Missed actual sunrise but caught the pre-party!

I am not ignoring this reality. I am simply choosing to save all my shouts of "WTAF" for when I head to the ocean for a cleansing breath. Here's the moment, sans audio

Embracing the energizing and restorative powers of nature this evening

Taking a deep breath, maybe two, before we turn the page on 2025

"Down by 400, 500, even 600 percent." I didn't watch but from what I've read it feels like I'm not going to be getting the prescription "rebate" I was hoping for back in August 🙃

Stacey Tinianov, MPH@coffeemommy.bsky.social · last yr.

Wow! "Down by 1200% Down by 1500%" I'm so damn excited to start getting paid to fill my prescriptions. 😑 #CanSky #MathMatters

Mid-week into hot-off-the-press research results at the annual @sabcs.bsky.social Grateful to be sharing space and hugs with fellow advocates and colleagues 💗 #SABCS25

Thrilled to be part of this #SABCS25 Special Session looking at lifestyle factors including alcohol consumption & obesity along w/ genetic factors to provide more insight & guidance on relevance to cancer risk & outcomes Join us tomorrow, 12/9 at 11amCT to discuss! @drkristyabrown.bsky.social

💗 Winter sunsets are phenomenal

We specialize in bringing patient voices to research; we're awesome at connecting dots btwn research & clinical care; we excel at amplifying voices & pushing for equitable access to quality care; we're all about quality-of-life. And yes, we suck at selfies! 💗 @jillfeldman4.bsky.social #ASTRO25

Looking forward to learning "all the things" at my first @astro-org.bsky.social annual meeting. Started off on the right note when the woman at registration said, "Thank you for your advocacy. Go patient advocates!" and literally punched the air! 🥹 #ASTRO25

Looking forward to this conversation on Thursday. Ultimately, we want to strengthen the role of advocates in the oncology space — ensuring that individuals' lived experiences and professional expertise can help shape the future of research and healthcare. #CanSky #OncSky

Advocates for Collaborative Education@advocatecollab.bsky.social · 11mo ago

Patient advocates are generally underutilized in research and definitely under compensated - this will be a topic of discussion and exploration in our next general meeting on September 11th 10amPT/1pmET - invites should be in your inboxes!

For those individuals who somehow remain confused or offended by the term "white privilege" - THIS ⬇️ If someone "looks Latino" the government can detain them. White people don't have to worry about that and THAT lack of concern is a "privilege" in this country today.

Mark Joseph Stern@mjsdc.bsky.social · 11mo ago

BREAKING: By an apparent 6–3 vote, the Supreme Court halts an injunction that had prevented immigration agents from racially profiling Latinos in central California. Sotomayor, dissenting, says the decision is "unconscionably irreconcilable with our nation's constitutional guarantees."

For those dealing with the treatment-induced, menopause-y side effects of treatment for HR+ breast cancer like hot flashes and REALLY crappy sleep, this is a very interesting (and hopeful!) study #CanSky #MakeCancerLessShitty #QoL

Still orienting myself on this platform after 15 yrs on the other one. Looking for my fellow cancer patient advocates / research advocates located in the San Francisco Bay area - who else has made the jump? #bcsm #crcsm #gyncsm #lcsm #cancer #CanSky #OncoSky #OncSky #WhatAreTheCorrectHashtagsNow

"Not the kind of hope that pretends everything’s fine, but a hope that’s laced with determination and innovation through action" ~ Dr. @fumikochino.bsky.social on moving forward in cancer (in life!) under today's reality Advocates are used to swimming upstream; so are our healthcare teams #CanSky

Fumiko Ladd Chino, MD FASCO@fumikochino.bsky.social · 12mo ago

We have agency. We can speak up. We can show up. Advocating for cancer care means speaking to legislators, bringing patient stories to the front lines of policymakers, supporting & amplifying each other to continue to do the work that changes outcomes. ➡️ @oncoalert.bsky.social @statnews.com

Fuck cancer Fuck treatment toxicities Missing friends Mourning an imminent loss Angry as hell Yelling into the digital void and searching for peace and acceptance through art and nature 💔 #CanSky #MakeCancerLessShitty

Wow! "Down by 1200% Down by 1500%" I'm so damn excited to start getting paid to fill my prescriptions. 😑 #CanSky #MathMatters

Quick visit to Colorado! Watching my 55-year old husband's wide-eyed excitement as we pulled up and hearing him giggle like a 5-year old all evening long was absolutely worth the online reservation hassle AND the price tag Thanks @casabonitadenver.com for a successful trip down memory lane!

A pleasure and an honor to join @fumikochino.bsky.social & Dr. Ethan Ludmir in this @ascocancer.bsky.social conversation on incomplete reporting and toxicity- minimizing language in oncology! 💗

Fumiko Ladd Chino, MD FASCO@fumikochino.bsky.social · last yr.

“When choosing cancer therapies, people should not have to choose between being alive & living”   Toxicity minimizing language ("safe” & “tolerable”) are subjective & can downplay QOL limiting side effects from treatment. 🚨New @ascocancer.bsky.social Podcast is live today! @coffeemommy.bsky.social

Whether you're a Coach Prime fan or not, super hard not to be a fan of the human in this moment. Cancer sucks & those who openly share their realities not only break down social stigma but also help others feel less alone 💗 All the best to Deion Sanders (and #SkoBuffs) #CanSky #MakeCancerLessShitty

Phil Lewis@phillewis.bsky.social · last yr.

Deion Sanders jokes he “depends on Depends” and “if you see a Port-a-Potty on the sideline, it’s real.” He also encourages everyone who is dealing with urinary struggles, and says “let’s stop being ashamed of it”

Hope to see many of you on the call later this week! ♥️ @bobriter.bsky.social @gotchascaccia.bsky.social @gitteilc.bsky.social @raalbany.bsky.social @stageivsurvivor.bsky.social @arosen380.bsky.social @jillfeldman4.bsky.social @terrylynnarnold.bsky.social @barbarasegarra.bsky.social

Advocates for Collaborative Education@advocatecollab.bsky.social · last yr.

Join us for a mid-summer update on our projects, our publications & presentations, our sponsors, and ways you can become more involved in @advocatecollab.bsky.social All members should have an invite for July 17th at 10amPT / 1pmET. If you're not yet a member, join us here forms.gle/VWT7MZHEc5qh...

Bringing this one back out and putting it on repeat because, while nature soothes me, I realistically can't stand next to the ocean every waking minute TY Avett Brothers for the anthem 💗 m.youtube.com/watch?v=zz0J...

The Avett Brothers - Ain’t No Man (Official Video)

YouTube video by theavettbrothersVEVO

m.youtube.com

Thank you Sesttle! After a fabulous time at #MASCC25, I'm heading home with a full heart & mind. Grateful to all those working to improve supportive care in cancer & thrilled to have had yet another opportunity to share our advocate-led research on the main stages! Safe travels to all 💗

We start anti-cancer therapies at the highest dose but start supportive care interventions at the lowest dose... WHY? asks @evaschumacherwulf.bsky.social #MASCC25 #QoL

"Common and uncommon toxicities: Perspectives and solutions from patient partners" Excited to hear from @scottcapozza.bsky.social @evaschumacherwulf.bsky.social @doublewhammied.bsky.social & others And then to share our @advocatecollab.bsky.social research #MASCC25

Kicking off Day 2 of #MASCC25 with "Workshop 3: Beyond Survivorship 101: Building advanced skills in survivorship care" led by Dr Larissa Nekhlyudov, @darcyburbage.bsky.social and @michael-jefford.bsky.social

Shout out to @stage4kelly.bsky.social on her e-poster presentation on the Patient Centered Dosing Initiative at #MASCC25 And kudos to all co-authors and supporters of PCDI

The indomitable @fumikochino.bsky.social highlighting Financial Toxicity: From Data to Practice and Policy Change in Plenary Session 1. Calling out practical solutions to a huge issue (like free patient parking, streamlined visits and appropriate telemedicine that limit time off from work) #MASCC25

Kudos and gratitude to the organizers, attendees, and fellow faculty members for today's Workshop 1: Partnering with patients in managing chronic toxicities of cancer and its treatment #MASCC25 @maryamlustberg.bsky.social @tingtingzhang.bsky.social @ericroeland.bsky.social @brueraeduardo.bsky.social

A wildfire sunrise - easily recognizable after two decades of California living Beautiful but so much destruction behind (and in front of) it Safe travels to those leaving #ASCO25 & good energy to those dealing with the wildfires in Canada 💗