New medical education resources for GPs. Learn more about ME, Long Covid, PoTS & related conditions. 🎧 Podcast: mecfs.buzzsprout.com 📚 Free CPD module: www.studyprn.com/p/chronic-fa... Developed by Action for ME with: ME Association & MEAction Scotland, funded by Scottish Government.

Learn about ME

This series of podcast episodes complement the CPD accredited module on Myalgic Encephalomyelitis (ME/ Chronic Fatigue Syndrome (CFS), originally developed by Dr Nina Muirhead with the UK ME Research ...

mecfs.buzzsprout.com

📢 New resources for GPs and healthcare professionals about ME, Long Covid, PoTS & related conditions. 🎧 Podcast: mecfs.buzzsprout.com Free CPD module: studyprn.com/p/chronic-fa... By Action for ME with ME Association & MEAction Scotland — funded by Scottish Government @actionforme.bsky.social

𝗟𝗼𝗻𝗴 𝗖𝗼𝘃𝗶𝗱 𝗦𝗰𝗼𝘁𝗹𝗮𝗻𝗱: 𝟮𝟬𝟮𝟲 𝗖𝗮𝗿𝗲 & 𝗦𝘂𝗽𝗽𝗼𝗿𝘁 𝗦𝘂𝗿𝘃𝗲𝘆 📢 We need to hear from people living with Long Covid across Scotland about your experiences. Open to age 16+ Your experience will help us drive change. docs.google.com/forms/d/e/1...

Long Covid Scotland: Experiences of Care & Support Survey

Thank you for taking the time to complete this survey. Long Covid Scotland is gathering information about people’s experiences of Long Covid care, support, services and pathways across Scotland. We know experiences can vary significantly between Heal

docs.google.com

Long Covid Scotland: 2026 Care & Support Survey We need to hear from people living with Long Covid across Scotland about experiences of care, support, and healthcare Your responses will help us understand what’s working for you, what isn’t & what needs to change. docs.google.com/forms/d/e/1F...

Today we congratulate @mareetodd.bsky.social on her Public Health appointment and look forward to engaging to strengthen and build on support and policy responses within Long Term Conditions work for all people living with Long Covid in Scotland.

@AConstance23 @scotgovhealth We congratulate Angela Constance on her appointment as Cabinet Secretary for Health and look forward to engaging to strengthen and build on support & policy responses under Long Term Conditions work for all people living with Long Covid in Scotland.

📢 Join the PRIME ME/CFS Research Involvement Hub! Today, PRIME have launched their new ME/CFS Research Involvement Hub which aims to build a virtual network of people with lived experience of ME and match them with research projects to help shape the delivery of those projects.

COVID-19 didn't end for Thousands. The Inquiry heard from adults and representatives of children about living with long COVID – including Long Covid Scotland, about and the challenges faced by a lack of understanding. Read the full Narrative Record: www.covid19inquiry.scot/report/narra...

Narrative Record: Health and Social Care Impact Hearings | Scottish COVID-19 Inquiry

A summary of evidence heard from 156 witnesses. Key topics include grief and bereavement, mental health, personal protective equipment, guidance, vaccines, staffing and pre-pandemic planning.

covid19inquiry.scot

🧬Join our Sequence ME & Long Covid Webinar Following the announcement of major funding (£4.75 million) from the UK Government, join our webinar to find out more about what this means for the study, and what happens next. 📅 26 May, 14:30-15:30pm GMT 📍 Register here: us02web.zoom.us/webinar/regi...

This #MentalHealthAwarenessWeek we're sharing resources to support you, or a loved one, to look after your mental health. Our mental health directory lists general and condition specific support, as well as support for carers, provided by our member charities 👉 bit.ly/4dFDTuL

Today on International ME Awareness Day, we’re calling for better recognition, research and services for people living with ME and Long Covid in Scotland. With £4.5m now allocated by The Scottish Government, the focus must now be on full accountability and delivering real change for patients.

Long Covid Scotland is seeking a new Trustee to support the leadership of a national charity advocating for people living with Long Covid. Find out more and apply here: longcovid.scot/blog/how-to-...

"Advocates for the tens of thousands of Scots with Long COVID continue to experience huge gaps in care and support depending on where they live." Read More Here - healthandcare.scot/mobile_d...

Plea for renewed focus on Long COVID

Advocates for the tens of thousands of Scots living with Long COVID say they are continuing to experience huge gaps in care and support depending on where they live. It comes on the day that a number of Scottish landmarks are being lit up

healthandcare.scot

Landmarks across Scotland are lighting up teal for #LongCovidAwareness - but is Scotland doing enough? ( Spoiler Alert - No, nowhere near) Read this update to find out what's happened, why it matters, and what we can do about it together #LongCovid www.longcovid.scot/blog/upd...

Our 2026 Manifesto sets out what must change on Long Covid diagnosis, care, jobs, public health & support Help us act: ✅ Share our posts ✅ Raise it with politicians ✅ Volunteer International Long Covid Awareness Day is 15 March #LongCovid #LongCovidScotland

We want to share an important update on the Scottish Government’s Long Term Conditions Framework, which was intended to shape future policy for long-term conditions — including Long Covid. www.longcovid.scot/blog/upd...

Update: Long Term Conditions Framework — Long Covid Scotland

Update: Long Term Conditions Framework – what’s happening now (and why this matters for Long Covid) We want to share an important update on the Scottish Government’s Long Term Conditions Framework , which was intended to shape future policy for lon

longcovid.scot

We want to share an important update on the Scottish Government’s Long Term Conditions Framework, which was intended to shape future policy for long-term conditions — including Long Covid. www.longcovid.scot/blog/upd...

Update: Long Term Conditions Framework — Long Covid Scotland

Update: Long Term Conditions Framework – what’s happening now (and why this matters for Long Covid) We want to share an important update on the Scottish Government’s Long Term Conditions Framework , which was intended to shape future policy for lon

longcovid.scot

"Long Covid Scotland stands ready to work with government and partners but the next move must come with real, measurable change." Long Covid Scotland responds to the inquiry report and calls for real action, not just acknowledgement. www.longcovid.scot/blog/sta...

Statement on UK Covid-19 Inquiry Findings - Long Covid Scotland — Long Covid Scotland

Long Covid Scotland welcomes yesterdays inquiry report, which confirms what so many already knew: the UK and Scottish Governments’ early pandemic response was “too little, too late.” These failures did not just cost lives, they created a long-term wa

longcovid.scot

🧼 63% of Scots with #LongCovid need help with personal care - things like washing, dressing, or cooking a meal. Yet funding is now just £9.70 per patient per year People are left without dignity or support. #LongCovidScotland #Disability #ChronicIllness #Scotland

🚗 64% of Scots with #LongCovid need help with travel and transport. People can’t drive or even leave home yet government funding is just £9.70 per patient per year. That’s not mobility. That’s abandonment. #LongCovidScotland #Disability #ChronicIllness #Scotland

🛒𝟴𝟮%of Scots with #LongCovid told us they need help with shopping. People are struggling with basic tasks but government funding is now just £𝟵.𝟳𝟬 per patient per year. We're telling That isn't enough. #LongCovidScotland #Disability #ChronicIllness #Scotland

🧹 89% of Scots with #LongCovid need help with household chores. Many can’t cook, clean, launder without support yet funding is just £9.70 per patient per year?! Hey ScotGov That’s not care. That’s neglect. #LongCovidScotland #Disability #ChronicIllness #Scotland

In Scotland, the disabled pay TWICE 🏥 84% of Scots with #LongCovid pay for supplements. 59% for alternative therapies. 41% for private appointments. ...Because Scottish Government funding is only £9.70 per patient per year #LongCovidScotland #ChronicIllness #Disability #Scotland

📊 4 in 10 Scots with #LongCovid told us they can’t work at all. Another 2 in 10 are forced to cut their hours. Meanwhile, Scottish Government funding is just £9.70 per patient per year. People are losing livelihoods while support lags behind. #LongCovidScotland #Disability #Scotland

Scots disabled by #LongCovid have lost over £50,000 in earnings on average. Scottish Government funding? Just £9.70 per patient per year. People are paying the price — not the government. #LongCovidScotland #ChronicIllness #Scotland #MECFS

We see seven major problems with the recent funding announcement. Here's what you need to know. Please watch, like and share to raise awareness. Audit Scotland MUST surely now investigate? #LongCovid #MECFS #ScotGov www.youtube.com/watch?v=BtO...

While we welcome the Scottish Government announcement of £4.5 million recurrent #LongCovid and #MECFS funding, serious concerns remain. Patients are told money is being allocated, but there is no clarity on how it will be used. Read the full statement on our website: www.longcovid.scot/blog/res...

📢 New research from Robert Gordon University and the Poverty Alliance highlights the severe financial pressures faced by people with Long COVID in Scotland. Read the full story - and let us know your experience www.rgu.ac.uk/news/news-202... #LongCovid #SocialJustice #Workplace #Scotland #Poverty

Long COVID, long consequences | September 2025 | News | RGU

New research from Robert Gordon University (RGU) and the Poverty Alliance highlights the severe financial pressures being faced by people with Long COVID in Scotland.

rgu.ac.uk

Members of The Long Covid Cuppa in Falkirk, Noreen & Suzanne are braving The Forth Bridge Abseil on 28th Sep to raise awareness of Long Covid services from Chest Heart and Stroke Scotland and The Cuppa Group: Can donate here: gofund.me/71d0cc9d1

36% of people with confirmed COVID develop Long COVID, per a mega-review of 429 studies. Higher in hospitalised patients (44%). Common issues: fatigue, respiratory and neurological problems. This is a long-term public health challenge. www.eatg.org/hiv-news/more-... #LongCovid #PublicHealth

More than one-third of individuals with COVID-19 experience long COVID

Long COVID remains a globally persistent condition, with a pooled prevalence of 36% worldwide, highlighting the urgent need for follow-up studies and policy responses.

eatg.org