Hey friends! I’m going to go offline (maybe minus the odd travel photo?) for a few weeks as I move my life to the UK. FND continues to be challenging and I need to manage my energy and window of tolerance. Still excited to go though! See you on the other side 👋
FND Portal
@fndportal.bsky.social
A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Starting a Neuroscience MSc at KCL. Research contributor at various places. When we work together we can change it for the better. He/him.
You’ll survive but you’ll be funnier in ways that worries people
Continuing to perplex everyone around me by referring to the amygdalae as “miggys”
I know access to physiotherapy is difficult for those in my constituency with Functional Neurological Disorder (FND). Today, I raised this in Parliament and was pleased to secure a commitment from the Leader of the House, who will raise this with the Health Minister directly.
i don't think it was chiefly or just the inconvenience, but that they couldn't buy their way out of the safety measures and restrictions everyone else faced (they actually could, but not everyone and not every restriction)
I do think “every rich person went insane during covid because it was the first time they’ve been inconvenienced in decades” felt a little reductive at first but damn if isn’t more and more compelling as the years drag on
I do think “every rich person went insane during covid because it was the first time they’ve been inconvenienced in decades” felt a little reductive at first but damn if isn’t more and more compelling as the years drag on
My colleague @kaaho.bsky.social's new book, A Phenomenology of Functional Neurological Disorder, is now available for pre-order. www.routledge.com/A-Phenomenol...
A Phenomenology of Functional Neurological Disorder: Body, Self, World
Functional neurological disorder (FND)—historically associated with hysteria—remains one of the most mysterious and contested conditions in contemporary medicine. Situated at the murky intersection of...
routledge.com
My colleague, Kevin Aho, writes about his recent diagnosis of Functional Neurological Disorder: aeon.co/essays/what-... #philsky #philosophy
Sharing info on @harvardmed.bsky.social course Movement Disorders: Current Concepts & Practices. Check it out for the latest in diagnosis and management, including spotlights on Parkinsonism, Huntington's disease, motor #FND, DBS & more. learn.hms.harvard.edu/programs/mov...
Movement Disorders: Current Concepts and Practice | Harvard Medical School Professional, Corporate, and Continuing Education
Enhance your clinical expertise in diagnosing and managing complex movement disorders with this immersive, evidence-based course led by leading neurologists from Harvard Medical School, featuring real...
learn.hms.harvard.edu
“A single-payer universal health care system could cover every American, save more than 100,000 lives a year, and still cost $1 trillion less than the system it would replace, according to a new preprint study led by researchers at the Yale School of Public Health.” ysph.yale.edu/news-article...
Universal Health Coverage Could Save $1 Trillion and 114,000 Lives Every Year, Yale Study Projects
A single-payer universal health care system could cover every American, save more than 100,000 lives a year, and still cost $1 trillion less than the system it
ysph.yale.edu
"It's easy to spot a hallucination only when it's bizarre. For all we know, we hallucinate all the time." - Incognito: The Secret Lives of the Brain amzn.to/42TqVUN
How did MODIFI participants experience EMDR therapy tailored for FND? This is what we examined in our latest open access paper from our NIHR-funded feasibility RCT - www.cambridge.org/core/journal...
‘A challenging but rewarding journey’: qualitative study of participants’ experiences of EMDR for functional neurological disorder within the MODIFI trial | BJPsych Open | Cambridge Core
‘A challenging but rewarding journey’: qualitative study of participants’ experiences of EMDR for functional neurological disorder within the MODIFI trial - Volume 12 Issue 5
cambridge.org
This quote is from last February. Good work sir!
This summer's food recalls are broader in scope, longer-lasting, and more severe than past years as regulators are slow to respond. The parasite surveillance staff at the CDC, which responds to outbreaks (such as cyclosporiasis), was downsized last year by DOGE from 11 people to three.
Looking forward to our #FNDIreland Peer Support Meeting in Leitrim this month. Full details on the poster. Please email us or contact us via our website to register to attend. fnd.ie/contact-us/ 💚🧡 📍 Carrick-on-Shannon 📅 19th September 2026 ⏰ 2pm #FND @donpsi.bsky.social @fndportal.bsky.social
This is the decision I made. I'm an American citizen and could have applied to schools in the US if I wanted to. It would have given me a lot more options and made life easier in a lot of ways. But I came to the conclusion it's not safe to be there. So I only applied to Canadian and UK schools.
I can no longer in good faith recommend anyone to study in the US, or stay stateside for work and further education after completing degree programs they had started during the Biden era. US higher ed is unrecognizable even compared to a year ago when ICE was kidnapping students from their homes
It was great to have seven new members join our regular members at our #FNDIreland peer support meeting in Donegal at the weekend. A big THANK YOU to all those who attended and shared their experience of #FND. Our final Donegal meeting this year will take place 28th November. 💚🧡 @donpsi.bsky.social
A big part of chronic illness is “control what you can control” and do your best to let go of the rest.
📢 Announcing the 11th CiNet Conference: "From Biological to General Artificial Intelligence: Computational and Experimental Approaches to Understanding and Modeling the Brain" 5–7 October 2026, CiNet, Osaka, Japan Organized by yours truly & Shinji Nishimoto #neuroskyence #psychscisky #mlsky 🧠🤖 1/
Very cool new study, a great demo of what our approach can do - Altered interoceptive beliefs in alexithymia: Dissociating bias and precision using the heart rate discrimination task www.sciencedirect.com/science/arti...
sciencedirect.com
New paper alert! 📣📣 In this work, we investigated the origins of somatic symptoms – a common and debilitating feature of anxiety and depression. 'Anxiety is associated with the persistence of conditioned somatic sensations over time'
OSF
osf.io
What is information, really? Instead of arguing for a single valid interpretation, we propose a pluralistic view where rigorous alternatives coexist — each with affordances and limits Finally published: “Four faces of information in natural systems” 🧵
Westlin et al. report that resting-state functional connectivity predicted and tracked with symptom change in functional neurological disorder over ∼6 months of naturalistic treatment. Read it at 👉 doi.org/10.1093/brai... #neuroscience #braincommunications
Please support Athy Choral Fusion for An Evening of Harmonies, a special live concert celebrating the joy of singing, held in aid of #FNDIreland and the Irish Cancer Society. Eileen who lives with #FND and attends our Kildare Peer Support meeting is a member of Athy Choral Fusion. 💚🧡 #ChoralMusic
This sucks, man. We need to get off this techno-dystopian trajectory we're on, and fast
New: ICE plans to spend millions of dollars on Boston Dynamics dog robots. ICE says this is to improve "officer safety." The robots can open doors, pick up objects, have 360 cameras, infrared vision, etc. Boston Dynamics didn't respond to question on its stance on ICE www.404media.co/ice-plans-to...
'Functional Neurological Disorder: A Common Condition You’ve Probably Never Heard Of', a new Canadian Journal of Neurological Sciences blog by Ethan Chan, Daniyal Kashif and Dr. Carl Froilan D. Leochico 📚 https://cup.org/4xuXp4j
One-day symposium on FND and other functional disorders - St George's Hospital, London. Sep 11th 2026. Book via: https://zurl.co/PmDS2.
This cause is close to my heart - please sign: you.38degrees.org.uk/petitions/en...
End the NHS Care Gap for People With Functional Neurological Disorder
Functional Neurological Disorder affects movement, speech, vision, pain, bladder control, seizures, and daily function. Symptoms are real and disabling, comparable to conditions such as stroke, epilep...
you.38degrees.org.uk
Russell Vought’s OMB is inexplicably removing comments on the federal financial assistance proposed rule that mention how NIH research saved the life of Vought’s own daughter. Impeachvought.com
Impeach Vought
We are current and former federal workers from across the government. We have witnessed first-hand the harm Russell Vought has inflicted on American communities. We are urging Congress to act now to p...
impeachvought.com
OMB's proposal to remake federal grantmaking was flooded with comments Now, they are withdrawing some from the public record — including some that point out Russell Vought's connection to the federally funded research that led to Trikafta www.statnews.com/2026/08/25/r...
Congrats to our founder, Eamon on winning the @efna.net BrainTalks competition to speak at their Conference next month. Eamon is looking forward to speaking on 'When Common Doesn't Mean Equal: The Fight for FND Care' 💚🧡 @fndportal.bsky.social @donpsi.bsky.social @neuroscienceirl.bsky.social #FND
Very exciting work! 👏👏
Very proud to share our new article taking an empirical approach to a controversial debate. Based on the phenotypes of 700 people with FND, we found strong evidence that FND behaves like a single entity rather than multiple conditions that share the same name. www.sciencedirect.com/science/arti...