Adrenal crisis 10 days ago, I was worried I would not be able to be at the #CUMEDICPPIE showcase today. Looking forward to a day focused on public involvement and engagement. Do say hello if you see me, I'll be on the Evidence Centre stand.
Libby Humphris
@libbyhumphris.bsky.social
Public contributor | Honorary Research Associate @CardiffUni | Advocate for women’s health, rare diseases & shared decision-making | Co-lead, Public Engagement @EvidenceCentre | Breaking down barriers for patients & the public ✨ Crocheter & Rescue Dog Mum
Having a rough time with my health recently. Infection-virus-flare-another infection. Today my "bad" eye has a weird sore patch developing, another "thing" to sort out. It's exhausting! Very grateful to Nurse Dog Luna keeping me company while I rest up.
It was refreshing to meet with an anaesthetist yesterday at pre-op clinic who introduced me to the @sobauk.co.uk guidelines. I'd not come across them until now. Thank you for making this difficult time that little bit easier 🙏 #SharedDecisionMaking #PatientVoice #Thankyou
📢Developing recommendations for inclusive consent processes for trials OPTIMISE is developing recommendations for designing consent processes for trials involving people with communication &/or capacity needs. We are inviting researchers to a workshop to agree key domains to include. Info below:
📢We are recruiting! We're looking for a disabled person to join us as Programme Co-ordinator. This is an exciting opportunity to work alongside partner organisations to deliver the Equal Power Equal Voice programme. Closing date: 9am on 22 April. www.disabilitywales.org/vacancy-prog...
A reminder on one of the hardest days of the year for me. It is never ok to ask someone when they are starting a family, never. Thinking of everyone struggling today. #ChildlessNotByChoice
Co-Production Collective is looking for someone to manage our projects with partners. If you are interested in co-production in research, policy and service development, we would like to hear from you! Find out more about the role and how to apply in our blog: shorturl.at/AAPln #coproduction
Inspired by a talk given by @drmattmorgan.bsky.social a few weeks ago, I'm finally off the mark with my writing plan. Wishing you all a great week ahead.
Have you heard of #Lleswyl? It’s the only inclusive virtual festival organised by @daringtodream.bsky.social. Many miss out on events and festivals due to illness, and that’s exactly why Lleswyl exists. Get your free tickets now! www.eventbrite.co.uk/e/lleswyl-20...
It's really tough to see the constant headlines on this topic. You are not alone, my inbox is always open.
Frances Ryan@francesryan.bsky.social · 2y agoSpeculation about disability benefits can be deeply hard on your mental health. If you’re struggling, please consider talking to a trusted person or the Samaritans. You can call them for free 24/7 on 116 123 or email jo@samaritans.org You are not alone. www.samaritans.org/how-we-can-h...
Grateful to have Nurse Dog Luna keeping me company in my little home office this morning 🐾 She has no idea how important she is to my emotional health, join Luna and I at #Lleswyl2025 later this month to hear more on this. @daringtodream.bsky.social #DogSky #RescueDog
I struggled to know who I was at the end of last year. With a few tweaks and working hard to hone down on what is really important to me, I am now much happier and more motivated than ever. Sometimes you have to take a step back to realise what it is you want.
Today, fab line up! #PxP #PatientEngagement
Dawn Richards, PhD@dawnrichards.bsky.social · 2y ago📣 Need a good distraction for 1.5 hours this week? Join this amazing group of people tomorrow to learn more about their experiences in #PatientEngagement in research? if you can't join us live, it will be recorded. 👇 @alexhaagaard.bsky.social @francinebu.bsky.social
🌟 #Lleswyl2025 🎉 The only #inclusive virtual festival by @daringtodream.bsky.social, shining a light on adults with illness in #Wales. Many miss out on events & festivals due to illness! Lleswyl comes to them! Get your FREE tickets now! 👉 Register on Eventbrite! www.eventbrite.co.uk/e/lleswyl-20...
Lleswyl 2025
Daring to Dream's free, fantastic, fun and for everyone wellbeing festival! Livestreamed from 7pm 21st February 2025 from You Tube
eventbrite.co.uk
Well said @hrhcatherinepow.bsky.social - this is exactly what we are saying @daringtodream.bsky.social. Emotional health and skills are being overlooked - we must get better at talking about feelings constructively #emotionalhealth and #emotionalskills matter. www.bbc.co.uk/news/article...
Kate says emotional skills a priority for healthier society
The Princess of Wales launches a project calling for more emphasis on social and emotional skills.
bbc.co.uk
#Lleswyl2025 - how about booking your tickets for a #WatchParty at #WalesMillenniumCentre? Book to go along with a few friends? have a great night! www.wmc.org.uk/en/whats-on/...
Lleswyl Watch Party
Lleswyl 2025: Top musical talent, transported from the festival field to Wales Millennium Centre!<br /><br /> <br /><br /> Lleswyl is Daring to Dream&#039;s free li…
wmc.org.uk
Good Morning! Have you heard of #Lleswyl2025? Lleswyl means 'Wellbeing Festival' in Welsh. We provide a great, free fun evening on 21 February 2025 from 7pm! Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20... Join us for a great night! YouTube channel: Lleswyl 2025.
#Lleswyl2025 #inclusive #talented #diverse #LineUp. FREE tickets www.eventbrite.co.uk/e/lleswyl-20... In Wales 1.2 million live with at least one #longstanding #illness. #Lleswyl #festival brings #joyousevening to their home @dawnbowden.bsky.social @dalilatm.bsky.social @libbyhumphris.bsky.social
Nurse Dog Luna is never far from where I am, today she is snoozing under my desk. This afternoon I've been busy working on a few upcoming presentations. I was dreading another week of January, but an inspiring talk from @drmattmorgan.bsky.social has started this week off perfectly 💪 #PatientVoice
Lotta new folks here so I guess it's a good time to plug this webinar! If you want to hear me talk about a bunch of light-hearted shit like temporal accessibility and hermeneutical (in)justice in patient engagement, sign up at the link.
PxP (For Patients, By Patients)@pxphub.bsky.social · 2y agoSign up for our webinar on Patient Partner Perspectives on Barriers & Facilitators to Patient Engagement in Research. 📅Date: February 5, 2025 ⏰ Time: 2:30 PM PT / 5:30 PM ET / 10:30 PM UTC 🔗https://zoom.us/webinar/register/WN_v7Cp_QzFTWSzFUajeUQBYg#/registration #PatientEngagement #PxP
Looking forward to #Lleswyl2025 next month. Tickets are FREE! #emotionalhealth #raisingawareness #chronicillness #maketimetotalk
Daring to Dream@daringtodream.bsky.social · 2y agoGood Morning! Have you heard of #Lleswyl2025? Lleswyl means 'Wellbeing Festival' in Welsh. We provide a great, free fun evening on 21 February 2025 from 7pm! Get your FREE tickets from www.eventbrite.co.uk/e/lleswyl-20... Join us for a great night! YouTube channel: Lleswyl 2025.
Digital tools should make healthcare more efficient and accessible, but do they make everyone’s lives easier? Join @trishgreenhalgh.bsky.social for 'Healthcare in the digital age: A new era of inequality?' When: 3 Feb 2025, 18:30-20:00 Where: City Hall, Bristol Free tickets: tinyurl.com/2pyn8w4b
Healthcare in the digital age: A new era of inequality?
We are delighted to welcome Professor Trish Greenhalgh to give the eleventh annual Elizabeth Blackwell lecture, Bristol on 3 February 2025.
tinyurl.com
Thank you for writing this Lucy, it sums up perfectly how important the online community is when you are disabled. I'm so grateful to have social media bring us all together ❤️
Lucy Webster@lucywebster.bsky.social · 2y agoI wrote about the very special ways that disabled people - even those who hardly know each other IRL - show up for each other online It's also kind of a love letter to the disabled women in my life lucywebster.substack.com/p/were-here-...
Want to find out more about the history of disability activism in the UK and what we need to do now? Well I have a book for that! Ramping Up Rights is out July 3rd with @hurstpublishers.bsky.social Preorder here: www.hurstpublishers.com/book/ramping...
Ramping Up Rights | Hurst Publishers
A vivid history of the 100-year battle for British disability rights, spotlighting enraging injustices and inspiring campaigns, past and present: this fight isn’t over.
hurstpublishers.com
Nurse Dog Luna and I are signing off for the next two weeks. Wishing you all a merry Christmas 🎄 See you in 2025!
Hey research teams/orgs that engage #PatientPartners! Please build in a very large chunk of time at your 1st team or other type of mtg for intros. This is really key to starting to build your relationship and trust. #PatientEngagement #ConsumerInvolvement #PPI /1
I've spent nearly a quarter of the year at UHW. Here's hoping 2025 is kinder to me 🙏🏻 The rest of my #FullTimePatient statistics can be found on my Instagram. It was an interesting project collating all the data to create a health themed #2024wrapped
#ARCadvent day 9️⃣: @neuro-observant.bsky.social is a long-term public contributor at @arc-west.bsky.social. She’s the brains behind a wildly successful diagram outlining how patient and public involvement (#PPI) can be woven into every stage of the research cycle. arc-w.nihr.ac.uk/news/my-ppi-...
