Living with MS? We’re recruiting adults in Great Britain to help us improve the Navigate MS app. Taking part is voluntary, you can stop at any time, and your identifiable information is only accessible to the research team. qualtrics.kcl.ac.uk/jfe/form/SV_...

Looking for people living with MS! With the MS Society and King's College London, we created an app to support MS symptom management, including: 1. Pain 2. Psychological distress 3. Sexual difficulties Try the programme that interests you and tell us how we can improve it: tinyurl.com/yw6dk6uu

Navigate MS@navigatems.bsky.social · last mo.

Do you live with MS in England, Wales or Scotland? We’re recruiting adults 18+ for the Navigate MS study. 📱 Use the app and share your feedback to help improve digital support for people with MS. 🔗 Learn more & sign up: qualtrics.kcl.ac.uk/jfe/form/SV_... Please share! #MultipleSclerosis

📱Why do we stop using health apps, and is that always a problem? A new blog from King's IoPPN PhD student Jeni Baykoca explores what helps people living with long-term conditions engage with mobile health apps. www.maudsleybrc.nihr.ac.uk/news/why-do-... @kingsioppn.bsky.social

The first paper from my PhD is now published in @jmirpub.bsky.social ! We brought together evidence from 19 systematic reviews to understand what may help people with long-term conditions stay engaged with mobile health apps. A helpful read for anyone interested in digital health and engagement.

Navigate MS@navigatems.bsky.social · 2mo ago

What keeps people engaged with mobile health apps? We brought together evidence from 19 systematic reviews covering 262 studies to understand what helps, or gets in the way, for people living with long-term conditions. Read the paper and practical guidelines: doi.org/10.2196/88382

I had such a lovely time at MS Frontiers last week, and it felt really special to share some of the work we’ve been doing on Navigate MS!

Navigate MS@navigatems.bsky.social · 3mo ago

Last week, our PhD students Emily, Goretti and Jeni from the Navigate MS project attended MS Frontiers 2026 at the University of Edinburgh.🧡 They shared work on the Navigate MS pain, distress and sexual difficulties programmes, highlighting how psychological support can help people living with MS.

Participants needed 📢 Can you help Rupali with their research? Looking for women aged 18+ living with long-term pain and taking prescribed pain medication to share their experiences. Your voice could make a real difference 💜 Please take part or share: forms.cloud.microsoft/pages/respon...

New Study: Does your menstrual cycle affect your MS symptoms? This study is funded by the MS Society UK and supported by MS Together. To take part, visit ms-menstrualcycle.co.uk/newcastle-la...

Imagine you’ve just given birth after a pregnancy with GDM, and you’re also feeling low or overwhelmed. Would breastfeeding feel straightforward? We studied this in 2,800+ women in Iran with @kingsioppn.bsky.social &Isfahan University of Medical Sciences. Graphic below Paper: tinyurl.com/3z36f54j

A new project is exploring how women living with MS experience menopause, aiming to identify gaps in care and support. Research in this area is still limited, so this study will help improve understanding and future support. 💜 ms-uk.org/news/new-pro... #MSUK #MSResearch #LivingWithMS

New project to explore how women with MS experience menopause

ms-uk.org

Planning a break or day out but not sure where to start? Our latest blog shares useful tips and trusted resources to help you find accessible holidays, city breaks and days out across the UK. 😊 Comment below if you have any trips or days out planned for 2026! ms-uk.org/blog/plannin...

Planning accessible days out and breaks in the UK

ms-uk.org

📢We are inviting people with MS to take part in Patient and Public Involvement (PPI) to help us ensure a new app is relevant, useful, and works as intended. Click the link below or message us directly if interested! forms.cloud.microsoft/e/REfPC4e5zQ

Researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study focusing on time to MS diagnosis. Participants can take part remotely. If this sounds of interest to you, please contact Richard for more information: r.c.edwards@wlv.ac.uk

Considerations for family planning with multiple sclerosis. Authors @drruthdobson @KerstinHellwig pubmed.ncbi.nlm.nih.gov/41925496/

Multiple sclerosis (MS) has more than doubled in recorded prevalence in England from 2000 to 2020, increasing by 6% per year, largely due to improved diagnosis and longer life expectancy, finds a new study by UCL and Imperial College London researchers. www.ucl.ac.uk/news/2026/ma...

Multiple sclerosis doubles in prevalence while survival rates improve

Multiple sclerosis (MS) has more than doubled in recorded prevalence in England from 2000 to 2020, increasing by 6% per year, largely due to improved diagnosis and longer life expectancy, finds a new ...

ucl.ac.uk

So lovely to get this package from @thehealthpsych.bsky.social to celebrate the upcoming publication of It’s All In Your Body. If you have a chronic health condition, this book really could be a life-changer. Pre-order: www.waterstones.com/book/its-all...

Real lived experience shaping tools for people with MS If this speaks to you, please consider getting involved 💙

Navigate MS@navigatems.bsky.social · 8mo ago

You’re living this. We’re listening. Help shape a new app supporting people with MS and psychological distress. 💻 Online | 💷 £25/hour Interested? msresearch@kcl.ac.uk #MSCommunity #multiplesclerosis #coproduction #MS #research

This retrospective study from Norway of over a million people found that maternal diabetes is linked to doubling of future risk of multiple sclerosis of the child (HR 2.15 (95% CI, 1.37-3.37). pubmed.ncbi.nlm.nih.gov/41525064/

We’re looking to include example scripts and real tips on what helped you share your MS diagnosis with friends, family, colleagues, or bosses. Let us know!

Navigate MS@navigatems.bsky.social · 10mo ago

We’re building an app for people living with MS.💙 We’d like to include real examples and tips on how you chose to disclose your MS to friends, family, or at work. If you’re comfortable sharing your experience, please comment, DM, or email msresearch@kcl.ac.uk

Brain scans reveal that mindfulness meditation for pain is not a placebo Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect” www.eurekalert.org/news-release...

Brain scans reveal that mindfulness meditation for pain is not a placebo

Brain scans reveal that mindfulness meditation engages different neural pathways compared to placebo, demonstrating that pain relief from mindfulness meditation is not the result of the placebo effect...

eurekalert.org

Thrilled to have won Best Oral Presentation at the Health Sciences DTC Symposium🎉 I presented my work adapting Compass MS into a self-guided mobile app for MS-related distress, and the panel chose it as their top talk. Pictured: me, the same height of the laptop stand😄 @kingsioppn.bsky.social

Such an energising session!🤗 I'm so grateful for this amazing, thoughtful group. Your insights are truly shaping the app into something meaningful and practical for people living with MS. Every conversation moves us a step closer to creating tools that support, empower and make a real difference👊

There’s no holiday from type 1 diabetes (T1D). The constant management can take a real toll on mental health. We have been looking at how to best detect and support mental health difficulties in people living with T1D. I wrote a blog post that breaks it down in an easy read 📝

Institute of Psychiatry, Psychology & Neuroscience@kingsioppn.bsky.social · last yr.

Type 1 diabetes is often called a 24/7 condition – it demands constant management Our researchers are investigating how people with type 1 diabetes experience mental health difficulties, which ones, and their severity. Read @jenibaykoca.bsky.social on new findings: www.kcl.ac.uk/mental-disor...

Can we study mental health in people with type 1 diabetes at scale? 🧠📊 We tested it and it’s doable. Read our new paper in @springernature.com Pilot and Feasibility Studies on what worked, what didn’t, and what’s next! Link to article: rdcu.be/eCYFj #T1D #MentalHealth #Research

1️⃣ NEW *open access* measure alert 🧵 We’ve just published the Illness-Related Distress (IRD) Scale in Psychological Medicine doi.org/10.1017/S003... It's a 14-item, trans-diagnostic PRO for distress related to living with any long-term physical condition (LTC). But WHY does this matter 🤔 ⬇️

Looking forward to speaking at the @midshealthpsych.bsky.social Conference! ✨ I'll be presenting on user engagement in mHealth apps for adults with long-term conditions. Get your tickets below and let’s chat about all things health psychology! 🎟️ f.mtr.cool/tbvntqqauj

Conference 2025 - Midlands Health Psychology Network

20th Annual Conference Building the Future of Health Psychology 20 May 2025 (10am-4pm), online Call for abstracts NOW open Annual MHPN Conference 2025: ‘Building the Future of Health Psychology’. If [...

f.mtr.cool

UK Health Psychology Network@ukhpn.bsky.social · last yr.

Introducing our speaker Jeni Baykoca!  Catch Jeni’s talk: User engagement in self-guided mHealth app-based interventions for adults with long-term conditions: An overview of systematic reviews Buy tickets now! https://f.mtr.cool/tbvntqqauj #Conference #HealthPsych #MultipleSclerosis

Participants needed 📣✨ We're developing a digital support tool for people living with MS experiencing sexual difficulties. Click the link below to access the survey and enter a prize draw for a chance to win 1 of 5 £20 vouchers! shorturl.at/bMjEz Your input makes a difference 💜

When we talk about MS, finding the right words can be tough – but it doesn’t have to be. That’s why, this MS Awareness Week, the UK’s leading MS charities are teaming up start #MSConversations This year’s theme is designed to break the stigma and get people talking about MS!

Are you a health psychology researcher? We would love to hear from you about your engagement with #OpenScience! Follow the link below to be taken to a brief survey: psychologygalway.qualtrics.com/jfe/form/SV_...

MS doesn’t just affect the body — it can impact mental health too. This MS Awareness Week, we’re talking about it. Watch the video and join the conversation. #MSAwareness"

Follow @kcl-ms-research.bsky.social for updates on our upcoming project aiming to support people living with MS! 👇

Navigate MS@navigatems.bsky.social · 2y ago

🚀 Introducing Our Apps! 📱✨ 1/3 Alex experiences psychological distress related to his MS symptoms, and this new app is here to help. See how it could make a difference for you too! 💙