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Long Covid Support Aotearoa

@lcsupportaotearoa.bsky.social

Bringing forward the lived experience of people with Long Covid in NZ to help and connect with the community

105 Posts119 Follower45 Folgt
Tom Kindlon@tomkindlon.bsky.social · last wk.

The Sick Times How to interpret clinical trial results for Long COVID thesicktimes.org/2026/07/21/h... Includes a section called "a crash course in statistics." Also links to this resource: Questions to ask when evaluating evidence from clinical trials. thesicktimes.org/2026/07/21/h...

How to interpret clinical trial results for Long COVID - The Sick Times

With no proven treatments or cures, many people with Long COVID are turning to off-label medications, supplements, and medical devices to treat their symptoms. There are numerous options — and some of...

thesicktimes.org

gofullforce.bsky.social@gofullforce.bsky.social · last wk.

Kids are suffering because they don’t have the life experience or knowledge to explain what they are experiencing with #LongCOVID. It’s vital for parents and teachers to be aware of this issue and educated about the damage that is Long-COVID. #COVID19 thesicktimes.org/2026/07/24/t...

The (sick) kids aren’t alright: Observations from a teacher with Long COVID - The Sick Times

We must help students by addressing Long COVID and advocating for clean air in schools.

thesicktimes.org

World Health Network@thewhn.bsky.social · last mo.

In her latest Voices article, Becky Robertson explores the growing body of evidence showing that COVID-19 affects far more than the lungs. Drawing from both scientific findings and lived experience, she examines the neuropsychiatric and multi-system impacts that continue to affect (...)

Dark charcoal graphic with white and pink-to-yellow gradient text. World Health Network branding appears at the top. Full text: “whn.global. World Health Network. Science for a safer, healthier world. COVID-19 is not just a respiratory event. It is a profound neuropsychiatric and multi-systemic disruptor. Full article by Becky Ancira Robertson. whn.global/the-multi-systemic-reality-beyond-the-fine-line.”
Long Covid Support Aotearoa@lcsupportaotearoa.bsky.social · 2mo ago

Researchers from Victoria University, Wellington have shown that food insecurity is a significant issue for people living with Long Covid and MECFS. Among 333 respondents, half (50%) had experienced food insecurity in the past 12 months. www.tandfonline.com/doi/full/10....

ME/CFS and/or Long Covid in Aotearoa New Zealand: results from a food insecurity survey

Various chronic health conditions are associated with household vulnerability to food insecurity. There is limited evidence regarding the prevalence of food insecurity or the experiences and challe...

tandfonline.com

David Davies-Payne@d2p.bsky.social · 3mo ago

This is very welcome news. It will extend the initial findings from DecodeME at the University of Edinburgh, led by Prof Chris Ponting @cgatist.bsky.social #MECFS #LongCovid

Tom Kindlon@tomkindlon.bsky.social · 3mo ago

Great news from the UK🍾 £4.75 million to do whole-genome sequencing on 6000 DecodeME samples www.thetimes.com/uk/healthcar... (paywall) Unfortunately it's not enough to analyse the full sample People can find out more about SequenceME & donate here megenetics.org.uk/our-projects... #MEcfs #PwME

Landmark ME study will map patients’ DNA in mission to find cure The government will provide £4.75 million in funding to British scientists who aim to create a test to reliably identify chronic fatigue syndrome new Maeve Boothby O’Neill died in 2021 from malnutrition caused by severe MEPA Oliver Wright, Policy Editor, and Kaya Burgess, Science Correspondent Monday May 11 2026, 10.15pm BST, The Times Listen • 4:24 min Share Prefer us on Google Thousands of patients suffering from chronic fatigue syndrome are to have their full genetic codes mapped in an attempt to find a cure for the debilitating and mysterious illness. The study, a world first for the syndrome also known as myalgic encephalomyelitis (ME), will be funded by an investment of £4.75 million from the government in the hope that it will lead to a test to reliably identify the illness and eventually develop drugs to treat it for the first time.
Long Covid Support Aotearoa@lcsupportaotearoa.bsky.social · 3mo ago

"Dr Hana Ngata, a GP in regional Aotearoa, has seen a pattern emerging in her clinic since the COVID‑19 pandemic. Young people, kaumātua, parents, teachers – all describing the same strange mix of exhaustion, crashes after activity, dizziness, gut issues, and pain...

Long Covid Support Aotearoa@lcsupportaotearoa.bsky.social · 4mo ago

It is not good enough that Long Covid sufferers have to form support groups to get any kind of help. It is not good enough that Covid is still circulating leading to more Long Covid and we are not using the tools available to us, particularly clean air measures. www.rnz.co.nz/national/pro...

Should we be doing more for sufferers of Long Covid?

It might feel like the days of Covid are well behind most of us, but six years on from the initial outbreak, around 200 thousand New Zealanders are still dealing with it because they have Long Covid. So should more be done for those suffering the symptoms? We discuss that with Amanda Kvalsvig, Research Associate Professor of Public Health at the University of Otago. But first Jesse talks to Esther, a Wellington-based freelance journalist who can share what it's like to have Long Covid.

rnz.co.nz