BREAKING: On the 39th anniversary of the founding of ACT UP, protestors have shut down traffic outside Grand Central demanding “Money for AIDS and healthcare, not for ICE and warfare.”
Myles Helfand
@myhelfy.bsky.social
he/him | exec editor of TheBody and TheBodyPro | journalism-ing for HIV communities since aught-one | unsecret gamer | personality type: Mets fan
I love seeing this. Can't understate how unusual these moments are: Research conferences are tightly planned; audience is academic (ie, trained to be reserved); and the experience is NOT made for media. In my 25 years in HIV, I've seen maybe a handful of these? It always signals a watershed moment.
Incredible! Scientists receive a rare standing ovation after announcing that a new treatment can double the survival time for pancreatic cancer, the deadliest cancer which was once considered “undruggable.” When we fund and support science, we can achieve anything! (Video: Dr. Wish Dhillon)
UPDATE (5/18): The 4th Cir. will rehear this case en banc. Case is scheduled for oral argument at the next available court session. Order --> www.ca4.uscourts.gov/opinions/242...
ca4.uscourts.gov
4th Cir. holds that the military may deny enlistment to individuals with HIV without violating due process. Distinguishes a prior case that held it violated due process to discharge service members who contracted HIV while in service. www.ca4.uscourts.gov/opinions/242...
Today, MSF is going public with something we've been fighting behind closed doors for months: Gilead will not sell us their new HIV drug, lenacapavir. The sticking point isn't even price, they just refuse to sell. Open letter linked + explainer 🧵1/ www.doctorswithoutborders.org/latest/gilea...
Gilead refuses to sell groundbreaking HIV prevention drug to MSF
Blocking humanitarian organizations from accessing a medical breakthrough puts vulnerable people across the world in danger.
doctorswithoutborders.org
This is a stopgap measure in effect through June 30 as lawmakers work toward a new state budget for the 2026–27 fiscal year. positivelyaware.com/florida-adap-temporary-funding
Florida, the same state that tried recently to cut health coverage for 1000s of people with HIV, has now charged an HIV+ woman w/ a felony for not disclosing her status to her sexual partners. Florida's HIV criminalization laws don't require actual transmission nor intent to transmit the virus.
West Palm Beach woman arrested for not disclosing HIV status to her intimate partners
Julieann Pixley is now facing felony charges for not informing her partners of her positive HIV status before sleeping with them.
wpbf.com
Still needs to pass the Florida House. The amendment redirects money from a state trust fund to ADAP thru June 30, would maintain eligibility at 400% of the FPL, and direct FL to directly distribute medications to enrollees. #IDsky #AIDS #HIV #RyanWhite #publichealth #LGBTQ
Senate moves to save AIDS drug assistance program from DeSantis administration cuts • Florida Phoenix
In a dysfunctional session that has been underscored by what one senator called an “inexcusable amount of animosity,” the Senate on Tuesday offered to pump nearly $31 million into a program that provi...
floridaphoenix.com
ICYMI: Watch PrEP4All, Positively Aware and the PrEP Users’ Union’s first policy update on increasing PrEP access in 2026, including the PrEP Assistance Program Act: https://bit.ly/4slqg8C
The PA Chat | PrEP4All | February 2026 Policy Update
PREP USERS' UNION PREP POLICY UPDATE Wednesday, February 11, 2026 We are fighting to put lifesaving medication into the hands of everyone who needs it. PrEP4All & Positively Aware
youtube.com
Tens of thousands of Americans are losing access to treatment for H.I.V. as nearly 20 states impose restrictions on assistance programs and several others weigh such changes. www.nytimes.com/2026/03/02/h...
States Move to Limit Access to H.I.V. Treatment
nytimes.com
To change your plan, call the Marketplace Call Center at 800-318-2596 (TTY: 855-889-4325). Deadline to change plans is April 30. Details here: positivelyaware.com/special-enrollment-period
A wonderful, empowering interview with an incredible human!
"I started sharing because I was tired of silence." -Marnina Miller Our Co-Executive Director speaks to Maria Elena Perez (TheBody.com) about the power of telling your HIV story out loud. Read Marnina's full inteview at: www.thebody.com/hiv/marnina-...
Whether we show up using our personal health stewardship or community organizing, through word-of-mouth networks or formal advocacy, we are asserting our right to health and dignity in all the ways that matter, writes HIV specialist Dr. Stella Safo. positivelyaware.com/why-advocacy-matters
like this isn't 2012, there are no national queer rights orgs who are flush with cash. Everyone I speak with is dramatically cutting their budgets. And red state queer orgs are always fighting uphill on a shoestring budget. My challenge to you today is to google a red state queer org and donate.
News from CROI 2026: PrEP uptake was already low – and then came the cuts #CROI2026
PrEP uptake was already low – and then came the cuts
Even before the Trump government slashed its overseas HIV budget last year, with prevention facing some of the deepest cuts, very few countries in the world had enough people using PrEP to substantially reduce their HIV infection rate, or even to make a noticeable dent in it.
aidsmap.com
Final results from #PREVENIR at #CROI2026 show continued #HIV protection from 2:1:1 #PrEP dosing in gay and bisexual men in #Paris: i-base.info/htb/53282 The study also highlights the need for better #PrEPaccess in #France for those born abroad. #HIVsky #HIVprevention #HIVresearch #SexualHealth
Lenacapavir for PrEP was the big "star" of #CROI2026 after showing almost 100% effectiveness in preventing HIV in 2 large RCTs. Unfortunately at a pricing point of 28000$ a year it remains inaccessible to most. A drug is only as great as the number of people who can access and benefit from it.
1. Major news on trans youth care. The American Psychological Association has reaffirmed its full support for its 2024 guidelines supporting trans youth car.e It provided documentation showing Jesse Singal mischaracterized their position in the NYT. Subscribe to support our journalism.
American Psychological Association Reaffirms Support For Trans Youth Care, Pushes Back Against NYT
A recent article from Jesse Singal in the New York Times seemed to indicate the organization might be quietly retreating from supporting trans youth care.
erininthemorning.com
The federal government is trying to deregulate AI. In the last three months, both NYC & NYS have passed AI oversight laws. For these to be successful, communities need to lead and have decision-making power. 🔈Read my new op-ed on participatory AI governance! www.healthaffairs.org/content/fore...
A long-term survivor and advocate reflects on his 6 years as vice chair of the Broward County HIV Health Services Planning Council and cultivating a new generation of community leaders. Read Von Biggs’ First Person commentary here. positivelyaware.com/passing-the-torch
As #CROI2026 opens in Denver, this New York Times piece lands squarely on the conference’s central theme: the real-world consequences of US decisions on #HIV funding & #globalhealth leadership & the human cost when support is withdrawn & science is attacked. www.nytimes.com/2026/02/23/o... #IDSky
Opinion | What Happened in Chicago When Science Became the Enemy
nytimes.com
"...The pendulum that has been swinging against us...will, if we fight for it, eventually swing back. You are a community that gives us miracles. With empathy as your driving force, you save lives, your history will pull the pendulum back." @prep4allnow.bsky.social's Peter Staley #CROI2026 #IDSky
The end of the PEPFAR-funded DREAMS program cut off HIV-prevention support for millions of girls across sub-Saharan Africa. In Kenya, health experts warn the consequences are already visible.
Life after DREAMS: Kenya’s girls navigate HIV risk without US support
Life after DREAMS: Kenya’s girls navigate HIV risk without US support
devex.com
This week marks 1 yr since AVAC sued the US government over the sweeping #ForeignAid freeze that halted #HIV & #GlobalHealth programs overnight. Watch our Executive Director, Mitchell Warren, explain what happened, what was at stake, and why this case still matters, www.youtube.com/watch?v=VXfM...
Lots of HIV programs included in this list
The Trump administration is planning to terminate $600M of CDC grants to CA, CO, MN, and IL. We're publishing the full list. They are using vulnerable communities as a weapon to dismantle public health, targeting partisan enemies, and manipulating media. 🧵 1/5 grant-witness.us/posts/2026-0...
@posaware.bsky.social, @prep4allnow.bsky.social and thePrEP Users’ Union invite you to an update on challenges to PrEP access & research; we’ll also discuss policy issues and proposed legislation impacting PrEP in our communities. Wednesday, Feb. 11 at 2p. ET. Register: bit.ly/preppolicyupdate
I'm ridiculously honored that Dr. Blackstock and the amazing humans at PIBA chose to use TheBody as a platform to help announce this critical new campaign. If the HIV-related work you do at all intersects with Black folks, this is worth your time to read -- and to complete the survey!
On this eve of National Black HIV/AIDS Awareness Day #NBHAAD, PrEP in Black America is facing this critical moment by creating an HIV Policy Impact Tracker to track policy impacts on Black communities, and we need your help in this important effort. Read more here: www.thebody.com/piba-tracker
This starts in a couple of hours!
🗣️ Join PrEP In Black America TOMORROW, FRIDAY, February 6, 2026 @11:00 AM EST for: National Black HIV/AIDS Awareness Day 2026 🌱 Building the PrEP in Black America HIV Policy Impact Tracker Help Our Community Document the Impact Register here: bit.ly/PrEPinBlack2026
An important note, since I quote-posted this prior to reading the full article (shame on me!): The 'halt' may well be temporary as state officials scramble to apply at least a veneer of legality to what they're trying to do. But it does at least buy the people impacted, and HIV orgs, some time
Florida Halts Proposed Cuts to HIV Meds Program Following Legal Challenge