Huntington's Disease Foundation
@hdfcures.bsky.social
The mission of the Huntington's Disease Foundation is to fund transformative research to find treatments, and ultimately a cure, for Huntington's disease. Learn more about us: HDFoundation.org
Your gift of any size will help move the needle in #Huntingtonsdisease research! Donate today to the Nancy S. Wexler Discovery Fund to directly impact a future treatment or cure for HD. We are all in this together. 💙 Make your gift today: hdfoundation.org/nancy-s-wexl... #nancywexler #curehd
Nancy Wexler's vision continues to inspire the future of Huntington's disease research. The Nancy S. Wexler Discovery Fund supports the next generation of researchers working to advance treatments for HD. Learn more or make a gift here: hdfoundation.org/nancy-s-wexl... #nancywexler #curehd
Won-Seok Lee @broadinstitute.org, receives the 2026 Nancy S. Wexler Young Investigator Prize, which is awarded annually to an early career researcher whose work reflects the highest caliber of excellence, diligence & creative thinking. Learn more: tinyurl.com/nswprize #curehd #huntingtonsdisease
Inspired by the advocates, families & HD community, 5 #Huntingtonsdisease orgs came together to champion the future of rare disease innovation at the FDA. Every day matters for HD families. We'll continue advocating together for a brighter future. #RareDisease #PatientAdvocacy #HDCommunity #curehd
HDF CEO Meghan Donaldson was a guest on @americanbrainco.bsky.social's podcast "AdvocacyChampions: Voices for the Brain." Meghan shares her personal story, HDF's history, and short- and long-term goals for HDF. Listen here: www.americanbraincoalition.org/abc-podcast #curehd #hdawarenessmonth
Latus raises $97M to expand reach of gene therapy for #Huntingtonsdisease: tinyurl.com/Latus-97M This team got HDF's $1M 2023 Transformative Research Award. This shows the power of investing in bold science early. HDF remains committed to accelerating promising research. #cureHD #latusbio #research
What books featuring #HuntingtonsDisease have impacted you? Please join our Book Corner conversation and add your recommendations to the HD community in the comments below. #HDAwarenessMonth #HDAwareness #HDAM #CureHD
HDF is proud to announce our 2026 postdoctoral fellowships & grants. We've awarded over $2 million to international scientists focused on finding #treatments & #cures for #Huntingtonsdisease. Visit hdfoundation.org/grants-fello... to learn more. #curehd #research #funding
May is Huntington’s Disease Awareness Month. HDF recognizes the importance of this global awareness campaign to support the HD community, research, & advocacy. We invite you to join us all month long as we bring important HD topics to the forefront. #HDAwarenessMonth #HDAwareness #HDAM #CureHD
We're thrilled to welcome Erin Tuladzieck as our Director of Development, bringing ~25 years of experience in nonprofit leadership, fundraising, & strategic partnership development. Read her full bio: tinyurl.com/Dir-Devel #curehd
Nancy Wexler Looks Back on a Life Spent Unraveling the Mystery of Huntington’s Disease - TIME Magazine time.com/article/2026... #cureHD #NancyWexler #mylifemyscience @cshlnews.bsky.social @timemagazine.bsky.social
Nancy Wexler Looks Back on a Life Spent Unraveling the Mystery of Huntington’s Disease
The renowned scientist reflects on the disease that shaped her life—professionally and personally.
time.com
Jeff Carroll's recent Research Spotlight Webinar is now available to watch anytime on our YouTube channel: youtube.com/watch?v=YtEf...
Webinar: The Science (& Surprises) around Lowering the Huntington Protein, 4/16/2026; Jeff Carroll
YouTube video by Huntington's Disease Foundation
youtube.com
Jeff Carroll has spent years asking a deceptively easy question: What does it actually take to lower huntingtin effectively? His answer may surprise you! Join us TODAY - 12-1pm ET - to find out! Register now: tinyurl.com/Apr-2026-web... #curehd
Are Huntingtin-lowering treatments hitting the right targets? Even as the most-pursued strategy in HD drug development, research still reveals surprising findings. Join us TOMORROW (THURSDAY) at 12noon ET as Jeff Carroll shares what he's learning. Register now: tinyurl.com/Apr-2026-web... #curehd
HDF President Nancy Wexler was recently profiled in HD Insights following her newly published memoir My Life, My Science: Pursuing a Cure for Huntington’s Disease. huntingtonstudygroup.org/hd-insights/... #cureHD #NancyWexler #mylifemyscience @cshlnews.bsky.social
My Life, My Science | Huntington Study Group
Nancy Wexler shares her personal and scientific journey in Huntington’s disease, reflecting on groundbreaking discoveries, her memoir My Life, My Science, and hope for future treatments.
huntingtonstudygroup.org
Jeff Carroll reveals new discoveries from his mouse research. Join us on 4/16 to hear more in his webinar: "The Science (and Surprises) around Lowering the Huntington Protein" Register now: tinyurl.com/Apr-2026-web... #curehd #researchspotlightwebinar
Watch now or anytime! Our March 24 webinar - What Your Blood Tells Us: The Science Behind HD Biomarkers - with Lauren Byrne and Zanna Voysey is available to watch anytime. youtu.be/llimSe4ebo4?...
What Your Blood Tells Us: The Science Behind HD Biomarkers, 3/24/2026; Lauren Byrne and Zanna Voysey
YouTube video by Huntington's Disease Foundation
youtu.be
Proud to have her on team cure Huntington's disease! orangecoast.com/feature/kick... #cureHD @ucirvine.bsky.social
Kickass Women: Dr. Leslie M. Thompson - Orange Coast
UC Irvine’s Dr. Leslie Thompson advances stem cell therapy research for Huntington’s disease with groundbreaking clinical trials.
orangecoast.com
Read HDF President #NancyWexler 's interview with Columbia University about her newly published memoir My Life, My Science: Pursuing a Cure for Huntington’s Disease about her life & work as an HD researcher. tinyurl.com/NW-Columbia-... #curehd @cshlnews.bsky.social @columbiauniversity.bsky.social
Devoting Your Life to Studying the Disease That Afflicts You
In “My Life, My Science,” Nancy Wexler, a longtime professor of neuropsychology at CUIMC, describes her pursuit of the causes and a cure for Huntington’s disease.
news.columbia.edu
The HD gene was identified through a collaboration of HDF, scientists, & Venezuelan HD families. Factor-H, an org dedicated to supporting these families, launched “Gratitude Day” to honor them. LIVE event THIS SUNDAY, 3/22, 9am PST/12pm EST. Learn more & register: factor-h.org #hdgratitudeday
Imagine a routine blood draw telling you what's going on in your brain before #HuntingtonsDisease symptoms start? Join our webinar "What Your Blood Tells Us: The Science Behind HD Biomarkers" Tues, 3/24, 12-1pm ET, with Q&A. Register: tinyurl.com/Mar-2026-web... #researchspotlightwebinars #curehd
We're thrilled to announce that Nancy Wexler's memoir, "My Life, My Science: Pursuing a Cure for #Huntingtonsdisease" is now available! Purchase from the publisher: tinyurl.com/NW-book-CSHL or on Amazon . #nancywexlermemoir #bookrelease #wexlermemoir #coldspringharborlaboratory #curehd
Sunday is International Women's Day. We are proud to recognize our Scientific Advisory Board, 47% of whom are women. We celebrate the accomplishments and progress of women over time and the power to achieve so much more in the future. #IWD2026 #GiveToGain #InternationalWomensDay #HDF
There’s still time to join the movement! Add your name to the Hope on Hold petition by THIS SUNDAY, 1/18 to ensure you are included, before HD Reach, HDF, HDSA, Help4HD and HDYO head to DC soon to formally submit this petition to the FDA. ✍️Sign today - bit.ly/Hope4HD #curehd #huntingtondisease
2025 made meaningful progress in Huntington’s disease research. We celebrate these important milestones & look ahead with optimism to 2026. Wishing a happy & healthy New Year to our very special HD community. Please consider donating today - www.hdfoundation.org/donate #cureHD #HuntingtonsDisease
We need your support now more than ever. Please consider donating today - hdfoundation.org/donate #cureHD #HuntingtonsDisease
As this year draws to a close, we want to express our gratitude for your support. Because of you, we could move the needle on important research to advance our mission of finding treatments, & ultimately a cure, for #Huntingtonsdisease. Warmest wishes for the holidays. #cureHD
These people represent some of the many faces of the families impacted by #Huntingtonsdisease. The community's strength, courage, & resilience fuel our commitment to funding critical research. Now more than ever we need your support: hdfoundation.org/donate #cureHD
