Dr Victoria Shepherd

@vickylshepherd.bsky.social

Principal Research Fellow, Centre for Trials Research, Cardiff University | Exploring inclusivity in trials, including research involving adults with impaired capacity to consent | PI of CONSULT https://www.capacityconsentresearch.com #InclusiveResearch

🚨 A new look but the same mission! We're excited to launch our new identity as the UK Registered CTU Network, reflecting the evolution of our community while continuing to support high-quality clinical research across the UK. 👉 tinyurl.com/38sjnt3p #UKCTUNetwork #ClinicalResearch

The Network becomes the UK Registered CTU Network 2026

The UKCRC Registered CTU Network is proud to launch a new visual identity and name, as we become the UK Registered CTU Network.

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The fifth edition of the EXCISE Trial newsletter is now available! This edition continues the celebration of this week's fantastic milestone of 100 participants recruited. Thank you to everyone supporting the EXCISE Trial- we look forward to the next milestone!

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NEW: 'Making Decisions About Research For Others' - a co-produced information video for families on the role of a consultee/legal representative, why they're being approached & what they would need to consider ​🔗https://youtu.be/lerIAU4zq2k 🔗https://www.capacityconsentresearch.com/decision-support

Image of the title slide from the Making Decisions for Others video for family members

With CONSULT now ending, we are delighted to share two reports that summarise our findings 1/n CONSULT aimed to support ethical inclusion in research of adults with impaired capacity to consent through series of studies & methodological interventions: 📆5 yrs 📝9 papers (+ 1 in review) 🗝️8 key findings

✨OPTIMISE policy brief: Improving inclusion in clinical trials through ensuring consent is ‘accessible by design’ Highlights how OPTIMISE recommendations can help organisations achieve their mission to reduce inequalities through research inclusion 🔗https://www.capacityconsentresearch.com/optimise

Image of the front cover of the OPTIMISE policy brief titled OPTIMISE: Improving inclusion in clinical trials through ensuring consent is ‘accessible by design’

💻 Great to have attended the OPTIMISE-ing Informed Consent webinar on designing more inclusive consent processes in trials 🙋🙋🏻‍♀️ 🗣️ Helpful to explore many of the issues we often encounter when reviewing #REC applications involving people who lack capacity. Thank you @vickylshepherd.bsky.social

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🚨Just launched: OPTIMISE recommendations to help ensure consent processes in trials are more inclusive of people with communication and/or decision-making needs ⬇️download recommendations ℹ️links to examples & info 🎦recorded webinar ↔️other resources 🔗https://www.capacityconsentresearch.com/optimise

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📢 Register for OPTIMISE webinar Introducing OPTIMISE recommendations for designing more inclusive consent processes to ensure trials are accessible for people with communication &/or decision-making needs 📆1st Dec 🕙2-3pm 🔗https://app.onlinesurveys.jisc.ac.uk/s/cardiff/optimise-webinar-registration

Flyer for OPTIMISE launch webinar on 1st December from 2-3pm