Here is a cost nobody counts. A person with #hypermobility #neurodivergence moves between services for years. Getting the whole person right costs less than getting the parts wrong for a decade. #ActOnNCDs #LeadOnNCDs #sedsconnective CC BY-SA 4.0
Jane Green MBE FCCT
@jgjanegreenmbe.bsky.social
Founder @SEDSConnective Volunteer / Fellow exAHT MA Ed AHT neurodivergence Hypermobility Disabled/ Parent / Carer MBE for services to neurodivergent hypermobility folk 2023
#Throwback 2018 Us & BBC start of SEDSConnective & the #BBC. hypermobility (common types) are not rare, just rarely diagnosed, neurodivergence (ADHD Autism Dyspraxia Dyslexia TS ) common to #SEDSConnective #hypermobility #neurodivergence #EDS
We are proud to announce that our Charity SEDSConnective, working at the intersection of symptomatic hypermobility and neurodivergence, has become a member of the WHO Disability Health Equity Network hosted by the World Health Organization! #hypermobility #neurodivergence #SEDSConnective
@chrisgpackham.bsky.social Please look at planning application CR/2026/0399/FUL for 9 homes Worth Village, Crawley. The site affects the Worth Village Conservation Area, with important trees, hedgerows, species-rich grassland and wildlife habitat and
This : historical inequalities are now at the forefront of everyone’s agenda (well some) but looking forward to the next chapter of @sedsconnective.org and super proud of our 8 year old pioneering charity
SEDSConnective@sedsconnective.org · last mo.We are proud to announce that our Charity SEDSConnective, working at the intersection of symptomatic hypermobility and neurodivergence, has become a member of the WHO Disability Health Equity Network hosted by the World Health Organization! #hypermobility #neurodivergence #SEDSConnective
Are you hypermobile , flexible or have chronic pain? NO formal diagnosis needed Email researcher Shy (Shyamalie Satkunanandan), ss06276@surrey.ac.uk, for info or to take part
I have something to say …
SEDSConnective@sedsconnective.org · last mo.We are proud to announce that our Charity SEDSConnective, working at the intersection of symptomatic hypermobility and neurodivergence, has become a member of the WHO Disability Health Equity Network hosted by the World Health Organization! #hypermobility #neurodivergence #SEDSConnective
New technical education routes in schools will be available to 14-year-olds, prime minister Andy Burnham has announced tonight. Year 10 pupils will be able to combine core academic subjects with more technical education options linked to jobs available in their area. www.tes.com/magazine/new...
New technical pathways in secondary schools by 2028, PM announces
Schools will be inspected by Ofsted on vocational offering, but sector leaders want more details on multiple aspects of the plans
tes.com
Something out of the ordinary... We know something We can't explain, not yet.... Tuesday.... #SEDSConnective #Hypermobility #Neurodivergence
Great to hear both Her and Dr Eccles present the research again #covid #hypermobility #neurodivergence #mcas
We are delighted that SEDSConnective has joined as a member of the NCD Alliance Network @ncdalliance #sedsconnective #health
8 years of SEDSConnective, building on many more years of refusing to separate body and brain. Turns out, we were onto something.......... I’m incredibly proud of what we have built together as a community charity and, we’re not done yet! #hypermobility #neurodivergence #SEDSConnective
SEDSConnective@sedsconnective.org · last mo.🎉 8 years of SEDSConnective! Thank you to everyone who has been part of the journey. Our Trustees, volunteers, members, supporters and patrons, you are the heart of it all. Here is to 8 more. You are not alone! #Hypermobility #Neurodivergence #SEDSConnective
For many years, the connection between #hypermobility and #neurodivergence was misunderstood or dismissed. Today, we are working to change that - helping individuals, families, professionals, and services better understand the strong links between physical and mental wellbeing! #SEDSConnective
Amazing conference and took many months of my help in setting it up so I was very proud of this conference despite enormous barriers
SEDSConnective@sedsconnective.org · 2mo agoJuly 11th 2025 Anniversary of the rsom invisible impact of covid19 symptoms on hypermobility and neurodivergence Thanks to our chair Jane Green MBE planning organising and giving our volunteers the chance to shine at the event and
Participants 7–16 years with DCD / Dyspraxia for (VR) balance training Fun VR games/activities at home, either 2 - 3 lab visits across 6 - 11 weeks Up to £125 in shopping vouchers email (Samantha.Chye@brunel.ac.uk) or https://forms.cloud.microsoft/e/cMwK66WNhf
I am looking forward to speaking at the upcoming IGPP SEND Conference 6th October 2026 You can secure a complimentary pass using my exclusive code JG-SEND via the link below #SEN #SEND #Education igpp.org.uk/event/The_Na...
Delighted to have another meaningful ‘hat’ 🤠and not just one type of hat either I’ve have been appointed as a SHCRP Public & Community Adviser to help ensure public and community voices are at the heart of health and care research. www.bsms.ac.uk/research/sup...
SHCRP PCIE - BSMS
bsms.ac.uk
✳️Do you have a formal dx of Autism/ADHD ? ✳️A formal dx of hEDS, HSD (GJH) OR ✳️Told it is likely you have hypermobility by a professional health medical practitioner? ✳️In mainstream education secondary school for at least 1 year? ✳️No learning disability ✳️18-25 of age now ⬇️links in comments
Men you’re in this too ! Sleep rest gastro allergies
SEDSConnective@sedsconnective.org · 3mo agoADHD and hypermobility Sunday 14th 5pm to 7pm Recordings available on ticket- www.eventbrite.co.uk/e/the-connec... with Jane Green MBE chair/founder of SEDSConnective and with SEEDtalks @jgjanegreenmbe.bsky.social
The Connection Between Hypermobility & ADHD with Jane Green MBE When: Sunday 14th June 2026 Time: 5pm GMT+1 Online #EDS #Dysautonomia #mcas #neurodivergence Click here for tickets: bit.ly/4dICEuY
Lipoedema Starts usually in puberty - but NOT ALWAYS !!! Fat cannot be lost through diet & often leads to stigma Spectrum of hEDS, loose connective tissue disorder 🦓 Often people with lipoedema may have anxiety/depression and ADHD or other neurodivergence ♾️ #LipoedemaAwareness month
I’ve had so many issues not being able to stay still in scans due to temperature dysregulation or ensuring I could communicate to tell them I I was in pain and needed a scan. So have others - physical sensory health communication language challenges and hypermobility. Delighted to be a coauthor
SEDSConnective@sedsconnective.org · 3mo agoNEURODIVERGENCE in RADIOGRAPHY- Language and communication issues in radiology Also physical health inequalities experienced by many neurodivergent people Our latest blog explores this. https://rpst.cc/Y5XJHq #Neurodivergence #Language #physical #hypermobility
New research study- Emergency Care Living in the UK? 1. 18 and over 2. Needed emergency healthcare (whether you attended an emergency department or not) This is open to everyone: neurotypical or neurodivergent (these are adjectives) https://edsurvey.link/
Claiming PIP with Ben Furner. Ben focuses on health care and disability FREE PIP webinar - Join as member here www.sedsconnective.org 🗓️ 3 JUNE 🕗 7 -8.30pm ✉️ Events@sedsconnective.org Donate here https://www.sedsconnective.org/donation
SEDSConnective has been asked to help share these two maternity research studies Take part here: https://www.sedsconnective.org/new-studies-looking-for-participants
This school toolkit for hypermobility was the idea of our chair Jane Green MBE but due to delays it was not published until May 2021. School toolkit for EDS JHS. Read more how it came about here : https://rpst.cc/9rrzPs
