Tomorrow is Rare Disease Day 🦓 3.5 million people live with a rare condition in the UK. The Exeter PRP Evidence Review Facility, led by PenARC’s Prof Jo Thompson Coon, developed a toolkit highlighting inequalities in care 🔗 bit.ly/4shkmFI 🧦We’re in zebra socks to support! #RareDiseaseDay
Jo TC
@jog13.bsky.social
Professor. Loves: evidence synthesis, the moon and the sea, coffee, marmite, rum and #spontaneousfun Rules to live by: #NeverSayNever #WriteEveryDay #Believe https://orcid.org/0000-0002-5161-0234
Four more days of the early bird rate 🐤 Sign up now to learn about mixed methods evidence synthesis in 2026 #systematicreviews #evidencesynthesis #mixedmethods
Don’t let this chance fly away Early birds get the best rate today Mixed methods galore CPD you’ll adore But after the 30th, you’ll pay more! #systematicreviews #evidencesynthesis #mixedmethods @exeter.ac.uk @penarc.bsky.social @ruthgarside.bsky.social @crsuuk.bsky.social @nessieevidence.bsky.social
Don’t let this chance fly away Early birds get the best rate today Mixed methods galore CPD you’ll adore But after the 30th, you’ll pay more! #systematicreviews #evidencesynthesis #mixedmethods @exeter.ac.uk @penarc.bsky.social @ruthgarside.bsky.social @crsuuk.bsky.social @nessieevidence.bsky.social
Sharing another Isca Evidence Briefing Paper - all about a #systematicreview of different #digital programs supporting people to lose weight, we identified the features & used component network meta-analysis to determine which features were linked to better #weightloss bit.ly/4m6tGsr
bit.ly
With Mountjaro in the news again - here's a #podcast episode about our recent #scopingreview of network meta-analyses of GLP-1 RAs for #weightloss - enjoy! @esmi-exeter.bsky.social @penarc.bsky.social @uniofexeternews.bsky.social open.spotify.com/episode/01Ty...
GLP-1 RAs for Weight Loss - what do we know?
open.spotify.com
Back to school vibes are in the air & the sense of motivation is contagious... why not take the opportunity to benefit from our early bird rate & book a space on our #SystematicReviews of #MixedMethods evidence CPD course? @esmi-exeter.bsky.social @uniofexeternews.bsky.social @penarc.bsky.social
News on the blog: How can technology support weight loss programmes as the NHS shifts its focus? #systematicreview #obesity #threeshifts @esmi-exeter.bsky.social @penarc.bsky.social @exeter.ac.uk bit.ly/4mqxepR
How can technology support weight loss programmes as the NHS shifts its focus?
We welcome a guest blog from our colleague at Isca Evidence, Morgan Weiland, on the team’s recent work on digital weight loss programmes. Isca Evidence is one of nine research groups in the U…
bit.ly
A study published in the journal Age and Ageing has shown that inappropriate polypharmacy – the excessive or unnecessary use of multiple medications – significantly contributes to emergency hospital admissions amongst adults aged 65 and over. Read More: buff.ly/TMnBWas
New episode on our podcast 6 minutes & 9 seconds is all you need to learn about digital components for effective weight loss interventions #obesity #weightloss #digital @penarc.bsky.social @ukaso.bsky.social @oha-updates.bsky.social @obesityalliance.bsky.social bit.ly/45xYGv3
Digital Components for Effective Weight Loss Interventions
Evidence Streaming · Episode
bit.ly
No justification for arbitrary age cut-offs in clinical trials (e.g. excluding patients over 75) www.theguardian.com/society/2025...
Elderly people being excluded from medical research in UK, charities warn
The exclusion of older people from research due to arbitrary age cut-offs could stall the development of life-saving treatments
theguardian.com
No time to read our recent publication on GLP-1RAs for weightloss? Have a listen to the podcast! @penarc.bsky.social @oha-updates.bsky.social @easoobesity.bsky.social @worldobesity.bsky.social @obesityalliance.bsky.social #obesity #weightloss #wegovy #systematicreview #ozempic bit.ly/4mCZbek
GLP-1 RAs for Weight Loss - what do we know?
Evidence Streaming · Episode
bit.ly
Join us for #OnlyConnect25 celebrating the power of #intergenerational and inclusive practice/research - hosted at Newlyn Art Gallery, with an expedition to Potager Garden for a magical evening meal. Get ready to connect, make, talk, wonder and look beyond the horizon to what is possible.
🧠 How can tech support weight loss as the NHS shifts focus? New blog from Isca Evidence explores digital tools in obesity care—framed by the NHS 10-Year Plan’s 3 shifts: 🏥 Hospital → Community 💻 Analogue → Digital 🩺 Treatment → Prevention 🔗 bit.ly/4mqxepR #DigitalHealth #ObesityPrevention
Evidence Synthesis Team
evidsynthteam.wordpress.com
News on the blog: Read about our recent work on digital tools to support weight loss in the context of the Ten Year Health Plan for England bit.ly/4mqxepR @penarc.bsky.social @esmi-exeter.bsky.social
How can technology support weight loss programmes as the NHS shifts its focus?
We welcome a guest blog from our colleague at Isca Evidence, Morgan Weiland, on the team’s recent work on digital weight loss programmes. Isca Evidence is one of nine research groups in the U…
bit.ly
Why do AI company logos all look like buttholes? Warning: you can't unsee it via velvetshark.com/ai-company-l...
New paper: Evidence of inequities experienced by the #raredisease community with respect to receipt of a diagnosis & access to services: #scopingreview of UK & international evidence ojrd.biomedcentral.com/articles/10.... @simonjbriscoe.bsky.social @eppicentre.bsky.social @esmi-exeter.bsky.social
Evidence of inequities experienced by the rare disease community with respect to receipt of a diagnosis and access to services: a scoping review of UK and international evidence - Orphanet Journal of ...
Background People with a rare disease find it difficult to obtain a diagnosis and access appropriate services. Evidence suggests that this can lead to health inequity amongst the rare disease communit...
ojrd.biomedcentral.com
Join us for two days of talks and workshops celebrating the power of intergenerational and inclusive practice and research. 📍 Newlyn Art Gallery and The Exchange 📅 22 – 23 Oct 2025 🎟️ £65+ 🔗 To find out more, visit the link below #Intergenerational #Symposium #Conference #Cornwall #OnlyConnect25
"Only Connect!" An International Community Symposium
Join us for two days of talks and workshops celebrating the power of intergenerational and inclusive practice and research.
eventbrite.co.uk
New research from the Evidence Synthesis Team - read more on their #evidencegapmap on #topicalsteroidwithdrawal
News on our blog: Find out more about a recent project on #topicalsteroidwithdrawal and the mismatch between academic literature and #patientexperience evidsynthteam.wordpress.com/2025/05/28/t... @penarc.bsky.social @uniofexeternews.bsky.social @esmi-exeter.bsky.social #tsw #tsws
Learning about topical steroid withdrawal was a real eye-opener! Our evidence gap map brings together academic research and social media posts. Check out our blog for details #tsws #TopicalSteroidWithdrawal @penarc.bsky.social evidsynthteam.wordpress.com/2025/05/28/t...
Topical Steroid Withdrawal: Evidence, Anecdotes, and Everything In Between
Is there a mismatch between academic literature and social media? Topical Steroid Withdrawal Syndrome (TSWS) is considered a rare side effect of using steroid creams. It is estimated that over 100 …
evidsynthteam.wordpress.com
A common question we hear is, if I use #AI in my #systematicreview, what level of potential error is acceptable? Help us understand community expectations to inform future work via this NEW SURVEY: lnkd.in/e6tcTKfg Open til 2 Jul, ~35mins @cochrane.org @campbellreviews.bsky.social
This link will take you to a page that’s not on LinkedIn
lnkd.in
‼️HOT OFF THE PRESS‼️ ⭐Updated Responsible AI use in Evidence Synthesis (RAISE) 3-paper collection on OSF: osf.io/fwaud/files/... ⭐ Now includes: 1️⃣Recommendations for practice for the main roles in the ecosystem 2️⃣ Guidance on building & evaluating AI tools 3️⃣Guidance on selecting & using AI tools
OSF
osf.io
Just published - updated guidance and recommendations for the responsible use of AI in evidence synthesis (RAISE): osf.io/fwaud/ We're doing a webinar on this in about an hour! training.cochrane.org/recommendati...
Responsible AI in Evidence Synthesis (RAISE): guidance and recommendations
The RAISE guidance is currently written in three documents. The first document, ‘RAISE 1’, provides tailored recommendations for eight of the distinct roles in the evidence synthesis ecosystem: eviden...
osf.io
Explore the June roundup of top stories from all 15 of our NIHR Applied Research Collaborations (ARCs): mailchi.mp/nihr/june-20... including the latest research news, resources, blogs, events, training & more from ARCs across the country Join the newsletter here: tinyurl.com/ARCsnewsletter
The NIHR Applied Research Collaborations (ARCs) June 2025 newsletter
The national newsletter from across all the NIHR ARCs. In this edition: ARC events across England for Dementia Action Week, launch of #ARCseminar series on the healing power of creative arts, national...
mailchi.mp
News on our blog: Find out more about a recent project on #topicalsteroidwithdrawal and the mismatch between academic literature and #patientexperience evidsynthteam.wordpress.com/2025/05/28/t... @penarc.bsky.social @uniofexeternews.bsky.social @esmi-exeter.bsky.social #tsw #tsws
Topical Steroid Withdrawal: Evidence, Anecdotes, and Everything In Between
Is there a mismatch between academic literature and social media? Topical Steroid Withdrawal Syndrome (TSWS) is considered a rare side effect of using steroid creams. It is estimated that over 100 …
evidsynthteam.wordpress.com
“When I started my period at 15, I passed out, threw up, was petrified about what was happening and was told it was normal.”
Naga Munchetty: My first period made me faint - but doctors said it was normal
The journalist described having to throw up while presenting BBC Breakfast due to the pain of adenomyosis
independent.co.uk
“But if this isn’t a national emergency – one rape per day in schools – then I don’t know what is.”
Sexual violence a ‘national emergency’ in UK schools amid rise of AI deepfake porn
Laura Bates, founder of the Everyday Sexism Project, cited AI-deepfakes as the next issue schools across the nation will have to tackle
independent.co.uk
When world's collide - spotted in the @hayfestival.bsky.social bookshop Naga Munchetty's important book on the women's health crisis cites our recent #systematicreview of #primarycare clinicians’ perspectives on interacting with patients with #gynaecological conditions bjgpopen.org/content/8/1/...
📢A new study from @uniofbath.bsky.social shows London's low emissions zones have had major benefits for human health and the economy, with a 10.2% decrease in respiratory issues following LEZ implementation, an **18.5%** reduction in sick leave, and annual public health savings of over £37 million.
“And Breathe Normally”: Impacts of low emission zones on sick leave and mental well-being
Air pollution poses a global concern due to its detrimental effects on climate, healthcare, and human capital accumulation. However, there is limited …
sciencedirect.com