Donald Thomas, MD
@lupusencyclopedia.bsky.social
Rheumatologist empowering patients with knowledge #lupus #Sjogrens #MCTD #UCTD Tweets are my own. 🏳️🌈💜
Fingers crossed that OBI will be our next FDA-approved drug for #SLE #lupus ... a new and improved version of rituximab! www.the-rheumatologist.org/article/fda-...
FDA Accepts Application for Obinutuzumab for Treatment of Systemic Lupus Erythematosus - The Rheumatologist
On April 20, the FDA accepted the supplemental Biologics License Application for obinutuzumab for the treatment of systemic lupus erythematosus, based on positive results from the phase 3 ALLEGORY tri...
the-rheumatologist.org
😍 Living well with #SLE #lupus takes more than drugs. Join us WED, AUG 26 at 7PM ET (4PM PT) for a free virtual Lupus & You event by the Lupus Foundation @LupusOrg filled with practical, everyday tips from me for living as healthy a life as possible with lupus. Register at lupus.org/lupus-and-you
Ultraviolet (UV) light protection all year is important in disorders like #SLE #lupus #Sjogrens. Keep the car windows up. Older car side windows block 70% of UV light while newer cars block around 89%. Even better, get UV tinting: CLICK www.lupusencyclopedia.com/lupus-and-ph...
Don't forget sun protection measures, including UV light protection, even when indoors when you have disorders like #lupus #SLE #Sjogrens: www.lupusencyclopedia.com/sun-protecti...
Sun Protection for Lupus Made Simple [July 2026 Update]
Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...
lupusencyclopedia.com
Interesting article showing that belimumab dosing can be lengthened in select #SLE #lupus patients. I would consider this in patients who are in sustained remission and off steroids. Serologically normal patients would be the best candidates: lupus.bmj.com/content/lupu...
Dr. Ludovic Trefond and Dr. Christophe Richez in France are looking into how to define "Hard-To-Manage Lupus." They are seeking the opinions of patients as well as healthcare providers. Consider participating (it takes only a few minutes). Link: definelupusd2m.limesurvey.net/694249?lang=...
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definelupusd2m.limesurvey.net
All of us (health care providers, patients, friends, family members, others) are only human and find it difficult knowing the right things to say and do. This goes well beyond just #lupus, #SLE, Sjogrens, etc. Here is a fantastic blog: www.morethanlupus.com/post/how-to-... From @LupusMore
How to Support a Friend Having a Bad Lupus Day (Without Making It About You)
When a friend, partner, or family member is living with lupus, witnessing their flare-ups can leave you feeling incredibly helpless. You want to say the perfect thing to take away their pain, but in o...
morethanlupus.com
Most #SLE #lupus patients will have it affect their skin (cutaneous lupus). See @Kaleidoscope_FL latest video: youtu.be/LJdM4CaY3W8
Catching the Butterfly: The Dermatologist’s Role in Early Lupus Diagnosis
YouTube video by Kaleidoscope Fighting Lupus
youtu.be
Patients and their loved ones: register for the upcoming Sjogren's Symposium by @CrunchyAllergy; Virtual Conference JUL 16-18. Register at the link bottom right of image.
❤️🔥#Sjogrens and #lupus #SLE often coexist. Also, Many SLE patients have Sjögren's but are undiagnosed. Undertreatment can lead to complications like early-onset tooth loss. Learn more here: www.youtube.com/watch?v=zfEZ... by @Kaleidoscope_FL and me
Lupus and Sjögrens Disease
YouTube video by Kaleidoscope Fighting Lupus
youtube.com
❤️🔥#Sjogrens and #lupus #SLE often coexist. Also, Many SLE patients have Sjögren's but are undiagnosed. Undertreatment can lead to complications like early-onset tooth loss. Learn more here: www.youtube.com/watch?v=zfEZ... by @Kaleidoscope_FL and me
Lupus and Sjögrens Disease
YouTube video by Kaleidoscope Fighting Lupus
youtube.com
🔥 The more accurate, modern way of prescribing hydroxychloroquine: rheumnow.com/news/hydroxy... @RheumNowNews @rheumnow.bsky.social
Hydroxychloroquine: 5 mg/kg/day Is Only the Starting Point | RheumNow
Hydroxychloroquine (HCQ) is one of the most important drugs in rheumatology, especially for systemic lupus erythematosus (SLE). It reduces flares, organ damage, cardiovascular events, and pregnancy co...
rheumnow.com
🔥Dosing hydroxychloroquine by body weight blindly leads to undertreatment in some patients while leading to toxic levels in others with SARDs like #SLE #lupus #Sjogrens. HCQ drug levels should be used to give better care to patients: CLICK HERE 👉 rheumnow.com/news/hydroxy... @rheumnow.bsky.social
😍See our recent article on @RheumNowNews @RheumNow how to dose hydroxychloroquine for disorders like #SLE, #lupus, #Sjogrens using modern, personalized medicine tools rather than guessing by body weight: rheumnow.com/news/hydroxy...
Hydroxychloroquine: 5 mg/kg/day Is Only the Starting Point | RheumNow
Hydroxychloroquine (HCQ) is one of the most important drugs in rheumatology, especially for systemic lupus erythematosus (SLE). It reduces flares, organ damage, cardiovascular events, and pregnancy co...
rheumnow.com
🥳For Lupus Awareness Month, excited to share my new #lupus #SLE book: Lupus: The Essential Guide, @hopkinspress.bsky.social is now available for preorder. My goal was to create a shorter, practical, patient-friendly guide for people with lupus and their families. www.press.jhu.edu/books/title/...
Lupus
The Essential Guide
press.jhu.edu
Rheumatoid arthritis and #Sjogrens often coexist. Read this latest blog post from the @SjogrensOrg Sjogren's Foundation: sjogrens.org/understandin...
Rheumatoid Arthritis and Sjögren’s Disease
What Is Rheumatoid Arthritis? Rheumatoid arthritis (RA) is a chronic (long-term) autoimmune disease in which the immune system attacks the lining of the joints (the synovium) and tendons, leading to i...
sjogrens.org
😍GREAT NEWS! @FDA approves self-injectable #Saphnelo Pen for #SLE #lupus! Once-weekly dosing: 120 mg per dose. www.astrazeneca.com/media-centre... NOTE: This is NOT sponsored AstraZeneca
😍GREAT NEWS! @FDA approves self-injectable #Saphnelo Pen for #SLE #lupus! Once-weekly dosing: 120 mg per dose. www.astrazeneca.com/media-centre... NOTE: This is NOT sponsored AstraZeneca
❤️🔥Many of my patients have been asking me about GLP-1 agonists and if they are safe in autoimmune diseases like #SLE #lupus and #Sjogrens. I go over the medical studies in my latest post: www.lupusencyclopedia.com/weight-loss-...
Ozempic, Wegovy, Mounjaro, and Zepbound for Weight Loss in Lupus: What Patients Should Know
Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...
lupusencyclopedia.com
❤️🔥Many of my patients have been asking me about GLP-1 agonists and if they are safe in autoimmune diseases like #SLE #lupus and #Sjogrens. I go over the medical studies in my latest post: www.lupusencyclopedia.com/weight-loss-...
Ozempic, Wegovy, Mounjaro, and Zepbound for Weight Loss in Lupus: What Patients Should Know
Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...
lupusencyclopedia.com
😎It is that time of year in the Northern Hemisphere! #SLE #lupus and many #Sjogrens patients should be wearing sunscreen all year round, but especially Spring and Summer! In this article, I simplify things. www.lupusencyclopedia.com/sun-protecti...
Sun Protection for Lupus Made Simple
Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...
lupusencyclopedia.com
🔥The modern, most accurate method of dosing hydroxychloroquine (HCQ) is by using drug levels and not by body weight. acrjournals.onlinelibrary.wiley.com/doi/10.1002/... www.lupusencyclopedia.com/top-tips-on-... Best way to dose HCQ is to measure whole blood levels, goal: 750 – 1150 ng/mL.
Toward Optimal Dosing in Systemic Lupus Erythematosus: The Case for Hydroxychloroquine Blood Level Monitoring
Click on the article title to read more.
acrjournals.onlinelibrary.wiley.com
🫄Article by Dr. Siegel & Dr. Sammaritano supports #Benlysta & #Saphnelo in pregnancy. www.lupusencyclopedia.com/successful-l... I use biologics, such as Benlysta and Saphnelo, during pregnancy. I try to stop the biologic late in the 2nd trimester in order not to affect the newborn's immune system.
How to have a successful pregnancy when you have lupus
Most patients with lupus can now have a successful pregnancy if they plan for it properly. My new blog post gives an easy-to-follow step-by-step list of recommendations. SHARE with everyone who may be...
lupusencyclopedia.com
Family members of people with autoimmune diseases are at increased risk of developing these disorders, but there are things they can do to lower their chances. Give your family members a copy of my recommendations: www.lupusencyclopedia.com/how-to-preve...
How to Prevent Lupus & Other Autoimmune Diseases [April 2026] This 2021 Harvard study shows that taking vitamin D and omega-3 fatty acids can reduce the risk of autoimmune disease: How to prevent lupu...
Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...
lupusencyclopedia.com
www.lupusencyclopedia.com/lupus-lab-te...
Lupus Lab Tests Explained: What Blood Tests Mean for Diagnosing and Monitoring Lupus
Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...
lupusencyclopedia.com
There is a strong link between poor sleep and lupus. If you have an autoimmune disease like #SLE, #lupus, or #Sjogrens, getting enough good-quality sleep is really important. Learn more here: www.youtube.com/watch?v=4uP0... Thanks to KALEIDOSCOPE FIGHTING LUPUS
Lupus: Sleep, Rest and Counting Spoons
YouTube video by Kaleidoscope Fighting Lupus
youtube.com
🔥Our goal in treating #SLE #lupus is complete remission from active lupus inflammation and completely OFF steroids! However, that is not possible in many patients. In that case, we low disease activity is second best. www.youtube.com/watch?v=ZFeJ...
Lupus and Low-Disease State
YouTube video by Kaleidoscope Fighting Lupus
youtube.com
😡 Almost all the labs we rely on to diagnose and follow disease activity in #SLE, #lupus, #Sjogrens are over 55 years old! www.youtube.com/watch?v=JWit... This leads to delayed diagnoses, mistakes in diagnosis, and mistakes in properly identifying disease activity and response to medications.
Lupus and the Need for New Lab Tests
YouTube video by Kaleidoscope Fighting Lupus
youtube.com
Link to our PDF article on how to dose hydroxychloroquine. Link to the pdf article: 1drv.ms/b/c/37bf2c37... Online Link: acrjournals.onlinelibrary.wiley.com/doi/epdf/10.... Article published in Arthritis, Care, and Research has not gone through copy editing. This is a "Full Access" article.
