Dr. Markus Fraczek
@mareksjf.bsky.social
• Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat. • Interests: Medicine ‖ History ‖ Global Politics • #MECFS ➡️ http://mecfs.de/was-ist-me • EN ‖ PL ‖ DE
🏥 Immer wieder werden ME/CFS-Betroffene zu stationären Reha-Aufenthalten geschickt, bspw. wenn sie einen Antrag auf Erwerbsminderungsrente stellen. Die Studienlage zeigt jedoch ein hohes Risiko für Zustandsverschlechterungen nach Reha-Aufenthalten, auch bei an #MECFS angepassten Reha-Konzepten. 1/4
Ziel der Nationalen Dekade gegen Postinfektiöse Erkrankungen ist auch, die Patient*innenperspektive fest in ihren Strukturen zu verankern. Viele Betroffenenorganisationen haben sich für eine starke Patient*innenbeteiligung in den Gremien der Nationalen Dekade eingesetzt. 1/4
Post-Covid – Wenn Ärzte selbst an ME/CFS erkranken www.deutschlandfunkkultur.de/post-covid-w...
Post-Covid - Wenn Ärzte selbst an ME/CFS erkranken
deutschlandfunkkultur.de
Anfang Juni fand im Rahmen der Nationalen Dekade gegen Postinfektiöse Erkrankungen ein Austausch des BMFTR mit 16 Betroffenenorganisationen und -initiativen aus den Bereichen Long COVID, ME/CFS und Post-Vac statt. In diesem Meeting wurden Forderungen der Organisationen an 1/2 #MECFS #LongCOVID
🎥 Der Vortrag zum Praxisleitfaden und Off-Label-Therapien ist nun auf der Seite der ME/CFS Research Foundation und ihrem Youtube-Kanal verfügbar. Unsere wissenschaftlichen Referentin Dr. Marie Witt gibt einen kurzen Überblick zu den Inhalten des Praxisleitfadens und 1/2 #MECFS
Hier sei noch einmal auf die hervorragenden Informationen zum Thema ME/CFS hingewiesen, die von der Deutschen Gesellschaft für ME/CFS e. V. bereitgestellt werden: ▶️ Praxisleitfaden ME/CFS praxisleitfaden.mecfs.de/mecfs ▶️ ME/CFS-Informationsblätter www.mecfs.de/informations...
"Opinion As defence chiefs, we must warn you about Russia and say this: rearmament is not warmongering Richard Knighton and Carsten Breuer" www.theguardian.com/commentisfre...
As defence chiefs, we warn you today about Russia, and say this rearmament is not warmongering | Richard Knighton and Carsten Breuer
Our security is more uncertain than in decades. But by working together, and by showing strength, Britain, Germany and the rest of Europe can preserve peace, say defence chiefs Richard Knighton and Ca...
theguardian.com
Fixing gut issues had a profound impact on my remission. I recommend that everyone with ME/LongCovid check their status. "Intestinal permeability correlated with chronic fatigue in a patient with long COVID" www.frontiersin.org/journals/med...
Frontiers | Intestinal permeability correlated with chronic fatigue in a patient with long COVID—A case report and overview of the literature
BackgroundLong COVID is a complex condition characterized by persistent symptoms such as chronic fatigue, cognitive impairment, and autonomic dysfunction. Em...
frontiersin.org
Die Versorgungslage von ME/CFS-Patienten ist vollkommen unzureichend. Aber einige Ärzte scheinen die wissenschaftliche Literatur völlig zu ignorieren. Sie argumentieren auf der Grundlage einer vermeintlichen (gefühlten) Wahrheit, die sie aus angeblichen Erfahrungswerten ableiten.
Derzeit kann mensch sehr gut ein Lehrstück in PLURV bei ME/CFS in den SozialenMedien beobachten: 1. Es wird eine wissenschaftlich falsche Meinungen zu MECFS gepostet von Eminenz xy 2. Diese Meinung wird von Spezialisten zu MECFS sachlich und korrekt durch Studien widerlegt. 1/n
Study on US tariffs for 2025: "Foreign exporters absorb only about 4% of the tariff burden— the remaining 96% is passed through to US buyers." "America’s Own Goal: Who Pays the Tariffs?" www.kielinstitut.de/publications...
America’s Own Goal: Who Pays the Tariffs? - Kiel Institute
kielinstitut.de
The journalist who coined the phrase “the #GreatestMEdicalScandal of the 21st century” got interested in ME after this same psych lobby accused him of spreading Long Covid by writing about it. He was so taken aback by their absurdity that he investigated further: www.theguardian.com/commentisfre...
‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal | George Monbiot
The notion that this illness is psychosomatic is having devastating effects, says Guardian columnist George Monbiot
theguardian.com
emily fraser 🌿🐌✨@emilyesfraser.bsky.social · 7mo agoFor those lucky enough to live outside the nightmare world of Myalgic Encephalomyelitis, the man discussed here (Simon Wessely) leads a powerful psych lobby w/ a long history of gaslighting sick people—from Gulf War vets to 9/11 first responders to poisoned Iranian school girls to ME & Long Covid
🎥 Die Sendung 37 Grad des ZDF hat eine neue Reportage zu ME/CFS veröffentlicht. Jonas Ganslmeier berichtet über seinen besten Freund Tom, der schwer an ME/CFS erkrankt ist. Er spricht mit Tom's Eltern Olaf und Sabina, die ihn pflegen und versorgen. 👇 (1/3) #MECFS www.youtube.com/watch?v=XTWI...
Chronisch krank: Wenn das Leben durch ME/CFS verschwindet I 37 Grad
YouTube video by 37 Grad
youtube.com
Surprisingly, AI is more accurate when you ask questions rudely. "Contrary to expectations, impolite prompts consistently outperformed polite ones, with accuracy ranging from 80.8% for Very Polite prompts to 84.8% for Very Rude prompts." arxiv.org/abs/2510.04950
Mind Your Tone: Investigating How Prompt Politeness Affects LLM Accuracy (short paper)
The wording of natural language prompts has been shown to influence the performance of large language models (LLMs), yet the role of politeness and tone remains underexplored. In this study, we invest...
arxiv.org
Wie gut, dass MAITHINK X das wichtige Thema #MECFS angeht
Dr. Christian Scharun@christianscharun.de · 7mo agoWir zeichnen ganz bald die neue Staffel MAITHINK X für euch auf und wollen dieses Mal über das sehr wichtige Thema ME/CFS sprechen. Hier ein Aufruf, dem ihr gerne folgen könnt, wenn ihr das mögt. Oder markiert einfach Personen, von denen ihr wisst, dass sie etwas dazu zu sagen haben. Danke euch! 🙏
I was diagnosed with POTS years before COVID When the first cases of Long Covid were reported, I thought we would see breakthroughs in POTS, MCAS, ME/CFS and more. I assumed the problem was too big to ignore. Unfortunately I was wrong, and most LC patients have been abandoned like the rest of us.
Billy Hanlon@bhanlon15.bsky.social · 12mo agoMedscape: Where Is the Medical Home for Postinfectious Illness? "COVID pandemic brought a surge of more patients with POTS & infection-associated chronic illness. What had once felt like a rare or niche diagnosis now seemed to be everywhere, impossible to ignore" www.medscape.com/viewarticle/...
"... increase in U.S. Air Force strategic airlift activity, including multiple C-17 Globemaster III transport aircraft arriving at RAF Fairford, alongside the arrival of two AC-130 gunships at RAF Mildenhall." ukdefencejournal.org.uk/u-s-special-...
U.S. special operations units transit UK en route to Europe
Recent U.S. military air movements into the United Kingdom indicate a redeployment of American special forces into Europe, UK Defence Journal understands.
ukdefencejournal.org.uk
Unbelievable: "Tens of thousands of homes in Berlin will be without electricity until Thursday as authorities struggle to repair power cables seriously damaged in a suspected arson attack, officials have said." www.theguardian.com/world/2026/j...
Berlin power outage hits 45,000 homes after suspected arson attack
Damage to cables means tens of thousands will be without electricity until Thursday amid freezing temperatures
theguardian.com
Happy New Year! 🥳 I enjoyed a wonderful New Year's Eve with friends for the first time in years. Keep your hope alive - brighter days are on their way. 🎇
I wish everyone a Merry Christmas and a happy holiday season. This year, I was finally able to travel for the holidays. Things are improving slowly but steadily. 🎄🎁🕯️
It is good to see that Whitney's condition has improved, but it is also clear that the illness is still taking a toll. The most important message is: People with ME/CFS can get better. When I started to improve, and PEM disappeared, I talked to doctors who treat ME/CFS patients. ⤵️
Whitney Dafoe@whitneydafoe.bsky.social · 8mo agoI started eating again in 2024. After 11 years not eating a crumb of food or a drop of water. In 2025 I have started ‼️ TALKING ‼️ again after 12 years of not saying a word to anyone! What will 2026 bring❓ 👀 Watch, Listen and Read the whole post in my blog: www.whitneydafoe.com/mecfs/?post=...
Last year I mentioned that some difficult things were happening in my life. My mother, who fought cancer for over two years, passed away in mid-October. She was a huge support during my battle with ME/CFS. The last few years have been tough for us.
Doctor I trust more than RFK Jr
a cartoon of a man with the words " the most rewarding part was when he gave me my money " below him
ALT: a cartoon of a man with the words " the most rewarding part was when he gave me my money " below him
media.tenor.com
It's ME(Jaime)@exceedhergrasp1.bsky.social · 11mo agoDoctor I trust more than RFK Jr
🔍 Neue Studie: Bei ME/CFS bekannte Psychologisierung und Stigmatisierung setzt sich bei Long COVID (LC) und Post-COVID-19-Vakzinierungssyndrom (PCVS) fort Was Betroffene von ME/CFS seit Jahrzehnten erleben, konnte nun auch bei LC und PCVS gezeigt werden: (1/4)
🩺 Die Deutsche Gesellschaft für ME/CFS hat in Kooperation mit dem Charité Fatigue Zentrum (CFC) und unter der wissenschaftlichen Leitung von Dr. Herbert Renz-Polster sowie unter Ko-Autorinnenschaft von Dr. Monika Dräger einen Praxisleitfaden zu #MECFS erstellt. (1/4)
