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Dr. Elli Wilson

@elliwilson.bsky.social

Dr. Elli Wilson - Associate Professor, School of Health Sciences, University of Nottingham. UK. Qualitative researcher, palliative+end of life care, MND, complex homecare https://www.nottingham.ac.uk/healthsciences/people/eleanor.wilson Views are my own

42 Posts182 Follower218 Folgt
Dr. Elli Wilson@elliwilson.bsky.social · 2mo ago

📢Check out our short animation to help inform decisions about using tracheotomy ventilation for MND scitube.io/jon-palmer-t... Also - families experiences in our 'Living with TV' resource: www.nottingham.ac.uk/helmopen/res... @mndassoc.bsky.social @uonresearch.bsky.social #TVLife

Jon Palmer | Tracheostomy Ventilation in MND: Insights from Patients, Families and Clinicians - SciTube

Motor neurone disease (MND), also known as ALS, causes progressive muscle weakness that eventually affects breathing. When wanting help to support their breathing the majority of people with MND in th...

scitube.io

Dr. Elli Wilson@elliwilson.bsky.social · 3mo ago

📢Delighted to been funded by the @mndassoc.bsky.social to better understand families' experiences of Complex Homecare in MND. Secondary analysis of existing data offered significant ethical and methodological advantages. @uonresearch.bsky.social #CHiMND doi.org/10.1177/2632...

Paid homecare worker support for people living with motor neurone disease: A secondary analysis of people living with motor neurone disease and family member perspectives - Eleanor Wilson, Nicola Turn...

Background: People living with motor neurone disease (MND) increasingly receive complex, life-sustaining interventions at home, including ventilation, tube feed...

doi.org

Dr. Elli Wilson@elliwilson.bsky.social · 4mo ago

📢Last 10 days! Closing 26th June 2026 Are you a Family living with MND in the UK? Research by @uniofleicester.bsky.social #OptiMND @nihr.bsky.social Family carers survey: app.onlinesurveys.jisc.ac.uk/s/leicester/... People living with MND survey: app.onlinesurveys.jisc.ac.uk/s/leicester/...

Opti MND survey family and friends | Jisc Online Surveys

Jisc Online surveys is a powerful, easy to use tool for creating online surveys. Run by Jisc, online surveys is used by over 300 different organisations in the UK...

app.onlinesurveys.jisc.ac.uk

Prof Katherine Sleeman@katherinesleeman.bsky.social · 4mo ago

Very happy that the NIHR Policy Research Unit in Palliative and End of Life Care has been extended to end 2028! It’s a huge privilege to lead the Unit with Prof Fliss Murtagh, and working w brilliant colleagues at KCL, Universities of Hull, Lancaster, Leeds, Cambridge. www.kcl.ac.uk/news/nihr-po...

NIHR Policy Research Unit in Palliative and End of Life Care receives further £2m funding | King's College London

The NIHR Policy Research Unit (PRU) in Palliative and End of Life Care is funded by the National Institute for Health and Care Research (NIHR) and hosted by King’s College London in collaboration with...

kcl.ac.uk

Dr. Elli Wilson@elliwilson.bsky.social · 4mo ago

📢Out now! #TVLife @mndassoc.bsky.social Perspectives of people with MND living with tracheostomy ventilation doi.org/10.1080/0963...

A qualitative exploration of how people with motor neurone disease who use tracheostomy ventilation understand and experience quality of life

This qualitative study aimed to increase awareness of how people with motor neurone disease (pwMND) who use tracheostomy ventilation (TV) understand quality of lifeSemi-structured interviews were c...

doi.org

Dementia Researcher@dementiaresearcher.bsky.social · 4mo ago

Epidemiological Consultant role with the MND Association analysing UK datasets to produce national incidence and prevalence estimates for MND. Closing date: 11th June www.dementiaresearcher.nihr.ac.uk/job/epidemio...

Epidemiological Consultant - DEMENTIA RESEARCHER

MND Association seeks an Epidemiological Consultant to analyse national MND incidence and prevalence using UK datasets and secure research environments.

dementiaresearcher.nihr.ac.uk

MND Education@mndeducation.bsky.social · 7mo ago

We've launched a new webinar on voice and message banking! Join to learn how to help people with #MND consider voice & message banking options. The session will also provide an overview of current providers & the process involved 🗓️30 April 📍Online & free Book on mndassociation.org/education-events

Calendar of events

Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

mndassociation.org

John MacArtney@johnmacartney.bsky.social · last yr.

Join us to help develop recommendations to improve how "failure" is understood and experienced in HE! We want to hear from academic researchers at ANY career stage - PhDs all the way to established professors - in ANY department or discipline. *Please re-post to your networks!*

Join our study! Are you a research academic based in higher education? ​ If so, we would like to invite you to an engagement workshop to discuss recommendations and accommodations that can be made to support researchers when navigating failure in higher education.​ What is the research about?​ Failure is often a predominant feature of academic research and can include things such as research grant paper rejections, non-promotion or supervision upgrades. We are asking you to share your views on a framework of recommendations we have developed including the usefulness of the recommendations identified.​ We would like to talk to research academics at any stage of their career (early, mid or late) who:​ Hold a research post including – PhD students, Postdoctoral researchers, Research Assistants, Associates or Fellows, Senior Research Fellows, Readers, Assistant Professors, Associate Professors or Professors (clinical or non-clinical).​ ​What will I have to do?​ We would like to invite you to attend a focus group remotely over Microsoft Teams where you will discuss your experiences of failure in academic research culture. You will be asked: ​ Thoughts on accommodations to maintain wellbeing whilst navigating failure.​ To feedback on a framework of recommendations developed by the research team and how it could be implemented across research cultures. This might include what works for whom and when in regard to this topic.​ ​The focus group will take between 90-120 minutes and you will receive an e-voucher as a thank you for your time. ​ For further information, please use your institutional email address to contact us:​ Dr Celia Bernstein​ researchculturestudy@warwick.ac.uk
Dr Ben Bowers@drbenbowers.bsky.social · 9mo ago

Our new paper revealing the often under-reported harms in end-of-life care, within reported incidents. This inhibits systems learning and downplays the patient and family voice

BJGP@bjgp.org · 9mo ago

Hidden harms in #End-Of-Life injectable symptom control #HealthCare: many patient safety incidents reported as 'no harm' contain descriptions of physical/psychological harm experienced by patients and families doi.org/10.3399/BJGP... @drbenbowers.bsky.social @carsonstevens.bsky.social #PrimaryCare

Dr Ben Bowers@drbenbowers.bsky.social · 9mo ago

Access our new research paper in BJGP on learning from injectable medication incident reports in the community. We highlight the potential of cross-organisational targets to visit within 2 hours in a crisis

BJGP@bjgp.org · 9mo ago

Patient safety involving injectable medication in community end-of-life care needs improvements in symptom control care to ensure access to assessment, prescriptions, continuity & rapid visits to administer medication doi.org/10.3399/BJGP... @drbenbowers.bsky.social @dphpc.bsky.social @eng.cam.ac.uk

Lucy Selman@lucyselman.bsky.social · 11mo ago

📣Out today: “The system doesn’t really cater for the trauma that Black people have experienced” – Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative study www.tandfonline.com/doi/full/10.... Policy brief: tinyurl.com/34sh98ac

“The system doesn’t really cater for the trauma that Black people have experienced” – Experiences of grief and bereavement in Black British and Black Caribbean heritage communities in England: A qualitative study

People from Black and other minoritized ethnic communities are known to experience health and social care inequities, including barriers to accessing bereavement support. However, bereavement exper...

tandfonline.com

Centre for Academic Primary Care (CAPC), Bristol@capcbristol.bsky.social · 11mo ago

Structural racism & cultural misunderstanding compound grief for Black British/Black Caribbean communities, study finds. Authors call for widespread changes to improve bereavement experiences & access to support. 📰News: tinyurl.com/yc5tvucm 📄Paper: tinyurl.com/2eremjs4 #NationalGriefAwarenessWeek

Annayah M.B. Prosser@annayahprosser.bsky.social · 10mo ago

If you're an ECR who has done great work to promote open research, please consider applying for this excellent award! I recieved this earlier this year and my minifig sits proudly in my office 😊 A great way to recognise ECR contributions!

UK Reproducibility Network@ukrepro.bsky.social · 10mo ago

Nominations for the UKRN Dorothy Bishop Prize 2026 have opened! Named after @deevybee.bsky.social, the prize, first awarded in 2022, celebrates the contributions of early career researchers to research improvement. Nominations close 18 January 2026. #AcademicSky #Research

Dementia Researcher@dementiaresearcher.bsky.social · 11mo ago

Vacancy for a Professor of Old Age Psychiatry at University of Oxford. Lead dementia and mental health research shaping future care for older adults. Closing date: 5th January www.dementiaresearcher.nihr.ac.uk/job/professo...

Professor: Old Age Psychiatry - DEMENTIA RESEARCHER

Professor of Old Age Psychiatry at University of Oxford. Lead dementia and mental health research shaping future care for older adults.

dementiaresearcher.nihr.ac.uk

Dr. Elli Wilson@elliwilson.bsky.social · 11mo ago

'The Association of British Paediatric Nurses (ABPN) expresses serious concerns following the University of Nottingham’s decision to suspend children’s nursing and mental health nursing programmes.' www.linkedin.com/feed/update/...

Short term decisions – long term impact | Fiona Smith

Short term decisions – long term impact on children and young people The Association of British Paediatric Nurses (ABPN) expresses serious concerns following the University of Nottingham’s decision ...

linkedin.com

Dr Rachel Clarke@drrachelclarke.com · 11mo ago

"We would never tolerate a government that chose to defund 70% of neonatal services, gambling that charities would fill the gap. Yet this is exactly the situation for end-of-life care." Please read my piece on the travesty of NHS palliative care underfunding 🙏 www.theguardian.com/commentisfre...

As a palliative care specialist, I’ve witnessed the human tragedy of our end-of-life care crisis | Rachel Clarke

While the government debates assisted dying, palliative care is an afterthought. And many more people face death without the care and support they need, says Rachel Clarke

theguardian.com