Desi Jones

@desirjones.bsky.social

Assistant Professor at UMD | autism, stigma, intersectionality, and Black neurodivergent experiences | Wellesley College Alumna | #ADHD cat mom

Dozens of rigorous studies with millions of children show vaccines don’t cause autism, as health organizations around the world and the leading autism organizations recognize. RFK Jr. and Acting CDC Director Jim O’Neill are a danger to science and public health. autisticadvocacy.org/2025/11/kenn...

Kennedy’s lies endanger public health and the disabled community

The science is clear. As the American Academy of Pediatrics stated, “Since 1998, independent researchers across seven countries have conducted more than 40 high-quality studies involving over 5.6 mill...

autisticadvocacy.org

Why it's important to push back against the dangerous #ProfoundAutism label; + CN: Suicide: "Stereotypes created by 'Profound Autism' risk denying suitable support from many Autistic persons, which will predictably result in more Autistic suicides." thinkingautismguide.com/2023/09/grav... #autism

Grave Concerns About Profound Autism

The label "Profound autism" bungles the support needs of autistic people with complex disabilities, and will endanger autistic lives.

thinkingautismguide.com

On autistic masking: "people can reflect & develop a deep self-awareness and understanding of your own needs, but without society being a safer place for autistic people, the onus on autistic people to unmask is cruel at best & incredibly dangerous at worst." thinkingautismguide.com/2023/11/beyo...

Beyond Masking and Towards Supporting Autistic Authenticity — THINKING PERSON'S GUIDE TO AUTISM

Dr. Amy Pearson on why the ability to express one’s authentic autistic self is much more complicated than an individual choice to unmask.

thinkingautismguide.com

If Robert F. Kennedy the Lesser's Big September Announcement "does indeed come out favoring folinate or folate as a 'cure' or 'treatment' for autism, then move over ivermectin bc there’s gonna be a new grift in town." @ejwillingham.bsky.social in the TPGA Newsletter: buttondown.com/TPGA/archive...

RFK Jr's big September autism announcement | What autistic students want

RFK Jr is obsessed with mitochondria, probably thanks to the wellness whisperers around him.

buttondown.com

Black autistic adults are too often left out of conversations about stigma and autism. Our new paper shows how stigma is shaped by race, gender, and sexuality, creating unique challenges for Black autistic adults, women, and LGBTQ+ autistic people. www.liebertpub.com/d... 1/2

“I’m Kind of Stuck in the Middle. I Don’t Know Where to Go”: Race, Autism, and Intersectional Stigma Among Black and White Autistic Adults | Autism in Adulthood

Background: Autistic adults frequently experience social stigma, which may be compounded by additional marginalized identities such as race, gender, and sexual orientation. Black autistic adults, in particular, may face unique challenges at the intersection of racial bias and autism stigma. However, the experiences of autistic people with intersecting marginalized identities remain underexplored in research, contributing to a limited understanding of stigma’s impact across diverse communities. Methods: We used qualitative methods to explore how intersecting identities shape autistic adults’ experiences of stigma and marginalization, with an emphasis on Black autistic adults. In total, 32 autistic adults (16 Black and 16 White) completed a semi-structured interview regarding their social experiences. Participants shared recent stories of peer exclusion, acceptance, discrimination, and support that they had experienced, as well as their feelings surrounding these events. We recorded and transcribed these interviews and used an inductive, or data-driven, approach to thematic analysis to identify salient themes in the data. Results: We generated three intersectional themes, which encompassed the unique impact of stigma on those with intersecting identities. Specifically, these themes included: (1) identity-based discrimination shaped by race, gender, and LGBTQ+ status; (2) challenges in obtaining and processing an autism diagnosis; and (3) difficulties navigating personal identity, particularly among Black autistic participants. While autistic adults broadly reported stigma experiences, Black participants often described layered forms of exclusion related to both their race and autistic traits. Across racial groups, women and LGBTQ+ participants also reported distinct forms of marginalization and erasure. Conclusion: These findings highlight how autism stigma intersects with other marginalized identities to shape social experiences. Black autistic adults, along with autistic women and LGBTQ+ autistic people, may encounter compounded barriers to acceptance, identity development, and belonging. These results underscore the need for more inclusive research and supports that attend to the diversity of autistic experiences.

liebertpub.com

Think Elon Musk is out of Washington? Think again. DOGE is quietly building a massive data collection system designed to centralize unprecedented access to your personal information Social Security, taxes, medical diagnoses, and more.

Still fuming about that press conference. The way RFK Jr. talks about autism is not just scientifically wrong—it’s deeply offensive. Calling autistic kids "damaged" or implying they’ve been "lost" or "stolen" doesn’t just spread misinformation—it dehumanizes real people.

One way to be Autistic and Living the Dream is to have your first first-authored paper published (in the top autism journal @autisminadulthood.bsky.social) on Autism Acceptance Day! Congratulations @kmunday.bsky.social & important research on autistic adults' experiences with substance-use services.

Katie Munday@kmunday.bsky.social · last yr.

I'm super excited that my first first-author journal is published in Autism in Adulthood! "Improving Substance-Use Services for Autistic Adults: Insights and Recommendations from Autistic Adults" w/ @emergentdivergence.com , Chris Papadopoulos & Tanya Adkin. www.liebertpub.com/doi/10.1089/...

This is silly, but just the idea of having my own lab has brought me so much joy. I just got keys to the space and filmed a little walkthrough video for my mom and husband. Can't wait to get things set up 🙂

FRIDAY: Join @standupforscience.bsky.social rallies around the US to protest funding cuts, illegal firings, and censorship of scientists. In response to the attacks, the most important thing we can do is to visually show that science has strong support in this country, so please show up if you can!

New studies on how rapport differs between autistic & non-autistic ppl suggest having other autistic interactants is more important for autistics' ease, enjoyment: journals.sagepub.com/doi/10.1177/..., & social-motor synchrony is more important for non-autistics: journals.sagepub.com/doi/10.1177/...

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

journals.sagepub.com

Very much so. The courts will not save us. We need to shift public opinion by spreading the word about what is really happening, and we need to push Congress members to act like this is an emergency. Which it is.

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