The new @ukctunetwork.org name puts registration at its heart. Registered units are independently assessed against clear criteria, including their specialist teams, robust systems and experience of coordinating multicentre trials. CTR is proud to meet those standards. #UKCTUNetwork
Dr Victoria Shepherd
@vickylshepherd.bsky.social
Principal Research Fellow, Centre for Trials Research, Cardiff University | Exploring inclusivity in trials, including research involving adults with impaired capacity to consent | PI of CONSULT https://www.capacityconsentresearch.com #InclusiveResearch
🚨 A new look but the same mission! We're excited to launch our new identity as the UK Registered CTU Network, reflecting the evolution of our community while continuing to support high-quality clinical research across the UK. 👉 tinyurl.com/38sjnt3p #UKCTUNetwork #ClinicalResearch
The Network becomes the UK Registered CTU Network 2026
The UKCRC Registered CTU Network is proud to launch a new visual identity and name, as we become the UK Registered CTU Network.
tinyurl.com
The fifth edition of the EXCISE Trial newsletter is now available! This edition continues the celebration of this week's fantastic milestone of 100 participants recruited. Thank you to everyone supporting the EXCISE Trial- we look forward to the next milestone!
NEW: 'Making Decisions About Research For Others' - a co-produced information video for families on the role of a consultee/legal representative, why they're being approached & what they would need to consider 🔗https://youtu.be/lerIAU4zq2k 🔗https://www.capacityconsentresearch.com/decision-support
With CONSULT now ending, we are delighted to share two reports that summarise our findings 1/n CONSULT aimed to support ethical inclusion in research of adults with impaired capacity to consent through series of studies & methodological interventions: 📆5 yrs 📝9 papers (+ 1 in review) 🗝️8 key findings
✨OPTIMISE policy brief: Improving inclusion in clinical trials through ensuring consent is ‘accessible by design’ Highlights how OPTIMISE recommendations can help organisations achieve their mission to reduce inequalities through research inclusion 🔗https://www.capacityconsentresearch.com/optimise
🔒 What happens to your data after you join a #ClinicalTrial? We co-produced an animation with young people to explain how GDPR protects your information and ensures it’s handled securely. @hralatest.bsky.social @pentafoundation.bsky.social 🎥 Watch here: www.youtube.com/watch?v=VlI6...
What is GDPR?
YouTube video by MRC Clinical Trials Unit at UCL
youtube.com
INCLUDE Impaired Capacity to Consent Framework for designing trials including adults with impaired capacity to consent now updated to signpost to: ✅OPTIMISE recommendations for inclusive consent ✅CONSULT Training on ethical & legal frameworks www.capacityconsentresearch.com/include-impa...
🎉 Exciting milestone, our first review paper is published🎉 🔍 Identified 20 vaccine trials & strategies to improve recruitment of care home residents in future vaccine trials. 🔗 doi.org/10.1093/agei... #WATCHProject; #VaccineTrials; #CareHomeResidents; #CareHomes; #NursingHomes, #CareHomeResearch
New 39 Essex Chambers website, but same mental capacity resources! My Chambers have launched a new and zippy version of our website. But don't worry, all the content that you might need - our Reports, our case-law summaries, and our guidance notes - can all still be found via here. We know…
New 39 Essex Chambers website, but same mental capacity resources!
My Chambers have launched a new and zippy version of our website. But don't worry, all the content that you might need - our Reports, our case-law summaries, and our guidance notes - can all still be found via here. We know (flatteringly) that many of our materials are embedded on websites; the old links should automatically redirect to the new page, but do please let us know if you encounter difficulties.
mentalcapacitylawandpolicy.org.uk
✨Join my research team ✨ Exciting opportunity for Research Associate (Research Ethics & Law) to join new Wellcome-funded Addressing consent-based challenges to improve inclusivity in research (ACCORD) Full-time G6 Fixed term 8 yrs From 1 March Closes 10 Feb krb-sjobs.brassring.com/TGnewUI/Sear...
Thanks for sharing our blog about the OPTIMISE recommendations @bsgcarehomes.bsky.social ! For more info about OPTIMISE: www.capacityconsentresearch.com/optimise @ctrcardiffuni.bsky.social
OPTIMISE
Recommendations for designing informed consent processes for research involving adults with impaired communication and/or decision-making.
capacityconsentresearch.com
Check out our great new blogpost from @vickylshepherd.bsky.social about designing more #inclusive #consent processes to widen participation in #research for #carehome residents: bsgsigcarehomesblog.co.uk/optimise-ing...
💻 Great to have attended the OPTIMISE-ing Informed Consent webinar on designing more inclusive consent processes in trials 🙋🙋🏻♀️ 🗣️ Helpful to explore many of the issues we often encounter when reviewing #REC applications involving people who lack capacity. Thank you @vickylshepherd.bsky.social
🚨Just launched: OPTIMISE recommendations to help ensure consent processes in trials are more inclusive of people with communication and/or decision-making needs ⬇️download recommendations ℹ️links to examples & info 🎦recorded webinar ↔️other resources 🔗https://www.capacityconsentresearch.com/optimise
I’m seeking interview participants for my PhD study about patient safety in non-conveyance. If you had an ambulance out for yourself or someone you care for, I’d love to talk to you. Please see ad for details. Please share @lavendercrew.bsky.social @carsonstevens.bsky.social
Join the OPTIMISE launch webinar on 1 Dec 2025, 2–3pm. Learn how to make informed consent more inclusive for people with communication or decision-making needs. www.dementiaresearcher.nihr.ac.uk/event/optimi...
OPTIMISE-ing informed consent - DEMENTIA RESEARCHER
OPTIMISE launch webinar on inclusive consent in trials. Hear the recommendations and join an expert Q&A. 1 December 2025, 2 to 3pm. Register now.
dementiaresearcher.nihr.ac.uk
📢3 weeks to go Webinar launching OPTIMISE recommendations for inclusive consent for trials involving people with communication &/or capacity needs ✅why inclusive consent matters ✅introduce OPTIMISE recommendations & resources ✅Q&A experts 📅 1 Dec 🕑 2-3pm 🔗 www.capacityconsentresearch.com/optimise
Our very own Director of Infections, Inflammation and Immunity division @ctrcardiffuni.bsky.social - Dr David Gillespie, delivering his Ted style talk at the Health and Care Research Wales conference. #ResearchWales25
📢 Register for OPTIMISE webinar Introducing OPTIMISE recommendations for designing more inclusive consent processes to ensure trials are accessible for people with communication &/or decision-making needs 📆1st Dec 🕙2-3pm 🔗https://app.onlinesurveys.jisc.ac.uk/s/cardiff/optimise-webinar-registration
Involved in palliative care research? Join our workshop to explore issues around mental capacity & consent in palliative care research & build collaborations 📆 17 October, 10:30–3pm 📍 Royal College of Physicians, London 📩 @drcarolinebarry.bsky.social healthandcareresearchwales.org/about/events...
Building inclusive practices around mental capacity and consent in palliative care research
healthandcareresearchwales.org
NIHR will commission up to 10 Application Development Awards for early to mid career health and care professionals including nurses, midwives, pharmacists and allied health professions. Apply by 4th February www.dementiaresearcher.nihr.ac.uk/funding/appl...
Application Development Award for Health & Care Professionals
NIHR invites applications for up to 10 Application Development Awards to support early to mid career HCP researchers preparing future funding proposals.
dementiaresearcher.nihr.ac.uk
🔊Fully funded PhD studentships at Cardiff Metropolitan University We're now accepting applications for the 2026 Wales Graduate School for Social Sciences PhD studentship competition in Psychology, Sport, Education, and Linguistics and Bilingualism. lnkd.in/e7wsTRem
This link will take you to a page that’s not on LinkedIn
lnkd.in
Apply now for a Churchill Fellowship @churchillfship.bsky.social : a once in a lifetime chance to explore global ideas, grow personally and professionally, and create real change in the UK. www.dementiaresearcher.nihr.ac.uk/funding/chur...
Churchill Fellowship - DEMENTIA RESEARCHER
Apply now for a Churchill Fellowship: a once in a lifetime chance to explore global ideas, grow personally and professionally, and create real change in the UK.
dementiaresearcher.nihr.ac.uk
So pleased to be launching our research strategy today, at the RCN International Research Conference #RCNResearch2025
🚀 Launching: the RCN Research Strategy. Our mission; to empower you to participate in, lead on, and embed quality nursing research into your practice. Want to learn more? Download and read the strategy here: https://bit.ly/42iUhv5
Today is #WorldRadiotherapyAwarenessDay #WRAD. SCC-AFTER is #ClinicalTrial looking at adjuvant #radiotherapy in patients with high-risk primary cutaneous Squamous Cell Carcinoma after surgery with focus on #Inclusvity ℹ️ www.cardiff.ac.uk/centre-for-t... @nihr.bsky.social @ctrcardiffuni.bsky.social
I highly recommend applying to the Churchill Fellowship - one of my most exciting personal & professional opportunities in terms of learning about international perspectives & building long lasting connections & collaborations @churchillfship.bsky.social www.churchillfellowship.org/ideas-expert...
Victoria Shepherd
We are a community of changemakers championing global solutions for today's crucial challenges. We were founded in 1965 in memory of Sir Winston Churchill. We offer ideas to inspire your vision for ch...
churchillfellowship.org
“Anyone thinking of applying, I would say just do it.” – @alcoates.bsky.social Applications for the Churchill Fellowship are now OPEN! Apply by 4 November and turn your passion into action: churchillfellowship.org/become-a-fel...
New EMPOWER Dementia Network+ Toolkit offers practical guidance, case studies and resources to support genuine co-production with people living with dementia. www.dementiaresearcher.nihr.ac.uk/the-empower-...
The EMPOWER Dementia Network+ Co-production Toolkit
New EMPOWER Dementia Network+ Toolkit offers practical guidance, case studies and resources to support genuine co-production with people living with dementia.
dementiaresearcher.nihr.ac.uk
🚨New paper🚨 Feasibility stage of CONSULT SWAT evaluating decision aid for families acting as consultee/legal representative in studies involving adults lacking capacity to consent 🔗 doi.org/10.1186/s130... ℹ️ www.capacityconsentresearch.com/consult-swat #TrialsMethodologyResearch #InclusiveResearch
We’re delighted by the interest and engagement with the #UKCTUNetwork Strategy 2025–2030 - nearly 300 downloads & counting. Get your copy here ukcrc-ctu.org.uk/network-stra... We look forward to sharing details of our work plan with you over the next few months. #ResearchStrategy #ClinicalTrials
I agree - there needs to be much more done to improve the inclusivity of trials! There was a useful recent rapid response in the BMJ from @vickylshepherd.bsky.social outlining the importance of this, and some of the work being done in this space. www.bmj.com/content/390/...