The UNCRC supports children’s rights to give consent, to be consulted & to complain But often adult myths about their capacity get in the way @jochamberlain.bsky.social and I researched with children what they think of this and what might help Some resulting resources - feel free to use! 🧵 1/4
Lucy Bray
@lucybray9.bsky.social
Professor of Child Health Literacy, work focussed on child rights, creative qualitative approaches and working with and empowering children and families to improve access and experiences of health care. Lead of international ISupport right-based standards.
Are you a UK clinician who manages children & young people with musculoskeletal pain? The CAM-Pain study @keeleuniversity.bsky.social would love you to take part in our E-Delphi study gathering views on developing resources for children & young people with MSK pain. Link: tinyurl.com/53b2a2jn
67 #NHS1000miles walked this week by the 🌊 in the glorious sunshine ☀️ Looking forward to seeing everyone’s active pics 😍
What a great ‘Beyond’ conference🤩 📖 Young peoples’ voices heard through storytelling, animation, poetry and lived experience accounts. Delighted to be presenting ISUPPORT with Katie Dixon and showcasing Sienna’s story of how ISupport has improved her health care experiences and interactions 🙏 @
65 #NHS1000miles walked this week by the 🌊 The ☀️ continues to be such a joy to warm the soul! Bit too warm for the dogs though - so lots of swimming for them in the 🌊 Looking forward to seeing everyone’s active pics 😍
65 #NHS1000miles walked this week by the 🌊 so nice to wake up to ☀️ each day, lovely to keep the dogs cool by swimming in the 🌊 Looking forward to seeing everyone’s active pics 😍
💫Next week is Deaf Awareness Week💫 Leanne, a Qualified Teacher of the Deaf reads stories with BSL signs. Perfect for younger primary children. Loads to choose from on her YouTube buff.ly/MDRsC4N #EduSky #Inclusion
Autistic children and young people, aged 11-18 please share your views about CAMHS by writing, recording a voice note or by drawing and labelling a picture in a short survey ⬇️ ljmu.questionpro.eu/ImprovingAcc... @jopavlopoulou.bsky.social @emmaashworth.bsky.social @putchildrenfirst.info
71 #NHS1000miles walked this week with a bit more variety on the walks due to lovely company 😍but still always the 🌊 Loving the sun and lighter nights and look forward to seeing everyone’s active pics
Come and join us at our free @ljmuofficial.bsky.social Children, Young People, and Families Health conference on Thursday 22nd May! www.eventbrite.co.uk/e/ljmu-child... @ljmuimpact.bsky.social @ljmu-ris.bsky.social @merseycarenhs.bsky.social @alderhey.nhs.uk @livhp.bsky.social
LJMU Children, Young People and Families Health Annual Conference
Come join us at this free conference to learn, share, and connect with others passionate about children's health in the region
eventbrite.co.uk
Interesting discussions at the launch of the Council of Europe’s Young Peoples’ Guide for Good Practice concerning the participation of children ⬇️ www.coe.int/en/web/human... Delighted to see recognition of the good work of @isupportrights.bsky.social to work with young people in everything we do 😊
We are looking for autistic children & young people aged 11-18 to participate in a survey about improving the accessibility of CAMHS in the UK. Views can be shared by writing, recording a voice note, or drawing & labelling a picture. Link in QR code below or here: ljmu.questionpro.eu/a/TakeSurvey...
🚨🚨Great to see this published, our paper exploring acceptability of implementing #MSK triage interface clinics in #primarycare in Ireland 👇👇👇 www.sciencedirect.com/science/arti...
Musculoskeletal triage physiotherapists’ perspectives on their role, the patient journey and implementation of interface triage clinics in primary care in Ireland
To explore musculoskeletal triage clinical specialist physiotherapists’ (CSPs) perspectives on the patient journey and their perspectives on the accep…
sciencedirect.com
Delighted to be at the #CANDIDDconf25 presenting our work with @contactfamilies.bsky.social @alderhey.nhs.uk and the National Network of Parent Carer Forums on ‘Accessing Health care for children with additional needs from under-served communities’
If you are aged 10-21 (25 with SEND) you can share your views and help inform the Government's National Youth Strategy. Find out more at www.iwill.org.uk/NYS-Deliver-You/ #DeliverYou #WhatsYourOrder
Following on from our very popular December webinar on 'the invisible labour of #PublicInvolvement' registrations are now open for the second webinar in the series, on Emotions in #PPI, led by colleagues from @penarc.bsky.social. Come join us! @arceastofengland.bsky.social @elspethma.bsky.social
Excited for the day ahead at the @seftoncouncil.bsky.social SEND youth conference reporting back on the @isupportrights.bsky.social resources the young people helped with last year and developing a symbol based audit tool this year 😊
Please support our research collaborative-UK only for this one.
Yippee 🥳
Very happy to get news that our #Stoma Support Study 2 has finally been successful in getting funded! 🎉🎉Building on previous @nihrspcr.bsky.social study, we'll be co-producing, user-testing & finalising a digital resource to support self-management of distress in young ppl with #IBD and a stoma😃
PROTECTING CHILDREN: WORKING IN PARTNERSHIP ACROSS CHILDREN’S SERVICES is a pan-European report just out from @ESNsocial building on last year’s Bucharest seminar. www.esn-eu.org/publications... Pathways to Participation is on p35. My seminar presentation is at www.harryshier.net/powerpoints....
New free paper, Guidelines for the Creation of Accessible Consent Materials & Procedures: Lessons from Research w/ Autistic People & People w/ Intellectual Disability, from teams incl. AASPIRE - more coming from our Outcomes Project led by @cnicolaidis.bsky.social! www.liebertpub.com/doi/10.1089/...
Guidelines for the Creation of Accessible Consent Materials and Procedures: Lessons from Research with Autistic People and People with Intellectual Disability | Autism in Adulthood
Informed, voluntary, ongoing consent is a central tenet of ethical research. However, consent processes are prone to exclusionary practices and inaccessibility. Consent materials are often too long an...
liebertpub.com
#NATPmentalhealth Read about ripples of change we are creating www.annafreud.org/news/weve-se... And check find out who is trained in your Trust/service to help you upskill your colleagues and be the change you want to see in improving autistic people's outcomes -Actions, no more words.
Still feeling tender from yesterday. So much work still needs to be done But now you know now you are not alone- we are many Thanks to the many hundreds of people who attended (not seen numbers, feedback etc yet) and to all content developers, trainers, Ebes, NHS staff who made #NATPmentalhealth
Today is about showing results from this massive effort in which over 110 people with #autism have shaped the narrative of what we are doing, says @jopavlopoulou.bsky.social Sit back and enjoy! And don't forget to share, using the hashtag. #NATPmentalhealth
We still need to hear from more parents - have you been asked to hold your child for a blood test, anaesthetic or health examination? We need your help 🏥 💉 We are gathering information about the impact of this on you and your child in a quick 5 min survey ⬇️ www.surveymonkey.com/r/holdingfor...
I love delivering this course. Always a supportive interactive, knowledge-sharing space where you can hear from real-life projects and gain a deeper understanding of the 'messy' but beautiful approaches to participatory action research. Register: ncrm.ac.uk/training/sho...
Training course: Participatory Action Research (PAR): Equitable Partnerships and Engaged Research
PAR aims to create a space for researcher and participants to co-produce knowledge and where relevant, action for change. PAR is considered as a research paradigm in itself, that embodies a particula
ncrm.ac.uk
This is the illustrated Call to Action by "the children and young people of Newcastle" (on p.39 of the report) - including PLAY!, more parks, more buses on time.
Been looking at the recently-published annual report by Alice Wiseman, Director of Public Health in Newcastle (and Gateshead), titled (and focused) on "It takes a city to raise a child". Lots to think about, including from the perspective of play & mobility. new.newcastle.gov.uk/budget-polic...
Parents have you been asked to hold your child for a blood test or health care test? We need your help 🏥 💉 We are gathering information about the impact of this on you and your child in a quick 5 min survey ⬇️ www.surveymonkey.com/r/holdingfor...