📢 Important Update from the APPG on Long Covid: Following Jo Platt MP stepping down from her role as Chair, the APPG on Long Covid will hold an Extraordinary General Meeting (EGM) to elect a new Chair on Tuesday 20 October at 2pm.

Back in May this year, the House of Commons Library shared a new briefing on Long Covid, sharing information on a range of issues. Why not take a read? The briefing is available here: commonslibrary.parliament.uk/research-bri... #LongCovid #ResearchBriefing #HouseOfCommons

We recently ran an online peer support group session, facilitated by the wonderful Rebecca Logan, who brought together a small group of people from Northern Ireland to share support, solidarity and experiences in NI.

We're recruiting! Apply today to join us as our first ever in-person peer support project assistant 🥳 This is a new role, supporting our groups which run monthly in Chester and Birmingham. The role includes event admin, publicity, and widening participation in our support groups.

Long Covid UK is proud to stand with the Overlapping Illness Alliance to represent our community. The OIA has issued a joint letter in response to an article recently published in The Telegraph entitled ‘How having a disability became cool’.

Last weekend, alongside representatives from @thereforme.bsky.social, @actionforme.bsky.social and the ME Association, our trustee Jo Dainow had the opportunity to visit the Royal Opera House and experience The Mirrorbox on behalf of Long Covid UK.

Our Birmingham in-person peer support group is back! Join us on 25 September in Selly Oak and access a safe space for support, conversation and solidarity. We look forward to seeing you there! Register using Eventbrite: www.eventbrite.co.uk/e/long-covid... #LongCovid #PeerSupport #Birmingham

New blog: our fab trustee Dr Margaret O'Hara presented at the ISLC PAIS Conference at the end of August, and we're sharing a blog with her reflections. Want to find out more about this work and what the project set out to do? Read it here www.longcovid.org/blog/find-ou... #LongCovid #Research

Last week, Long Covid Support became Long Covid UK. Same charity. Same mission. New look. Head to our brand new website to have a look around! www.longcovid.org #LongCovidUK #Rebrand

Join us for 'Neurodivergence, Hypermobility & Long COVID with Dr Jessica Eccles' on Wednesday 16 September, at 6pm! Dr Binita Kane & Dr Jessica Eccles speak about the fascinating connections between Long COVID, neurodivergence, ADHD, autism, joint hypermobility, dysautonomia, POTS, ME/CFS, & more.

The wonderful George Brill has been swimming, swimming, swimming to fundraise for us - and he's written a blog about the experience for us. Read the blog and donate below! 📖 www.longcovid.org/blog/for-tho... 💸 www.justgiving.com/page/george-... 1/

We might have a new name and a new look, but our goal remains the same: to reduce the impacts of Long Covid and improve the lives of all those affected. #LongCovid #LongCovidUK #Mission

Everything we do is shaped by our values. We are peer-led, inclusive, expert, driven, collaborative and dependable. Collaboration is very important to us – the multi-organisational ecosystem of support for people affected by Long Covid is a strength.

We continue to push for a future in which people affected by Long Covid are heard, supported and able to access the care, understanding and opportunities they deserve. One day, we want to live in a world where Long Covid no longer exists. Join us: www.longcovid.org #LongCovid #Vision

We are excited to announce that Long Covid Support has become Long Covid UK. Nothing about our purpose has changed. We are still here to support people living with Long Covid and to drive the change that is urgently needed. 1/

Something new is coming. Over the past year, we’ve been working on something important behind the scenes. We’re looking forward to sharing more with you soon. #LongCovid #Announcement

The Mirrorbox is on the move. Taking messages from people living with ME and Long Covid to the places they love but can no longer reach. Next stop: Royal Opera House, London | 12–13 September

We're very proud of our trustee and research co-lead, Dr Margaret O'Hara, who is attending the ISLC PAIS Conference on behalf of us, the Episodic Disability Study Team (Toronto University) & the Rehabilitation Science Research Network for COVID, in Amsterdam this week 🥳

If you didn't manage to make it to You're Not Imagining It — Long COVID, ME & Other Invisible Illnesses on 22 July, hosted as part of South Asian Heritage Month, the recording of the webinar is now available on YouTube. Watch: www.youtube.com/watch?v=BOuP... #LongCovid #SouthAsianHeritageMonth

You're Not Imagining It: Long COVID, ME & Invisible Illnesses in South Asian Communities

Invisible illnesses can be some of the hardest conditions to live with—not only because of the symptoms, but because so many people struggle to be believed. In this South Asian Heritage Month…

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Minutes are available for the June APPG on Long Covid, focusing on the impact of #LongCovid on Children and Young People (CYP), with a presentation from @longcovidkids.bsky.social “It shouldn’t take 6 years to get listened to for the first time” - Kitty McFarland, Youth Advocate, Long Covid Kids

Amazing news, Long Covid Support is getting paid in easyfundraising’s £2 million Donation Day! You can raise free donations every time you shop online with #easyfundraising – it’s such a simple way to make a difference. Want to get involved?

August is a quieter month for us here at Long Covid Support, but we are still here! Opportunities for peer support and connection continue across our Facebook groups, and if you attend our in person peer support groups regularly, don't forget we have a break in August - we'll return in September.

Last year, 17 incredible fundraisers took on challenges #ForThoseWhoCant. Whether running, cycling, crocheting, or asking friends to donate on a special occasion, we were so grateful to each and everyone who took the time to raise funds for our charity 🙏

📣 New paper out on Long Covid and work from REACT Study. Based on over 45,000 participants: 🔷 4.3% had unresolved Long Covid 🔷 An additional 2.3% had resolved Long Covid 🔷 Participants with unresolved Long Covid had 38% lower odds of being in paid work, & 4x higher odds of having to change hours

Have you joined us on Easy Fundraising? Here's how it works: 📧 Sign up 🛒 Shop 🛍️ Brands pay us at no cost to you You can even use their handy browser extension to remind you every time you're on an eligible website before you check out or go straight through their app on your phone.

The latest NHS England GP Patient Survey data is now available - and our team have started having a look through it. The numbers show us that an average of 3.53% of people aged 16 and over have Long Covid in England. Follow us for more stats as we process the data. #LongCovid #StillHere

Our Birmingham in-person peer support group is coming up at the end of July before the summer break in August! 📆 Friday 31 July 🕚️ 11am - midday 📍 Sense Touchbase Pears, Selly Oak You can register now using the Eventbrite link - please do join us if you are available. tinyurl.com/IPPS-Birmingham

As part of South Asian Heritage Month, You're Not Imagining It is a free online event exploring Long COVID, ME and invisible illness in South Asian communities - a hopeful, practical conversation by host Asma Younus and leading experts Dr Binita Kane and Dr Sanjay Gupta. 1/

You might have seen that we are discussing PIP in a workshop in Chester next week – but if Chester’s a bit far for you, we’re also running the workshop online. On Monday 13 July at 10:30am join us for a dedicated discussion about Personal Independence Payments (PIP). 1/

We did it! Thanks to our generous community, our final total, including gift aid and match donations, is an incredible £5,540! We truly couldn't have done this without you and are so grateful to everyone who donated, engaged with our posts, and shared them with your friends and family.