10 years ago, Australian #mecfs sufferer Alem Matthees became significantly more unwell because he fought to uncover the truth about the highly flawed 'PACE' trial of graded exercise therapy & cognitive behavioural therapy. 1/2

Tom Kindlon@tomkindlon.bsky.social · 18h ago

10 years today, after a David vs Goliath FOI legal battle that damaged Alem Mathees, White et al were forced to release data from PACETrial (that cost UK taxpayers £5M) showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS. Please remind the world #MEcfs #PwME #CFS

🧫 Primate gut organoids >1 year post-infection to study viral reservoirs 🦠 SARS-CoV-2 RNA found in gut, skin & bone marrow 🩸 Muscle biopsies showed capillary thickening + impaired oxygen 💊 VSL#3 probiotic 68% fatigue responders + gut/immune shifts islc-pais.org/abstractbook/

2026 Conference Abstract Book | ISLC-PAIS

Explore the official Abstract Book for the 2026 Amsterdam ISLC-PAIS Conference, featuring keynote, oral and poster presentations on Long COVID and PAIS.

islc-pais.org

Thankyou @cathywilcox.bsky.social for your outstanding work and advocacy for many Australians through your brilliant cartoons. Like many I hope to see you bob up in our media in the future but whatever you do you will always be respected and well remembered. 10.

2026 Community Symposium on the Molecular Basis of ME/CFS is happening September 11th. Free registration here: stanford.zoom.us/webinar/regi...

1) 🇦🇹 Interesting study that tested brain blood flow and metabolites under experimentally induced hypoxia (they gave ME/CFS patients less oxygen while lying under the MRI scanner). The idea is that this might reveal brain differences during a stressor.

🚨Networks of bogus “news” pages are being used to spread vast amounts of pro-Hanson and One Nation propaganda on social media — as Hanson bans actual media. Pages aggressively spreading calculated disinformation in mass MAGA attack. Investigation 👇 theklaxon.com.au/i7z3

Sham pro-Hanson "news" pages flood social media – as One Nation bans actual news - The Klaxon

Networks of sham “news” pages on social media are being used to spread vast amounts of pro-Pauline Hanson and pro-One Nation propaganda — as Hanson bans actual media.

theklaxon.com.au

This week marks 16 years since I developed #mecfs. In that time I've worsened from mild-moderate to severe. I'm bedbound 22 hrs/day with rolling, agonising post-exertional malaise (#PEM) that's near-impossible to get rid of. I'm only able to leave the house for essential purposes. 1/5

Well, it's nice to be able to provide good news for once, that's exactly what we're doing this week on Sunday Shot. We'll have a 30-minute long chat about disentangling "from the death cult" with @davidshoebridge.bsky.social from outside Pine Gap, totally uncut

Anomander@anomander.bsky.social · 2mo ago

I know you guys eschew having pollies on the Sunday Shot, but I'd love to see an exception made for the amazing @davidshoebridge.bsky.social.

Please join us Sat. July 25 at 12 pm ET US for a Community Meeting: "Clinicians with Patients: Clinical Management Focus on Crashes and PEM, PESE & PENE" with Drs @doc4care.bsky.social & Brayden Yellman discussing care issues for #MECFS & #LongCovid Register: us06web.zoom.us/webinar/regi...

The glymphatic system: A recently discovered brain waste clearance system that's mostly active during sleep and disengaged during wakefulness Disrupted glymphatic function and its relationship with sleep and cognitive impairment in ME/CFS assessed via DTI-ALPS🧪 www.frontiersin.org/journals/neu...

Frontiers | Disrupted glymphatic function and its relationship with sleep and cognitive impairment in ME/CFS assessed via DTI-ALPS

The glymphatic system is a recently discovered brain waste clearance system that is mostly active during sleep and disengaged during wakefulness. Impaired gl...

frontiersin.org

"One Nation leader Pauline Hanson has taken a break from her speaking tour of England to spend time with her benefactor, billionaire Gina Rinehart, at a luxury resort in Sicily." Grifters. www.smh.com.au/politics/fed...

Aussie battler: Hanson joins Gina poolside on White Lotus holiday in Sicily

Photos posted to Instagram show Hanson spending time poolside at the Grand Hotel San Pietro in the resort town of Taormina, while Rinehart swims.

smh.com.au

🚨Australian Jewish News published an article condemning the vile, pro-Israel lobby attacks against Sarah Schwartz…then deleted it. Plus more unethical work by The Australian: but Schwartz “overwhelmed” by support… theklaxon.com.au/1tw4

"My evidence seems to have struck a chord": Jewish Council boss - The Klaxon

Jewish Council of Australia boss Sarah Schwartz has been “overwhelmed” with support after detailing attacks on her by the pro-Israel lobby.

theklaxon.com.au

Self-proclaimed champion of the "battler" Pauline Hanson has been caught at a luxury Italian resort with billionaire Gina Rinehart. theklaxon.com.au/l49s

MAGA by the Mediterranean - The Klaxon

Self-proclaimed champion of the "battler" Pauline Hanson has been caught meeting at a luxury Italian resort with billionaire Gina Rinehart.

theklaxon.com.au

The Government will ignore this rhetoric to its peril. A strategic alignment

Ewart, Dave@davidewart.bsky.social · 3mo ago

youtube.com/shorts/YOLpb... he is right

Don’t do it Independents. Maintain your current status and integrity,work together when needed and remember each electorate’s constituency is the driving force and they have voted against the centralised control of a party. Ignore Racist Nation and do the work as you have proven in spades.

Quentin Dempster@quentindempster.bsky.social · 4mo ago

Dear ‘teals’, independent MHRs senators. Ignore Malcolm Turnbull. Don’t even think of forming a new political party. Remember what happened to the ‘keep the bastards honest’ Democrats? Your power is your independence.

This! ‘There's this recognition that on so many of these big challenges we are facing, it's not necessarily left versus right, it's actually vested interests and their stranglehold on the major parties versus the Australian people." #auspol #insiders www.abc.net.au/news/2026-05...

Pocock open to party of independents as One Nation support climbs

The independent senator says Australians are frustrated with a political system that "does not work for them".

abc.net.au

BMJ Rapid Response: Experts reject dangerous psychosomatic claims in BMJ, framing severe ME/CFS as a biological multi-system illness. PEM is a measurable reality, not a belief. Patients need biomedical science. bmj.com/content/389/...

This guy has MS but has made a pretty bloody accurate (and funny) video of what #mecfs is really like: www.instagram.com/reel/DYcl4xN...

Instagram

Create an account or log in to Instagram - Share what you're into with the people who get you.

instagram.com

Now that trump is in love with China where will Barnaby Joyce and his war with China go? Scrap AUKUS.

On 26th May, Action For ME are hosting a webinar on Sequence ME and Long Covid, including a Q&A session with Professor Chris Ponting, lead researcher.  When: 26 May, 14:30-15:30pm GMT Sign up to join here:  https://us02web.zoom.us/webinar/register/WN_N98uaEqUQOK1wwh_Mt0evA#/registration #pwME

It's #mecfs Awareness Day. It's also federal Budget day in Australia - an excellent time to pull #mecfs out of its eternal lousy funding vacuum & INVEST IN OUR SCIENTISTS. 1/2

It's #MEAwarenessDay - and federal Budget day in #Australia. #mecfs costs Australia up to $10 billion a year - yet federal govts haven't even given $10 million over 25 years❗️Will you be the one to tackle this egregious case of false economy @jimchalmers.bsky.social❓️

Today is #MEAwarenessDay, in recognition of millions worldwide who suffer for decades, with no diagnostic tests or treatments. It's also federal Budget day. What a great opportunity to finally fund research at a level that will get us out of bed & back to life! @jimchalmers.bsky.social

What do ppl think about this? Is Sam Maiden shooting the breeze, making a mountain out of a molehill, or really onto something? (In any case, her presumption that Labor's left faction still has any power, let alone a lot of power, makes me laugh😏) #auspol #auspol2026 www.news.com.au/national/pol...

LeAnn Rimes has cancelled several shows after Covid led to severe laryngitis. So many still refer to the pandemic in past tense but it's still disrupting lives, careers & health www.hellomagazine.com/celebrities/...

Emotional LeAnn Rimes shares difficult health update amid cancelled shows: 'It breaks my heart'

LeAnn Rimes has revealed the real reason why she was forced to cancel her Spokane and Seattle shows, revealing she has Covid and "severe laryngitis"

hellomagazine.com

The life-altering chronic disease #mecfs has a range of triggers. Sometimes anaesthetics are the likely culprit, as this story from Aoteoroa New Zealand shows: www.nzherald.co.nz/nz/hdc-anaes...

Woman had one request before surgery - but it was ignored and no one told her

The anaesthetist said he didn't think it was important enough to tell her about the drug.

nzherald.co.nz

🚨A big shout-out: Tomorrow The Klaxon kicks off its annual fundraising campaign as part of the Local and Independent News Association (LINA). From 7am AEST (Sunday) LINA will double all donations for a short period of time. If you could support us it would be hugely appreciated!

Props to a brave and courageous woman who should never have had to fight this battle

Guardian Australia@australia.theguardian.com · 4mo ago

‘On the inside I felt a rage’: Antoinette Lattouf on emerging from her bruising battle with the ABC

Since 2013 I’ve raised £20,000+ for ME research charities. This year I’m raising money for Sequence ME & Long Covid as I think this is our best chance of understanding the causes and mechanisms of ME/CFS, which will lead to the development of effective treatments: www.justgiving.com/page/robafme

Rob’s birthday fundraiser for Sequence ME & Long Covid

Help Robert Saunders raise money to support Action for M.E.

justgiving.com

Robert Saunders (aka McMullen)@roberthmcmullen.bsky.social · 5mo ago

For my birthday on 3 May I’m raising money for Sequence ME & Long Covid via @actionforme.bsky.social: www.justgiving.com/page/robafme All donations gratefully received, however small or large. Thanks.