not good enough. Many would rather peddle false hope than confront the possibility of being wrong. www.nytimes.com/2024/12/22/h...

A Woman With a Rare Gene Mutation Fights to Avoid Her Mother’s Fate

A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?

nytimes.com

Below is a video of me doing some split belt training in front of a screen this past Tuesday. I found it to be a novel and fun environment to do some dual task exercises. There is definitely something to having to think about each step while doing some basic skills that helps...

This looks awesome, exactly what the Parkinson's community needs, thank you Detroit Tigers's legend kirk gibson for spearheading the development of this wellness center. Next time I'm in the Detroit area definitely will come take a look. www.detroitnews.com/story/sports...

'Let's fix it': Tigers legend Kirk Gibson unveils plans for Parkinson's center

The center, to be located in Farmington Hills, will offer services for free, starting 2025, focusing on movement-based and cognitive therapies.

detroitnews.com

I asked meta.ai to Draw a funny greeting card that depicts a snowman with Parkinson's disease that says: "Hope this wintery weather isn't wreaking too much havoc on your symptoms." This was the best I got, oh well. Season's greetings y'all ;) ☃️❄️

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What an incredible episode of Stimulating Brains from Prof. @andreashorn.org with guests Prof. Susan Boehnke and astronomy CEO Mark McAuley. They covered a lot of important ground from Mark's Parkinson's diagnosis to the challenges he faced getting DBS to.. stimulatingbrains.org/63-mark-mcau...

#63: Mark McAuley & Susan Boehnke – Patient-led Research, Patient-Centered Care and Neuroscience Education – Stimulating Brains

stimulatingbrains.org

First post on BlueSky seems apropos for a big announcement. I have joined the Silverstein Foundation for Parkinson's with GBA as their new Associate Director! One of my roles will be helping identify the next round of fellows to join the program. Details to come, follow me for more info...