Doddie Aid is back!!! Do it for you, do it your way, and help fund crucial MND research 💙💛 And for researchers, join our amazing community! Sign up for our new ✨researcher league✨ and show your colleagues how it's done (it's all friendly competition... isn't it?) 💪

My Name'5 Doddie Foundation@mndoddie5.bsky.social · 10mo ago

Sign up for Doddie Aid 2026 now‼️ doddieaid.com

New paper from @tomgillingwater.bsky.social: Federica Genovese's fantastic PhD, showing reversible prenatal primary cilia defects in the Taiwanese mouse model of SMA. Lots of work still to be done to understand how low levels of SMN lead to the cellular defects we know; this project is part of it🙌

Very proud to be a part of this community 💙💛 One that brings together people affected by MND, their friends and families, our supporters and fundraisers, and also our researchers ~ thank you!

My Name'5 Doddie Foundation@mndoddie5.bsky.social · last yr.

Today would have been Doddie's 55th birthday and the community he built is still as strong as ever 💪

There are still few better feelings as an academic than when your paper’s image is chosen for the front cover of a journal #ProudPI #NMJ Confocal micrograph taken by the amazing @drchayts.bsky.social

There’s only a few days to go until our webinar focusing on the Discovery Network and Advancing Treatments Award: 🗓️ 15 April ⏰ 12pm Researchers, if you’re thinking of applying, the webinar is a great chance to have questions answered and gain insights. Join here 👇 us06web.zoom.us/webinar/regi...

👩‍🔬 Join Dr Olivia Bird and me on the 15th of April at 12pm and ask us all your questions about our grant calls! 📣 Please share with researchers in your network who may be interested in applying, early career researchers included 🌟

My Name'5 Doddie Foundation@mndoddie5.bsky.social · last yr.

📢 Calling all researchers! Thinking of applying for our Discovery Network or Advancing Treatments Award? Don’t miss our webinar on 15 April at 12pm. Hear more about the awards, ask questions & gain insights on how to sharpen your application Here’s the link to join 👇 us06web.zoom.us/webinar/regi...

Applications open for @mndresearch MND Association Junior & Senior Non-Clinical Fellowships, nurturing future MND research leaders. Apply by 25 April 2025. www.dementiaresearcher.nihr.ac.uk/funding/mnd-...

MND Non-Clinical Research Fellowships - DEMENTIA RESEARCHER

Applications open for MND Association Junior & Senior Non-Clinical Fellowships, nurturing future MND research leaders. Apply by 25 April 2025.

dementiaresearcher.nihr.ac.uk

Our Discovery Network Award is open for applications again: join a highly collaborative network of fantastic researchers and receive up to £1 million over 3 years! Please share - and get in touch if you have any questions/would like to discuss a project proposal #MND #ALS #AcademicSky

My Name'5 Doddie Foundation@mndoddie5.bsky.social · 2y ago

Applications are now open for the Discovery Network 2025. Up to £2m is available to fund interdisciplinary, multi-institutional teams to better understand the biology of MND, with a focused goal of identifying new therapeutic targets 🔬 See more & apply here👇 www.myname5doddie.co.uk/research/fun...

⚠️⚠️⚠️ Our Advancing Treatments Award is open for expressions of interest again! Get in touch with the research team at the Foundation if you have a project in mind/questions! 💛💙 #MND #ALS #AcademicSky more announcements soon 🤫

My Name'5 Doddie Foundation@mndoddie5.bsky.social · 2y ago

We're excited to announce we are now accepting applications to our 2025 Advancing Treatments Award. Up to £1.5 million is available to fund projects that will accelerate the development of new treatments for MND 🔬 Find out more and apply here 👇 www.myname5doddie.co.uk/research/fun...

We need new science stories. New substack post, drunken cameo from @profaliceroberts.bsky.social open.substack.com/pub/arutherf...

We need new science stories

I am midway through writing my 8th book. Please send help.

open.substack.com

The fact that the UK still doesn't do newborn screening for SMA is nothing short of scandal. We have treatments we've known for years need to be administered as soon as possible. Spinal muscular atrophy in the UK: the human toll of slow decisions - The Lancet www.thelancet.com/journals/lan...

Spinal muscular atrophy in the UK: the human toll of slow decisions

Spinal muscular atrophy (SMA) is a recessive condition that affects globally one in 14 800 newborns.1 Infants with SMA type 1 do not acquire motor milestones and rarely survive beyond the first year o...

thelancet.com

Legends! ❤️‍🔥

My Name'5 Doddie Foundation@mndoddie5.bsky.social · 2y ago

Doddie Aid 2025 raised an amazing £1.35 million for MND research & we can't thank you enough for all of your support & efforts. When effective treatments, and a cure, to MND are found - you’ll know you’ve played a part in making that happen💙💛 Read more here👇 www.myname5doddie.co.uk/whats-on/art...

After rolling in to Glenalmond College for the night, teams on the blue route of Doddie’s Grand Tour were greeted by Gerard Butler, who heard we were in the area and wanted to come along to support and hear about what we're up to 💪 Wonder if we can convince Gerard to join us on the ride next year?🤔

What is the most exciting ALS/MND discovery research you've read recently/you're working on that is *not* focused on TDP43 or RNP biology? Please share some suggestions and papers!! #ALS #MND #AcademicSky

Gold.

My Name'5 Doddie is on Bluesky! 💙💛 Give us a follow ⬇️

My Name'5 Doddie Foundation@mndoddie5.bsky.social · 2y ago

This week we met several Scottish ministers including First Minister, John Swinney, and Cabinet Secretary for Health and Social Care, Neil Gray, to discuss MND and important issues relating to research and treatments for the disease 🔬

Lovely winter day to get started with #DoddieAid2025 - get moving this January, and join our challenge while supporting crucial research into Motor Neuron Disease #WeirInThisTogether doddieaid.com/how-to-join

In case anyone on BlueSky hasn't seen it, this may be the funniest scientific study ever published. Bringing it up now as the amazing @scotsfriction.bsky.social has just issued a "teaspoon amnesty" for our common room www.bmj.com/content/331/...

We’re officially launching Doddie Aid 2025, with the announcement that My Name’5 Doddie Foundation has so far committed £18 million to vital motor neuron disease research 🔬 Sign ups are now live, click below to get involved and download the new app 👇 doddieaid.com #DoddieAid25 #DoddieAid #MND #ALS