This Hispanic Heritage Month, we celebrate Dr. Yomaira C. Figueroa-Vásquez, whose scholarship and organizing uplift Afro-Latinx voices and create space for Black feminist digital humanities. #ALS #Research #HispanicHeritageMonth
The LEITH Lab
@leithlab.bsky.social
LEITH Lab strives for compassionate care and humanizing research in rare diseases among historically underrepresented communities
Brad Lomax, a member of the Black Panther Party and leader in the disability rights movement, played a key role in the historic 504 Sit-ins. His work brought together Black liberation and disability justice, showing that true freedom must include access for all. #BradLomax #504SitIn
July is Disability Pride Month! 1 in 4 adults in the US has a disability that is over 70 million people! This month we want to spotlight just a couple of people who have been instrumental in the ongoing efforts for disability justice!
Today is World ALS Day! We want to continue to shine light on the communities who are so often overlooked in the ALS sphere! #EndALS #WorldALSday
Today is Juneteenth! A day where we celebrate Black liberation and recommit to the ongoing fights for justice among all oppressed peoples! #juneteenth #ENDALS
Happy Pride Month from the LEITH Lab to you! This month we are excited to highlight the experiences of and stories of our LGBTQ+ community members! #PrideMonth #EndALS
ALS support groups can be a great way to connect with people who have similar experiences to you or learn new strategies of care! However finding the right support group for you isn’t always easy! We hope this post can help out! All organizations are linked below! linktr.ee/theleithlab
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Compassionate care & humanizing research in rare diseases
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On May 16th our PI, Dr. Chelsey R. Carter, will be speaking with the Les Turner ALS Foundation about what it means to build an equitable path toward making ALS a livable condition for everyone. Registration is linked below! us02web.zoom.us/webinar/regi...
It’s ALS Awareness Month! Every Friday we will be sharing ALS topics with you all. We’re starting off by breaking down some key ALS terms to help make the connection between people living with ALS and their care teams a little clearer. #ENDALS #MayALSawareness
I brought the nice weather with me to New Haven to talk about my book ☀️☀️ I really enjoyed being in community with other anthros about my work. Ashley of the @leithlab.bsky.social was a great host and thanks to her diligent organizing, I had a wonderful visit!
on the road again, this time to new haven looking forward to joining folks in yale’s department of anthropology tomorrow for a conversation about my book excited to learn what grad students in my own discipline picked up on!
Roberta Flack left us this February, but her legacy still echoes around the world. She lived with ALS, a truth often overlooked, and we’re proud to honor both her artistry and her journey. #ALS #RobertaFlack
It's from @uminnpress.bsky.social and features @audretaughtme.bsky.social, David McDermott Hughes, Stephanie Delise Jones, @ratnagiri77.bsky.social, Katy Overstreet, Michelle Parsons, Adair Rounthwaite, Damien M. Sojoyner and @eyatesd.bsky.social. Recommend it to your friends and family!
A friend drove two hours today for her breast cancer chemotherapy only to learn it was canceled due to NIH cuts. Clinical trial ended midstream. No treatment, no restart, no plan, no information. Her bro-in-law's chemo was also canceled.
“I am a Black Feminist. I mean I recognize that my power as well as my primary oppressions come as a result of my blackness as well as my womaness, and therefore my struggles on both of these fronts are inseparable.” – Audre Lorde ✊🏾🌸🌸
✨Women’s History Month✨ This month we want to spotlight Lisa Carlton! A mother, rare disease advocate, and rare disease biotech consultant!
✨Friday Spotlight✨ This Friday we want to spotlight the amazing Audre Lorde whose words and teachings continue to resonate. #EndALS #AudreLorde
We are excited to share the Black Genome project! for more information, go to www.blackgenomeproject.org! #EndALS #Genomics
Black voices, especially Black women’s, have been systematically undervalued and actively erased, a reality rooted in a long history of oppression and marginalization. #EndALS www.forbes.com/sites/janice...
The Erasure Of Black Women’s Contributions: From Past To Present
This article unpacks the erasure of Black women's contributions from past to present and explores what can be done to prevent this phenomenon from continuing.
forbes.com
Happy Black History Month LEITH Lab family! This month we are so excited to honor the many Black voices who have done so much for us! #EndALS
Thrilled to host a Fireside Chat with Maceo Carter! Join us on February 11th for a workshop where we’ll hear from Maceo about his journey navigating ALS. Sign up now! #ENDALS
2025 W. Montague Cobb Institute Health Disparities Symposium Lester Henry Auditorium, Howard University, Washington DC 7:00am – 1:00pm PM ET, Saturday, Jan 25 Register: www.pathlms.com/cobb-institu...
This Martin Luther King Jr. Day, let's take a second to remember Dr. King's contributions and our role in continuing his work! The quote below is from Dr. King's 1967 book "Where Do We Go from Here: Chaos or Community?" Where Dr. King calls for a radical restructuring of systems of power. #ENDALS
We are excited to announce that Dr. Chelsey R. Carter and Brett Maricque’s Genetic Frontiers (@geneticfrontiers.bsky.social) episode is out now!! To listen to this new episode go to: geneticfrontiers.org/episode8-che...
Black people w/ ALS face unique challenges navigating a medical system entrenched in anti-Blackness. In Dr. Carter’s (@audretaughtme.bsky.social) comic, we see how these challenges can manifest in the healthcare system. To read Dr. Carter's corresponding paper go to: www.theleithlab.com/gaslighting
Important update for veterans with #ALS: The "Senator Elizabeth Dole 21st Century Veterans Healthcare & Benefits Improvement Act" was signed into law, expanding access to in-home care. #EndALS #ALS #Veterans Learn more about this step forward: federalnewsnetwork.com/veterans-aff...
Congress passes massive VA reform bill with pay flexibility for health care workers
Lawmakers axed language in the House-passed Dole Act that set higher standards for the VA to resume the rollout of its troubled new Electronic Health Record.
federalnewsnetwork.com
To dive into her brilliance: 📖 “Mules and Men” explores the rich oral traditions of Black Southern communities. 📖 “Their Eyes Were Watching God” combines anthropology with storytelling to illuminate Black womanhood. #EndALS #ZoraNealeHurston #HappyBirthdayZora #Anthropology
Happy Birthday Zora Neale Hurston! Hurston was a literary icon and a groundbreaking anthropologist who documented Black communities' oral histories and traditions in the US and beyond. Her work underscores the power of centering people —a mission we carry forward at LEITH Lab. #EndALS
Happy Birthday Zora Neale Hurston! Hurston was a literary icon and a groundbreaking anthropologist who documented Black communities' oral histories and traditions in the US and beyond. Her work underscores the power of centering people —a mission we carry forward at LEITH Lab. #EndALS