Tessera

I’m getting testing soon that involves being off most of my meds for a week. I have been waiting for this appt for months. Now we have a heat wave with temps into the triple digits. I have a hard enough time managing heat waves *with* medication (((: #NEISVoid #Disabled #POTS #EDS #ChronicIllness

Snap bracelets are making a comeback??!! Meet Gus! He’s named after Gus the giraffe who used to live at the @phillyzoo.bsky.social! He grips perfectly to my wheelchair frame! Here’s to fun adventures together 🦒🥰 #Disabled #Disability #WheelchairUser #ChronicIllness #EDS #Spoonie #PhiladelphiaZoo

Small plush giraffe snap bracelet wearing a yellow fall risk fall risk bracelet while holding onto a wheelchair frame

Small plush giraffe snap bracelet wearing a yellow fall risk fall risk bracelet while holding onto a wheelchair frame. There is also yellow and orange flame print duct tape on the frame.

HAPPY PRIDE!! Thrilled to snag an art print and canvas PAINTED BY BEA (the giraffe) AND CINDY (the hippo)!! Also got to see the new bear exhibits 🐻 @phillyzoo.bsky.social If you’re in #Philadelphia for #FIFA #WorldCup #Soccer, going to the #PhillyZoo is a MUST #Pride #Queer #Philly #Zoo

White flag with rainbow brush strokes done by Bea the giraffe

Horizontal red, orange, yellow, green, blue, and purple stripes painted onto a canvas with a black hippo mouth print in black ink by Cindy the hippo

Amur tiger walking by a rainbow pride banner

Happy pride sign in the lion exhibit (lion not pictured)

New #MobilityAids have entered the chat! Now accepting name suggestions for my #AFOs 💬 #Disabled #Disability #EhlersDanlosSyndrome #EDS #NEISVoid #AnkleFootOrthoses #JointPain #Braces #PhysicalTherapy #MobilityAidUser #NotAllDisabilitiesAreVisible #Spoonie #Tubie #Gastroparesis #WheelchairUser

A white person’s legs with tape over their knees and AFOs over tall blue starry night socks.

Black and blue carbon fiber AFO on a white person’s leg

Black and blue carbon fiber AFOs crossed over each other on a bed.

#MutualAid keeps #Disabled people alive! #Disability can strike at any time! Pay it forward by donating when you can and sharing when you can’t! #HelpFolksLive2026 #MABoost #NEISVoid #ChronicIllness #Spoonie #QueerSky #LGBTQIA+ #LGBTQ #Queer #Support

Post nicht verfügbar.

#RaceToBeatPOTS 👩🏼‍🦽‍➡️🎗️🩵 I will attempt to self-propel the 1 mile course this weekend 👩🏼‍🦽‍➡️ Today I went 1.15 miles in 40 minutes 🌟 I’m awaiting my custom manual chair, so I’ll still be using my standard for the @dysautonomia.bsky.social event! #POTS #Disabled #Disability #WheelchairUser #Dysautonomia

Garmin parasports activity summary from May 26th titled “Afternoon Wheelin, 👩🏼‍🦽‍➡️🌟”

1.15 mile training activity. 40 mins. 1.7mph average speed

Lucy Mason@lucymason217.bsky.social · 4mo ago

!EXTRA, EXTRA! #BookGiveaway Do you read books? Do you like queer romance? Do you love when the A in #LGBTQIA+ is represented and relatable? Do you like dissociating from The Horrors? Enter @lucymason217.bsky.social’s giveaway!! #BookSky #AmReading #Queer #Sapphic #Fantasy #Romance #Romantasy

To enter, follow me and reply to this post with your favorite queer book! For additional entries: - subscribe to my newsletter (in my pinned, honor system, reply “subscribed”) - follow my lucymasonwrites Instagram! Drawing will be June 15th!

Lucy Mason @lucymason217.bsky.social · 4mo ago

Month so far (as of EOD on the 24th): 🤕 7/10 average daily pain 🥱 8/10 average daily fatigue 👩🏻‍⚕️ 16 dr appts 📚 30 books completed ☎️ 38 medical phone calls I am so tired 😭 #Disabled #Disability #EhlersDanlosSyndrome #EDS #MECFS #ChronicIllness #AmReading #AmReadingSFF #SFF #SciFi #Fantasy #BookSky

Unfriendly reminder that you can deeply, deeply love someone WITHOUT wanting to kiss them, sleep with them, or date them. They can be your whole world without being your romantic or sexual partner. Queerplatonic relationships are so important and under-represented.

Lucy Mason@lucymason217.bsky.social · 4mo ago

Don’t tell somebody to “just give it time” bc they “just haven’t met the right person, yet”. Love isn’t inherently sexual or romantic. Platonic relationships are so, so important. People can live great lives with only platonic relationships in their life. #LoveIsLove #QueerSky #AroAce #LGBTQIA+

Lucy Mason@lucymason217.bsky.social · 4mo ago

We can do hard things!! Do it scared!! Speak even if your voice shakes. You deserve to take up space 💫

I started in March again. Guess what? It was hard. But it was so, so worth it. Please don't give up on something you love just because it feels hard. You can do hard things. I believe in you.

Anybody wanna guess how many of the books I have checked out are about space (and also how many are space-adjacent)?? #AmReading #BookSky #SupportYourLocalLibrary #Libby #Audiobooks #TheFutureIsAccessible #VisuallyImpaired #LowVision #InclusionMatters #Disabled #Disability #ChronicIllness #Spoonie

I *finally* read The Keeper of Lonely Spirits by @elizmanderson.com! I haven’t read many cozy fantasies, but this book was a delight! Fantastic work by the author and the narrator! Can’t believe I left it TBR for so long! #ReaderSky #AmReading #AmReadingFantasy #Fantasy #CozyFantasy #BookSky

Wore my “sometimes I stroll, sometimes I roll” shirt to my ortho appt and somebody in the parking garage said they liked my shirt 🥺 #AmbulatoryWheelchairUser #Disability #Disabled #Wheelchair #MobilityAid #AmbulatoryWheelchairUsersExist #ChronicIllness #Spoonie #FND #EDS #HEDS #NEISVoid

Sending good vibes, low pain, and extra spoons to those who need them ❤️‍🩹 🪄 ✨ 💖 ✨ 🥄 ✨ #NEISVoid #Disabled #Disability #ChronicIllness #ChronicallyIll #Spoonie #Tubie #FeedingTube #Gastroparesis #Zebra #EDS #EhlersDanlosSyndrome #NotTooRareToCare #MobilityAids #POTS #Migraine #ChronicPain #Pain

Lucy Mason@lucymason217.bsky.social · 5mo ago

I promise this is an amazing supportive space even if you aren’t a fiber artist! It’s a phenomenal community of humans AND you get to be astonished by the crafts they share 🧶

DID YOU KNOW. That I have a little yarn discord server that is primarily about crafting, specifically fiber arts, but I ALSO yap about writing? Come join our cozy little space! discord.gg/xxB9zVTs

A friendly reminder as it gets warmer: don’t tell people with visible medical devices to “cover up”. We deserve comfort, too. Don’t shame us for the medical devices keeping us alive. #Disabled #Disability #ChronicIllness #NEISVoid #EDS #MCAS #POTS #Gastroparesis #Spoonie #Tubie #FeedingTube

Noelle smiling while wearing a crop top. Her surgical abdominal tubes are visible.

“You’re lucky you don’t have to work,” is often said to disabled people. My guy,, I have NINE drs appts this week!! 9 appts in 5 days. 6 last week. 4 next week. I wish I could work. I can’t. Being disabled is not a vacation. #NEISVoid #Disabled #Disability #Spoonie #Tubie #Gastroparesis #EDS

I have 8 books out right now. A book I placed a hold for is now available. If I check it out, I’ll be at 9 books…. HOWEVER, I’m 61% finished with my current read, so that one basically doesn’t count. So if I accept the book, it’s really only 8… right? #GirlMath #AmReading #BookSky #Libby #Books

Today’s choice of Fahlo friends include Plover the whale shark, Bishaaro the giraffe, Foxe the polar bear, and Calypso the sloth 💙💙 🐋 🦒 🐻‍❄️ 🦥

Four Fahlo bracelets on a white person’s arm above a watch band. There is a green bracelet with a whale shark bead, a pink-ish orange bracelet with a giraffe bead, a blue bracelet with a polar bear bead, and a green bracelet with a sloth bead.

JustAnne@smartpatient.bsky.social · 6mo ago

I’ve lived with chronic illnesses my entire life. When I was in elementary school, my mom told me to do all my hw the day it was assigned (even if the deadline was several days away). You never know how you’re gonna feel, tomorrow might be worse… and then your grades suffer, too ): #Disability

The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you. #ChronicIllness #ChronicPain #InvisibleIllness

Chronic Illness Humor@chronicillness.bsky.social · 6mo ago

And if I’m *not* at home, I’m at a drs appt 🫠 #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #EhlersDanlosSyndrome #EDS #Gastroparesis #FeedingTube #Tubie #POTS

i am not hard to find. i am at home. i have been at home. i will continue to be at home.

#Painsomnia is at it again 😭 😭 It’s 12:40 in the morning and my #GTube has decided even breathing makes the site pain worse. I wish I could curl into a ball, fall asleep, and wake to my abdomen having done a forced factory reset. Imagine! Functioning organs, no more scar tissue ✨ ✨ #NEISVoid

I only slept four hours last night, but I’m staying up until 2am so I can take more acetaminophen. I’m in so much pain right now ( #Painsomnia ), but Ik if I don’t stay up, I’ll be in even worse pain come the morning 🤕 #NEISVoid #Disabled #Disability #Insomnia #ChronicPain #EDS #Fibromyalgia

Noelle@nowhalle.bsky.social · 6mo ago

I’m up to 13 medical phone calls for the week and there’s still one more day to go. Being disabled takes so, so much time and energy… energy that we often lack as a side effect of being, ya know, disabled 🫠 #Disability #Disabled #ChronicIllness #ChronicallyIll #Spoonie #NEISVoid #EDS #TubeFed

Don’t worry, I only have 7 appts scheduled for this week and another 7 next week 🫠 AND!! Only 6 phone call so far this week…not sure how many portal messages though 😥 At least I have my audiobooks and podcasts 🎧 #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Gastroparesis #EDS #POTS

It’s rude of my disabilities to disable me, but at least I have my eight (8) library books to keep me company 🙂‍↕️ #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Tubie #FeedingTube #WheelchairUser #EDS #EhlersDanlosSyndrome #AmReading #BookSky #LibraryKid #Libby #AmReadingFantasy

Chronic Illness Humor@chronicillness.bsky.social · 6mo ago

Disabled life means waking up to lab results, MyChart messages, appointment reminder calls, and more 🫠 #NEISVoid #Disabled #Disability #ChronicIllness #Spoonie #Tubie #FeedingTube #Gastroparesis #EhlersDanlosSyndrome #HEDS #MCAS #Dysautonomia #POTS #PosturalOrthostaticTachycardiaSyndrome

@emilyagain - MyChart is like 'it's 3am and you can't sleep...so here are your bloodwork results (emoji with sunglasses)