Thank you Davina, Louise, Ian and Shaf, for raising money for our FND research group at the Edinburgh Kiltwalk @The Kiltwalk in September Read more about our new FND University of Edinburgh fundraising campaign here - zurl.co/CpE0R zurl.co/aMjY6

The Fife 4 for FND

Help Louise Douglas-Mirza raise money to support The University of Edinburgh

zurl.co

🎺One-day symposium on FND and other functional disorders - St George's Hospital, London I'm looking forward to taking part in this low-cost, multidisciplinary annual event on Sep 11th 2026 zurl.co/PmDS2

"Mark Hallett and the renaissance of functional neurological disorder" - a tribute to the man and a look back at the evolution of FND over the last three decades. zurl.co/hNvxy Thanks @JankovicJoseph for inviting this for a special issue of "Clinical Parkinsonism"

Chronic Idiopathic Urinary Retention/ Fowlers syndrome is common in FND and vice versa. A new framework for non-surgical treatment, led by @IngridHoeritza1 & Sara McRae, is a step change toward reducing permanent urinary catheters and invasive surgery. zurl.co/LyaMB

Functional Visual Loss - a new paper in "Eye" led by Neil Ramsay Full text here - zurl.co/lwbKQ ☑️ 1st systematic synthesis of epidemiology, prognosis and treatment ☑️ Near absence of treatment studies ☑️ Comorbid eye pathology/ trauma and headache common

I'm honoured to be taking over as President of the FND Society from Barbara Dworetzky for 2026-2028. I'll be posting on multiple channels to ☑️ Raise awareness of FND and the fndsociety.org ☑️ FND research and news ☑️ Post new research from our Edinburgh group

These researchers from @kingscollegelondon.bsky.social are looking for 200 people with FND to fill out online questionnaires. Please consider helping out.

Natasha Seaton@natashaseaton.bsky.social · last mo.

Have you ever felt dismissed, unheard, or not taken seriously by a doctor? 🏥 At King’s College London, we’re running a study on how patients experience healthcare 💊 If you are an adult in the UK who has come into contact with the healthcare system, you can sign up with below ⬇️ tinyurl.com/4zzcd93u

Just over 4 weeks left until the @FNDSociety 2026 Baltimore meeting! zurl.co/qqGFg If your budget can stretch, PLEASE consider booking the conference hotel. zurl.co/SDhZS Doing so will help make the meeting a financial success. Thank you!

First of 2 great @thelancetpsych.bsky.social articles on placebo/nocebo in psychiatry (& relevance to all of medicine) led by the brilliant @mattburkemd.bsky.social This one on harnessing placebo & mitigating nocebo www.sciencedirect.com/science/arti...

Harnessing placebo effects and mitigating nocebo effects: implications for clinical practice in psychiatry and medicine

In psychiatry and medicine, there is a long history of framing placebo effects primarily as nuisance factors and focusing on how they should be minimi…

sciencedirect.com

A pilot randomized controlled trial of prolonged exposure therapy vs. psychoeducation for psychogenic nonepileptic seizures and comorbid post-traumatic stress disorder - Epilepsy & Behavior. www.epilepsybehavior.com/article/S152...

A pilot randomized controlled trial of prolonged exposure therapy vs. psychoeducation for psychogenic nonepileptic seizures and comorbid post-traumatic stress disorder

Psychogenic nonepileptic seizures (PNES), also known as functional dissociative seizures (F/DS), are paroxysmal episodes that resemble epileptic seizures, but lack electrophysiological correlation or ...

epilepsybehavior.com

The “Hallett Sign” - in honour of Mark Hallett (1943-2025) movementdisorders.onlinelibrary.wiley.com/doi/10.1002/...

We have waited a long time for a robust clinical study of functional sensory symptoms and signs. Congrats to @RoryHigginsPT and @GNielsen_Physio for leading this excellent study - detailed thread below academic.oup.com/braincomms/a...

Rory Higgins@roryhigginsphysio.bsky.social · 6mo ago

Delighted to report our study on sensory symptoms has been published in @braincomms.bsky.social - @jonstoneneuro.bsky.social, Prof. Mark Edwards, Dr. Jan Coebergh, @roryhigginsphysio.bsky.social, @gnielsenphysio.bsky.social academic.oup.com/braincomms/a...

"Oxygen desaturation in patients with functional seizures: pitfalls for the unwary" - our new paper with Takamichi Kanbayashi and Kirsteen Brown in Practical Neurology Free link here - bit.ly/465qEzk pn.bmj.com/content/earl...

Findings in this @biologicalpsych.bsky.social CNNI paper are complementary to other results published using graph theory metrics in @braincomms.bsky.social. Check out this 20 minute lecture by Christi Westlin that connects the two papers! 8/8 youtu.be/0Zjs-7lf6fA academic.oup.com/braincomms/a...

Inside the Predictive Brain: Neuroimaging Insights into Brain Circuitry in FND

YouTube video by David L Perez

youtu.be

I was asked by @braincomms to highlight their FND special collection which welcomes clinical and neuroscience research on every aspect of the condition. A chance to reflect on how FND has moved from miscellaneous to mainstream academic.oup.com/braincomms/a...

The Functional Neurological Disorder special collection in Brain Communications: bringing FND into the mainstream

Our Guest Editor, Jon Stone, introduces a special collection of articles focusing on functional neurological disorder.

academic.oup.com

FND: an evolutionary perspective A short piece exploring an evolutionary perspective, specifically survival responses, to FND. These are not new ideas, but thank you to Akiriho Nishi for suggesting a short, standalone article to encourage wider debate academic.oup.com/emph/article...

Functional neurological disorder: an evolutionary perspective

Functional neurological disorder (FND) is among the commonest disorders in neurological practice with an estimated prevalence of 80–140 per 100 000 individ

academic.oup.com

In 2025 - grateful that our Functional Neurological Disorder Unit & Research Group has diligently work across the 4 pillars of our mission: clinical care, program development, research & education. Making progress - with much more to do! giving.massgeneral.org/donate?fnd=1...

At the year's end, our Edinburgh FND Research Group 2023-25 report. A huge thank you to those who have given to us, and an update on what we've all been doing. ☑️ 2023-5 Report here - bit.ly/3KWEcpH ☑️ You can donate here - neurosymptoms.org/en/donate/ Thank you!

Great editorial on the challenges faced by those living with #FND on accessing rehabilitation services. The 2024 NAI Irish patient experience survey showed that 67% of adults with FND surveyed had never had access to neurorehabilitation services. This has to change, history does not stand still! 💚🧡

Jon Stone@jonstoneneuro.bsky.social · 8mo ago

Reclaiming FND for Rehabilitation Medicine – new open access editorial Neurorehab colleague Phil Milburn-McNulty and I set out why Rehab Medicine is so well-suited to treating FND, why they historically haven’t and what can be done to change things. journals.sagepub.com/doi/10.1177/...

Very much agree with the points made here! I especially appreciate how apprehension re: FND often flips into inspiration when clinicians see the tangible good they can do

Jon Stone@jonstoneneuro.bsky.social · 8mo ago

Reclaiming FND for Rehabilitation Medicine – new open access editorial Neurorehab colleague Phil Milburn-McNulty and I set out why Rehab Medicine is so well-suited to treating FND, why they historically haven’t and what can be done to change things. journals.sagepub.com/doi/10.1177/...

Reclaiming FND for Rehabilitation Medicine – new open access editorial Neurorehab colleague Phil Milburn-McNulty and I set out why Rehab Medicine is so well-suited to treating FND, why they historically haven’t and what can be done to change things. journals.sagepub.com/doi/10.1177/...

New @aanmember.bsky.social guidelines for the management of functional seizures led by Ben Tolchin. A landmark for people with FND worldwide. ✅Rigorous evidence-based process ✅Consensus practical recommendations ✅Endorsed by @fndsociety.bsky.social www.neurology.org/doi/10.1212/...

"Charcot Redux" - @ajlees.bsky.social has written a magisterial article on Charcot, which gives you something of the man and his context. Essential for anyone needing an introduction doi.org/10.1093/brai...

@HarvardMedicine have done a great job with this article on FND, focused on the contribution of colleagues working there, including Barbara Dworetzky, David Perez and alumnus Mark Hallett. magazine.hms.harvard.edu/articles/fun...

An important study (IMO) looking at social dynamics re: FND on Twitter. People w FND face continual attack by a variety of groups who dismiss our condition and experiences - ranging from abusive clinicians to other disabled people. It makes it even harder to exist in public with this dx.

JMIR Publications@jmirpub.bsky.social · 10mo ago

An Exploration of How Functional Neurological Disorder Is Discussed on X (Twitter): Mixed Methods Study Using Social Network and Content Analysis

"A large proportion of the discourse around FND on X is shaped by users who are dismissive of the concept of FND and those associated with it...implications for individuals getting support for a condition that is already widely misunderstood." www.jmir.org/2025/1/e73439

An Exploration of How Functional Neurological Disorder Is Discussed on X (Twitter): Mixed Methods Study Using Social Network and Content Analysis

Background: Functional neurological disorder (FND) is one of the commonest conditions in neurological practice, describing symptoms like paralysis and seizures that can be severe and disabling. It is ...

jmir.org

Some great clinical tips on managing FND- from someone who actually has it

FND Portal@fndportal.bsky.social · 10mo ago

There are a lot of difficult challenges around FND (understanding brain dynamics, developing new treatments, etc). But the most *important* problems are much more easily solved - and yet I hear from folks about these same issues in the community over and over. Here’s a few 👇

🌎 Join the 1st Latin American Congress on Functional Neurological Disorders (FND)! 📅 Nov 20–22, 2025 | Lima, Peru | Hybrid 🎓 Includes Poster Call with international awards 🌍 🔗 Scan QR codes for registration & info

Pleased that "Continuum" the AAN journal asked for this article on the management of functional movement disorder - coauthored with @alancarson15.bsky.social Article paywalled but podcast is free. Some snippets in thread🧵 Article: continuum.aan.com/doi/full/10.... Podcast: x.com/ContinuumAAN....

📢 Delighted to have Dr. Caoimhe McLoughlin speak at our first #FNDIreland Conference on 'The Role of Neuropsychiatry in FND' and share her research on Stigma in #FND which she completed under the supervision of @jonstoneneuro.bsky.social and @alancarson15.bsky.social. 💚🧡 @fndportal.bsky.social