Hey Bluesky, could you help spread the word? My goal for the day is one new sale at my shop. Each Jeremy Creature is designed and hand-sewed by me and takes many hours to create. jeremycreature.bigcartel.com
Emma Sutton
@emmalgsutton.bsky.social
#SENDMum #AutismMom #ADHDMum to two incredible adopted children. Battling for an education that fits the needs of her neurodiverse children. Expressing the reality of being a SEND parent in books and cartoons.
Language matters and evolves. Our terminology card sets out short plain definitions of the terms we use, from neurodivergence and neurodivergent through to neuro-affirmative. We connect and neuro-affirmative language recognises hypermobility and neurodivergence as interconnected aspects
I wrote a book some years ago I didn't like it, so it gathered dust Now 18 months after rediscovering it, I'm in a countdown to publication If anyone liked And Then There Were Four and would like a pre-publication copy of And Trauma Made Five to read & review, let me know.
I don't think I've ever heard something as heart breaking as my sobbing daughter telling her rabbit that sh's so sorry she couldn't save him.... Mayhem was one of a kind & is going to be sorely missed
You met the family in "and then there were four". Now meet the fifth member. "and trauma made five"
"And Trauma Made Five" Post adoption tales of when the ripple effects of trauma bit hard and we had to dramatically change our parenting from Trad to Therapeutish It's getting closer to publication, which is both nerve-wracking & exciting
Today we've got a two hour EHC needs assessment mediation Because even though our son meets the criteria for need, the LA believe his needs are able to be met through school (which he can't attend) He has had no education since January....
No, autism is NOT overdiagnosed. It is *under diagnosed*, especially in autistics who aren't white boys from financially stable families. Anyone who claims we are overdiagnosing autism is either misinformed, or cruel, or both. #autism #neurodiversity
Mental health is a slippery issue Those most in need of help don't always recognise they need it Nor are they able to accept help Sometimes even opening up to others is too hard/ painful/ scary But this country needs to invest in mental health - it saves lives
Today I took six photos of bees on flowers but this was my favourite. In other news, a friend gifted me a reframe about my life - that I had managed to keep three people alive, who might not have made it without me.
There are so many children and families being failed by the system Months to wait for referrals or appointments Years to wait for insight into your child's neurodiversity Few options (with nowhere near enough places) if your child can't cope in mainstream SEND is in crisis. So are those with SEND
I've just finished the wonderful Hotel Alpha (the 3rd book of Mark's I've read)... Tempted by the extra stories online but will they answer my burning need to know if Graham found Agatha or Chas found his dad?? @watsoncomedian.bsky.social
Note to self 1. Don't try baking cakes when the sparky is working on your dodgy electrics 2. Don't try baking when your request for ECH needs assessment has been spuriously rejected based on inaccurate information as your brain is done
I have one child with an EHCP & I couldn't be less satisfied without being dead Three years of battle Got an EHCP but mainstream Then a court case Just before, the LA gave her a specialist school, court over Twist: the school is full Still no education The system is totally broken
school.is
18per cent are persistently absent. The usual solutions around attendance proposed. About send system lacks analysis and depth.
223000 children mainly neurodivergent children are regularly absent in Scotland. Many are on part time or very part time timetables. 1 hour a week for example. Other have long lasting absences due to being burnt out by being consistently overwhelmed. We want national standardised accurate recording
So the LA aren't just messing parents about, they're messing schools and colleges about to They've named a specialist provision (caving just before tribunal) who have No Room for my daughter.... Just when you think you've an answer... Nope SEND children are being let down by a broken system
Daily reminder that 222,000 children, young people and their parents/carers are struggling right now. They may have had no sleep. Burnout means they aren’t engaging in normal activities. Barely able to leave their rooms or houses. Or so distressed being upset, crying and screaming. School is cause.
Almost two weeks ago I attended a fused glass workshop. It was two hours of design, chat & delicate glueing. The finished curved piece is both beautiful & a reminder of a lovely crafternoon with friends.
Three years out of education 18 months with an EHCP (said mainstream but mainstream said no) Nearly 300 pages of evidence Two weeks before the court tribunal, the LA concede With all of one week before Easter break in her final year of high school So much energy & time wasted to save money
These children and their families are being left down by a system that doesn't suit them I have two teens not in education - school has devastated their mental health instead of giving them friends, belonging, confidence
Daily reminder that UNCRC means nothing to neurodivergent kids and their parent/carers. They CAN’ T be in the school environments. Imagine designing a “ service” for the whole of society to use and so many “ service users” can’t physically access or be in the building. This is Scottish Education.
This is an amygdala hijack When the thinking brain shuts down due to fear & what's left is a fight/ flight/ freeze response Yesterday it was just a scorched kitchen counter But it's also running, going missing, shouting, cowering... Trauma and neurodivergent brains are an interesting combo
Neither of our autistic children have thrived in mainstream. No it's worse. They've been traumatised & suffered devastating impact on their mental health.
Mainstream schools are not beneficial for all Send children - what is your take? www.theguardian.com/education/20...
To say we've been navigating a sh*tshow may be classic British understatement One child is falling apart & it's tearing us all up We're tempted to up sticks & move 200 miles away, but all the support is here.
So we shut down screens and phones But that doesn't work We shut down the WiFi We know she's hot-spotting her phone to Yet Another secret device Her AuDHD brain just cannot cope with being offline to enable sleep Instead we have to juggle IT madness & sleep deprived teen Why is it all so hard?
Best TikTok thing going is the two dudes trying food from every country without leaving NYC. If you haven’t seen them yet, it’s incredible. My favorite so far is last week’s. Legit got me emotional.
Today's been tough. Eldest was on a phone call at 4am and I didn't get back to sleep Navigating Olympic level parenting challenges in 4h sleep makes me go slightly insane Patience - nil Empathy - who cares? Compassion - nada This bright orange fungus was the highlight of my awful day
I wish it was as easy to save young lives as it was to mend the 3 items of clothing I saved from landfill *A pocket on my dress *A neckline of a teen's fav top, resewn *The lining of a dress There's a huge sense of achievement in mending that isn't the same as buying a replacement
Today I contemplated paths on my long dog walk .. I noted how some are wider with clear destination, some barely visible with twists and turns so you have no idea where they'll lead The walk felt like a meditation on life & reminded me to search out those who've been here before, for advice.
Found/ designed time to immerse myself in creativity, art, sculpture in the gorgeous landscape A much needed mini-holiday in a two week festive break that has been exhausting, not much fun & almost devoid of festivity I'm not looking forward to next week - I fear the struggle will be huge
I asked my OH (in all seriousness) if it was too early to take them down today (and that's me holding off for 3 days)
The decorations have only been up a week and are getting on my nerves. 😂