Kristen Honey
@khoney.bsky.social
Maineiac 04050 in DC. Stanford E-IPER PhD. HHS OASH Chief Data Scientist. InnovationX. LymeX. CancerX. Systems Biology. Open Data. Open Science. Open Gov. Open Innovation. Lyme. Long COVID. ME/CFS. IACCI infection-associated chronic conditions & illnesses🤍
OpenSecrets is the latest in a series of open-government groups to decline or die off over the last decade—a trend that bodes ill for the health of our politics. ICYMI Daniel Schuman counts the bodies, and looks at revival methods: www.thebulwark.com/p/open-gover...
Open-Government Nonprofits Are Dying Off Just When They’re Needed Most
Why it’s happening and what can be done about it.
thebulwark.com
A little good news. Three weeks later. The Los Angeles Wildfires Are Fully Contained www.nytimes.com/2025/02/01/u...
Palisades and Eaton Fires Are Fully Contained
The Palisades and Eaton fires, two of the deadliest and most destructive wildfires in California history, reached 100 percent containment more than three weeks after they began.
nytimes.com
First post: our review on Lyme arthritis lays out how we think autoimmunity is triggered by Borrelia burgdorferi infection. www.nature.com/articles/s41...
Lyme arthritis: linking infection, inflammation and autoimmunity - Nature Reviews Rheumatology
Lyme arthritis, a manifestation of Lyme disease, can sometimes persist in a chronic post-infectious disease. In this Review, the authors argue that post-infectious Lyme arthritis could act as a model ...
nature.com
Hey @julierehmeyer.bsky.social we’re hosting a town hall Tuesday for trapped patient communities on Twitter and FB. If there are more invite codes lmk if you can join us. Thank you so much for the work you have done 🙏 I’d love to talk.
My 'what I did with my summer' 2023...joined other #advocates to advance awareness of the importance of digital rights for online #patient communities through @lightcollective.bsky.social Register for the October 17th Virtual Town Hall 330-5pm PST today to learn more us02web.zoom.us/webinar/regi...
Amazing ❤️
Julie Rehmeyer@julierehmeyer.bsky.social · 3y agoWoohoo! We've distributed 3000 BlueSky codes to the chronic illness/disability community! Right now, I'm not accepting donations because our supply is plentiful, but I expect to reopen in a few days. Please spread the word to friends in this community who'd like to join us. forms.gle/newm1kPSWbb3...
finally our manuscript describing the weird and wonderful binding mode of a bacterial histone is online. www.nature.com/articles/s41...
This review article provides an overview on diagnosis, evaluation, and management strategies for ME/CFS. Physicians can earn CME credits by reading the article and completing an online test and evaluation afterwards. www.mayoclinicproceedings.org/article/S002... #MEcfs #CFS #MyalgicE #PwME
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...
mayoclinicproceedings.org
We’re particularly proud of the diagrams featured in this paper, which include a review of common symptoms of #MECFS and of PEM, its pathognomonic symptom. (4/)
Concise clinical reviews are also a way to offer CME credit. Medical providers can take the free CME by reading the paper carefully and then answering the case-based questions that follow. #MedEd (3/) www.mayoclinicproceedings.org/article/S002...
mayoclinicproceedings.org
This is excellent 🙌and will help many❣️
It's ME(Jaime)@exceedhergrasp1.bsky.social · 3y agoOverjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...
Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...
mayoclinicproceedings.org
Wow!
It's ME(Jaime)@exceedhergrasp1.bsky.social · 3y agoIt’s in the top✨< 1%✨ most shared of all Mayo Clinic publications. It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings. It’s in the ✨top 0.2%✨ most shared research products of all time. It’s been live less than a week. tinyurl.com/ywd3kmjs
It’s in the top✨< 1%✨ most shared of all Mayo Clinic publications. It’s the ✨most shared paper✨ amongst its contemporaries at Mayo Clinic Proceedings. It’s in the ✨top 0.2%✨ most shared research products of all time. It’s been live less than a week. tinyurl.com/ywd3kmjs
I’m looking forward to connecting with the long covid and chronic illness communities here!
Over the last few weeks we have had many newbies from the Chronic Illness community join us through Julie's invite code distribution site. This is now opened up for the disability community. ♿️ If you know someone in the #disability community who needs an invite code or if you have spare codes: