@jennycrow.bsky.social
Clinical Specialist Occupational Therapist in Stroke, NIHR Clinical Doctoral Research Fellow, Imperial College London, #lifeafterstroke
Impact of socioeconomic deprivation on mechanical thrombectomy outcomes after acute ischaemic stroke @ismalias.bsky.social @imperialbrains.bsky.social We urgently need systems in place that deliver equitable healthcare. svn.bmj.com/content/svnb...
svn.bmj.com
Inspirational words from stroke advocates Melinda Roaldsen @esostroke.bsky.social and Joseph Rukelibuga from Stroke Action Rwanda. Collaboration is key to shaping and improving stroke services globally! @worldstrokeorg.bsky.social
Beautiful early morning sunrise in Barcelona and great early morning session. ‘Stroke recovery: the elephants in the room’ #WSC2025 @esostroke.bsky.social @thestrokeassoc.bsky.social More sessions focusing on #lifeafterstroke needed please!
A change of mind? A profoundly evocative poem where Paul captures the dismantling and rebuilding of identity and personal value after his stroke. @willchegwidden.bsky.social @louiseclark15.bsky.social @thestrokeassoc.bsky.social substack.com/@strokesurvi...
A change of mind?
The fragments fit together, not in the old, smooth glass,But a new mosaic structure, defined by time that passed.
substack.com
A really interesting observational study which suggests that more positive attitudes to ageing may build resilience and improve recovery after a fall. Importantly we need to shift our focus from the physical only to the psychological state and wellbeing of a person too.
Imperial Medicine@imperialmed.bsky.social · 11mo agoFalls in later life can be devastating—but mindset matters. Dr @tobyellmers.bsky.social from @imperialbrains.bsky.social explores how older adults’ beliefs about ageing significantly influence recovery after a fall. #InternationalOlderPersonsDay blogs.imperial.ac.uk/imperial-med...
Maya reflects on the distinction between clinical and personal recovery after stroke. She describes how recovery is not about being who you were before but is self-determined and about becoming who you want to be. open.substack.com/pub/mayakuza...
(Re)defining Recovery
Recovering from a stroke is a journey that's physical, cognitive, mental and more...
open.substack.com
Maya explains her experience of life after stroke and how the European Life After Stroke Conference was a turning point in navigating her life post-stroke. Also what she wished she had been told - stroke professionals please read this!! Becoming Your Own Advocate open.substack.com/pub/mayakuza...
Becoming Your Own Advocate
Fighting for continuity of care.
open.substack.com
What stroke survivors want you to know, how it helps & the value of lived experience. Excellent descriptions and important reading for professionals and the families of those adjusting to life after stroke. @louiseclark15.bsky.social @willchegwidden.bsky.social open.substack.com/pub/theesk/p...
What stroke survivors want you to know, how it helps & the value of lived experience
What Stroke Survivors Want You to Know......
open.substack.com
A stranger’s face, a stranger’s mind open.substack.com/pub/theesk/p...
A stranger’s face, a stranger’s mind
Thoughts of a stroke survivor
open.substack.com
Looking at my qualitative interviews with young people after minor stroke. 31 yr olds comment on multiple errands test ‘I am very confident I can do that but that does not in anyway mean I am fine’ #lifeafterstroke @f-geranmayeh.bsky.social @imperialbrains.bsky.social @thestrokeassoc.bsky.social
Grateful to be interviewed by Sara Tavares, Heart Failure Specialist Nurse, clinical academic colleague about my path into advocacy for people after stroke #lifeafterstroke @pareshmalhotra.bsky.social @gemmaclunie.bsky.social @ismalias.bsky.social academic.oup.com/eurjcn/advan...
Advocacy Spotlight Series : Jennifer Crow
Sara Tavares, Jennifer Crow; Advocacy Spotlight Series : Jennifer Crow, European Journal of Cardiovascular Nursing, , zvaf093, https://doi.org/10.1093/eurj
academic.oup.com
Have a listen to this new podcast started by a member of our Imperial Stroke Public Involvement Group. I think it has the potential to evolve into a useful resource for people with stroke and their families. @imperialbrains.bsky.social @imperialperc.bsky.social shows.acast.com/talking-abou...
Talking about Strokes | Talking about Strokes
A gentle introduction.....
shows.acast.com
Really looking forward to reading this editorial ‘If patients only knew’. Will message you with a few thoughts.
Masud Husain@masudhusain.bsky.social · last yr.I'm planning to write an editorial in @brain1878.bsky.social entitled "If patients only knew". It's about obstacles that slow down or prevent people from participating in clinical studies and the pace of initiating #ClinicalTrials. If you have experience or comments please message me and repost.
Had our 2nd Imperial Stroke Public Involvement group of the year yesterday. Excellent discussions around SILENCE-CSVD trial. Celebrated attendance of 4 of our group members at the European life after stroke conference in Prague. #lifeafterstroke @imperialbrains.bsky.social @imperialperc.bsky.social
TIA - Neurological symptoms NOT fully resolved within 24 hours! An interesting prospective cohort study looking at fatigue up to 12 months after #TIA @ismalias.bsky.social @avrildrummond1.bsky.social @pareshmalhotra.bsky.social @imperialbrains.bsky.social pubmed.ncbi.nlm.nih.gov/40367404/
Long-Term Fatigue Following Transient Ischemic Attack: A Prospective Cohort Study - PubMed
The study is part of the Life After Stroke Cohort (ClinicalTrials.gov: NCT05234528). Registered February 1, 2022. First patient included February 2, 2022.
pubmed.ncbi.nlm.nih.gov
Watched this last night and highly recommend it Bbc.co.uk/programmes/m0029cpt ‘Hope plays a major role in recovery’ #lifeafterstroke
BBC Two - My Brain: After the Rupture
The incredible story of Clemency Burton-Hill’s recovery following a brain haemorrhage.
bbc.co.uk
I am lucky enough to Chair this organisation & work with fabulous team bringing these events together where psychological stroke research worldwide is showcased. We are looking for abstract submissions - don’t miss out! It’s THE event for research of psychological aspects of stroke! Join us!
Organisation for Psychological Research Into Stroke@opsyris.bsky.social · last yr.❗ #OPSYRIS2025 Abstract Deadline: 30th April! ❗ Have you submitted yours yet? ⏳ Don’t miss out! 🔗 Submit here: docs.google.com/forms/d/e/1F... 📩 More info on our website opsyris.org & newsletter tinyurl.com/3wvaye37
Do our well intentioned research processes exacerbate exclusion? @ismalias.bsky.social @willchegwidden.bsky.social
Paresh Malhotra@pareshmalhotra.bsky.social · last yr.journals.sagepub.com/doi/10.1177/... Food for thought about (?over)protection of research participants and effects on inclusion from @jennycrow.bsky.social @imperialbrains.bsky.social
‘Exodus’ of clinical researchers sparks concern over future of UK healthcare in @financialtimes.com today. Lots of change needed.
Watch this tonight about Clemency Burton-Hill's continuing fight to recover after a #stroke 5 years ago. @clemencybh www.bbc.co.uk/programmes/m...
BBC Two - My Brain: After the Rupture
The incredible story of Clemency Burton-Hill’s recovery following a brain haemorrhage.
bbc.co.uk
#lifeafterstroke #elasf2025 excellent session on secondary prevention after stroke. Medical and lifestyle issues covered but also the need to live
#lifeafterstroke #elasf2025 Alexia Kountouri from Cyprus talks in English about her aphasia. Involvement in research has given her a voice.
We can always try to improve how we conduct trials and how we ensure that the most important people have a say in how they are designed and run. For the AD-SMART platform and #dementia research, Ben Underwood is doing just that with POPPED. Please take a look at www.popped.org.uk and do share!
POrtal for Patient and Public Engagement in Dementia research
Weclome to Popped! This platform invites you to share your thoughts on research projects aimed at improving dementia care.
popped.org.uk
Another excellent Imperial Stroke Public involvement group today. We discussed research topics the group felt were important. Also interesting discussions around the Stroke Association PREM question - Did you receive support coming to terms with the effects of your stroke?
