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Esme's Umbrella

@charlesbonnetsyndrome.uk

A charity dedicated to raising awareness of Charles Bonnet Syndrome (CBS), a condition that causes visual hallucinations following sight loss. Supporting individuals and their families while advocating for greater understanding and research. ☂️

53 Posts218 Follower39 Folgt
Esme's Umbrella@charlesbonnetsyndrome.uk · 11mo ago

As part of our 10th anniversary and CBS Awareness Day this November, we’re joining Beacon Vision for a Breath & Sensory Meditation Workshop on 20 Nov. 🌿 Free sessions at 2.30pm & 4.30pm — come unwind and feel the difference a deep breath can make. ✨

Poster titled “Breath & Sensory Meditation Workshop.” At the top are the Esme’s Umbrella and Beacon Vision logos. Main text reads: “Take time to pause, breathe and reconnect. Thursday 20th November Sessions at 2.30pm and 4.30pm Join Esme’s Umbrella at Beacon Vision for a gentle session of guided breathing and sensory awareness to ease tension, calm the mind and support wellbeing. Learn how mindful breathing can help those living with Charles Bonnet Syndrome manage stress and feel more at ease. Free sessions – everyone welcome.” Background features a soft pattern of orange dots, with a curved orange border at the bottom framing a photo of a person holding a hand to their chest in a calm outdoor setting.
Esme's Umbrella@charlesbonnetsyndrome.uk · last yr.

“Cuddle Up” is out now! ✨ Created by @peter-marsh.bsky.social (Peter Marsh) for Esme’s Umbrella, the song raises awareness of CBS in children & young people. Huge thanks to Peter & @annemcivor.bsky.social. 🎧 Listen on iTunes here: music.lnk.to/KSQIwa and youtube here: www.youtube.com/watch?v=Ex_i...

Peter Marsh

Go to Peter Marsh.

music.lnk.to

Anne McIvor@annemcivor.bsky.social · last yr.

Cuddle Up - @peter-marsh.bsky.social & @charlesbonnetsyndrome.uk A song for children and young people with #charlesbonnetsyndrome youtu.be/Ex_ipBLCYi4?...

Esme's Umbrella@charlesbonnetsyndrome.uk · last yr.

Are you 18+ with a visual impairment? UCL is running a study on perception, emotion, and well-being. Take a 40-min online survey and enter a £25 prize draw. Questions? Email lee-jones@ucl.ac.uk. Take part here: qualtrics.ucl.ac.uk/jfe/form/SV_...

Qualtrics Survey | Qualtrics Experience Management

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

qualtrics.ucl.ac.uk

Esme's Umbrella@charlesbonnetsyndrome.uk · last yr.

🎉 We are pleased to announce the 2025 iteration of the CBS essay prize! 🎉 The prize is open to UK medical students in all years of study, including intercalating students. Entries are limited to 1000 words for this year's prize. We will be accepting entries until 1st October 2025 at 11.59pm. ✏️

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Esme's Umbrella@charlesbonnetsyndrome.uk · last yr.

We're proud to announce that our founder, Judith Potts, has been awarded a Times Sternberg Active Life Award in recognition of her work with Esme’s Umbrella. Presented at 11 Downing Street—an incredible honour.👏

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Esme's Umbrella@charlesbonnetsyndrome.uk · last yr.

Become an Esme’s Umbrella member and help support awareness and research into Charles Bonnet Syndrome. Membership is completely free and gives you access to our newsletter and the opportunity to take part in future research efforts.

Become an Esme’s Umbrella Member! The image is a graphic with an orange background, with a circle with a lighter orange border, with black text that says, Members can receive newsletters to stay updated with Esme’s Umbrella and have the opportunity to opt in for contact regarding research purposes to aid further CBS research efforts. Membership is completely free. To join, download the membership form at www.charlesbonnetsyndrome.uk/membership and return it to Luke at luke@charlesbonnetsyndrome.uk.
Esme's Umbrella@charlesbonnetsyndrome.uk · 2y ago

Our Founder Judith Potts writes for @nationalworld.bsky.social about the millions of people caring for aging parents or children, and the urgent need for more support. She also highlights @carents.bsky.social as a key resource. Read the full article here: app.nationalworld.com/story/507342...

Caregivers: The secret army of millions ‘sandwiched’ between their children and their parents – where to find help

If you ask AI for a definition of the work of a Caregiver, the description reads ‘carers provide a wide range of support, which can include practical tasks like cooking, cleaning and managing finances...

app.nationalworld.com

Esme's Umbrella@charlesbonnetsyndrome.uk · 2y ago

Judith Potts shares her CBS advocacy with @nationalvoices.bsky.social. revealing how people living with CBS are dismissed, misdiagnosed, and left without support. Despite its widespread impact, CBS continues to be overlooked. It’s time for change. Read more: www.nationalvoices.org.uk/blogpost/ado...

Adopting an orphan condition – Charles Bonnet Syndrome

Judith Potts, Founder and Trustee of Esme’s Umbrella, writes about Charles Bonnet Syndrome (CBS), its symptoms and the work of the organisation in raising awareness of and providing information about ...

nationalvoices.org.uk

Esme's Umbrella@charlesbonnetsyndrome.uk · 2y ago

We are so grateful to have @rebeccalowetv as our US Ambassador! 💜 Her support means the world as we raise awareness for Charles Bonnet Syndrome and ensure no one facing CBS feels alone. Rebecca, thank you for using your voice to shine a light on our work. We’re so lucky to have you by our side! 💫

The image is a screenshot from an Instagram story by the user "rebeccalowetv," who has a verified account. It features a woman with blonde hair, wearing a white short-sleeved top, smiling at the camera. She is standing in front of a colorful background with partially visible text. Below her image, there is a text overlay that reads: "New role!! US ambassador to my Mum’s incredible charity that she started up herself in my Grannie’s name. @esmesumbrella - please take a quick second to have a look and even a follow would be absolute magic. My mum is a 👑
Esme's Umbrella@charlesbonnetsyndrome.uk · 2y ago

📢 Study Opportunity for Those with Charles Bonnet Syndrome (CBS)! UCL and Moorfields Eye Hospital are exploring blood markers in CBS. Led by Prof. Mariya Moosajee and Dr. Lee Jones, the study invites individuals 18+ with CBS (1+ hallucination/week) to participate.

Esme's Umbrella@charlesbonnetsyndrome.uk · 2y ago

Invitation to Take Part in Research on Visual Imagination and Sight Impairment Researchers at Cardiff University are studying visual imagination in people with sight impairment to better understand why some experience visual hallucinations (Charles Bonnet Syndrome) after sight loss.