Openly discussing something that people would rather ignore is generally annoying to people trying to ignore it. But that’s what activism looks like. It’s often thankless, even results in scorn or harassment, but it’s done for the greater good.

“You are more than your disability!” No. I’m exactly the same amount. I am disabled and it doesn’t make me less than

Reminder as we blaze toward the new year that it’s OK if 2025 was just a blur of pain and chaos instead of a productive era to reflect on. Being alive is particularly rough right now. You’re doing your best and that’s enough

Scented products are a disability rights issue. Before you light that candle, do your laundry with scented detergent, or spray perfume, ask yourself: Who else will breathe this in? 1/2

If you still wear a mask at all, even just when sick or at the hospital or on public transit, THANK YOU! If you still try to isolate or protect others when you are sick, THANK YOU. If you still test for COVID when you have any symptoms, THANK YOU.

Not so friendly reminder that Trump doesn’t see your ableist comments making fun of him for having XYZ condition or needing a catheter, but disabled people like me who have dealt with incontinence sure do. Don’t be ableist. There’s far better things to critique him for

I had two medical appointments and one prescription pickup today and it took about 5 hours in total. Being disabled or chronically ill is like having a full-time job you have to pay to do. And for many of us (myself included), holding an actual full-time job on top of that simply isn’t accessible.

Why hasn’t someone invented a “rent a cis white man to pretend to be your partner to help advocate for you in medical appointments” app yet? This would honestly be a great way for cis white men to use their privilege for good.

If you’ll bend over backward to “rescue” a three-legged dog but can’t be bothered to care about disabled humans (or toss a dime to disability mutual aid) you’re not compassionate, you’re just collecting props.

Trump has chronic venous insufficiency. Get ready for a wave of ableism from the left. 🫠

The worst part of being disabled with a complex medical condition requiring many different specialities, numerous appointments, and many medications every week? Automated clinic, hospital, and pharmacy phone systems. 🫠

In a world that worships productivity, choosing rest is rebellion. Accommodating yourself is resistance. Honoring your limits is power. It’s Disability Pride Month, and I’m proud as fuck of you for taking care of yourself even when the world tells you not to.

In grad school, I was told by my supervisors and professors to ensure that I hid pretty much everything about myself from my patients, including factors relating to my being disabled. 1/

My mom is FINALLY acknowledging that her AFib, brain fog, extreme fatigue, and other health issues that onset after she was sick with COVID almost 2 years ago are actually post covid issues. It only took me telling her this for 2 years and then a single provider at a hospital saying it once. 🫠

One of the most difficult parts of being disabled or chronically ill is realizing that there really isn’t much help out there. From the medical system to the government to your family and social networks, you’re not going to get much care.

Is that patient really “difficult” or do you just suck at your job?

Did you know that the reason most physicians don’t mask is because they are immune to long COVID? Wild, right? It’s just us lowly patients who succumb to it — especially the disposable ones. 🫠

When I was diagnosed with hEDS at Mayo Clinic the geneticist I spoke to said there was nothing that could be done for it. In the 6+ years since, I’ve realized just how wrong that was. What wild, unhelpful, or inaccurate things have you been told by your doctors about your medical condition(s)?

Quit being ableist when trying to insult bigots and eugenicists. You are doing their work for them!

So many people are afraid of getting older, but what’s really at the core of that is ableism. People are afraid of becoming disabled.

I do this radical thing with my patients where I just believe them when they tell me things, and let me tell you… ✨ MAGIC ✨ Highly recommend.

Wearing a mask is an act of community care and, with the current administration, it is an act of resistance. Get that respirator. Wear it. Protect yourself and those around you because the government sure won’t help you if you end up needing it.

I am disabled. I am not a warrior. My body is not a battlefield. How I feel is not a measure of how hard I fight — or don’t. We need to stop romanticizing struggle.

In case anyone still cares this is a war crime m.jpost.com/breaking-new...

IDF will seize Gaza land permanently until Hamas releases hostages, Katz says

"If the hostages are not released, Israel will continue to take more and more territory in the Strip for permanent control," he concluded.

m.jpost.com

Indoor air quality is a disability rights issue. Even wearing scented products can make a space inaccessible to some disabled people. Please be mindful of how the products you use might impact those around you.

FYI that you cannot reliably assess neurotransmitter levels in the brain by testing for them in your urine! Don’t get scammed into taking these tests. Their utility is limited at best. I’m tired of patients getting ripped off by providers pushing pseudoscience

Try not to hold yourself to ableist standards today, okay? You deserve rest.

Why do companies assume disabled people have a medical provider who understands their condition, work functions, possible accommodations, and has the time to write up a letter? Most providers have no idea what to do to help with accommodation requests—they aren’t trained in it.

Did you know that getting groceries delivered might actually be better for the planet than going to pick them up yourself? A study cited in this article discusses how getting items delivered might decrease your carbon footprint relative to driving to the store yourself: npr.org/2024/09/10/nx-…

The stories I hear about other healthcare providers failing and even directly harming patients every week… yikes. Providers need to better. Our lives literally depend on it.