@lifeatthewindow.bsky.social

Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴󠁧󠁢󠁳󠁣󠁴󠁿

The term “skilled labor” is weaponized by the ruling class to divide the working class and separate people into a category where poverty wages are justified. The idea that someone who works shouldn’t make a living wage because they’re “unskilled” is ridiculous,

Currently the Labour government are getting away with whatever they want by using the chaos of the US to hide behind. They know that people are distracted - the best time to push through bills and policy. Thank you for writing about this bill giving it the coverage it needs.

JFC. Labour might as well take a goddamn torch to everything that was good or better before they got into power. They’re burning us all, and our environment, down, in favour of a gilded ‘growth’. Growth that really equals ruin. I feel sick, sick, sick and devastated. #LabourDisaster

George Monbiot@georgemonbiot.bsky.social · last yr.

1. Because this issue is critical, but has received remarkably little coverage, here's a thread pulling out the key themes from my article yesterday, on the Planning and Infrastructure Bill, which puts decades of environmental protections to the torch. 🧵 www.theguardian.com/commentisfre...

New “The process feels like you are on trial for murder, they act like they are trying to catch you out and that you are begging". Excellent and much needed Amnesty report on the welfare system which pushes so many into barely liveable lives. tinyurl.com/4w9rfaar

DWP claimants give verdict on welfare system - 'You're not treated as human'

Amnesty International's new research, which involves interviews with hundreds of people on benefits, claims the current welfare system is 'consciously cruel' and ruining lives

tinyurl.com

A lot of the issues I have with my social care are mainly caused by systemic problems. Mainly I mean underfunding via local authorities, which are underfunded by central government. Social care should be a top priority. It’s left to sink instead. #pwME #MECFS

I have posted this in the comments underneath today’s article on #ME in The Times. The difference in treatment between #ME and my experience of #cancer was stark. It’s not all about me, it’s about the 4,O04 thousand of us being ignored and mistreated.

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Some days having social care is really hard. Another random carer today. Came back to make my lunch a few hours after the breakfast shift…”You are still in bed?!” FFS read my damn notes. It’s not a choice. I’ve already done every physical thing I can manage this morning. Arghhh. #pwME #MECFS

We have over 800 signatures in just 70 hours! Our coalition — clinicians, researchers, carers, and most importantly, disabled people — will help the public and Parliament see how dangerous these cuts would be. Every signature adds weight. Thank you so much. ✍️ Please sign: tinyurl.com/yw8bzmxr

Disability Benefits Cuts

Open Letter: Disability Benefits Cuts Are Creating a Public Health Emergency To: Chancellor Rachel Reeves, Secretary of State for Work and Pensions Liz Kendall, Prime Minister Sir Keir Starmer, and Me...

tinyurl.com

It's been a heavy week. Sending love to everyone xx. Transwomen are women. Transmen are men. Autistic children and adults are loved, valued and wonderful. Late diagnoses of ADHD and Autism is ABOUT DAMN TIME. Violence in our community is caused by but also healed by community; not more violence.

Some bad news for people living with #MECFS. Under the 2026 "passback", the "reorganization" of HHS and CDC would cut all ME/CFS funding from CDC. I think this is a 'scoop', since I'm unaware of anyone having reported on it, yet. Let's talk about what a passback is, and what it means for us. 🧵🧪

National Center for Emerging and Zoonotic Infectious Diseases
The Budget discontinues funding for the Lyme Disease,. Prion Disease, Chronic Fatigue Syndrome and the Harmful Algal Bloom programs to prioritize funding for core infectious disease and surveiIlance activities. The Budget also includes $25 minion for the wastewater surveillance program within the Emerging Infectious Diseases PPA."

Some banal/everyday things I miss doing due to M.E. - Sitting up without consequence - Talking without consequence - Walking more than a few metres - Drinking from a normal cup - Showering - Dressing - Cooking a meal - Stepping outside Still think it’s ’not that serious’? #pwME #MECFS

Please don't tone police trans people today. They are absolutely fucking entitled to be furious and afraid, and to express that in whatever way feels right. Sober reflection is for the unaffected. And counting the few remaining blessings can absolutely fuck off into the sun.

Right, because I've now seen misunderstandings of this enough times that it's got me worried that people don't know this - transgender people in the UK are protected by the Equality Act 2010 under the category of gender reassignment. *That* was not under discussion today and hasn't changed.

When we explain PEM to doctors, carers etc. they usually get that active exertion (running, walking, showering, reading etc.) can lead to PEM. But often don’t understand passive exertion (being in a chair, noises, someone talking to you, hot temperatures etc.) can lead to PEM.

“You won’t let this break you”. But it does. It does break me. Over and over again, every few days, weeks and months. I wouldn’t be myself if this level of isolation, pain, loss and neglect didn’t break me. I just somehow keep breathing. That’s my life with severe M.E. #pwME #MECFS

Standards are often in the bin when it comes to home care provision. This is the second time different carers have left their USED masks like this on my kitchen worktop. I’m livid. And I’m in a crash and I’m not fit state to deal with this. What is even the thinking?! #pwME #MECFS #HomeCare

A used respiratory face mask left by a home carer on top of the kitchen worktop where food is prepared for the person being cared for.