Centre of Genomics and Policy
@genomicsandpolicy.bsky.social
Centre of Genomics and Policy: Exploring the socio-ethical and legal issues in genomic health sciences. www.genomicsandpolicy.org/
🎉 CGP founder Prof. Bartha Maria Knoppers has been named a 2027 Canadian Medical Hall of Fame Laureate, honouring four decades of leadership in genomic ethics, governance and data sharing. Congratulations, Prof. Knoppers! 🧬 🗞️ Read more: www.mcgill.ca/sbms/article...
A thought-provoking day exploring the future of genomic data governance at last week’s WYNG-Hatton Lecture, held in Montreal for the first time! Experts from bioethics, law, policy, genomics, and data governance examined how genomic data should be shared, protected, and governed.
Thank you to all who joined us for the 4th Annual Bartha Maria Knoppers Lecture on Oct. 13. We were honoured to welcome Prof. Henry T. Greely (Law, Stanford University), for his lecture, "A Modest Proposal: How to Pay Appropriate Attention to New Biotechnologies."
The CGP had a great time hosting this week’s symposium "At the Intersection of Forensic and Medical Genetics: Science, Ethics, and Public Policy" at McGill University.
Last week, CGP Director Prof. Yann Joly presented “From Data Sharing to Data Resilience: Governing Genomic Surveillance in Uncertain Times” at the Robert Koch Institute Colloquium 2026 in Berlin. 🎥 Watch the presentation here: www.youtube.com/watch?v=iR5E... More info below 🧵
How do we ensure AI-driven medicine stays aligned with #ELSI values? 🧠 ⚖️ On May 7th, CGP’s Academic Associate Maelenn Corfmat will be presenting at the upcoming #HaploTalks seminar as she tackles the ELSI challenges of biomarker discovery. 🖇️ See more info on poster.
That’s a wrap on the @ga4gh.org Annual Connect 2026 meeting. 🧬 🌎 🧩 It was a dynamic week-long event that brought together the #GA4GH community to collaborate, advance technical work, and reflect on strategic priorities. 🧵More info below ⬇️
Thank you to all who attended the seminar “Health Law, Ethics, and AI in China,” presented by Dr. Li Du. He explored China’s evolving AI legal framework in healthcare, covering data protection, oversight, and ethical challenges. Hosted by CGP and McGill RGHL. #HealthLaw #Ethics #AI
Visit the CGP booth at the Human Genetics Students' Society (HGSS) 2026 conference! Where genomics meets ethics, law & policy. Connect with our mentors and explore #CGP research opportunities. 🗓️ April 27 @ 9AM – 6PM | 📍MUHC Register Here: bit.ly/4838I9E
🧬 💻 🧪Join us for a special seminar happening this Friday hosted by the Victor Phillip Dahdaleh Institute of Genomic Medicine & the Centre of Genomics and Policy. Dr. Minxian Wang (China National Center for Bioinformation) will present “Data Resources of the China National Center for Bioinformation.”
📢 New article! The BQC19 enabled rapid collection and sharing of samples and data to advance COVID-19 research. Our article highlights how its governance, flexible consent, and collaborative framework created a scalable model for future health crises. 🔗 bit.ly/40XAiRy
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Upcoming HaploTalks seminar on Mar. 5, hosted by McGill's Victor Phillip Dahdaleh Institute of Genomic Medicine. CGP Research Assistants, Fatoumata Binta Diallo and Charles Selva-Rivero will delve on “Rethinking Risks: Genetic Discrimination and Children’s Right to Participate in Research.” 🧬⚖️🔬
❄️ Our Winter Newsletter has arrived! 📬 Dive into the latest research, publications, upcoming events, and highlights at the Centre. Read the latest issue here👇 us18.campaign-archive.com?e=[UNIQID]&u...
🚀 We’re excited to launch our new video on Explainable AI (XAI) which is part of the OBVIA-funded (@observatoireia.bsky.social) project "Explaining the Right to Explanation: Data Protection Legislation and Clinical Automated Decision-Making" (PI: Ma'n H. Zawati @mhzawati.bsky.social). Links below🧶
As the year comes to a close, the CGP team wishes you a happy holiday season! 💌
Just out in @natgenet.nature.com 🗞️ CGP published a new piece on the urgent need for a global #cybersecurity framework in #genomics. Fragmented #governance is increasing dual-use and data security risks. The field needs coordinated global standards. 🔗 Read the article: doi.org/10.1038/s415...
🎉 Congratulations to Prof. Ma'n H. Zawati @mhzawati.bsky.social, Research Director at the CGP, on being inducted on Nov. 14 2025, as a member of the Royal Society of Canada! 🎥 Watch Prof. Zawati discuss his research and its impact on Canadian healthcare: www.youtube.com/watch?v=PHMc...
Ma'n H Zawati | 2025 New College Member | McGill University
YouTube video by The Royal Society of Canada
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Excited to share a new D2R-funded project led by Larry Lynd (UBC), co-led by Profs @YannJoly6 & @MHZawati (CGP, McGill): Early assessment of the value of novel #RNAtherapeutics in #genomicnewbornscreening initiatives: health, economic and ethical implications. 🧶
Foundational Projects | Cycle 2
The Foundational Projects funding program supports high-risk, early-stage projects with the potential to be game-changers in the fields of D2R’s areas of interest. In the second funding cycle launched...
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The upcoming Brocher Foundation meeting will delve on the latest health data news and the ethical challenges surrounding them. Tune in on Nov. 11th, 2025 at 2PM (Geneva time). 🔗 us06web.zoom.us/j/83487320128
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Congratulations to Prof. Bartha Maria Knoppers, our Centre’s Founding Director and Distinguished James McGill Professor Emerita, on receiving the McGill Medal for Exceptional Academic Achievement! 👏🏼 reporter.mcgill.ca/bartha-knopp...
Bartha Knoppers awarded McGill Medal for lifetime of pioneering work in bioethics - McGill Reporter
From literature to law to genetics, the founder of McGill’s Centre of Genomics and Policy built a career at the crossroads of science and ethics
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Dr. Zohar Lederman (Emergency Medicine, University of Hong Kong) spoke about the Marburg outbreak in Rwanda 🦠🌍 While widely praised as a One Health & public health success, he highlighted key data gaps, limited attention to animal and environmental health and conflicting economic development goals.
New in Cell! “Exploring Latin America one cell at a time” — we chart challenges & opportunities for single-cell & spatial genomics across LATAM. A call for equitable funding, collaboration & capacity building. 🔗 doi.org/10.1016/j.ce...
Redirecting
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In honour of Breast Cancer Awareness Month 💗, CGP Director Yann Joly will be paneling at @d2rmcgill.bsky.social’s upcoming event on Breast Cancer & RNA Therapeutics on Oct. 22, 2025. 🔗 Register: bit.ly/3J4DbuB 🗓️ Oct. 22, 2025 @ 5 - 8:30PM 📍 Atrium, Bellini Building, McGill University
In Person Event | Breast Cancer & RNA Therapeutics: Exploring inclusive research and career opportunities
Join D2R and the Rosalind and Morris Goodman Cancer Institute (GCI) for an event in honour of Breast Cancer Awareness Month and Women's History Month, in collaboration with Fondation du cancer du sein...
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🗞️ Our newsletter is fresh off the press! Catch up on the recent research, publications, and highlights at the CGP in our Summer-Fall Issue: mailchi.mp/mcgill/cgp-n...
CGP News | Summer-Fall Issue 2025
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The CGP and @phgfoundation.bsky.social co-hosted an international think tank at Ayer’s Cliff, Canada, bringing together leading scholars, professionals and practitioners to reimagine the future of #genomics, #medicine, and global population #health in a data-driven world now through 2050.
Prof. Calvin W.L. Ho’s talk, “Polygenic Risk Scores and the Human Right to Science,” from the Annual Bartha Maria Knoppers Lecture, is now available for viewing! 🎤 Watch the recording on our YouTube channel: youtu.be/BRbpegQDF5A?...
🎤 That’s a wrap on the 3rd Annual Bartha Maria Knoppers Lecture! Honoured to host Prof. Calvin W.L. Ho (@monashuniversity.bsky.social) for his talk, "Polygenic Risk Scores and the Human Right to Science," celebrating Knoppers' legacy in genomics and health law. Thanks to all who attended!
Is it time to rethink ELSI? 💭 Last week at @mcgill.ca, our guest speaker Eric M. Meslin, global leader in bioethics and science policy and member of the CGP Advisory Committee member, sparked a vital convo on ELSI’s future in research & genomics—its roots, impact, and two diverging paths ahead.
