Racquel Dozier describes core elements of #participatorymedicine in her #patientjourney post. #Communication, #trust, #honesty, & active informed participation are right out of @participatorymed.bsky.social's Manifesto. #S4PM #ParticipationIsTheBestMedicine socialhealthnetwork.com/advocacy/pat...

How Patient Partnership and Collaboration Lead to Better Care

A patient advocate and health leader shares how collaborating in partnership with her healthcare provider has led her to better health outcomes.

socialhealthnetwork.com

@gil-bashe.bsky.social writes about the importance of relationships vs transactions in #healthcare, underscoring the role of #participatorymedicine and #primarycare. This is what @S4PM is studying with CHAMP. participatorymedicine.org/champ/

Champ - Society for Participatory Medicine

participatorymedicine.org

Gil Bashe@gil-bashe.bsky.social · 5mo ago

Health is more than transactions - it’s relationships. When medicine becomes fragmented, we lose continuity and early insight into real illness patterns. My latest for @medikalife.bsky.social explores how transactional care may be jeopardizing our future health. Read: medika.life/how-transact...

Thrilled that my colleague, @cait-desroches.bsky.social will be working with us on this important project!

Society for Participatory Medicine@participatorymed.bsky.social · 5mo ago

@cait-desroches.bsky.social has been named Principal Investigator for the Society for Participatory Medicine’s (SPM) signature project: Collaborative Healthcare Action Measurement Platform (CHAMP). Learn more participatorymedicine.org/champ #HealthcareInnovation #PatientEngagement

Mission accomplished, RFK Jr and MAHA! 😢

Prof Peter Hotez MD PhD DSc(hon)@peterhotezmdphd.bsky.social · 8mo ago

I look forward to moderating a panel, co-hosted by JoPM/@jmirpub.bsky.social/ @s4pm.bsky.social on e-patients & evolving use of tech over time. Join @epatientdave.bsky.social @gfry.bsky.social @denisesilber.bsky.social @amyprice.bsky.social and me. landingpage.jmirpublications.com/how-digital-...

Heartbreaking panel at #STATSummit about what has happening and *is still* happening to @NIH, formerly the envy of the world, as brilliant scientists and critical programs and grants are being terminated. I am sad and angry. #cruelty #arewegreatyet

@s4pm.bsky.social announces CHAMP: Collaborative Healthcare Activity Measurement Platform project, to move #participatorymedicine from evangelism to evidence. #patients #survey #research participatorymedicine.org/epatients/20...

Collaboration is the Best Medicine: The Time for Participatory Medicine is Now - SPM Blog

Editor’s Note: Kevin Freiert and Dan Halpren-Ruder, MD are part of a group working to launch an exciting new SPM inititative, described here.   The Promise Participatory medicine promises […]

participatorymedicine.org

My dear Aussie friends, @georgemargelis.bsky.social & @drlouiseschaper.bsky.social, interviewed me for their podcast drds.us/4mCQa55. We discussed #epatients, #participatorymedicine, & my recent paper in @jmirpub.bsky.social J Participatory Medicine jopm.jmir.org/2025/1/e68911. @s4pm.bsky.social

PODCAST: Dr Danny Sands and the evolved e-patient - Pulse+IT

‘E-patients’ has evolved to mean “engaged, equipped and empowered”, global patient advocate Dr Danny Sands says on the latest episode of PULSE the Podcast. And there is now a model of ‘information sym...

drds.us

Excellent article. As a physician and public health advocate, it makes me angry that we have an ignorant science denier heading Health and Human Services.

Prof Sheena Cruickshank@sheencr.bsky.social · last yr.

Excellent debunker of some of RFKJrs misleading statements about vaccines by @jakescottmd.bsky.social

I am pleased to share the paper that Nancy Finn and I published in the Journal of Participatory Medicine, about the symbiotic evolution of digital technologies and e-patients. jopm.jmir.org/2025/1/e68911 @s4pm.bsky.social @jmirpub.bsky.social

From Internet to Artificial Intelligence (Al) Bots: Symbiotic Evolutions of Digital Technologies and e-Patients

This paper will view the rise of the e-patient, who is “equipped, enabled, empowered and engaged” through the lens of the evolution of successive digital technology innovations, each building on its p...

jopm.jmir.org

March is #multiplesclerosis Awareness Month. Join @s4pm.bsky.social on March 20 for "MS Patient Journey: from first diagnosis to #patient engagement." Keynotes include @healthhats.bsky.social & Dr. Ursela Baber (BIDMC). Please join and share with your network! www.eventbrite.com/e/the-ms-pat...

Join us on March 20 as we explore the MS #patient journey! Keynotes by @healthhats.bsky.social and Ursela Baber. Please share! www.eventbrite.com/e/the-ms-pat... @s4pm.bsky.social #SPMPatientJourney

Join @s4pm.bsky.social Mar 20 at The Multiple Sclerosis Patient Journey: From New Dx to Engagement. Engage w #patients, #caregivers, #healthcare pros, & others; learn importance of #participatorymedicine in MS. Keynotes @healthhats.bsky.social & Ursela Baber. www.eventbrite.com/e/the-ms-pat...

I'm thrilled that @amyprice.bsky.social is the new editor-in-chief of the Journal of Participatory Medicine. Amy has shared her vision and plans for innovations at the JoPM. Thanks to Sue Woods @ Matthew Hudson for their contributions as journal editors. participatorymedicine.org/2024/welcomi...

Welcoming Dr. Amy Price, DPhil as the Editor-in-Chief for the Journal of Participatory Medicine - Society for Participatory Medicine

JMIR Publications and the Society for Participatory Medicine are excited to announce Dr. Amy Price as the new editor-in-chief of the Journal of Participatory Medicine effective November 1, 2024. Dr. P...

participatorymedicine.org