We were happy to see our hospice MP @jakerichardsmp.bsky.social a few days ago. As well as talking all things funding, @eveholroyd.bsky.social and I brought Jake up to date with how our services and team have developed over the past year since he last visited.
Eve Holroyd
@eveholroyd.bsky.social
Mum of 2 brilliant humans & a tortoise ~ RN (Child) ~ MSc Health Psychology ~ Bluebell Wood Children’s Hospice Care Services Director ~ lover of colourful skies and smelly cheese
Women are also unsafe in bars… what’s the plan for that minister? (Ps. @BBCnews can you use my licence fee to buy a grammar checker?) Closing bars could risk MPs' safety, says minister www.bbc.com/news/article...
Closing Parliament's bars could risk MPs' safety, says Lucy Powell
Commons leader Lucy Powell says she is open to debate about bars in Parliament but they serve a purpose.
bbc.com
I'm pleased to share our #editorial, written with @eveholroyd.bsky.social on the value of #partnership and #collaboration in children's hospices. You can read it in the journal, Nursing Children and Young People, here: doi.org/10.7748/ncyp... #ChildrensHospice #HospiceCare
This 👇🏼
Hot take: As a palliative care provider, I have to say that I cringe when I hear palliative care ppl described as “special” or as “angels”. We are not special, we just provide something very important. All healthcare should be doing it. #palliativecare
This makes me want to become a yoga teacher to be able to support families and loved ones who have lost a baby, child or young person ✨ The power of breath and the mind is fascinating and its usefulness not to be underestimated.
www.yogacampus.com/courses/even... Join me 8/9 Feb to explore simple, practical skills from the tradition of yoga (mindfulness, breath & bodywork, compassionate self-other awareness) to support people living with life-limiting illness, loss & grief. #palliative #yogacampus
Great news for #hospices in England today, following the funding announcement… and a good excuse to share our new editorial on #children’s hospices, written with @eveholroyd.bsky.social and published in #RCNi Nursing Children and Young People. You can read it here, for free: rcni.com/nursing-chil...
Children's hospice care: why partnership and collaboration is key
Children’s hospices have evolved to meet the changing needs of children, but need among children and families is growing while service provision is scaling back due to the challenges in commissioning ...
rcni.com
I floated this idea today. Turns out the team want different dance styles depending on the meeting.
This really makes me want to do a PhD!! Maybe I’ll start minuting meetings differently instead..
This really makes me want to do a PhD!! Maybe I’ll start minuting meetings differently instead..
Can you explain your doctoral research through interpretive dance? The 17th annual #DanceYourPhD competition is open! Submit by 28 March for a chance to win $2000: scim.ag/3BcKi0e
I could not be prouder of this organisation, a hospice that is built not of a building but of incredible people, each with their own unique and valuable contribution #teambluebell
Just managed to catch up on the ITV Tonight programme outlining challenges faced by hospices. Children’s hospices are a lifeline for families. Medical care only a fraction of what is on offer; mostly it’s about supporting living and creating safe spaces. 15% statutory funding just doesn’t cut it.
Wonderful afternoon visiting an incredible children’s hospice with attached adult hospice today. We arrived to all patients and families watching a puppet show in the main communal area and heard a warming tale of the impact of some children attending the dementia group. Feeling inspired 🥰
Read this thread. “As it crumbles, parliament discuss assisted dying”. A failure to properly fund palliative care will push people down this road. Two things are guaranteed in life: birth and death. One is predominantly funded by struggling charities. Fix this first.
Timely report into current planning & coordination of end of life care: National Confidedential Enq into Pt Outcomes & Death shows gaps in services, breaching 2019 NICE guidance for commissioning & providing adequate, timely planning & delivery of #EoL care & access to palliative care teams. 🧵 1/
Optimists: The glass is half full. Pessimists: The glass is half empty. Palliative Care professional: What do you want in the glass?
My sister in law and I chatted last night about the future of hospices..With digital innovation and more virtual solutions, what direction could hospices go? Buildings are expensive to run? Interested in any innovative services out there in #hapc #palliativecare #hospice #hospicecare #hospiceathome
Did you care for a family member who died when you were aged 25 or under? #NewResearchProject #NothingAboutYouWithoutYou #YoungCarers #YoungAdultCarers #Bereaved #PalliativeCare #HaveYourSay #GetInTouch #PleaseShare @nhkelly2.bsky.social
Post a picture you took (no description) to bring some zen to the timeline…
Post a picture you took (no description) to bring some zen to the timeline... P.S. I love this about BS 🦋
Joined here last week as part of the mass X-odus. Realised when I was writing my bio I’d lost all hobbies and was a 2 dimensional full time work/Mum. So I joined an adult ballet class. It was not easy - I’d forgotten all the moves have French names and my hip flexors have forgotten their flexiness.
Reportedly Wes Streeting will vote against the assisted dying bill saying “end-of-life care is currently not good enough to give people a real choice” Does the health sec realise how much EoL care continues to be charitably funded…? Perhaps addressing PEoLC funding first isn’t too wild an idea.