Tessera

Liz Nevra A.

@nlizaki.bsky.social

#MEActionNetwork health activist. Patient, project manager, translator & polyglot. ✊🏾 #Stoic #WoC @NLizaki & @SaveLizNevra on Twitter. #MyalgicEncephalomyelitis since 6. 28 now. #PMDD #hEDS #POTS #MCAS #LongCovid

513 Posts876 Follower 584 Folgt

Liz Nevra A.@nlizaki.bsky.social · 19h ago

Hi guys, I need IV fluids every day now due to very severe ME. The monthly cost has increased from £122 to £421.95. I'm scared. I want to live and stay in contact with the world. Receipts attached. Thank you so much. Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #severeme

Liz Nevra A.@nlizaki.bsky.social · 6d ago

November 2025 expenditure. Apologies for the delay. Better late than never. Thank you, everyone 😘 youtu.be/A9xe_uiePak?... Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #severeme

November 2025 expenditure

November 2026 expenditure TEAM NEVRA POSTING ON BEHALF OF NEVRA- it may confuse you as to why we are posting this during a sensitive time but Nevra's request for us has been to be transparent about…

youtu.be

Liz Nevra A.@nlizaki.bsky.social · 7d ago

Nevra is requiring IV infusions and pain injections for longer than we had anticipated. We need to raise additional funds.,The total cost has increased from £122 to £326.41. Every donation, no matter the size, helps so much. Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #severeme

Liz Nevra A.@nlizaki.bsky.social · last wk.

The cost of Nevra's monthly medical treatment has increased due to needing more IV infusions. We need to raise additional funds. Every donation, no matter the size, helps tremendously. Thank you so much for your support. Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #severeme

Graphic with plain white text on a black background reads: "Nevra is continuing to require IV infusions and pain injections for longer than we had anticipated. Unfortunately, this means we need to raise additional funds to cover the ongoing cost of her treatment.

So far, the total cost has increased from £122 to £326.41, including the medications used during her infusions.

Every donation, no matter the size, helps us keep her treatment going. Thank you so much for your continued kindness, generosity, love and support."

Liz Nevra A.@nlizaki.bsky.social · 2w ago

Please boost. We can not go into details, but the situation has gone out of control. The fun raiser is doing badly. Please boost! Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #severeme

Liz Nevra A.@nlizaki.bsky.social · 2w ago

🔔 Urgent Nevra update! 🗣️ We still have £1,333 left to raise for Nevra’s July target. This is urgent to secure safe housing and a caregiver. Please continue to share & donate Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #KeepNevraOutOfDV #MECFS #SevereME #VerySevereME #pwME

Liz Nevra A.@nlizaki.bsky.social · 2w ago

I've run out of pleas and spoons ya know ... love #pwmE though Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Liz Nevra A.@nlizaki.bsky.social · 4w ago

youtu.be/FkGrJze-pMs?... better late than never

October 2025 expenditure

YouTube video by Nevra Elisavet A

youtu.be

Liz Nevra A.@nlizaki.bsky.social · 4w ago

💜🩵 Save Nevra - July Update 🩵💜 Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Nevra's situation has deteriorated significantly. After a recent hospital admission, she has moved back temporarily to her original home, which is unsustainable long term. She's living in a non-ME friendly environment, which given her severe state puts her physical and mental health at extreme risk. The urgent need is to fundraise for a safe, mold-free apartment of her own, trustworthy carers, a PA who can help her move, and help with patient advocacy and care coordination. July goals: Apartment deposit: £1288.03, Carer: £171.74, PA: £214.67, Food: £201.25. Infusions: £122.08, Dr Trevino appointment: £74.84, Total: £2072.61

Nevra is currently managing approximately 10 different difficult situations, including negotiations with the hotel to escape mould and methane gas, negotiating with her family, local PAs, lawyers and local doctors to ensure they don't drop her as a patient. This is above what any very severe ME patient should do and is completely unsustainable for her. She also still needs financial support for upcoming specialist appointments. Care in another country would be preferable, but this could cost $100k for an air ambulance alone.

Liz Nevra A.@nlizaki.bsky.social · last mo.

Nobody local can hear me. No ME org can hear me. Descending into a crash that's so strong, without a carer. Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Photo of blossoms on a tree with text overlaid that reads "Nobody local can hear me. No ME org can hear me. Descending into a crash that's so strong, without a carer"

Liz Nevra A.@nlizaki.bsky.social · last mo.

Open letter to ME organizations from the global south. Where are your resources for me? I am reaching out because I urgently need help. I have previously volunteered within the ME community, including translating resources related to Unrest into four languages.

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

The price I'm paying for trying to stay away from family DV with no local support as a very severe mecfs patient who should be resting. Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Photo of a pulse oximeter with an oxygen reading of 99% and a heart rate reading of 135 beats per minute. Text reads "the price I pay for fun - raising as a very severe mecfs patient forced to push past nausea & pem to stay away from DV. I wonder if I'm worth it. I've run out for pleas. Please boost, with links, share or doe nate because I can't do this anymore."

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

Xx please give me some spoons Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

Please xx Gofundme.com/f/save-nevra Paypal.me/SaveLizNevra #pwME

Simple text graphic reads: "Please boost, share, and/or do (donut emoji) nate. There are no new donations on the fun raiser and we are at the end of our goal almost for a permanent escape from DV and being stuck in a hotel with mould and methane gas that is slowly k****ng my immune system and lungs. So please, please, I don't know what plea to make but free me for once and all. I cannot go back to DV. I'd be punished and I'd never get to speak to you guys again. This is my last attempt."

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

Urgent Nevra update! We still have £1,865 to raise to keep Nevra in a safe environment away from domestic violence. Thanks to ongoing support from community, Nevra has been able to meet some immediate needs & urgent costs such as rent, care support & food.

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

August 2025 expenditure TEAM NEVRA POSTING ON BEHALF OF NEVRA- Nevra's request for us has been to be transparent about how your donations have helped keep her alive. This would not be possible without you, specially not in Pakistan. Thank you for your generosity! www.youtube.com/watch?v=cF5J...

AUGUST EXPENDITURE 2025

August 2025 expenditure TEAM NEVRA POSTING ON BEHALF OF NEVRA- it may confuse you as to why we are posting this during a sensitive time but Nevra's request for us has been to be transparent about…

youtube.com

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

Helps arrive way too late for v severe mecfs patients when we can't access it PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #pwME

Simple text post reads "Helps arrive way too late for v severe mecfs patients when we can't access it"

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

Urgent Nevra June Update! We have raised £2,732- enough to temporarily cover urgent costs. But we still have £2,918.54 left to raise toward the next critical stage of keeping Nevra safely housed & medically supported. Nevra's facing the increasing likelihood of having to return to DV.

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

3rd blue rose of the week. When will the world wake up? #pwME

Simple text post reads: "3rd m.e d3ath this week [followed by 3 candle emojis and 3 blue heart emojis]"

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

Update: £3,078.72 raised, £2,571.28 left to raise. Thank you so much to everyone who has donated, shared, and supported me. Every bit of support makes a difference. ❤️ PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #pwME

Update: £3,078.72 raised out of £5,650.54. £2,571.28 left to raise.

Thank you so much to everyone who has donated, shared, and supported me. Every contribution has helped me stay safe, housed, and access medical care.

Unfortunately, I am still bleeding and the bleeding has started again despite ongoing treatment attempts. I'm due to see my doctor today and am hoping for some answers.

Please keep sharing if you can. Every bit of support makes a difference. ❤️

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

Imagine this. Having Severe ME. Voicing that you need to rest. Negotiating with your ab*ser. This isn't family. Please don't let me go back to DV. PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing #pwME

Simple text graphic reads:

Imagine this.
Having Severe ME.
Voicing that you need to rest.
Negotiating with your ab*ser.
But they literally chase you around the house so they can trauma dump, and if you say no, there are repercussions. You plead on your knees that you are sick, and they look at you coldly, saying it's because you're not allowing me to heal you.

This isn't family. Please don't let me go back to DV. You run from room to room, trying to hope they won't find you whilst crashing.

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

Please don't let me go back. Please. And please boost previous posts. PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Graphic reads: My ab*ser thinks he can cure my mecfs and I just haven't prayed enough. So he would also send the ambulance back if I called one. Please don't let me go back to dv.

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

❤️🧡 Save Nevra - June Update 🧡❤️ Share this post and engage in the comments! PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #SaveLizNevra #MECFS #SevereME #POTS #MillionsMissing

Nevra is now dealing with severe autonomic, hormonal, immune, neurological and respiratory diseases that keep triggering each other. She desperately needs multi-disciplinary care.
She has now been bleeding outside of her period for over 18 days straight. Drs agree that her endometriosis and PMDD situations are too severe to be ignored, but she is also too medically complex to be effectively managed. Nevra urgently needs to be able to move to a mould free apartment in an accessible building with a functional elevator. May goals: Total: £5650.54/$7598.35 for rent for 2 rooms, carer, food, deposit for apartment and furniture for new apartment. £2732 raised so far,€2918 remaining

Nevra is reacting to absolutely everything-scents, cleaning chemicals, environmental exposures and more - causing repeating choking episodes and asthma attacks.
Recent funds had to go to hospital admissions but she is still requiring a second hotel room to isolate mould contaminated items and reduce deterioration from mould exposure. Raising funds for a safe, mould free apartment is now more than essential than ever so that Nevra can escpae the situation she is trapped in and can avoid returning to DV.

Nevra is in a situation again where she may be left with no choice but to return to her abuser after escaping DV in 2024, but she would rather not be here than be forced to do that. Even a 2 minute call with him leaves her shaking and re-traumatised.
Nevra is juggling a failing body, homelessness, medical trauma, discrimination and simply being born in a country that cannot meet her medical needs.
She is exhausted and needs sustained support and help.

Tilman Andris @tilmanandris.bsky.social · 2mo ago

As an infrequent user of this site and reaching mostly people impoverished by ME, I always hesitate to ask for help. But: My dear friend Nevra is struggling to keep a safe roof over her head. Any donation you can spare is deeply appreciated, as is sharing and boosting her posts. #MEcfs #NEISvoid

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

The constant battle of homelessness vs. treatment is getting too much for this very severe mecfs patient. The fact that I may really just have to go back to DV is k*11ing me. PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra

Graphic reads
Nevra Ahmed: I feel cornered by life again.
Nevra Ahmed: No matter how hard I try, it just doesn't work.
Nevra Ahmed: My abuser is also so hurtful even when he thinks he's being nice. He only sees us as an extension of himself. Not as actual human beings who suffer.
Nevra Ahmed: He keeps saying all this bs, and the only reason I'm not responding is because I might need to go back home.
Nevra Ahmed: But just being on the phone with him for two minutes is traumatizing.
Nevra Ahmed: He really thinks he's my cure.

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

At a loss for pleas or words. Fought so hard. But please do help. I don't have the spoons for pleas. PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis #KeepNevraOutOfDV

Screenshot of a text message conversation reads:

Nevra: Like please don't let me go
Friend: I wish I had enough money to make sure you stay out of that house
Friend: I hear you
Nevra: Maybe start a campaign
Nevra: #KeepNevraOutOfDV
Nevra: That way I can get steroids, my immune system can calm down.
Friend: How do we reach people outside of our community?
Nevra: And then I can hopefully move into an apartment if I have the deposit

Liz Nevra A.@nlizaki.bsky.social · 2mo ago

Nevra desperately needs to raise funds for rent to avoid returning to DV. Can you spare $5, or like/share this post? PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis #KeepNevraOutOfDV

Graphic reads: My ab*ser thinks me returning to him means I'll be cured because he genuinely believes he's the cure and has been keeping tabs on my health and fundraising situation. Please don't let me go back. He's even worse now because he has AI and it constantly validates him.

Kimothy Terra Joy (she/he/they)@kimothyterrajoy.bsky.social · 3mo ago

Please, please donate (any dollar amount helps!) and/or signal boost—Nevra is in very dire straits right now and she needs our support more than ever!

Liz Nevra A.@nlizaki.bsky.social · 3mo ago

Please keep me in your thoughts and prayers. Sharing my story, amplifying my fundraiser, or helping me access proper coordinated care helps more than people realise. PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis

Liz Nevra A.@nlizaki.bsky.social · 3mo ago

Nevra is struggling to pay for access to housing and lifesaving healthcare. Please donate, like, share, and comment. 🩵 PayPal: PayPal.me/SaveLizNevra GoFundMe: GoFundMe.com/f/save-nevra #MECFS #SevereME #VerySevereME #MyalgicEncephalomyelitis

Liz Nevra A.@nlizaki.bsky.social · 3mo ago