Our small team of long haulers has been struggling with health and personal issues lately, so the future of the podcast is a little uncertain right now. Because of this, we weren't able to release an episode in June.
Covid Long Haulers Podcast
@longhaulerspodcast.bsky.social
We’re a community of Covid longhaulers who have been brought together by this illness. We share the stories of folks who have been through it, who are going through it, and how they’re surviving it. #LongCovid #CovidIsntOver #CovidIsAirborne #CovidSky
The Sick Times @thesicktimes.org : "we need more at-home clinical trials for Long COVID. Here’s how we designed the largest one yet" thesicktimes.org/2025/10/30/w... Register for trial longcovid.scripps.edu/locitt-t/ Screenshot from latest Science for ME weekly update #LongCovid #PASC
🚨 Reminder to Americans as we "fall back": check your smoke alarm batteries if you lost / have a diminished sense of smell due to covid. 1-22-21 ⬇️ "Bianca Rivera, 19, quickly evacuated her family, who didn't realize the house was on fire after losing their sense of smell due to Covid-19." #longcovid
Teen saved family members with Covid-19 from early-morning fire
Bianca Rivera, 19, quickly evacuated her family, who didn't realize the house was on fire after losing their sense of smell due to Covid-19.
nbcnews.com
1/ "The reality is that we have been living in this deeply flawed landscape of 'personal choice', & you’ve made yours": annabookwriter.medium.com/to-my-unmask...
To My Unmasked Friend in the Fifth Year of COVID
I’m going to be honest with you, because I love you, and you deserve nothing but honesty. I’m going to try really hard not to be angry…
annabookwriter.medium.com
🚨 Attention🚨 Research shows that poor ventilation and elevated CO₂ can slow decision‑making, reduce focus and even decrease output. 👉 Want to dig deeper? shh-uk.org/high-co2-... or link in bio. #WorkplaceWellbeing #SafeAir4All #Longcovidawareness #longcovid
The management meds that were supposed to help tanked their baseline. #CovidIsntOver #CovidLongHauler #CovidisNotOver #MECFS
October is POTS Awareness Month, a time to spotlight BHC resources. Our Clinical Care Guide includes a full chapter on orthostatic intolerance (OI) & dysautonomia, core features of #POTS. Download ➡️ https://batemanhornecenter.org/clinical-care-guide/ (navigate to chapter 7 for info on POTS & OI)
His workplace told him to come in anyway after testing positive for COVID. #CovidIsntOver #CovidLongHauler #CovidisNotOver #MECFS
The doctor explained that her test results were normal. #onesentencehorror #LongCovid #MECFS #ChronicIllness #CovidIsntOver
The Long COVID Treatment Trial – Tirzepatide (LoCITT-T) is now open for enrollment for people with Long COVID in all states but Hawaii (due to concerns about maintaining temperature control in shipping), DC, and PR: longcovid.scripps.edu/locitt-t/?ut...
LoCITT-T - Long COVID Treatment Trial
The Long COVID Treatment Trial-Tirzepatide (LoCITT-T) is investigating the efficacy of repurposing this drug to treat Long COVID.
longcovid.scripps.edu
Julia MV@julialmv.bsky.social · 12mo agoThe Long COVID Treatment Trial – Tirzepatide (LoCITT-T) is officially open for enrollment for people with Long COVID in: Alabama, Alaska, California, Florida, Illinois, Indiana, Michigan, Ohio, Pennsylvania, Texas, Utah longcovid.scripps.edu/locitt-t/?ut... 1/16
University of North Dakota researchers found that the SARS-CoV-2 spike protein drives brain cell aging by triggering TLR7 in human astrocytes. This could explain lingering neurological symptoms in long COVID. jneuroinflammation.biomedcentral.com/articles/10....
SARS-CoV-2 spike triggers TLR7-dependent endolysosome dysfunction and senescence in human astrocytes - Journal of Neuroinflammation
SARS-CoV-2 infection is associated with long-lasting neuropsychiatric and cognitive symptoms, collectively referred to as neuro-PASC. Emerging studies indicates that accelerate brain aging and cellula...
jneuroinflammation.biomedcentral.com
They ran out of electrolytes. #onesentencehorror #LongCovid #CovidIsntOver #MECFS
Her smartwatch gave her a high heart rate notification while sitting. #onesentencehorror #LongCovid #CovidIsntOver #MECFS
The CO₂ levels in the windowless room were over 1600 ppm. #onesentencehorror #LongCovid #CovidIsntOver #MECFS
The nurse washed her hands in front of him, but didn’t wear a mask. #onesentencehorror #LongCovid #CovidIsntOver #MECFS
She talked on the phone with her bestie, forgetting about the inevitable PEM crash that would follow. #onesentencehorror #LongCovid #MECFS #CovidIsntOver
Welcome to Emerge Australia’s #mecfs and #longCOVID Action Forum event in Parliament House, Canberra, today. Our event, “From stigma to science: educating for change” is live streamed. You can register here: us02web.zoom.us/meeting/regi... We will be live posting on this thread. 🧵
🚨 New episode just dropped: Twist, Turns, & Crashes: Part 2. 🚨 Noah returns for a discussion on the grief of losing athletic dreams. Spotify: open.spotify.com/episode/0mIj... Apple: podcasts.apple.com/us/podcast/c... Transcript: covidlonghaulerspodcast.substack.com/p/transcript... #LongCovid
Episode 14 - Twists, Turns, and Crashes (Part 2)
open.spotify.com
💙 Call for contributions 💙 For the book about #ME & #LongCovid we'd love to include real voices from the community about experiences with Drs The form is short & anon Every story matters 💙 forms.gle/jSCvZN39xAum...
Experiences with Doctors - ME & Long Covid
Thank you for taking the time to share your experience. I am writing a novel about ME & Long Covid, and I would like to include real voices from the community to make sure the story reflects lived…
docs.google.com
A warning for those pursuing a ketogenic diet for their Long C-19 👇🏻👇🏻👇🏻👇🏻 www.science.org/doi/10.1126/...
A long-term ketogenic diet causes hyperlipidemia, liver dysfunction, and glucose intolerance from impaired insulin secretion in mice
Although a keto diet limits weight gain and evokes weight loss in obese mice, it impairs metabolic health in males and females.
science.org
We have been living with unnecessary infections in hospitals for years. Ffp3 respirators work. They do outside too! No need to keep catching covid and risking #Longcovid. www.theguardian.com/world/2021/j...
Cambridge hospital’s mask upgrade appears to eliminate Covid risk to staff
Hospital infection study shows use of FFP3 respirators at Addenbrooke’s ‘may have cut ward-based infection to zero’
theguardian.com
Neuropsychiatric symptoms, impaired visual perception, and gray matter volume differences are evident in pediatric long COVID cases. The severity of neuropsychiatric symptoms during the acute phase may predict the degree of chronic-phase brain volume alterations. www.pedneur.com/article/S088...
Long-term influence of pediatric long COVID syndrome on the visual perception and neuropsychiatric symptoms
Long COVID presents with a wide range of persistent symptoms and durations following COVID-19 infection. However, data on children and adolescents remain limited. This study aims to explore visual per...
pedneur.com
✨ Did you know Long COVID can impact every part of the body? The Lancet documented 203 symptoms across 10 body systems, and the average patient reported 56 different symptoms across 9 systems.
If you can’t take Paxlovid, Metformin is another great alternative to help prevent Long Covid. www.medicalnewstoday.com/articles/com...
Long COVID: Diabetes drug metformin may reduce risk by 64%
Starting the diabetes drug metformin within 90 days of SARS-CoV-2 infection decreased the risk for developing long COVID by 64%, according to a new study.
medicalnewstoday.com
Studies show SARS-CoV-2 lingers in the gut of Long COVID patients for months, even over a year. Their gut microbiome also differs significantly from those who fully recovered.
Catching SARS-Cov-2 reduces IQ. The IQ drop is measurable even in asymptomatic covid infections where the person doesn't identify as having long covid (in other words they do have long covid but don't realise it) Study: www.nejm.org/doi/full/10....
Cognition and Memory after Covid-19 in a Large Community Sample | NEJM
Cognitive symptoms after coronavirus disease 2019 (Covid-19), the disease caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), are well-recognized. Whether objectively measurable...
nejm.org
Back in May, we partnered with @emergeaustralia.bsky.social 🌍 Now we’re highlighting the powerful tools that came from it. These free education modules help you: ✔️ Understand PEM ✔️ Recognize orthostatic intolerance ✔️ Build a pacing plan Explore them now: https://emerge.org.au/lea-ea-bhc/
MEAction welcomes caregivers of people with chronic diseases such as ME, Long COVID, MCAS, etc. to an international support group on Sat 20 Sep, 8.30 pm GMT [held 3rd Sat each month] tinyurl.com/2np2tw2x
Caregiver Support Call | Me Actions
For caregivers of people with myalgic encephalomyelitis (ME), Long COVID, and associated conditions. 1:30pm ET — 3:30pm ET https://us06web.zoom.us/j/85408999115?pwd=TejiJCpLPv0tNIKECl1na4G25bPfT8.1
tinyurl.com