Jennie Jacques
@jenniejacques1.bsky.social
Donate to Justice For ME here if you can please 🙏 💙🦋 https://shorturl.at/x1Vyx
PCOS will now be known as PMOS (polyendocrine metabolic ovarian syndrome), and for Alice Klein, who has the condition, it's been a long time coming
PCOS has been officially renamed PMOS, and it’s a momentous move
PCOS will now be known as PMOS (polyendocrine metabolic ovarian syndrome), and for Alice Klein, who has the condition, it's been a long time coming
newscientist.com
There’s a ME before M.E In all of us… She’s still here 🔥 And on Sunday May 17th with #millionsmissing I will be at The Tea Party For ME 2026… you are duly invited! the-slow-lane.com/blue-sunday-...
Today is #MEAwarenessDay ME/CFS is often described as neglected and under-researched. That ignores the true history. George Monbiot and Carol Monaghan have described it as one of the greatest medical scandals of the 21st century.
Today is #MECFS Awareness Day. As a #LongCovid charity, we recognise that a significant proportion of #pwLC - around half, but not all - meet/would meet the diagnostic criteria for ME/CFS. We exist to advocate for everyone with Long Covid, including those who also have an ME/CFS diagnosis. 🧵
Usually I focus on science 🧬 & the NEW! Today it’s Nightingale 🎈🎁 👩⚕️ #meawarenessday “The Charge of the Light Brigade” “Someone had blunder’d.” PACE Trial led ME patients into medicine’s version of the valley of death. Except blunder implies no one saw the bodies falling.
ME Awareness @davetuller1.bsky.social has spent years fighting for scientific integrity & exposing misinformation surrounding ME. Independent voices matter. So does truth in medicine. @georgemonbiot.bsky.social DONATE here 🔻 crowdfund.berkeley.edu/project/4972...
Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc
Help UC Berkeley raise $75,000 for the project: Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc. Your gift will make a difference!
crowdfund.berkeley.edu
Adam@abrokenbattery.bsky.social · 3mo agoThe whole video is well worth a watch. Big thanks to @jenniejacques1.bsky.social for such a great interview with David Tuller and George Monbiot about the #MECFS scandal (49 mins) youtu.be/SpLMB9I4kGI?...
The whole video is well worth a watch. Big thanks to @jenniejacques1.bsky.social for such a great interview with David Tuller and George Monbiot about the #MECFS scandal (49 mins) youtu.be/SpLMB9I4kGI?...
George Monbiot David Tuller Jennie Jacques talking ME/CFS LONG COVID CANCER HIV/AIDS
YouTube video by The Monster In ME
youtu.be
Should have included this link - brain fog 😶🌫️ more to come in time 🕰️ Just wanted to share re the validation as much as anything else! Mitochondrial testing with Academy of Nutritional Medicine 💙🦋 #meawareness shop.aonm.org/mitochondria....
Mitochondrial Tests – AONM Shop
Mitochondria are key orchestrators of cellular health, responsible for our energy production, biosynthesis of cellular components, and cellular signalling. Meas
shop.aonm.org
Jennie Jacques@jenniejacques1.bsky.social · 7mo agoWhat’s ME again? Blood 🩸 test results with AONM; Oxygen starved at a cellular level. Clinical. Unarguable. More here - www.instagram.com/reel/DTxPsQl...
What’s ME again? Blood 🩸 test results with AONM; Oxygen starved at a cellular level. Clinical. Unarguable. More here - www.instagram.com/reel/DTxPsQl...
Help BOOST to achieve the goal 💥💙🩵 please 🙏 DONATE if you can &/or help spread the word! 👇⬇️ shorturl.at/x1Vyx JUSTICE FOR M.E. 🔥 💪 #vikings let’s raid IGNORANCE & protect families from permanent disability or death from neglect of ME! Great CHANGE is on the horizon!
Thank you 🙏 @georgemonbiot.bsky.social Here’s an interview with George and @davetuller1.bsky.social to learn more…! m.youtube.com/watch?v=SpLM...
George Monbiot David Tuller Jennie Jacques talking ME/CFS LONG COVID CANCER HIV/AIDS
YouTube video by The Monster In ME
m.youtube.com
George Monbiot@georgemonbiot.bsky.social · 10mo agoME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...
This new book by @cartoonkate.bsky.social is a breath-takingly beautiful thing: I'd go so far as to say a work of genius. It's my privilege to be interviewing her about it at the East Gate Bookshop, Totnes on 23rd October. Please join us if you can: www.totnespulse.co.uk/product/tick...
Ticket: Patchwork: A Graphic Biography of Jane Austen
Kate Evans is a writer, cartoonist, illustrator and studied English literature at the University of Sussex in Brighton. From 1995 to 1998 Evans dedicated herself to environmental activism, providing c...
totnespulse.co.uk
Thank you so much for continuing to support us ME people with such clear, strong and compassionate reporting. I have been bedridden for 32 years, my daughter for 39 years. We have had no treatment offered, simply left to rot in our beds. We spent a lot of money on ‘alternative’ approaches, no help
Thanks, George 🙏 For anyone interested, I wrote a thread about how Wessely was wrong about Gulf War Illness, Camelford Poisonings & ill health following 9/11 being psychogenic. He also used harassment as a distraction from criticism during a talk on GWI. threadreaderapp.com/thread/15273...
Thread by @ABrokenBattery on Thread Reader App
@ABrokenBattery: 🧵Gulf War Syndrome & Simon Wessely "For 30 years they have been disowned, ignored and lied to by consecutive governments, with no positive answers to their questions about exposure to...
threadreaderapp.com
They desperately want to be able to work, to socialise, to experience all the other joys of life. But because the condition is so poorly understood, they have been repeatedly treated as if they were “malingerers” or “hysterics”. Which suits the government just fine.
In the firing line, as ever, are the UK’s hundreds of thousands of ME/CFS patients. As a practitioner once remarked, “the bastards don’t want to get better”. If there is one characteristic all the ME/CFS patients I’ve come across have in common, it is a desperation to get better.
Like the Tories, the Labour government is trying to drive down the number of people who qualify for disability benefits by insisting there has been an epidemic of “overdiagnosis”: a favourite theme of the BBC and the junktanks of Tufton Street. Never mind the science: what outcome do we want?
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
theguardian.com
Just as we are beginning to understand the biochemical basis of this horrendous condition, the government appoints the man perhaps most responsible for the mischaracterisation of ME/CFS – Simon Wesseley - to its *overdiagnosis* commission. www.benefitsandwork.co.uk/news/controv...
Controversial professor to investigate overdiagnosis of mental health and neurodivergence for Labour
Get the benefits you're entitled to: help with personal independence payment (PIP), universal credit (UC), employment and support allowance (ESA),disability living allowance (DLA). Claims, assessments...
benefitsandwork.co.uk
The third NHS ME/cfs e-Learning module was published last week, shortly after #Justice4ME launched. Written by Dr David Strain, only those with a government, NHS or academic work email address have access. Why? Who did Strain consult with? learninghub.nhs.uk/Resource/712...
Resource
learninghub.nhs.uk
Physios For ME@physiosforme.bsky.social · 11mo agoPleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.
Let’s reached the 1st target 🎯 in the 1st weekend it’s been live?! 💪 💥 JUSTICE FOR ME 🤞 🌟 💫 shorturl.at/x1Vyx I fully endorse this! #meawareness
Jennie Jacques@jenniejacques1.bsky.social · 11mo agoPlease donate to Justice For ME if you can and/or help spread the word; shorturl.at/x1Vyx #meawareness #Justice4ME @swastrosarah.bsky.social 💙💪
Please donate to Justice For ME if you can and/or help spread the word; shorturl.at/x1Vyx #meawareness #Justice4ME @swastrosarah.bsky.social 💙💪
sarah boothby@swastrosarah.bsky.social · 11mo agoI am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue. This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
I am proud to endorse this initiative, with thanks to the very many people made unwell by medical neglect of #ME who never give up, no matter how difficult it is to continue. This fundraiser goes live 7pm BST 29 August 2025. #Justice4ME www.crowdjustice.com/case/justice... 1/2
crowdjustice.com
The inquest into how Maeve died from medical neglect of #ME/cfs in 2021 found in 2024 there are no Consultant doctors for ME anywhere in the UK. She became unable to wash her own hair; later unable to chew. #MaeveInquest #PlanForME @ashleydaltonmp.bsky.social @rthonwesstreeting.bsky.social 2/2
www.youtube.com/watch?v=heJM... As Dr Whitely says in this interview, if there is no job in the NHS, there is no medical training. Without medical training, misdiagnosis and risky mistreatments are how the NHS is transformed into a sick service. Outstanding work from @jenniejacques1.bsky.social 1/2
Vikings Actress Jennie Jacques; Pelvic Venous Congestion Syndrome, Thoracic Outlet Syndrome and ME
YouTube video by The Monster In ME
youtube.com
New Video on jenniejacques1 YouTube The Monster In ME. Watch here ⬇️ m.youtube.com/watch?v=heJM... Sharing in case it helps anyone else struggling to ask the right questions about their own health 💙🦋 #pelvicvenouscongestionsyndrome #thoracicoutletsyndrome
Today is #SevereMEDay - a day to recognise and honour the people living with the most devastating forms of Myalgic Encephalomyelitis (ME). We are deeply grateful to those with Severe ME who took part in the DecodeME study. Your contribution is vital.
Results 💥 @decodemestudy.bsky.social www.decodeme.org.uk/initial-dna-...
Initial DecodeME DNA Results - DecodeME
06 August 2025 The DecodeME team is delighted to announce that the initial analysis of 15,579 DNA samples is complete, and we have important news to share. Main findings from our analysis Your genes ...
decodeme.org.uk
