Through a generous grant from The Point of Care Foundation, National Voices is in a position to offer every local Healthwatch the chance to join us as members for the next 12 months, helping to strengthen collaboration, amplify community voices and support person-centred health and care.

Today, we launch our new report: Bridging the gap: How to ensure people's decisions are respected at the end of life. It shows that too many people are still dying in ways they explicitly said they did not want. compassionindying.org.uk/resource/bri...

Bridging the gap

How to ensure people’s decisions are respected at the end of life

compassionindying.org.uk

📢 A few members of the National Voices team will be heading to #ConfedExpo2026 and we can't wait to be there. Ahead of the conference, we've reflected on why staying connected to patients' experiences matters more than ever during a period of change for health and care. 🔗 tinyurl.com/39djwvjy

With other mental health organisations, we have written to Secretary of State Bridget Phillipson & the Chair of the EHRC to raise concerns about the EHRC Code of Practice & the impact it could have on trans & non-binary people’s safety and wellbeing. Read the letter: www.nsun.org.uk/news/joint-l...

Joint letter: voicing concerns about the EHRC Code of Practice

NSUN and other mental health organisations have written to Secretary of State Bridget Phillipson and the Chair of the Equality and Human Rights Commission to raise concerns about the EHRC Code of Prac...

nsun.org.uk

📢 Who will speak for patients when no one is listening? In this week’s blog, Jacob Lant reflects on Parliament’s debate on the Health Bill, exploring two key themes: the proposed Single Patient Record and the future of independent patient voice. 🔗 tinyurl.com/y2ubtwz8

📢 In this week’s blog, Aisha Mazhar unpacks the findings from Arthritis UK's new report, highlighting the barriers to timely diagnosis and the urgent need for holistic, personalised care from day one. Read the blog🔗 tinyurl.com/bj7kyax2 Read the report 👉 tinyurl.com/5cbc29nt

New blog for @nationalvoices.bsky.social from Abdi Hassan from Coffee Afrik CIC and @andybell-centremh.bsky.social on our trauma informed care and racialised communities report. Meaningful trauma-informed care must be anti-racist: www.nationalvoices.org.uk/blogpost/tra... #MentalHealthAwarenessWeek

How can the NHS boost productivity? @alisonmoulds.bsky.social​ and Charlotte MacLeod share a snapshot of insights and ideas on the health service’s productivity challenge from respondents to our #NHSProductivityCommission's recent call for evidence. Discover what we heard ⬇️ https://bit.ly/4wo29ZF

📢 To mark Mental Health Awareness Week, Amy Gill from @rethinkcharity.bsky.social reflects on the growing pressures facing mental health services, the urgent need for safer care, and why lasting change will only happen through sustained investment and collective action. 🔗 tinyurl.com/y2kasd48

About two-thirds of people with vision loss report loneliness, and roughly 1 in 4 experience depression or anxiety. Early support and screening are vital for maintaining mental well-being! @rnib.bsky.social @slcouncils.bsky.social @visionaryuk.bsky.social @nationalvoices.bsky.social

Thomas Pocklington Trust@pocklington.bsky.social · 3mo ago

This week is #MentalHealthAwarenessWeek 💚 We’d love to share the Mental Health Foundation’s tips to try, ranging from quick wins to advice on developing long-term healthy habits: https://bit.ly/4nkxp7N

🧵 🚀 We’re pleased to share the findings from our recent project with NHS England Transformation Directorate, exploring how patient-facing messaging can be designed and delivered to prompt action while remaining inclusive for people most at risk of exclusion. 🔗 tinyurl.com/bddj5z6a [1/5]

🧵 🚀 Last year we partnered with @thekingsfund.bsky.social , @healthwatchengland.bsky.social & @ipsosintheuk.bsky.social to research patients’ experiences of NHS communications and admin. We found widespread frustration with poor communication, and hard-to-navigate processes. [1/4]

🧵 Today, the 2025 British Social Attitudes (BSA) findings on health and social care were released. 📊 The BSA is a long-running, independent survey tracking public views on key social issues, including health, wellbeing, and public services. [1/6]

🌟 It’s Share for Better Care Week! The Care Quality Commission and @healthwatchengland.bsky.social want to hear from you about your experiences with your local health and social care services. 🔗https://tinyurl.com/4beywchn

🚨 NEWS 🚨 NSUN has today published ‘Not Just a Story’, a new report exploring experiences of engaging with the media as people with lived experience of mental ill-health, distress or trauma. Scroll for a summary of the report and its findings. www.nsun.org.uk/resource/not...

Not Just a Story: the media's engagement with lived experience (2026) - NSUN website

This report explores the experiences of people with lived experience of mental ill-health, distress or trauma when engaging with the media. During the... more

nsun.org.uk

🎉 Congratulations to Gemma Peters at Macmillan Cancer Support and Maddy Desforges OBE at NAVCA on their appointments to the new Civil Society Council. This announcement marks an important moment for engagement between government and civil society.

🧵 ✨ We’re delighted to share that the Care Quality Commission (CQC) has awarded a three-year contract to the Voices for Health Equity Partnership to deliver its Public Engagement Network programme from 1 April. [1/6]

This month we have published new user-led information on assisted dying for our website. Here’s why (a thread) ⬇️ compassionindying.org.uk/blog-post/ne...

New user-led content on assisted dying

Our research showed that people need clarity on what an assisted death is, and if it is currently legal in the UK.

compassionindying.org.uk

This week marks the next stage of our major public dialogue reviewing the 14-day rule for human embryo research, in partnership with @sciencewise.bsky.social and delivered by @ipsosintheuk.bsky.social, @nationalvoices.bsky.social and @theliminalspace.bsky.social. Find out more here:🔗 bit.ly/4rFZZ4B

📢 Beyond compliance: Why patient engagement must shape medical device design In this week's blog, Louis Horsley, National Voices' Research and Insight Manager, stresses the importance of medical device design being shaped by meaningful patient engagement. 🔗 tinyurl.com/2bdk3m42

🚀 Organising cancer care around people, not systems Earlier this week, the government launched its National Cancer Plan for England. In a new blog, @matt-heath.bsky.social, Policy and Comms Manager at National Voices, reflects on the Plan and its person-centred approach. 🔗 tinyurl.com/ye23uhwh

🚀 Turning lived experience into impact In this week’s blog, Katie-Rose, a National Voices' Lived Experience Partner, reflects on using her lived experience to help shape and analyse our research into patients’ experiences of medical devices outside hospital settings. 🔗 tinyurl.com/bp566t43

🧵 🚀 Today, we’ve published a new report with the Department of Health and Social Care, Patient views on medical devices prescribed to them outside of hospital in England, exploring people’s experiences of using medical devices prescribed under Part IX of the NHS Drug Tariff. 📄 tinyurl.com/ys754rbp

🚀 We’re pleased to announce the publication of our new report summarising a roundtable discussion we held with some of our member charities in mid-November. [1/4]

In this week’s blog, Tim Clarke shares how the NHS Transformation Directorate is tackling digital exclusion head-on, from library partnerships and free data schemes to inclusive design and accessibility testing across the NHS App and website. 🔗 tinyurl.com/4aefm427

📢 In this week’s blog, Jacob Lant, Chief Executive at National Voices, argues that the NHS doesn’t need more patient feedback, it needs to start listening to and acting on the vast experience data it already has. 👉 tinyurl.com/z62f8hbr

📢 In this week’s blog, Louis Horsley, National Voices’ Research and Insight Manager, shares new research commissioned by the Care Quality Commission (CQC) for the State of Care 2024/25 report, exploring people’s experiences of follow-up care after hospital discharge. 🔗 tinyurl.com/49skzzfu

🧵 📢 The British Medical Association (BMA) has announced industrial action by Resident Doctors at NHS organisations across England from 14 November to 19 November. Here’s our response. 1/5

🧵 💡 How do we get more health value from every pound invested in the NHS? National Voices is proud to be supporting @The Health Foundation with their new NHS Productivity Commission, which is asking this very question. [1/4]

📢 In this week’s blog, Catherine Jameson, Vikki Wylde, Emma Johnson and Kirsty Roberts, researchers from the @bristoluni.bsky.social, share how they co-produced an inclusive patient information leaflet (PIL) template to make research participation more accessible to everyone.