Anya Prince
@anyaprince.bsky.social
Law prof; health and repro privacy, ethical legal and social implications of genetics, privacy implications of big data.
This was a wonderful team effort with Ben Berkman, Don Ford, Dov Fox, Christi Guerrini, Amy Koopman, Natalie Ram, Jessica Roberts, @kaytesb.bsky.social and Sonia Suter!
ELSIhub | CERA@elsihub.bsky.social · 4mo ago📚 Recent Publication from the ELSI Community: “Putting the L in ELSI: legal methods for bioethics research” by Anya Prince and colleagues explores how legal methods can advance bioethics and biomedical research. @anyaprince.bsky.social 🔗 Access here: elsihub.org/publication/...
Iowa ranks last among states for the number of OB-GYNS per capita. State legislators are trying to recruit more, but some doctors say the state's strict abortion ban is partially to blame. n.pr/493YcAm
Iowa doesn't have enough OB-GYNs. Is the state's abortion ban part of the problem?
Iowa ranks last among states for the number of OB-GYNS per capita. State legislators are trying to recruit more, but some doctors say the state's strict abortion ban is partially to blame.
n.pr
ELSIhub has officially launched a brand new discussion forum - ELSIconnect! Through ELSIconnect you can discuss ELSI research, brainstorm ideas, share resources, and connect directly with ELSI researchers in a secure, professional, and friendly space. To join, visit: connect.elsihub.org
Genetic Privacy in the Era of Big Data 🧬🔒 What happens if the company holding your DNA data goes bankrupt? The 23andMe case exposes major gaps in U.S. protections, leaving sensitive, immutable data vulnerable. Read the new paper by Gerke, Jacoby & Cohen www.bmj.com/content/389/...
Really looking forward to moderating this panel next week!
ELSIhub | CERA@elsihub.bsky.social · 12mo agoGenetic Privacy in the Era of Big Data 🧬🔒 What happens if the company holding your DNA data goes bankrupt? The 23andMe case exposes major gaps in U.S. protections, leaving sensitive, immutable data vulnerable. Read the new paper by Gerke, Jacoby & Cohen www.bmj.com/content/389/...
Check out the latest from privacy guru Alex Rosenblat @themarkup.org regarding access to forms signed at the doc’s office. themarkup.org/hello-world/...
During my kid’s surgery, I was denied a copy of my consent form — then sent to a ghost office – The Markup
Help us understand the challenges patients face opting out of voluntary uses of their data, or getting access to their records.
themarkup.org
Following the 23andMe bankruptcy, good stewardship of public genomic databases is all the more important. www.npr.org/sections/sho...
A million veterans gave DNA for medical research. Now the data is in limbo
Retired service members donated genetic material to a DNA database to help answer health questions for all Americans. The Trump administration is dragging its heels on agreements to analyze the data.
npr.org
Glenn Cohen did a great job testifying about the gaps in genetic privacy law!
Senate Judiciary Democrats 🇺🇸@judiciarydems.senate.gov · last yr.Bioethics law expert: The main privacy protection for 23andMe customers is just a promise the company has made in its privacy statement. But if you read more closely, the privacy statement provides much less protection than it appears to.
It was so great to be able to watch this hearing in person. Congress can do much more to protect genetic privacy.
Senator Dick Durbin@durbin.senate.gov · last yr.The best “intentions” of 23andMe don’t mean much. I care about protecting our most sensitive information from misuse. We need stronger federal privacy laws.
@jillwieberlens.bsky.social presents her new book, Stillbirth and the Law, at the Health Law Professors conference.
Fascinating(yet depressing) plenary session at the Health Law Professors Conference ft. @ninakohn.bsky.social @mayamanian.bsky.social @mblawrence.bsky.social Medha Makhlouf Joan Krause Aaron Kessleheim: Updates on healthcare law & policy in tumultuous times. #HLP2025
There are consequences for not respecting people’s privacy.
NPR@npr.org · last yr.DOGE's murky push to amass data at federal agencies could hurt the U.S. government's ability to produce reliable census results, economic indicators and other statistics in the future, experts warn.
“The cable also instructs consular officers to inform applicants with private social media accounts that they could be viewed as evading vetting” - penalizing individuals for simply protecting their privacy is absurd www.politico.com/news/2025/05...
State begins rolling out expanded student visa vetting — starting with Harvard
The State Department issued instructions to consulates and embassies late Thursday telling them to start the vetting immediately.
politico.com
Today’s the day! Looking forward to learning all about AI and insurance. I’ll be presenting on the privacy and discrimination risks of AI incorporated into telematics.
Daniel Schwarcz@danielschwarcz.bsky.social · last yr.🚨 Last chance to register! Tomorrow is the deadline to sign up (in-person or virtual) for this free conference on AI, Insurance Law & Regulation. Don’t miss our incredible speaker lineup—register now: ilc.law.uconn.edu/2025/03/17/c...
Surveillance of women is the unavoidable consequence of the criminalization of abortion. Per @404media.co Flock enables nationwide surveillance of women traveling by car. www.404media.co/a-texas-cop-...
A Texas Cop Searched License Plate Cameras Nationwide for a Woman Who Got an Abortion
The sheriff said the woman self-administered the abortion and her family were concerned for her safety, so authorities searched through Flock cameras. Experts are still concerned that a cop in a state...
404media.co
Chilling… and predictable.
Jonathan Roberts@jonroberts.bsky.social · last yr.Abortion should just be decriminalised. The police should be nowhere near any of this. "Police have been issued guidance on how to search women’s homes for abortion drugs and check their phones for menstrual cycle tracking apps after unexpected pregnancy loss" observer.co.uk/news/nationa...
These sorts of requirements make a mockery of our notice and consent privacy framework. “We respect privacy and will only do x, y, and z with your permission.” “….side note: if you don’t give all the permissions, nothing in this app will work.”
Vincent Toubiana @vtoubiana.bsky.social · last yr.Looks like on Android 16, you can no longer get directions without enabling "location accuracy" (i.e. sharing your location with Google so that they can improve the location service)
🚨 Last chance to register! Tomorrow is the deadline to sign up (in-person or virtual) for this free conference on AI, Insurance Law & Regulation. Don’t miss our incredible speaker lineup—register now: ilc.law.uconn.edu/2025/03/17/c...
Conference: AI, Insurance Law, and Regulation | Insurance Law Center
A Conference Presented by the Insurance Law Center at UConn Law & the University of Minnesota Law School AI, Insurance Law, and Regulation Friday, May 3 ...
ilc.law.uconn.edu
This is VERY big genetics & health news, Regeneron (Pharmaceutical company with v strong genetics in medicine arm) is going to buy 23andme. investor.regeneron.com/news-release...
investor.regeneron.com
If you haven’t yet read car privacy coverage by @kashhill.bsky.social, do so immediately. Incredibly eye opening and important!
Kashmir Hill@kashhill.bsky.social · last yr.Last year, my journalism stopped the illegal sale of millions of Americans’ driving behavior to the insurance risk industry. Thank you to SABEW for an honorable mention for technology reporting: sabew.org/2025/03/2024...
Last year, my journalism stopped the illegal sale of millions of Americans’ driving behavior to the insurance risk industry. Thank you to SABEW for an honorable mention for technology reporting: sabew.org/2025/03/2024...
2024 Best in Business Awards | SABEW
Congratulations to our 2024 honorees! The Best in Business Awards attracted 1,103 entries from 181 news organizations, ranging from international, national and regional news outlets to specialized bus...
sabew.org
This is something that should inspire such hope for our future, but now it is coupled with fear that we may not be able to build on it because of federal retrenchment from supporting research. www.nytimes.com/2025/05/15/h...
Baby Is Healed With World’s First Personalized Gene-Editing Treatment
nytimes.com
It was so lovely to speak to everyone at Johns Hopkins on Monday!
Johns Hopkins Berman Institute of Bioethics@bermaninstitute.bsky.social · last yr.#Bioethics Seminar TODAY, Noon - Anya Price, JD, MPP, "Genetic Testing for Social Traits: Repeating past harms or a promising future?" - Open to all, join in person, lunch provided. Feinstone Hall, @johnshopkinssph.bsky.social - link for more info: mailchi.mp/jhu/bioethic...
Love this. In his “I Agree” installation Dima Yarovinsky-Yahel took the content from terms of service statements for companies like Facebook, Snapchat, Instagram, Tinder and printed them out on A4 paper with a standard font size for legal contracts to demonstrate the length of these agreements.
Don't tell me you're still using Chrome when there are much better browsers out there, including DuckDuckGo, Brave, Opera, Vivaldi etc. " #Google continues to backtrack on its #privacy promises, leaving billions of Chrome users vulnerable to online #surveillance." www.theregister.com/2025/04/22/g...
RIP to the Google Privacy Sandbox
: Chrome will keep third-party cookies, a win for web giant's ad rivals
theregister.com
HIPAA includes broad exceptions that permit health care providers & insurers to share information with govt agencies for public health purposes.
WuTangIsForTheChildren@wutangforchildren.bsky.social · last yr.Ummmm well this is insane….gotta be a HIPAA violation of some sorts newrepublic.com/post/194245/...
Why a reproductive justice lens explains everything.
StrictlyChristo 🇺🇦🌻@strictlychristo.bsky.social · last yr.Two headlines in the New York Times today.
Information asymmetry, and a reminder that chatgpt is wholly a surveillance technology.
ChatGPT is referring to users by their names unprompted, and some find it 'creepy' | TechCrunch
A few ChatGPT users have noticed a strange phenomenon recently: occasionally, the chatbot refers to them by name as it reasons through problems.
techcrunch.com