Tessera

@erubie.bsky.social

PhillyPhile215 @phillyphile215.bsky.social · last yr.

Reminder: comments due TODAY. More info and templates here: dredf.org/action-alert... This is a tangible way to fight this administration’s attacks on the disability community.

Tell the Department of Energy to Stop Attacking Civil Rights and Section 504 - DREDF

Disability Rights Education & Defense Fund

dredf.org

Julia Métraux@juliametraux.bsky.social · last yr.

The Department of Energy is trying to get rid of accessibility requirements for new construction via rulemaking. This unprecedented move, which seems to be illegal, could be the blueprint for other federal agencies to follow. New from me at @motherjones.com. www.motherjones.com/politics/202...

@erubie.bsky.social · last yr.

Want to keep the energy going from this weekend? Take this tangible action! Submit comments by Monday, June 16, at 11:59 pm ET to oppose DOE's attack on Section 504 and accessibility in the built environment. dredf.org/action-alert...

Tell the Department of Energy to Stop Attacking Civil Rights and Section 504 - DREDF

Disability Rights Education & Defense Fund

dredf.org

@erubie.bsky.social · last yr.

Grateful to Sen Bill Cassidy for keeping the pressure on during Wed's HELP hearing on FY26 HHS budget! Those in Louisiana: please take a min to thank him for his work to make Long COVID the very first topic of the hearing! Call: 202-224-5824 Message: cassidy.senate.gov/contact/get-in-touch

Get In Touch | U.S. Senator Bill Cassidy

"*" indicates required fields Your Name Prefix*– Select –Mr.Mrs.Ms.Mr. and Mrs.Dr.First Name* Middle Last Name* Suffix Your Contact Information Untitled Check Here If You Have a Foreign Address Addres...

cassidy.senate.gov

MaskTogetherAmerica @togetherwemask.bsky.social · last yr.

TX anti-mask bill SB 2595 got pushed thru to a committee overnight bc the session is close to ending & they bend the rules. 🚨 Leave a public comment‼️ comments.house.texas.gov/home TX Mask Bills Toolkit: sordid-accordion-7ef.notion.site/TX-H-B-No-30... @ancirabecky.bsky.social

TX Mask Bills Toolkit | Notion

About H.B. No. 3061

sordid-accordion-7ef.notion.site

MaskTogetherAmerica@togetherwemask.bsky.social · last yr.

“The pandemic isn’t over just because you’re over it.” Behind the Dräger x-plore is @ancirabecky.bsky.social urging Texans to #StopMaskBans🚨TX Bill HB 3061 is dangerous! The hearing is set on April 24 at 8AM (Capitol North Wing E2.014) Use toolkit: bit.ly/StopMaskBans Write: bit.ly/SaveMyRightT...

Becky is wearing a white hoodlie printed with words: The Pandemic Isn’t Over Just Because You’re Over It. She is wearing a Dräger x-plore, holding a sign with a red heart to promote the letter campaign, “#StopMaskBans Save Our Right to Mask” with a link: bit.ly/SaveMyRightToMask for people to send letter to the officials.

#MEAction Network @meactnet.bsky.social · last yr.

Sending our best to Ben HsuBorger, Terri Wilder #MEAction MN state lead, & other #MECFS #LongCovid advocates heading to Minnesota state capitol tomorrow. House budget is proposing eliminating ALL appropriations for Long COVID grants & health dept staffing! SOS moment for #MillionsMissing in MN.

Ben HsuBorger (white man with short dark hair & beard wearing an N95 mask and glasses and dark shirt) sits on a train with window behind him.

The Sick Times @thesicktimes.org · last yr.

Minnesota House legislators have proposed budget cuts that could end Long COVID research, communications, and grants in Minnesota, which has been a leader in state-level public health responses to the crisis. bit.ly/43lOjKM

Collage graphic showing a group of ME advocates at an awareness demonstration, the Minnesota state capitol building, a portrait of house speaker Lisa Demuth, and a vial of blood, overlaid with boxes in pastel blue, green, purple, and pink. The text reads, “Minnesota House budget proposes eliminating state Long COVID program. Cuts could end Long COVID research, communications, and grants in Minnesota, which has been a leader in state-level public health responses to the crisis. By Betsy Ladyzhets. The Sick Times.”

“If you cut this funding, you won’t make the problem disappear. You’ll see us more — in ERs, in homeless shelters, and on suicide prevention lines. You’ll lose the expertise of those who know what works — and what doesn’t.” - Ben HsuBorger, #MEAction advocacy director in
testimony to the state legislature

@erubie.bsky.social · last yr.

EDS Awareness Month Day 4: Flare day. Cancel plans I had been looking forward to for weeks day. Rest day. @ehlersdanlos.bsky.social

Jews for Mask Rights @jews4maskrights.bsky.social · last yr.

Reminder: There's still time to get the anti-mask policy out of the New York state budget. Call your state senator first thing Monday. bit.ly/no-mask-ban

@erubie.bsky.social · last yr.

EDS Awareness Month Day 3: In 2023, @ehlersdanlos.bsky.social invited me to share my diagnostic journey with reps from @fda.gov. Part of that talk included my own baseball-style diagnosis stats.

@erubie.bsky.social · last yr.

EDS Awareness Month Day 2: Boarded my flight home from DC (more about my trip to come). My ReadiMask caught the eye of a woman wearing a surgical. She asked me about it & shared that she works in a hospital & many provided masks don't fit her. I gave her a ReadiMask & thanked her for still masking❤️💪

Emily is on an airplane wearing a neck brace and a bright yellow ReadiMask stick-on mask with a SIP valve installed on it. She's smiling beneath the mask and wearing a gray t-shirt.

Kelly @broadwaybabyto.bsky.social · last yr.

Don’t underestimate the impact of choosing to wear a mask (ideally an N95) You’re telling disabled & marginalized people they’re not expendable. You’re telling government you don’t believe that COVID is over. You’re fighting for social justice & against ableism. You’re protecting your health.

@erubie.bsky.social · last yr.

EDS/HSD Awareness Month Day 1: Starting things off by resharing a picture from yesterday, when I had the opportunity to represent @lccampaign.bsky.social & join LC advocates in attending Senator Collins & @murray.senate.gov's bipartisan appropriations hearing on biomedical research. 1/x

A selfie of seven Long COVID advocates sitting in a row in a U.S. Senate hearing room. They are all wearing masks and Long COVID teal shirts.

@erubie.bsky.social · last yr.

Meaningful morning with fellow #LongCovid advocates at Sen Collins & @pattymurray.bsky.social's bipartisan biomedical research hearing. Heartening to hear Senate Approps GOP & @senateapprops.bsky.social's questions & bipartisan support for biomedical research. @lccampaign.bsky.social

Jews for Mask Rights @jews4maskrights.bsky.social · last yr.

⚠️ URGENT ACTION 4/29: The budget is NOT final. We need MASSIVE opposition while there's still time. ➡️ Call your reps to get anti-mask language OUT before a vote. ➡️ Ask 3 friends to call too! Full toolkit + contacts: bit.ly/no-mask-ban Use the new script below ⬇️

⚠️URGENT CALL TO ACTION 4/29⚠️
STOP ANTI-MASK NY LAW
We need MASSIVE opposition to the proposed budget language while we can still fight it:
CALL your state senator first. See bit.ly/no-mask-ban for full list of contacts.
ASK 3 friends to call to amplify our impact.
“Hi my name is [Name], and I’m calling as a constituent to urge [official] to oppose any policy that penalizes masking in the budget or beyond, including Hochul’s latest update. This law will be largely used against BIPOC, undocumented, and disabled New Yorkers. In a moment of rising authoritarianism, Dems must not allow policies that attack our civil liberties.”
Tell us what they say: bit.ly/mask-ban-debrief

@erubie.bsky.social · last yr.

For anyone in the DC area, join @lccampaign.bsky.social tomorrow (Apr 30) at Senator Collins & @murray.senate.gov's bipartisan medical research hearing at 10:30 am! Let us know if you plan to join—we have LC teal tshirts👕 www.appropriations.senate.gov/hearings/bio...

Biomedical Research: Keeping America’s Edge in Innovation | United States Senate Committee on Appropriations

United States Senate Committee on Appropriations

appropriations.senate.gov

Meighan Stone@meighanstone.bsky.social · last yr.

📣 #LongCOVIDCommunity: Back after NIH grant reinstatement crash, as time to organize again! Are you in DC area & want to join @lccampaign.bsky.social this Weds April 30 1030am at Sen. Collins & @murray.senate.gov bipartisan medical research hearing? appropriations.senate.gov/hearings/bio... 1/x

Jews for Mask Rights @jews4maskrights.bsky.social · last yr.

🚨 Hochul announced a budget deal that criminalizes masks — but IT’S NOT FINAL. Even she admits there are still details to work out. She’s hoping we’ll give up. We’re not going to. This is putting vulnerable New Yorkers at risk. KEEP CALLING. #NoNYMaskBan

Screenshot of a tweet from Jack Arpey @jack_arpey reading:
Gov. Hochul in the Red Room announcing a “general agreement” on the state budget, says some “final details” are still to be worked out. Above a photograph of Gov. Hochul.

COVID Advocacy NY @covidadvocacyny.bsky.social · last yr.

It is not okay such a controversial policy such as criminalizing masks is being done behind closed doors in the state budget. This policy should be done through legislation where the public has more of an opportunity to weigh in. New Yorkers, budget is not final. Keep calling! #NoNYMaskBan

Elana Levin @levin.bsky.social · last yr.

It's not a done deal. The ink is not signed. They want us to stop complaining but its held upon this long for a reason: your calls. Keep calling. The fact we've moved Hochul so far already is a sign to keep going, not a sign to give up.

Julie Lam @msjulieslam.bsky.social · last yr.

Please reach out to your senators and assembly members and governor to ask them not to have anti-mask legislation. Any mask restrictions will embolden anti-masking. We are tired of getting bullied for wearing a mask! #NoNYMaskBan @covidadvocacyny.bsky.social @jews4maskrights.bsky.social

MaskTogetherAmerica@togetherwemask.bsky.social · last yr.

Dr. Omer Awan emphasized the essential role masks play in protecting people from deadly infectious diseases and air pollution on @forbes.com bit.ly/ForbesOnMask... Any forms of restrictions will embolden anti-masking. Write: bit.ly/SaveMyRightT... Annotation: www.instagram.com/p/DJABypXPGB...

Screenshot of Forbes article: Why Mask Bans In America Could Set A Dangerous Precedent For Public Health, by Omer Awan, Senior Contributor. Dr. Omer Awan is a practicing physician who covers public health. Visual: A Medical Mask. Photo by LIONEL BONAVENTURE/AFP via Getty Images

Erin Biba @erinbiba.bsky.social · last yr.

“The new charge would be a class B misdemeanor and apply if someone wears a mask or covers their face with the intent of concealing their identity while committing a class A misdemeanor or felony or immediately fleeing the scene” They’re, of course, hanging this on Jews (WHO DO NOT WANT THIS)

Gov. Hochul, lawmakers strike deal on new crime of wearing mask while evading arrest

The deal between Hochul and the Legislature’s Democratic majorities clears a major hurdle to a final budget deal.

gothamist.com

Myra Batchelder @myrabatchelder.bsky.social · last yr.

Sometimes it’s hard to believe that in the midst of hundreds of people still dying weekly from COVID-19, millions disabled by #LongCOVID, measles spreading, wildfire smoke, & more our Democratic @governor.ny.gov wants to **restrict** masks, an essential public health tool! #NoNYMaskBan

@erubie.bsky.social · last yr.

Call tonight and leave a message. Call again tomorrow. Make it clear that we don't want anti-mask policies in the state budget!

COVID Advocacy NY@covidadvocacyny.bsky.social · last yr.

NY State Budget is not final yet. New Yorkers, keep calling your NY State Senators and Assemblymembers and urge them not to pass any anti-mask policies in the state budget! #NoNYMaskBan

Myra Batchelder @myrabatchelder.bsky.social · last yr.

New Yorkers, keep calling your NY State Senator and Assemblymember and urge them not to include any anti-mask legislation or mask restrictions in the state budget! #NoNYMaskBan

Jews for Mask Rights @jews4maskrights.bsky.social · last yr.

⏰ TIME SENSITIVE: Call today to stop NY's mask ban! Hochul is STILL trying to ban masks. Lawmakers are exhausted. The budget is almost done. That's when bad policies slip through. We’ve made huge progress, we must keep the pressure on to win! Toolkit: bit.ly/no-mask-ban 🧵1/4

Blue background with white text highlighted in red across top: Hochul is STILL trying
to ban masks in NY. Smaller white text below reads: Lawmakers are exhausted. The budget is almost done. And that's exactly when bad policies slip through. We’ve made so much progress, but we can only win if we keep the pressure on during crunch time.

Below that is a tweet from Benadette Hogan @bern_hogan which reads: Upshot budget isn't done: @GovHochul says she needs more days to tie up loose ends, no overall spending total (she proposed $252B) &She'll slim down $3B checks to NYers, mask ban will be approved in some form & total $ may change anyways thanks to fed $ uncertainty.

Meighan Stone @meighanstone.bsky.social · last yr.

Biomedical Research: Keeping America’s Edge in Innovation | United States Senate Committee on Appropriations

United States Senate Committee on Appropriations

appropriations.senate.gov

Dr. Lucky Tran @luckytran.com · last yr.

New York mask ban update: Our advocacy efforts are working! Gov Hochul is failing at convincing lawmakers to include a proposal that criminalizes masking in the budget, and some legislative officials predict it will be dropped from budget talks as negotiations drag on. Keep calling your electeds!

@erubie.bsky.social · last yr.

Just made my calls to Senator Brouk and Assembly Member Lunsford. New Yorkers, please make sure to call TODAY & encourage your state reps to oppose the updated mask restriction language!

A screenshot of Emily's call history showing calls made to numbers (518) 455-5784 and (518) 455-2215, both listed as New York numbers.

Jews for Mask Rights@jews4maskrights.bsky.social · last yr.

🚨📢 URGENT: The next 24 hours are crucial for #NoNYMaskBan. Gov. Hochul updated her NY mask ban, but it’s STILL dangerous, STILL criminalizes masks, and STILL a threat to New Yorkers. We need to show MASSIVE opposition to the update. Here's how to fight back: ⬇️ 🧵1/5

Kelly @broadwaybabyto.bsky.social · last yr.

Want to fight the proposed New York mask ban? See the steps below for ways you can ensure legislators know to vote “No” on any mask bans. Another way you can fight these bans? Wear a mask. The more of us masking, the more normalized they become. Public health tools should never be criminalized

Jews for Mask Rights@jews4maskrights.bsky.social · last yr.

@erubie.bsky.social · last yr.

Had a blast guest facilitating @thewashingtonpost.bsky.social Disability Coalition's first quarterly book club! Yesterday's discussion was about @sfdirewolf.bsky.social's Disability Visibility—the perfect book to kick things off with.

Emily and Katherine smile in front of a wood-paneled wall with The Washington Post on it in branded black lettering and back-lit. Emily, a white woman with long auburn hair, is wearing a colorful shawl and a black mask, and she is holding up a copy of the book Disability Visibility. Katherine, also white, is wearing a black crew neck sweatshirt with her short, light brown hair pulled back.