Have questions about cancer care? You may have to wait until your next appointment, but some patients are turning to AI chatbots. Learn more about the potential and risks of AI for medical information in Cancer Today. buff.ly/MbVhUrK @stephenornes.bsky.social @thelizarmy.bsky.social

@thelizarmy.bsky.social offers insights from beta-testing OpenAI’s new Health GPT. As a longtime advocate for healthcare transparency who shares her health records publicly, she urges others to think critically before doing the same. Read more in @stat-statnews-com.1440.news:

Why I decided to share all my health information with ChatGPT Health

“I don’t think people should have to go through 18 years of brain cancer to understand their own health records,” writes Liz Salmi.

statnews.com

Spring school semester kicked off today! Feels weird taking philosophy without being able to back channel with @adammarc.bsky.social. Missing him every day. #btsm #braincancer

I spent the weekend taking OpenAI’s new #HealthGPT for a spin. 🤓 Naturally, I connected 3 health systems, uploaded a 4,800-page PDF of my medical history & ran my own mini-study with custom prompts. Curious about the experiment, my “protocol” & what didn’t work? www.thelizarmy.com/blog/my-firs...

Patients are increasingly using generative AI. @hugoc.bsky.social and @thelizarmy.bsky.social introduce “Critical AI Health Literacy” as a new skill set for patients seeking agency and equity in the digital age of medicine. Read more on @nam.edu: nam.edu/perspectives... #PatientsUseAI #MedSky

The name of the game is "Publish or Perish" and some of our team's researchers have been playing it for decades. In October, @ctlin.bsky.social, @thelizarmy.bsky.social and @epatientdave.bsky.social gathered in our Boston office and played this all-too-real board game from @chethan.bsky.social.

Adam Hayden, a prolific observer of his own condition, took a bad situation and did ‘good things with it’ RIP @adammarc.bsky.social 💔 #BTSM @thelizarmy.bsky.social @sabine-nj.bsky.social @mcintose.bsky.social @shawncarey42.bsky.social @stuartselby.bsky.social www.statnews.com/2025/12/22/a...

An advocate who offered a window on the experience of living with brain cancer dies at 43

Adam Hayden, a patient advocate and the subject of an earlier profile in STAT, has died at age 43.

statnews.com

A first-person remembrance of @adammarc.bsky.social—brain cancer advocate, writer, punk philosopher & dear friend. Our friendship shaped my approach to survivorship through his guiding truth: “The best way through fear is familiarity.” www.thelizarmy.com/blog/adam-ha...

NEW: Solutions for Increased Adoption of #PatientPortal Shared Access: A Human-Centered Design Approach Using the Double Diamond Model www.thieme-connect.de/products/ejo... #MedSky #HumanCenteredDesign #HCI #usability @thelizarmy.bsky.social @cait-desroches.bsky.social @opennotes.org

We are incredibly grateful for the community we have created - it's time to say goodbye to our regularly scheduled chats. With ❤️, the #BTSM chats co-founder & organizer team @thelizarmy.bsky.social @sabine-nj.bsky.social @mcintose.bsky.social @shawncarey42.bsky.social @stuartselby.bsky.social

If you've known OpenNotes since the beginning, you know Tom Delbanco, MD. For 55 years, he has been transforming primary care. Register for his upcoming Grand Rounds Lecture: bit.ly/46HXlT2 📅 Thursday, October 16th ⏰ 8am to 9am Eastern 📽️ Recording available 🎟️ Free #MedSky #WhyInformatics

About how many patients are using AI to receive health information? 1️⃣ Approximately 1 in 7 adults over 50 according to University of Michigan 2️⃣ Around 1 in 4 adults under age 30 according to @kff.org Read more from @thelizarmy.bsky.social in @npr.org: www.npr.org/sections/sho... #PatientsUseAI

Running your lab results by ChatGPT? Here's what to keep in mind

While patients wait to hear back from their doctors about test results, many turn to AI assistants for answers. There are issues with privacy and accuracy.

npr.org

It's @thelizarmy.bsky.social's first day back at school! Liz Salmi, AS, has first-authored and co-authored 30 peer reviewed articles in prominent journals like @jama.com and @jmirpub.bsky.social We can't wait to see what Liz does next as a pioneering patient-researcher. #MedSky #BTSM #CanSky

Liz Salmi@thelizarmy.bsky.social · last yr.

After 18 years away (thanks, #braincancer), I'm going back to school! My major has now changed from Communications to Cognitive Science. Wish me luck! TL;DR: I'll still be working 2 days/week with @opennotes.org, and going to school full time. Details: www.thelizarmy.com/blog/im-goin...

After 18 years away (thanks, #braincancer), I'm going back to school! My major has now changed from Communications to Cognitive Science. Wish me luck! TL;DR: I'll still be working 2 days/week with @opennotes.org, and going to school full time. Details: www.thelizarmy.com/blog/im-goin...

Our own Dr. Sigall Bell has been named by Becker's Hospital Review as a Patient Safety Expert to Know. Dr. Bell has.... 👏 Trained over 1,000 clinicians in disclosure practices 👏 Developed the “OurDX” diagnostic engagement tool Read more: www.beckershospitalreview.com/hospital-man... #MedSky

132 patient safety experts to know | 2025 - Becker's Hospital Review | Healthcare News & Analysis

The following patient safety experts are unwavering champions for patient harm reduction, disease management and disaster preparedness. Representing various roles across hospitals, health systems and ...

beckershospitalreview.com

Quite a few patient advocates know I’m a go-source for PDF copies of paywalls articles. #academicsky

a cartoon robin hood is standing in the woods with his arms outstretched .

ALT: a cartoon robin hood is standing in the woods with his arms outstretched .

media.tenor.com

Thanks so much @clarefuller.bsky.social Loved partnering with my amazing friend @thelizarmy.bsky.social on this one. Excited for our chat!

Clare Fuller@clarefuller.bsky.social · last yr.

This is just brilliant @drjrubenstein.bsky.social I am looking forward to talking with you soon & learning more about the stories & inspiration behind your work www.youtube.com/watch?v=0Tlm...

@thelizarmy.bsky.social and @cait-desroches.bsky.social sit down with @colinhung.bsky.social of @swaay.health to dispel misconceptions about open notes. Not only are open notes not a detriment — they are actually beneficial to patients and clinicians. Listen in: swaay.health/2025/07/21/w...

What If Patients See Their Notes First? | Swaay.Health

Clinicians write thousands of notes. For years, patients rarely saw them. But in the U.S. it's now the law that patients can access their clinical notes. So what happens when they do? Turns out, they’...

swaay.health

Y'all...my pilot study just reached 100 participants. Entirely social media-based recruitment (2 waves); but the engagement, reception, and quality of participation far exceeded my expectations after the IRB saga. Wow. This is filling my cup during these dark times for science. #PhDSky #AcademicSky

a man in a suit and tie is making a funny face in front of a window .

Alt: Michael Scott looking moved and touched.

media.tenor.com

Enough time has passed that I feel its OK to share this great email I received from my boss many months ago: "The response to the reviewers is 🤟🔥🔥🔥." One of my proudest moments. #academicsky

“Most people don’t speak radiology,” @thelizarmy.bsky.social said. “When I have received imaging results on my own, the technical language can feel impenetrable. It can be confusing, scary, or misleading.” Read more: www.uchealth.org/today/can-ai... #cansky #medsky #btsm #patientexperience

Can AI translations of medical test results reduce confusion and anxiety for patients?

Can AI translations of radiology reports reduce patient confusion and anxiety? Two studies explore how AI helps decode complex test results.

uchealth.org

Thanks, @theabta.bsky.social and the incomparable @thelizarmy.bsky.social for today's engaging webinar on participating in research and the clear message that we can all participate! Liz, I love your reminder that we all have the capacity to be curious and become researchers as we explore! #BTSM

Every day is #BringYourCattoWorkDay when your office is wherever your laptop is—and when your cat is Mark. He’s a quiet, judgment-free partner when I’m reading new research or editing manuscripts, which is more than I can say for some peer reviewers. #reviewer2 #reviewerMew #academiclife

More from the AMIA Clinical Informatics Conference #CIC2025 @thelizarmy.bsky.social with Rob Turer @scottmacdonald86.bsky.social and Bryan Steitz Read their latest paper on refresh and messaging behaviors as possible signs of patient anxiety. 😵‍💫 www.opennotes.org/research/rep... #medsky #cansky

When you get great minds in a room, that's when innovation happens! @chethan.bsky.social and @thelizarmy.bsky.social saw Christopher Longhurst, Executive Director of Jacobs Center for Health Innovation @jchi-ucsd.bsky.social at the AMIA Clinical Informatics Conference #CIC2025 #medsky #cansky

Honored to be a part of this community. Thanks, @thelizarmy.bsky.social for introducing me to #BTSM in 2014, onboarding me in 2018, and passing on the baton in 2023. @mcintose.bsky.social, @shawncarey42.bsky.social, @stuartselby.bsky.social and I will do our best to keep this movement going.

Brain Tumor Social Media Chat@btsmchat.bsky.social · last yr.

#BTSM is celebrating 12 years of chats TODAY! 🥳🎉 The inaugural chat took place on May 19th, 2013. Thank you, Charlie Blotter and @thelizarmy.bsky.social for getting this movement started. We have helped + interacted with hundreds of individuals over the years. (Graphic by @stuartselby.bsky.social)

#BTSM is celebrating 12 years of chats TODAY! 🥳🎉 The inaugural chat took place on May 19th, 2013. Thank you, Charlie Blotter and @thelizarmy.bsky.social for getting this movement started. We have helped + interacted with hundreds of individuals over the years. (Graphic by @stuartselby.bsky.social)

Maybe the real impact factor is the friends we made along the way. #academicsky

🚨 Registration ends today, April 30th, at 3pm PDT, 6pm EDT! AI Topics, Tools, and Use Cases for Serious Illness Care with @thelizarmy.bsky.social @epatientdave.bsky.social and @gracecordovano.bsky.social 🗓️ Thurs, May 1, 2025 🕝 10:45am PT Sign up here: coalitionccc.org/CCCC/Educati... #cansky