It's hard to believe that something like this had to written but here we are.

Open Notes Labs@handle.invalid · last yr.

Public comment, and health transparency, matters. Read our opinion on Robert F Kennedy Jr's recent attempt to eliminate public comment requirements for key decisions of the HHS in @bmj.com @thelizarmy.bsky.social @cait-desroches.bsky.social www.bmj.com/content/389/... #medsky #cansky #btsm

More proof that we are living in the stupidest timeline.

The New York Times@nytimes.com · 2y ago

Robert F. Kennedy Jr. has suggested allowing bird flu to spread, so as to identify birds that may be immune. Veterinary scientists said that would be inhumane, dangerous and have enormous economic consequences.

We did TWENTY focus groups with patients, care partners, and clinicians to understand what they think about having sensitive information documented in the EHR. I think it's pretty timely!

Open Notes Labs@handle.invalid · 2y ago

Amidst the censorship of many federal health websites, our recent report on Social Determinants of Health (SDOH) was affected. We were able to bring this study to the public despite the interruptions. Read more from @techtargetnews.bsky.social: www.techtarget.com/patientengag... #medsky #health

Took a break tonight from this interminable month and it’s news cycle to see this absolute legend - Jim Kweskin. Live music - it’s good for what ails you. @ahgra.bsky.social

In honor of pets & #DressUpYourPetDay I give you Rosie, Leo, and Chicken in their hoodies. Also, check out this gem shorturl.at/IvnIW written by our own @thelizarmy.bsky.social @opennotes.org #dogsky

Best decisions of 2024 - finally watching Reservation Dogs and foster failing with this little tyrant 👇 #dogsky

@ctlin.bsky.social are you ready??

Open Notes Labs@handle.invalid · 2y ago

Health anxiety can be terrifying. 🫠😵‍💫 That’s why #OpenNotes launched a new study to help cancer patients manage "scanxiety"—the stress of awaiting test results. “We are working towards a future where patients feel more supported.” @cait-desroches.bsky.social bit.ly/3DjlxQN #btsm #cancer #medsky

With public trust in the healthcare system declining, transparency becomes even more critical - when AI is part of decision making and care, patients and families want and deserve to know. @opennotes.org

Scott McGrath@smcgrath.phd · 2y ago

🧪 Nearly 63% of US adults value being notified of AI use in healthcare, with women and older adults most concerned. Transparent practices tailored to diverse needs can build trust. 🩺💻 #MLSky

I’m planning my budget for health tech conferences in 2025. Registration costs for academics like me and non-profits: Conf A: $2,395 Conf B: $3,000 Conf C: $5,000 Who benefits from these fees? 🤷‍♀️ IDK but it’s probably not patients and clinicians.

At Node Health’s Digital Medicine conference talking about “Navigating the New Frontier: Responsible AI and AI Guardrails" w/ Lucy Orr-Ewing and Nirav Shah. Also - @chethan.bsky.social! #DigitalHealth #AI #HealthInnovation #MedSky #OpenNotes

Why don’t we talk about Sir Paul’s Wonderful Christmastime instead of complaining every year about Wham?

Chihuahua in the house = no privacy

She’s the biggest and best Chicken. He’s the smallest Chicken (but with a big attitude)👇. Both connected to @mspca-angell.bsky.social

MSPCA-Angell@mspca-angell.bsky.social · 2y ago

Chicken is the goodest gal helping our pups ❤️ 🐶 ❤️

What do patients and clinicians think about how social drivers of health are recorded and shared in their medical records? New research from @myopennotes.bsky.social 👇 helps to answer the question. jamanetwork.com/journals/jam... TL/DR - it's all about trust.... #medsky

Who did we forget to add to the @myopennotes.bsky.social Starter Pack?! I mean, we got @cait-desroches.bsky.social and @ctlin.bsky.social in there, and that's all that matters really. 😆 #opennotes

Went to the Sturgill Simpson show on Saturday. 3 plus hours of hard to easily categorize music. Also so much flannel and so many beards. #turtlesallthewaydown @stmacdonald.bsky.social

Optimist: the cup is half full Pessimist: the cup is half empty Engineer: the cup is twice as big as it needs to be

Lesley A Hall@erinacean.bsky.social · 2y ago

Optimist: the cup is half full Pessimist: the cup is half empty Archivist: either way, it is not permitted in the Reading Room

Where are my #healthpolicy nerds? Yesterday I got to listen to the great Dr. Carolyn Clancy AND got to meet her! I tried not to fangirl and failed. Thanks to #Abridge for putting together such a great event.

And we learned that Andy Warhol guest starred on the Love Boat! #Issacthebartender

Liz Salmi@thelizarmy.bsky.social · 2y ago

What are @chethan.bsky.social @cait-desroches.bsky.social and @stmacdonald.bsky.social all doing with me in Pittsburgh (besides enjoying fantastic food)? We’re building “a-bridges” with other health system leaders on @myopennotes.bsky.social. 🥁ba-dum-dum #rimshot #opennotes

Introducing myself. I left the other place when the oligarch took over & have been on a social media fast since then. I'm a health care/data nerd and director of @myopennotes.bsky.social. i really like baseball, dogs, and backcountry adventures. Pics of my dogs for fun - yes, the Yorkie is eyeless.