📣📣📣Help shape the future of palliative and end-of-life care We’re recruiting to TWO positions in the Impact Centre for Palliative and End-of-Life Care at King's College London 🌟Research Associate 🌟Research Administrator 📅 Closing date 20 July 🔗 Details and links in 🧵

New CLADD (Complex Life and Death Decisions group) briefing on Lauren Edwards MP decision to reintroduce the Terminally Ill Adults Bill www.mentalcapacitylawandpolicy.org.uk/terminally-i...

Terminally Ill Adults (End of Life) Bill CLADD briefing June 2026

To download this briefing as a PDF, please click here. Introduction This briefing is prepared in June 2026 by Professor Gareth Owen, Professor Alex Ruck Keene KC (Hon) and Prof…

mentalcapacitylawandpolicy.org.uk

Very happy that the NIHR Policy Research Unit in Palliative and End of Life Care has been extended to end 2028! It’s a huge privilege to lead the Unit with Prof Fliss Murtagh, and working w brilliant colleagues at KCL, Universities of Hull, Lancaster, Leeds, Cambridge. www.kcl.ac.uk/news/nihr-po...

NIHR Policy Research Unit in Palliative and End of Life Care receives further £2m funding | King's College London

The NIHR Policy Research Unit (PRU) in Palliative and End of Life Care is funded by the National Institute for Health and Care Research (NIHR) and hosted by King’s College London in collaboration with...

kcl.ac.uk

Alex has updated his resource page on the Terminally Ill Adults Bill. Bookmark this page if you are interested in the Bill.

Alex Ruck Keene @capacitylaw.bsky.social · 2mo ago

Terminally Ill Adults (End of Life) Bill – updated resources page On 14 June 2026, Lauren Roberts announced that she would use her position in the Private Members Ballot to re-introduce… https://www.mentalcapacitylawandpolicy.org.uk/terminally-ill-adults-end-of-life-bill-updated-resources-page/

This is painful. “It was rightly described as the safest and most robust assisted dying law anywhere in the world” Umm, only by the people trying to push it through. 🧵 Brief thread of how others described the Bill:

Lauren Edwards MP@laurenedwardsmp.bsky.social · 2mo ago

It is a great privilege to have come second in the ballot for Private Member’s Bills. After giving the matter a great deal of thought, I will be reintroducing the Terminally Ill Adults (End of Life) Bill. You can read my full statement on this here or on my website: buff.ly/I78DfUX

📣📣📣 FREE webinar on supporting patients to access benefits towards the end of life 📅 Thursday 18th June 1.00-2.00pm 🖥️ Online via Teams ✅Guidance on the ‘Special Rules’ ✅Practical tools for communication ✅Latest research 💬Panel discussion Sign up 👉 www.tickettailor.com/events/facul...

UKs first outdoor intensive care ward opens at King’s College Hospital www.bbc.co.uk/news/article...

UK's first rooftop intensive care ward opens at King's College Hospital

The outdoor ward, at King's College Hospital in London, will monitor how much it boosts the recovery of seriously ill patients.

bbc.co.uk

New article on lessons learned from failure of the assisted dying Bill. @capacitylaw.bsky.social, Gareth Owen and I argue that good law won’t be achieved by persisting with the Terminally Ill Adults Bill model, or by reintroducing it as a Private Members Bill. www.politicshome.com/opinion/arti...

Big changes will need to be made to the assisted dying legislation for success next time

Kim Leadbeater’s assisted dying bill failed to make it through the Lords. To be more successful next time, a different approach will be needed, wri...

politicshome.com

New article by @jamillahussain1.bsky.social, Rini Jones and me on implications of assisted dying legislation for ethnic minority groups spcare.bmj.com/content/earl...

📣📣📣 FREE webinar on supporting patients to access benefits towards the end of life 📅 Thursday 18th June 1.00-2.00pm 🖥️ Online via Teams ✅Guidance on the ‘Special Rules’ ✅Practical tools for communication ✅Latest research 💬Panel discussion Sign up 👉 www.tickettailor.com/events/facul...

It’s Dying Matters Awareness Week. Here are five recent papers that you should be aware of… #DyingMattersAwarenessWeek 🧵

In another first for FHJ,here's their first video article, a conversation/reflection about the Australian experience of legalising Assisted Dying. Thoughtful, courteous, curious, balanced. Thanks to @katherinesleeman.bsky.social Dr Tom Osborne & Lucy Easthope sciencedirect.com/science/arti... 8/

Brilliant series of articles, so pleased to have contributed 👇

Dr Kathryn Mannix@drkathrynmannix.bsky.social · 4mo ago

Buckle up, folks, I have big news. I was invited to guest edit this month's @futurehealthj.bsky.social from @rcphysicians.bsky.social * Yes, a dedicated #PallCall & #EoLCare issue! It's open access, so here's the full contents with links. This may require more than a single pot of tea. 1/

The Health and Social Care Committee is ‘highly concerned’ about the state of palliative and end of life care. committees.parliament.uk/committee/81...

Children’s end of life services among areas that desperately need addressing in reforms to palliative care, says Health Committee - Committees - UK Parliament

A new report by the Health and Social Care Committee challenges the Government to ensure its forthcoming plans for England’s palliative and end of life care sector lead to lasting improvement, i...

committees.parliament.uk

The Health and Social Care Committee is ‘highly concerned’ about the state of palliative and end of life care. committees.parliament.uk/committee/81...

Children’s end of life services among areas that desperately need addressing in reforms to palliative care, says Health Committee - Committees - UK Parliament

A new report by the Health and Social Care Committee challenges the Government to ensure its forthcoming plans for England’s palliative and end of life care sector lead to lasting improvement, i...

committees.parliament.uk

New paper, out today in @palliativemedj.bsky.social Specialist palliative care improves patient experience, reduces bed days and saves money: An economic modelling study of home- and hospital-based care journals.sagepub.com/doi/10.1177/...

Sage Journals: Discover world-class research

Subscription and open access journals from Sage, the world's leading independent academic publisher.

journals.sagepub.com

500 people have signed up to our webinar tomorrow! Still space for more :)

Prof Katherine Sleeman@katherinesleeman.bsky.social · 7mo ago

📣📣📣 FREE webinar on out-of-hours palliative and end of life care 📅 Thursday 5th March 1.00-2.30pm 🖥️ Online via Teams 📊Short talks on the latest research and evidence plus a cross-sector panel discussion Sign up 👉 www.tickettailor.com/events/facul... Info👇

Regardless of the outcome on #AssistedDying we need good quality #palliativecare in the UK. It affects many more people than the AD bill ever will. @mariecurieuk.bsky.social new research is sobering and a call to action 👇

Shaun Lintern@shaunlintern.bsky.social · 6mo ago

🚨 Clare Welch pleaded for help from NHS 111 as her dying mother screamed in pain in the other room. Told a dr would call, 4 years on she is still waiting for that call back. New @mariecurieuk research has found 170,000 people die in pain every year: www.thetimes.com/article/7552...

Thank you @shaunlintern.bsky.social for covering our new Marie Curie research. 🚨1 in 3 people in England and Wales die with unmet palliative care needs. 🚨That’s 170,000 people each year. 🚨Meaning that every three minutes someone dies with suffering that could and should be alleviated, but is not.

Shaun Lintern@shaunlintern.bsky.social · 6mo ago

🚨 Clare Welch pleaded for help from NHS 111 as her dying mother screamed in pain in the other room. Told a dr would call, 4 years on she is still waiting for that call back. New @mariecurieuk research has found 170,000 people die in pain every year: www.thetimes.com/article/7552...

📣📣📣 FREE webinar on out-of-hours palliative and end of life care 📅 Thursday 5th March 1.00-2.30pm 🖥️ Online via Teams 📊Short talks on the latest research and evidence plus a cross-sector panel discussion Sign up 👉 www.tickettailor.com/events/facul... Info👇

FREE webinar on out-of-hours end-of-life care 📅 Thursday 5th March 1.00-2.30pm 🖥️ Online via Teams 📊Short talks on the latest research & evidence plus a panel discussion - with me, Kate Heaps, Therese Johansson, Joanna Davies and Alice Firth Sign up: www.tickettailor.com/events/facul...

📣📣 New paper! Continuity of GP care is associated with lower total NHS costs for people with dementia in their last year of life. Adds to the evidence that continuity of care is: 👉better for patients 👉better for the system bjgp.org/content/bjgp...

📣📣📣 FREE webinar on out-of-hours palliative and end of life care 📅 Thursday 5th March 1.00-2.30pm 🖥️ Online via Teams 📊Short talks on the latest research and evidence plus a cross-sector panel discussion Sign up 👉 www.tickettailor.com/events/facul... Info👇

New paper on ethnic inequality in place of death, led by Dr Joanna Davies journals.sagepub.com/doi/10.1177/...

New paper on the assoc btw socioeconomic position and pain at the end of life 👉 lower financial status is associated with being more affected by pain in the last week of life 👉 the social gradient is steeper in hospitals, and not present in care homes www.jpain.org/action/showP...

🔔🔔🔔New paper on quality of end of life care Data from >1,000 bereaved carers in England and Wales We identify 6 core components of quality of care (which are frequently not achieved) We provide a model for conceptualising quality in EOL care to guide policy journals.sagepub.com/doi/epub/10....

Congratulations to Rachel Chambers on publication of her first PhD paper - a (massive 100-paper) systematic review of the symptoms and concerns of young adults with life limiting conditions. journals.sagepub.com/doi/epub/10....

NEW PAPER on knowledge awareness and trust in palliative care In a UK wide survey, people from minoritised ethnic groups had: 👉Less awareness of palliative care 👉Less accurate knowledge about palliative care 👉Lower trust towards professionals to deliver high-quality EOL care

The Health and Social Care Committee’s evaluation of palliative care in England was published yesterday. It’s hugely important, not least in the context of the assisted dying bill. It’s had almost no media coverage. committees.parliament.uk/publications...

The report of the House of Lords Terminally Ill Adults (End of Life) Bill Committee has been published. Less of a ‘report’ than I was expecting - more a compilation of evidence - but useful nonetheless. committees.parliament.uk/committee/81...

Terminally Ill Adults (End of Life) Bill Committee - Reports, special reports and government responses - Committees - UK Parliament

Report, special report and government response publications for Terminally Ill Adults (End of Life) Bill Committee.

committees.parliament.uk