Join us today, Friday March 27 at 1 pm ET! Let's get ready to rumbllle! Or un-rumble, if that's what your stomach needs 😅 Registration link: us06web.zoom.us/webinar/regi... We'll talk all things brain and gut in #LongCovid and #MECFS with neurogastroenterologist Dr. Zac Spiritos!

My son published the first book of a series he is writing. IF you can, please support him for yourself (if you like the genre) or to gift to someone. a.co/d/6T0qJYr

Herbal cabinet #1 mostly 2025 harvest, some tools and some canned produce

Many #MECFS #pwME #LongCovid patients are discussing the #BornFreeProtocol by Joshua Leisk, which some have used to improve symptoms It's complex and many clinicians/researchers wonder where to start - watch our roundtable with Leisk and @doc4care.bsky.social www.youtube.com/watch?v=4_a2... 1/2 🧵

Understanding ME/CFS: From Metabolic Collapse to Recovery, John Haughton, MD, Josh Leisk, Roundtable

YouTube video by Renegade Research

youtube.com

Help us keep patients at the driver’s seat this #givingtuesday2025 by donating and sharing if you can or sharing widely if you can’t donate.

Renegade Research@renegaderesearch.bsky.social · 8mo ago

1. It's here...... #GivingTuesday2025 ! In the next 24 hours help us raise 24K to support our mission of pioneering accessible, patient-led efforts to uncover scientific insights and improve overall quality of life for our global MECFS & Long Covid community

My son has written book one of a series he is writing. If you read and like it, please share it. The cover illustration was done by my daughter linktr.ee/intheeyesofgods

I call this the Hypermobile friendly chair and it’s on sale for 75% off in brown or gray. If you order, please consider using @RenegadeRes Amazon link to purchase amzn.to/3MlH5Aq

Please help us fundraise without additional cost to you!

Renegade Research@renegaderesearch.bsky.social · 8mo ago

#MECFS and #LongCovid organizations are underfunded, especially patient-led nonprofits. That’s why Renegade Research has a mixed funding model including affiliate links and discount codes. With no extra cost to you, potential savings, and raising funds for our projects, it's a win-win! 🧵

Please help our non-profit with your purchase or by sharing with others

Renegade Research@renegaderesearch.bsky.social · 9mo ago

If you use prodrome products you can get 35% off now with our affiliate code FALOR35. The affiliate income goes to our non-profit which is a way you can help us. Please like and share widely to help us fund research, education and care in MECFS, Long Covid & associated conditions

The recording for our clinician’s roundtable on GLP1/GIP RA with doctors Kaufman and Dempsey is now available on our YT chanel. youtu.be/lC3caaV7WP0?...

Micro-dosing GLP-1/GIP RA Tx in ME/CFS & Long Covid with @kaufmanmd.bsky.social @ruhoy.bsky.social & Tania Dempsey, MD. 2 pm ET USA, Friday, Oct 17, 2025 A Clinician's Roundtable by @renegaderesearch.bsky.social Recording posted to YouTube soon. us06web.zoom.us/webinar/regi... #MedSky

1. This is difficult to do on an standard poll but curious where everyone sits if you are willing to answer the following questions in the comments. Please specify if your numbers are with it without medication that stabilize your HR.

The petition for appropriate care for Sanne is past 2,500 sig. Let’s join #pwME #MEAwareness #MECFS #GreatestMEdicalScandal forces 🙏🏻. We can sign from anywhere in the 🌎 @meactnet.bsky.social @openmedf.bsky.social @patientled.bsky.social The text reads “University hospitals refuse ..

Nele@nelehelena.bsky.social · 12mo ago

You can also sign and share this petition if you want to help: petities.nl/petitions/ge...

1. Have you seen our New Medical Coaching and Consulting for patients with MECFS and long covid started by @renegaderesearch.bsky.social Links in comment

About to season my shoulder like I season my lamb chops 🤣 Making an oil based poultice with Rosemary, thyme, calendula and peppermint from the garden. Will add castor oil to the finished product. These are culinary, bug repellent, antimicrobial, anti-inflammatory, aromatic.

1. Has anyone tracked their body temps in different parts of the body with infrared thermometers and correlated with dysautonomia symptoms over time? If so, have you found patterns on better/worse days? If no one has. We should start #thetemptest

@renegaderesearch.bsky.social medical coaching and consulting for MECFS and Long Covid patients is now open

Renegade Research@renegaderesearch.bsky.social · last yr.

Announcement!! 1. Clinics are shutting down, but patients w/ MECFS & Long Covid need to regain function. Resources are decreasing, while the need grows! We are thrilled to announce the launch of a full-service coaching and consulting program tailored for patients with ME/LC

Helps us work to advance MECFS and Long Covid research and care. My birthday is tomorrow and I am 5% to the goal. If everyone who can, donates just $5 & shares so others can do the same, I’m sure we can raise this by the end of the day. www.zeffy.com/en-US/fundra...

Isabel Ramírez-Burnett

Remission Biome is a community science, patient and caregiver-led project of the non-profit, decentralized research organization, Renegade Research. We work in collaboration with researchers and clini...

zeffy.com

My birthday is in 2 days. Help me celebrate by helping me do the work to advance research and care of MECFS and Long Covid at @renegaderesearch.bsky.social Donate to my birthday fundraiser if you are able. Any amount helps tinyurl.com/Renegage-Res...

Isabel Ramírez-Burnett

Remission Biome is a community science, patient and caregiver-led project of the non-profit, decentralized research organization, Renegade Research. We work in collaboration with researchers and clini...

tinyurl.com

Help me celebrate my birthday next week by donating to @renegaderesearch.bsky.social and help us do this much needed work www.zeffy.com/en-US/fundra...

Isabel Ramírez-Burnett

Remission Biome is a community science, patient and caregiver-led project of the non-profit, decentralized research organization, Renegade Research. We work in collaboration with researchers and clini...

zeffy.com

Check out the amazing presentation today from Todd Davenport and Ciara Wright on the details of The Acid Test. youtu.be/6BUZtcC1Ezc

Almost done with the PEM cocktail study design. Next step is IRB application and recruitment. This has had a major impact on decreasing PEM for me and a few early testers. Will differentiate if severity level affects impact among other things. Stay tuned!

Genome editing success for the first time in nine patients with alpha-1 antitrypsin deficiency, a heritable disease which can cause cirrhosis and emphysema, affecting ~100,000 Americans, which is similar to the prevalence of sickle cell disease www.nytimes.com/2025/03/10/h...

Mutated DNA Restored to Normal in Gene Therapy Advance

The small study in patients with a rare disorder that causes liver and lung damage showed the potential for precisely targeted infusions.

nytimes.com

A little harvest from last summer. This year I started early & have over 500 seedlings in my bedroom Last year my kids fenced a big chunk of the garden (sorry groundhogs) It is going to be a mini farm year

1. I’m growing chicory this year as part of my medicinal garden. This herb has many benefits, but metabolic and digestive health in particular, have been supported in clinical studies. I’ll be growing several plants in containers to harvest the tap root.

Measles parties? have no words! globalnews.ca/news/1106288...

Parents are holding ‘measles parties’ in the U.S., alarming health experts - National | Globalnews.ca

As measles cases continue to rise in Texas amid an ongoing outbreak, health officials are warning against so-called "measles parties," calling the practice dangerous.

globalnews.ca

My other happy place. As they say “gardening is therapy and you get to eat the tomatoes” 🍅

Mitochondrial transfer with mitophagy inhibiting factors for immune evasion in cancer (as clever as microbes) scitechdaily.com/scientists-u...

Scientists Uncover New Way Cancer Evades the Body’s Defenses

Researchers identify mitochondrial transfer between cancer and immune cells as a crucial mechanism for immune evasion. The immune system is essential for identifying and eliminating cancer cells. Canc...

scitechdaily.com

The R in MMR enters the chat www.tpr.org/education/20...

San Antonio-area charter school now says they have a case of rubella, not measles

Officials at Legacy Traditional School – Cibolo said Thursday they had confirmed a measles case in a first-grade classroom. They later said the case was actually rubella.

tpr.org