Patients at the center = stronger health systems. Evidence, trust & impact improve when participation is structural. The BMJ publication shows us how. tinyurl.com/y2spdfds #WorldAIDSDay #PatientEngagement #PFMD

Action is needed to implement World Health Assembly social participation resolution

At the 77th World Health Assembly in 2024 governments made a unanimous and unprecedented commitment to put patients, people and communities with lived experience, and healthcare workers at the heart o...

tinyurl.com

Brilliant to hear Liz from t1international sharing their mission to make access to insulin a human right. Their aim is to make the cost of essential diabetes supplies less than 5% of a person income in any given country. Another amazing community led group leading the charge for change #IDF25Bangkok

Now into a session on ending diabetes stigma. If you haven’t already please sign the pledge at EndDiabetesStigma.org #EndDiabetesStimga

Home - End Diabetes Stigma and Discrimination

Help create a more compassionate and respectful world for people with diabetes, free from diabetes stigma and discrimination and the harms they inflict.

enddiabetesstigma.org

First session is on reproductive health in women with diabetes. Learning that 1 in 4 women with type 1 diabetes may also have PCOS. Girls with T1D also tend to start their periods later than others #IDF25Bangkok

Really excited to spend the day in sessions at #IDF25Congress in Bangkok. Starting with a matcha 💚

Looking forward to heading to Thailand this weekend for the world diabetes congress. I am speaking on patient involvement in research and policy. Let me know if you will be there too!

A reminder from @renzas.bsky.social to sign the #enddiabetesstigma pledge and announcing an upcoming global summit. #attd2025 #dedoc°

Are you interested in authoring reviews on diabetes in pregnancy for a WHO guideline? Cochrane has an opportunity looking for patient and carer input engage.cochrane.org/tasks/3891

Are you interested in authoring reviews on diabetes in pregnancy for a WHO guideline?

Be part of a global volunteer community engaged in health evidence work

engage.cochrane.org

Next up the #dedoc symposium with four of the dedoc voices sharing their experiences of diabetes, advocacy, misdiagnosis and peer support #dukpc25 #gbdoc

First session today is on diabetes stigma starting with diabetes UK sharing the plan to tackle this. You can share your thoughts and ideas on their plans here - www.smartsurvey.co.uk/s/dukpc-tack... #dukpc25 #dedoc

Day 2 of #dukpc25 and the sun is shining! Make sure you join us online for the #dedoc symposium this afternoon! It will be live streamed on the DeDoc Facebook page and youtube channel

Day 1 of #dukpc2025 in Glasgow. It may have been raining outside but there the usual conference buzz inside was amazing. I received my pass for the event through DeDoc.org which brings people living with diabetes to the big diabetes conferences around the world!

Help Us Make the Unseen, Seen! 🌍 Have you ever faced stigma because of diabetes? UNSEEN is a global initiative to uncover and document diabetes stigma through personal experiences, data, and solutions. Please complete this survey to help make change! docs.google.com/forms/d/e/1F...

Update from Diabetes Scotland on tech access in children and young people ✅ 65% with T1D on pumps ✅ Two health boards with 80% on CGM with all other boards due to reach this level within weeks. No data shared on the number on HCL though…

a sign that says work in progress on a bright blue background

ALT: a sign that says work in progress on a bright blue background

media.tenor.com

"Society is convinced weight is under an individual’s control and so the sense that I had brought this on myself—and the developing baby—was overwhelming." Sue Fletcher-Watson describes the pressures of constant monitoring in a pregnancy deemed high risk www.bmj.com/content/388/...

This week was my first ‘official’ meeting as a member of the @facultypharmmed.bsky.social patient and communities forum. Really looking forward to learning and sharing to better patient partnership. They have created a great list of PPI resources - www.fpm.org.uk/about/commit...

Help develop guidance on reward, recognition and remuneration for patients, service users or family carers who share their personal experiences or are involved / take part in improvement projects by taking our short survey: https://buff.ly/3PxlCD8

Developing guidance for patients, service users or family carers on reward, recognition and remuneration

The Patients Association and SNEE ICP are creating guidelines to reward and recognise patients, carers, and service users contributing to healthcare improvements. Share your views through our survey.

buff.ly

Happy New Year to the wonderful folk in the #diabetes community. 2024 has allowed me to meet some members of the #doc for the first time, and also to catch up with others in the community who I truly call my friends 💙 Here's to 2025, and seeing/meeting a lot more of you! x **

One picture to define the year 2024 for me A year of sinking into work to forget the grief of Ma And wrapped with love and kindness from those living with #T1Diabetes A treasure-forever more (TAD 2024, Liverpool) Thank you to all of you in the #T1D community for being there for me 💙

One of my highlights from 2024 has been working with the incredible panel Katharine Barnard-Kelly assembled to help move towards patient reported outcomes becoming standardised. One paper focused on adults living with diabetes - onlinelibrary.wiley.com/doi/full/10....

<em>Diabetic Medicine</em> | Diabetes UK Journal | Wiley Online Library

Diabetes is unique among chronic diseases because clinical outcomes are intimately tied to how the person living with diabetes reacts to and implements treatment recommendations. It is further charac...

onlinelibrary.wiley.com

Applications are open for DeDoc scholarships for 2025. If you live with any type of diabetes and want to hear about the latest research in diabetes sign up here www.dedoc.org/voices #Type1Diabetes #Type2Diabetes