Supported by the Greater Manchester Research Engagement Network, Voice Up, @letsgetvocal.bsky.social and @mahdlo.bsky.social teamed up with @nihrbioresource.bsky.social to co-produce materials for the UK’s first study inviting children aged 0–15 to take part in health research 👇 bit.ly/45XWXiW
Zoë Abbott
@zoeabbott.bsky.social
PhD candidate @CardiffUni @ResearchWales. Research Assistant @MarieCurieResearch. Health research, coproduction, women's health, patient & public involvement, young carers, social care.
Thank you @researchwales.bsky.social for highlighting Familiar Study's work with brilliant participants and charities @CymruVArthritis, @VersusArthritis, and @YogaforAS. Thesis in progress, can't wait to share it with you, and most importantly, the target population. bit.ly/3JXFsYu
New tool aims to improve family planning for people with inflammatory arthritis
Researchers funded by Health and Care Research Wales have developed a new tool to support people with inflammatory arthritis (IA) in planning for pregnancy. The FAMILIAR (FActors Influencing faMIly ...
bit.ly
🧵 Energy bills are going up again in April. The average household will pay £111 more a year — but many will pay far more. Here's what’s happening, and what help is available. ⬇️
H&CRW Faculty team members and their poster with some results from the Faculty survey #ResearchWalesFaculty
Looking forward to a day hearing about all the great work being carried out with Health and Care Research Wales #ResearchWalesFaculty
Today I'm at the Health and Care Research Wales faculty showcase event #ResearchWalesFaculty I will be standing awkwardly next to my poster about young people in care's perceptions of social support and the association with mental health and wellbeing. Come say hi 👋🏻
Looking forward to the Health and Care Research Wales Faculty showcase today #ResearchWalesFaculty @thomaspurchas.bsky.social
Great to meet other #ResearchWalesFaculty members, and catch up with colleagues old and new. Just an hour in and already a great day!
🔜 Deadline 31st January! ⚠️ If you work with current or #bereaved young/young adult #carers in UK please take part in this short @mariecurieuk.bsky.social funded survey, looking at cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su...
🔜 Deadline 31st January! ⚠️ Work with current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @hospiceuk.bsky.social
🔜 Deadline 31st January! ⚠️ Work with current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @rainbowtrust.org.uk
🔜 Deadline 31st January! ⚠️ Work with current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @sueryder.bsky.social
🔜 Deadline 31st January! ⚠️ Work w/ current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life & in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @maggiescentres.bsky.social
🔜 Deadline 31st January! ⚠️ Work with current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life & in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @winstonswish.bsky.social
🔜 Deadline 31st January! ⚠️ Work with current or #bereaved UK young/young adult #carers? Please complete this short @mariecurieuk.bsky.social funded survey, on cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su... @childbereavementuk.org
🔜 Deadline 31st January! ⚠️ If you work with current or #bereaved young/young adult #carers in UK please take part in this short @mariecurieuk.bsky.social funded survey, looking at cross sector support at the end of life and in bereavement. Thank you 🙂 app.onlinesurveys.jisc.ac.uk/s/cardiff/su...
Give us clarity, predictability and details wherever possible. The world is a confusing and chaotic place, especially for #autistic people. When you communicate with intention and our needs in mind, you are helping us shed one of the many layers of anxiety that weigh us down EVERY day. #autism
Always good to be reminded of the need for clarity in speech and writing, removing ambiguity, which is important for both accuracy, and the mental health of others.
UK statistics state disabled women are nearly twice as likely to be sexually assaulted as non disabled women. Gisele Pelicot has blazed a trail for women in France. Let’s honour her courage & call out assault culture for us too. #disability #giselepelicot amp.theguardian.com/world/2021/n...
The everyday assault of disabled women: ‘It’s inappropriate sexual touching at least once a month’ | Sexual harassment | The Guardian
They are almost twice as likely to be sexually assaulted as non-disabled women. Why is so little being done to address this harrowing, pervasive problem?
amp.theguardian.com
Please join us. Demand better of your fellow man. Loudly condemn these despicable acts. Show us that you’re one of the good guys by being a true ally - not by yelling over us on the internet. Listen. Pay attention. Speak up if you see someone being harmed. We won’t go gently. It’s time for change
Always good to be reminded of the need for clarity in speech and writing, removing ambiguity, which is important for both accuracy, and the mental health of others.
My partner and I have been discussing what we’re having for dinner at his parents’ house tonight and sometimes it’s really not hard to figure out which one of us is autistic I do love his quick summary of us: Him: "We'll have to wait and find out 🙂” Me: "We'll have to wait and find out ☹️” #autism
#BIPOC voices are often missing from autistic spaces, so here is a BIPOC starter pack! 😊 go.bsky.app/TtXfpAt #racialequality #antiracism The image of autism as “only white boys” leads to underdiagnosis, discrimination & isolation for many Our autistic community is much more diverse than that! ❤️
Hey research teams/orgs that engage #PatientPartners! Please build in a very large chunk of time at your 1st team or other type of mtg for intros. This is really key to starting to build your relationship and trust. #PatientEngagement #ConsumerInvolvement #PPI /1
Thank you @familiarstudy.bsky.social 😊 it's been a learning curve for us both, it feels very strange to be coming to the end of the project after so long. You've got this 🫶🏻🦜
Biggest thanks on this #InternationalDayOfTheVolunteer goes to my long standing Patient Co-Researcher, @libbyhumphris.bsky.social, who has stuck with this project for over 6 years (yes, SIX!). Expertise, encouragement, and comradery. Thank you, Libby 🫶🏻 🦜
Great blog on co-analysis in dementia research by Lorna Smith. Well worth a read or listen www.dementiaresearcher.nihr.ac.uk/blog-co-anal...
Lorna Smith - Blog – Co-Analysis in Dementia Research: Insights from D-PACT
Explore Lorna Smith's reflections on co-analysis in dementia research, sharing insights and lessons learned from the D-PACT study and her first blog experience!
dementiaresearcher.nihr.ac.uk
Fantastic tips on co-analysis with lived experience experts in dementia research - thanks for sharing! #inclusiveresearch #coproduction #dementia
Great blog on co-analysis in dementia research by Lorna Smith. Well worth a read or listen www.dementiaresearcher.nihr.ac.uk/blog-co-anal...
We are looking for two people to join our team and help us co-produce mathematical infectious disease models for Mpox. You can read more about this opportunity and find out how to apply in this blog: www.coproductioncollective.co.uk/news/commetp... #coproduction #involvement #ppi
A right to paid employment leave for kinships carers, akin to adoption leave, would give families the time to settle the children in without having to leave work. Help us to lobby Government - use our campaign tool here: frg.org.uk/policy-and-c... #SameLoveSameLeave #ActForKinshipCare
Did you see Chrissi last week? A grandmother kinship carer in County Durham who spoke to #5News about stepping in to raise her 4 grandchildren & being forced to give up the job she loved. Our new research shows 6 in 10 kinship carers like Chrissi have to give up work or reduce their hours.