Tessera

Institute for Health and Disability Policy Studies

@ihdps.bsky.social

To conduct timely and meaningful research and evaluation to inform health and disability policy, with the goal of improving access and quality of care for all people, particularly for those with disabilities and chronic illnesses.

113 Posts149 Follower 177 Folgt

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 2d ago

Thank you everyone who submitted clips to help promote the National Survey on Health and Disability (NSHD)! If you have not sent in a video - we are still accepting clips, they just will not be in the first wave of promo vids! Visit ihdps.ku.edu/video to learn more

Image:

A mix of people with various disabilities and health conditions, including wheelchair users, people with developmental disabilities, and a Deaf woman

Text:

Thank you everyone who submitted clips to help promote the National Survey on Health and Disability (NSHD)! If you have not sent in a video - we are still accepting clips, they just will not be in the first wave of promo vids!

Visit ihdps.ku.edu/video to learn more

American Association on Health & Disability @aahealthdisability.bsky.social · last wk.

ATTN: Deaf Autistic Adults Our next #DisabilityResearch featured study drops next Wednesday! Sign up for our Research Listserv for notices about upcoming research opportunities just like this: bit.ly/AAHD-Newslet... Photo credit: Justin Kaneps (All in Frame Collection) #Disability

Rocky Mountain ADA Center @rockymountainada.adata.org · 2w ago

Is your student with a disability heading to college? The transition from high school means a change in how accommodations are provided. Under the ADA, students typically request accommodations through their college's disability services office. Learn more: https://bit.ly/4gawWmB #ADA

Postsecondary Institutions and Students with Disabilities | ADATA.org

adata.org

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 2w ago

We are looking for people with disabilities to record short video clips (10 seconds!) to help promote the National Survey on Health and Disability (NSHD) launching this fall. Please submit by August 17 so we have time to edit videos and make them accessible! Visit ihdps.ku.edu/video to learn more

Text:

We are looking for people with disabilities to record short video clips (10 seconds!) to help promote the National Survey on Health and Disability (NSHD) launching this fall.

Please submit clips by August 17 so we have time to edit videos and make them accessible!

Visit ihdps.ku.edu/video to learn more

Photo:

A woman with one arm records herself with her phone.

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 3w ago

New publication from IHDPS and RTC:Rural shows that people may be left behind by limited ACS questions – including people with depression, heart conditions, and cancer. Read more at: doi.org/10.1093/resc...

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Broad disability question in the BRFSS identifies populations missed by the American Community Survey six disability questions

Published in Research Connections

doi.org/10.1093/rescon/vmag123

Photo:
A woman stands at a bus stop scratching her head as a bus with wheelchair and white cane access signs pulls away

Lurie Institute for Disability Policy @lurieinstitute.bsky.social · 3w ago

Peer support is a critical infrastructure that helps disabled people of color build community. Our latest case study explores how peer support organizations reduce barriers to home and community-based services (HCBS) and create pathways that sustain community living. Read more: zurl.co/CijX1

Cover slide with a photo of two people talking in a community setting. A blue text box reads, "Case Study: Peer Support Strengthens Pathways that Sustain Community Living for Disabled People of Color." Logos for Brandeis University, The Heller School, Lurie Institute for Disability Policy, and DREDF appear at the top.

Blue background titled "Background." Text explains that disabled people of color face significant barriers to accessing Home and Community-Based Services (HCBS). Purple icons labeled "Workforce shortages," "Waitlists," "Structural racism," "Ableism," and "Complex systems" surround a disability symbol. Text at the bottom states that these barriers limit opportunities for community living and increase the risk of institutionalization.

Blue background titled "Purpose & Methods." Text explains that the case study explored how peer support strengthens the capacity of disabled adults of color to live in their communities, access essential HCBS, exercise self-determination, and reduce the likelihood of institutionalization. Three icons list the research methods: literature review, semi-structured interviews, and thematic qualitative analysis.

Closing slide with the heading, "Read the resource on our website to learn more." A QR code labeled "SCAN ME" appears next to an image of the case study cover.

National Council on Independent Living @ncil.bsky.social · last mo.

This document outlines NCIL’s funding requests and legislative priorities and demonstrates why investing in independence is both fiscally responsible and consistent with our nation’s commitment to equal opportunity. Tomorrow we take our message to Capitol Hill! ncil.org/2026-confere...

Legislative Priorities - National Council on Independent Living

Legislative Priorities 2026 Introduction For more than 40 years, the Independent Living Program has empowered people with disabilities to live and participate fully in their communities. Created under...

ncil.org

American Association on Health & Disability @aahealthdisability.bsky.social · 4w ago

AAHD is proud to celebrate the Americans with Disabilities Act (ADA) 36th Anniversary. On July 26th we uplift this important civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools and transportation.

The Americans with Disabilities Act (ADA) passed in 1990. This landmark civil rights law prohibits discrimination against people with disabilities in all areas of public life. Along with Section 504 of the Rehabilitation Act, the ADA established a right to community living over
institutionalization. Photo of a woman in a power wheelchair hanging out in the kitchen with her roommates as one chops vegetables. He has Moebius Syndrome and a face that is paralyzed.

Recent directives from the DOJ are rolling back federal support for the 1999 Olmstead Supreme Court decision
which reinforced this right. In the Olmstead v. L.C. decision, the Supreme Court affirmed that institutionalization is a form of discrimination against disabled people prohibited by the ADA. This ruling established a mandate for states to provide supports in a community setting. Olmstead established an end to the era of segregation for disabled people. The decision still stands.

We call on state leadership to commit to Olmstead & build a nation where community living is universal. Photo of colleagues chatting and working in a modern coworking office space. At one table, a young white woman with partially paralyzed arms and hands chats with a young pale white blind woman. A black and white guide dog with a guide harness lies on the floor next to the blind woman

Ask your state governor and attorney general to reject the DOJ memo and commit to community integration of people with disabilities. An African American girl shows smiles and holds her phone at a table in a cafe, while the girl's mother and auntie laugh together. The auntie is paraplegic and is seated in a manual wheelchair. She has short gray hair. The daughter is wearing a cochlear implant.

Institute for Health and Disability Policy Studies @ihdps.bsky.social · last mo.

Would you or someone you know be willing to record a 10-second video clip (or several!) to help us to promote the NSHD? Visit our video page to learn more: ihdps.ku.edu/video

Man using a wheelchair records himself and people behind him with a smartphone on a short stick.

Text: We need people with disabilities to submit videos to help promote the upcoming 2026 National Survey on Health and Disability (NSHD)!

Visit ihdps.ku.edu/video to learn more

AAPD - The American Association of People with Disabilities @aapd.com · 2mo ago

AAPD is hosting a webinar on July 14 from 2 - 3:30 PM ET about the Medicaid work requirements. Panelists Rachel Patterson from Patterson & Meek and Jennifer Lav from the National Health Law Program will discuss how disabled people may be affected. Register at https://ow.ly/nnv750ZlLqm.

Graphic of a calendar highlighting a Medicaid Work Requirements Webinar on Tuesday, July 14th from 2 to 3:30 PM ET

National Association of County and City Health Officials @nacchoalerts.bsky.social · 2mo ago

A new NACCHO report shares recommendations for local health departments and partner organizations on embedding disability expertise into public health systems to support the health of people with disabilities. Learn more and download the report at https://ow.ly/Umil50Zl7kw

New Disabled South @newdisabledsouth.org · 4mo ago

Here’s a bill walk-through video of our Plain Language Policy Dashboard to show you how it all works 💜 Check out the Dashboard here: plain-language-policy-dashboard.org [Screen recording of a video walk-through of how to look up a bill inside New Disabled South’s PL Policy Dashboard page.]

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 2mo ago

IHDPS Research Associate Kelsey Goddard is quoted in this article about the importance of disability research, as government changes interrupt funding and services across the U.S. www.statnews.com/2026/06/19/f...

Federal grant delays could jeopardize essential disability services, research

Disability researchers across the country worry about their jobs, and the future of their institutions, as a delay in issuing federal grants drags on.

statnews.com

@thearcoftucson.bsky.social · 2mo ago

thearc.org/blog/why-and...

Disability Pride Month 2026: Theme, History, How to Celebrate

What Disability Pride Month is, the 2026 theme “The World Works Better With Us,” why it matters now, and ways to celebrate and take action.

thearc.org

National Council on Independent Living @ncil.bsky.social · 2mo ago

NCIL strongly condemns the recent Department of Justice Office of Legal Counsel (OLC) memo that attempts to undermine the integration mandate at the heart of Section 504 of the Rehabilitation Act, the Americans with Disabilities Act, and the landmark Olmstead v. L.C. decision. More: bit.ly/4aH3kKw

NCIL Statement Condemning and Rejecting the Department of Justice's Memo Attempting to Undermine Disability Civil Rights - National Council on Independent Living

The National Council on Independent Living (NCIL) strongly condemns the recent Department of Justice Office of Legal...

bit.ly

Lurie Institute for Disability Policy @lurieinstitute.bsky.social · 2mo ago

27 Years of Olmstead: People With Disabilities Belong in the Community 🏘️ Explore our resources through our email newsletter conta.cc/4uOOjh6 or on the Community Living Policy Center’s website Heller.Brandeis.edu/Community-Living-Policy #Olmstead #CommunityLiving #DisabilityPolicy #HCBS

What is Olmstead? A plain language overview

* On this day in 1999, the Supreme Court made an important decision in disability law. The court case is called Olmstead vs. L.C.
* The Supreme Court sided with two disabled women, Lois Curtis and Elaine Wilson. Lois and Elaine lived in institutional settings for many years. However, they did not want to live there. They wanted to live in the community. The state did not want to help them leave institutional settings.
Photo of Lois Curtis, Elaine Wilson, and their lawyer.

* The Supreme Court decided that disabled people should not live in segregated settings. Disabled people should live in the least restricted setting that supports their needs.
* The Olmstead decision affirmed the integration mandate of the Americans with Disabilities Act. Olmstead transformed how people get home and community-based services. We celebrate this important anniversary with resources and information for you!

Text reads: Explore our website for resources related to Olmstead and enhancing community living access. Preview of various briefs and reports from the Community Living Policy Center. Report cover topics like home and community based services affordability and positive outcomes, Olmstead’s impact on housing access, considerations for disabled people of color transitioning out of institutional living, and supportive programs like Money Follows the Person.

American Association on Health & Disability @aahealthdisability.bsky.social · 3mo ago

Federal grants and funding rules are potentially changing, with huge implications for the #disability community. Critical programs and research could be cut based on #DEIA allegations alone. Please read our alert on how you can take action: aahd.us/2026/06/omb-... Public comments due: July 13th.

Protect Federal Funds. New federal rule changes threaten health equity research and disability programs. Submit public comments by July 13th. American Association on Health and Disability.

AAPD - The American Association of People with Disabilities @aapd.com · 2mo ago

CMS' new work requirements threaten the health, safety, and independence of the millions of people with disabilities who rely on Medicaid. AAPD is working hard to educate our community about these new requirements and how to prepare for them. Learn more here: www.aapd.com/medicaid-wor...

Medicaid Work Requirements FAQ - AAPD

To view this resource as a PDF, click here. On June 1, 2026, the Centers for Medicare & Medicaid Services (CMS) issued an Interim Final Rule (IFR) implementing new Medicaid work requirements, also kno...

aapd.com

Disability Belongs™@disabilitybelongs.bsky.social · 3mo ago

We will continue working to ensure that Medicaid remains a strong foundation for independence, community living, and full participation. Read our full statement: www.disabilitybelongs.org/2026/06/stat...

Disability Belongs™ Responds to New Medicaid Work Requirements Regulation - Disability Belongs™

Disability Belongs™ is deeply concerned by the Centers for Medicare & Medicaid Services’ (CMS) Interim Final Rule implementing new Medicaid work and community engagement requirements for certain adult...

disabilitybelongs.org

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 3mo ago

Our newest publication looks at mental healthcare use by people who have intellectual and developmental disabilities (IDD) and serious mental illness (SMI). Read more in Frontiers: tinyurl.com/38d44me6

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Mental health service utilization among people with intellectual and developmental disabilities and serious mental illness before and during the emergence of telehealth services

Published in Frontiers in Health Services

DOI: 10.3389/frhs.2026.1832994

Image:

A hand holding a phone that reads - Tele Health

Rocky Mountain ADA Center @rockymountainada.adata.org · 3mo ago

@northeastada.adata.org has released a new fact sheet about web and mobile app accessibility specifically for colleges and universities! Learn more here: s3.amazonaws.com/production-n... #DigitalAccessibility #HigherEducation #WebAndMobileApplications

s3.amazonaws.com

AAPD - The American Association of People with Disabilities @aapd.com · 3mo ago

Disability P⏻wer on the Hill may have ended but we wanted to look back on its impact. 75 advocates from 17 states held meetings with 72 different Congressional offices over the course of two days. https://www.aapd.com/disability-power-on-the-hill-2026-voices-advocacy-and-community-in-action/

Large group of people with disabilities gathered on Capitol building steps for 2026 Disability Power on the Hill.

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 3mo ago

IHDPS research helps people with disabilities find work that matches their skills. Read more at loom.ly/bPtjM9A

KU Life Span Institute@kulifespan.bsky.social · 3mo ago

People with disabilities want to work and contribute in meaningful ways. KU researchers at @kucdisabilities.bsky.social are partnering with the state to help more Kansans find employment that reflects their strengths and goals. 👉 https://loom.ly/bPtjM9A

A man wearing a white shirt and blue coveralls works an industrial machine while seated in a wheelchair. Text: “This work benefits not just the people with disabilities themselves but the economy of the state of Kansas. More people employed and paying taxes is a good thing for the state.” Noelle Kurth, IHDPS researcher

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 3mo ago

As part of Older Americans Month and Mental Health Awareness Month, NIDILRR has posted a collection of resources for Older Adults with Mental Health conditions. It includes promoting mental and physical health, self-directed recovery, and information on finding local behavioral health centers.

NIDILRR Consumer Resources: Older Adults with Mental Health Conditions

We’re celebrating Mental Health Awareness Month and Older Americans Month together by sharing consumer-focused resources from NIDILRR grantees to help older adults with mental health conditio…

naricspotlight.com

National Rehabilitation Information Center (NARIC)@naricinfo.bsky.social · 3mo ago

Are you a person who needs long-term services and supports who wants to live in your own home or community instead of institutions? #CMS seeks comments and feedback on the 2028 Medicaid #HCBS Quality Measure Set: https://loom.ly/EvqZBT8 #NewsAndNotes674

Two young black women sit together and are looking at a smart phone. One has her hair up, is wearing a pink shirt and is holding the phone. The other has her hair down, is wearing a green shirt, and is holding a credit card.

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 3mo ago

Another urgent sign-on opportunity for Disability Researchers and Advocates from the Disability and Rehabilitation Research Coalition (DRRC). DEADLINE: May 12, close of business day #DisabilityResearch #Disability #DisabilityHealth

SIGN-ON OPPORTUNITY: NIH LETTER OF SUPPORT

Please consider signing on to the letter below requesting full funding for medical rehabilitation and disability-related research at the National Institutes of Health, particularly, the National Cente...

docs.google.com

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 3mo ago

Urgent sign-on opportunity for Disability Researchers and Advocates from the Disability and Rehabilitation Research Coalition (DRRC). DEADLINE: May 12, close of business day #DisabilityResearch #Disability

SIGN-ON OPPORTUNITY: NIDILRR Letter of Support

Please consider signing on to the letter below requesting Congress to fund the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) at $150 million in the Fiscal...

docs.google.com

ADA National Network @adata.org · 4mo ago

This National Speech-Language-Hearing Month, ASHA has a valuable resource to help providers break down communication barriers! Read more about the new Communication Access Resource Hub here: https://www.asha.org/communication-access/ #NationalSpeechLanguageHearingMonth #NSLHM #ASHA

Medium-skinned woman with a red hair ribbon and heart-shaped earrings sitting outdoors near a garden pond.

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 4mo ago

Researchers from @ihdps.bsky.social led a project that resulted in nearly 200 people with disabilities moving into community-based competitive and integrated employment Read more about the Employment First Project: loom.ly/bPtjM9A

KU expanding job opportunities for disabled Kansans through state investment

University of Kansas researchers have launched the second phase of the Kansas Employment First project, expanding access to competitive integrated employment for Kansans with disabilities.

loom.ly

Institute for Health and Disability Policy Studies @ihdps.bsky.social · 4mo ago

Disability advocates and researchers: newly posted document from CMS regarding HCBS quality measures. There is a quick, 30-day, period for public comment. Please share widely and provide feedback - this may be the last opportunity to weigh in for a while. #HCBS #HomeHealthcare #Medicaid

Medicaid Program; 2028 Medicaid Home and Community-Based Services Quality Measure Set

The Home and Community-Based Services (HCBS) Quality Measure Set is a set of nationally standardized quality measures for Medicaid- funded HCBS that is intended to promote more common and consistent u...

federalregister.gov