£10,000 raised for #lungcancer research. ⛳ Thanks to every player, sponsor, supporter & co-founder @janclark1.bsky.social who made our Golf Day at Tall Pines Golf Clubin Bristol possible. Every pound funds life-saving research. This is what community looks like. #LCSM
Oncogene Cancer Research
@oncogenecancer.bsky.social
🔬 Advancing Research. Empowering Patients. Championing Advocacy. We’re patients & families dedicated to improving outcomes for people with oncogene-driven lung cancer through education, support, and powering cutting-edge research.
We’re now on Substack. We exist because too many people affected by #lungcancer are still given too little — too little time, clarity & support. We’re working to accelerate research, empower patients & help research reach patients faster. 👇 oncogenecancerresearch.substack.com/p/welcome-to...
Living w ALK+, ROS1+ or other lung cancers can mean learning as you go. Questions like these ones here. To help w answers, Nuvalent worked w @alkpositive.bsky.social @lungevity.bsky.social @go2forlungcancer.bsky.social @iaslc.bsky.social, LCRF & Ros1ders More at 👉elevatelungcancercare.com
Proud to support this webinar on May 14 from LCRF & Susan Wojcicki Foundation on heritable genetics, genomics & lung cancer research w Dr @pateloncology.bsky.social, Dr Isabel Preeshagul, ROS1ders' @jfreemandaily.bsky.social @alkpositive.bsky.social's Marc Muskavitch 👉https://lnkd.in/gFcBUffA
Sarah was training for marathon #7 when a cough changed everything. It was stage 4, EGFR ex 21 #lungcancer But it hasn't changed her determination On 3 May, Sarah & 10 friends take on a 54 km challenge - this one is for more time Read more 👉https://oncogeneresearch.org/sarahs-ultramarathon #LCSM
As a #lungcancer community, we see the impact of myths every day - delaying diagnosis, shaping who gets screened, influencing research funding. This @cnn.com piece challenges 7 of the most persistent misconceptions & highlights where science is moving. edition.cnn.com/2026/04/29/h... #LCSM
The truth behind 7 common lung cancer myths | CNN
Screening guidelines often fail to pinpoint who’s at risk, and few people who are eligible for screening actually get checked. Some of the problems can be traced to persistent myths about lung cancer.
edition.cnn.com
There is something powerful about the @londonmarathon.bsky.social The theme music makes us nostalgic, the costumes make us smile and the stories make us emotional. Especially gratetul to Mandy supporting our continued work at @icr.ac.uk Read more👇 oncogeneresearch.org/icr-festival-t… #LCSM
Oncogene Cancer Research - A New Possibility for People Living with ALK+ Lung Cancer @oncogenecancer.bsky.social oncodaily.com/voices/oncog... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #CancerResearch #LungCancer
A New Possibility for People Living with ALK+ Lung Cancer - Oncogene Cancer Research - OncoDaily
A New Possibility for People Living with ALK+ Lung Cancer - Oncogene Cancer Research / cancer, Lung cancer, OncoDaily, Oncogene Cancer Research, Oncology
oncodaily.com
Stage 4 oncogene-driven #lungcancer isn’t one-size-fits-all. Targeted therapies can control disease for years, but progression is inevitable. Guidance (STS and ESMO) supports LCT in selected cases. Why not discuss it more? A patient perspective 👇 bmjoncology.bmj.com/content/bmjo... @bmj.com
📣 England fans: Win 2 tickets to England vs Uruguay at Wembley on 27 March. £5 to enter and every penny supports life-saving #lungcancer research. Thank you to everyone who has already entered. 🩵 Enter 👇 raffall.com/415661/enter-r… #lcsm #raffle #research
We were pleased to join fellow advocates, clinicians and researchers at #BTOG26. Multidisciplinary conversations like these matter — bringing the thoracic community together to keep pushing progress in #lungcancer. #LCSM #StrongerTogether
Progress in #lungcancer doesn’t only happen in clinics or labs. Why not use your skills to accelerate patient-focused outcomes? We’re seeking volunteers w expertise in finance, legal, marketing, data, digital, project management & research. Interested? www.oncogeneresearch.org/volunteer
#LungCancer can turn life upside down – fear, questions, a future that looks different. This #WorldCancerDay @younglungcancer.bsky.social & OCR honour the people who steady the spin: clinicians, researchers, nurses, fellow patients, families. Who helps you turn your world downside up. #LCSM
Staying Connected with Oncogene Cancer Research - Yvonne Diaz @yvonnediaz.bsky.social @oncogenecancer.bsky.social oncodaily.com/voices/yvonn... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews
Yvonne Diaz: Staying Connected with Oncogene Cancer Research - OncoDaily
Yvonne Diaz: Staying Connected with Oncogene Cancer Research / cancer, OncoDaily, Oncogene Cancer Research, Oncology, Yvonne Diaz
oncodaily.com
We believe progress happens when patient voices, medical, research & industry come together. Subscribe to receive patient stories, practical support & updates from us, shared occasionally & with care. Join our community here: 👇 oncogenecancerresearch.eo.page/rymgx #LCSM
We’re proud to share our first Annual Report. In our 1st year, we focused on helping our community live longer & better lives, through empowerment, advocacy & research. Thank you for walking alongside us. This is just the beginning. 👉 oncogeneresearch.org/annual-report #LCSM
Some good news! 5 yr survival rates for some hard to treat cancers have increased. Liver cancer, with a 7% relative survival rate in the 1990s rose to 22% Lung cancer- 15% to 28% Myeloma- 32% to 62% This is in part due to early detection & better treatment. 🧪 www.cancer.org/research/acs...
New hope for small-cell lung cancer. UK Markey Cancer Center treated the first U.S. patient with a next-gen trispecific T-cell engager that may work even when standard therapies stop. A big step forward for patients. nkytribune.com/2026/01/univ... #lungcancer #immunotherapy #oncology #TCSC
University of Kentucky's Markey Cancer Center treats first patient in US with new lung cancer therapy - NKyTribune
By Elizabeth Chapin University of Kentucky The University of Kentucky Markey Cancer Center has treated the first patient in the U.S. with a new immunotherapy for small cell lung cancer, offering hope ...
nkytribune.com
For people living w #lungcancer, biomarker testing is not an abstract system, it is a lifeline. It shapes treatment, quality of life & time. It’s the beginning of hope. Pleasure to have our Chair @yvonnediaz.bsky.social represent the patient voice at @thermofishersci.bsky.social European meeting
LCRF's Sr. Dir. Research & Administration, Dr. Dhru Deb, explains how early funding for NTRK gene fusion research led to the first targeted therapy for this driver. Our commitment to #LungCancer research continues to make an impact. Read more: LCRF.org/connecting3
Part 3, the last part of my interview with @yvonnediaz.bsky.social of @oncogenecancer.bsky.social We discuss brain mets, brain surgery, and their implications for driving in the UK. We also talked about returning to work and then adjusting my life so I can stop working. youtu.be/yIWw0U2yg5c?...
Duncan on brain surgery, work and redefining life with advanced lung #cancer | #podcast
YouTube video by Oncogene Cancer Research
youtu.be
A must-read for the ALK+ community. Professor Elena Klenova, a scientist w background in cancer research & education & an ALK+ patient, explains ALK #lungcancer in clear, accessible terms - from biology to TKIs. Written for patients & clinicians alike. oncogeneresearch.org/patient-publis…
The 82-year-old music legend announced on Instagram that an MRI uncovered early-stage lung cancer, prompting him to pause and reschedule upcoming concerts.
'70s Music Icon Posts Hospital Photo Two Weeks After Cancer Diagnosis
The 82-year-old music legend announced on Instagram that an MRI uncovered early-stage lung cancer, prompting him to pause and reschedule upcoming concerts.
parade.com
Months for some. Years for others. More than one doctor. More than one misdiagnosis. Delayed #lungcancer diagnosis is not rare, especially when you are young & do not fit the “profile”. Help us change the narrative. Help us create more awareness. #LCSM
2025 was powered by our patient community, alongside clinicians, researchers & industry partners working together to drive progress. Thank you for showing up in big ways and small. Here’s to a better 2026 for all of us. Happy new year! #HNY2026
Not all advanced #lungcancer is the same. And neither are patients. This @lungcancerstoday.bsky.social article shares a recap from Dr Mara Antonoff @iaslc.bsky.social @ascocancer.bsky.social #NACLC on surgery in oligometastatic lung cancer. Have a read 👇 www.lungcancerstoday.com/post/the-ias...
Oncogene Cancer Research - The Part of Caregiving People Don’t Talk About @oncogenecancer.bsky.social oncodaily.com/voices/careg... #OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #OncogeneCancerResearch
The Part of Caregiving People Don’t Talk About - Oncogene Cancer Research - OncoDaily
The Part of Caregiving People Don’t Talk About - Oncogene Cancer Research / cancer, Lung cancer, OncoDaily, Oncogene Cancer Research, Oncology
oncodaily.com
Cancer does not pause for the holidays. For those living with cancer, scans and worries do not stop. We are thinking of everyone navigating this season alongside cancer, and thanking those working every day to improve outcomes. Wishing you rest, love, and peace. #LCSM
Angus Pratt was unforgettable - his large white ribbon, red toque and dry humour lit up every many conferences & events. After navigating breast cancer as a man & later EGFR LC, he found a real kinship with the #lungcancer community. He leaves a big mark on our hearts. #LCSM