Sheila Brill & @becksbdaniels.bsky.social are at Northumbria University's CYP Nursing Conference today sharing the importance of recognising parental experiences when supporting children & young people with complex health needs and disabilities. Read Sheila's blog here👉 qicn.org.uk/can-i-make-y...

#PPCEducate Join us for the next of our Spotlight webinars on Wednesday 22nd Oct at 1930, discussing care of children in the community, including living well, role of education, and caring at end of life. Sign up link: forms.office.com/e/UVgqGapjgt...

New @ncmd.bsky.social report published today helping us understand what more we need to do to support children with life-limiting conditions and their families. Please read and share as widely as possible www.ncmd.info/publications...

Children with Life Limiting Conditions and Palliative and End of Life Care Needs

This report draws on the NCMD's unique data to investigate deaths among children with life-limiting conditions and palliative and end-of-life care needs

ncmd.info

We know you've been waiting for this... it's finally ready! Introducing Syringe Drivers in Children, the latest independent learning module on ppceducate.co.uk. Email or register interest now

Let's stop re-inventing the wheel... or in this case, reduce your educator workload. Why not try a pull-off-the-shelf #PPCEducate interactive worksheet to facilitate your next PPC teaching session? Find out more ppceducate.co.uk

Join us next week for a Spotlight on PPC & Respiratory Medicine, featuring a beautiful case story of MDT working to get a patient home #PPCEducate Check out more ppceducate.co.uk

QICN chief executive @stephlawrence.bsky.social writes in @hsj.co.uk about the huge risks posed by moving care to the community without first ensuring there is capacity to deliver the care needed. www.hsj.co.uk/policy-and-r...

The hidden risks within community services are being ignored

Steph Lawrence, CEO of the Queen's Institute of Community Nursing, warns that insufficient staffing is leading to care being missed and patient deaths

hsj.co.uk

The needs of children whose siblings have life-limiting conditions have been highlighted in a study by King's College London and the University of Strathclyde. Read more: www.kcl.ac.uk/news/study-e... @paedpallcare.bsky.social

Study examines support available for the siblings of children with life-limiting conditions

The needs of children whose siblings have life-limiting conditions have been highlighted in a study by King's College London and the University of Strathclyde.

kcl.ac.uk

Severe BPD. Tracheostomy. Tiny lungs, big decisions. This integrative review explores the complex, often inconsistent management of severe bronchopulmonary dysplasia in the most fragile preterm infants Read now: doi.org/10.62116/PNJ...

Do we really need community children’s nurses? Mark Whiting talks about the history of community children’s nursing and if we need them in today’s world… Our first webinar recording is up now on our YouTube channel! #nursing #nurse m.youtube.com/watch?v=zla_...

Do We Really Need Community Children’s Nurses?

YouTube video by Association of British Paediatric Nurses

m.youtube.com

Such an exciting opportunity for our next generation of #CYPnurses to showcase their final year student nurse project/dissertation at this national conference. Please share & encourage student nurses to submit their work! @ellendukecyp.bsky.social @katepye.bsky.social @kathevans2.bsky.social

Robin Hyde@robinhyd.bsky.social · 2y ago

National Children and Young Peoples Nursing Conference 18th and 19th Sept 2025 hosted by @northumbriauni.bsky.social Check out this fantastic opportunity for final year student childrens nurses to share their work and win a free delegate place for the two days. Please share far and wide 😊

Home care scheme safe for child patients - study www.bbc.com/news/article... proud to part of setting this team up and showcasing how services such as hospital at home, can make such a difference. Every day at home really does matter !! @ukhahsoc.bsky.social #hospitalathome

Evelina London study says treating child patients at home is safe

Thousands of bed days can also be saved by treating child patients at home, the research suggests.

bbc.com

www.linkedin.com/posts/ppcedu...

Now live: our recommended resources relating to paediatric palliative… | PPCEducate

Now live: our recommended resources relating to paediatric palliative care. Accessible via ppceducate.co.uk without need to login, consider what is already available and out there. Want to see your re...

linkedin.com

🎺 Free copy of #RestorativePracticeAtWork! Retweet to enter draw. Winner notified 15th April 2025. #Edusky #Medsky #Nursesky @crownhousepub.bsky.social

pubmed.ncbi.nlm.nih.gov/40019450/ This is the output of the first collaborative network for children’s palliative care research - so much learning, so much still to do!

Learnings from the establishment and delivery of the UK Collaborative Paediatric Palliative Care Research Network - PubMed

This article presents independent research funded by the National Institute for Health and Care Research (NIHR) Health Technology Assessment programme as award number NIHR135304.

pubmed.ncbi.nlm.nih.gov

www.instagram.com/p/DICEU5jvUX... Thank you @wellchild.bsky.social for funding our better at home training kit. We are so grateful and it was a lovely day 😃

to members for sharing your models. We have two network meetings next week, Tuesday 25th focusing on Equipment & Consumables, & Friday 28th our main 2 hr meeting, agenda includes "research on Transition for Young People with complex needs in the community" & "Understanding & overcoming housing 3/

The spring edition of #RCPCHMilestones explores how health professionals can come together to support children and young people – from navigating screen time to adopting a pro-play mindset. www.rcpch.ac.uk/milestones @sebjgray.bsky.social @drjamesdearden.bsky.social @headsmartfellow.bsky.social

Rapidly rolling out alternatives to the latest medicine shortage is now a routine part of my 'day job'. It surprises me how few shortages of essential drugs make the news, so thank you Guardian and Nuffield trust for highlighting it www.theguardian.com/society/2025...

Brexit a key factor in worst UK medicine shortages in four years, report says

Nuffield Trust says supply chains have shifted, with medicines for epilepsy and cystic fibrosis among those now scarce

theguardian.com

Happy international women’s day to all the strong, inspirational women I know x @beckyhepworth.bsky.social @becksbdaniels.bsky.social

Action needed!! Kids continence care is close to my 🩷 as Mum and nurse. A new report shows the lack of services is causing emotional, financial, & social consequences for families, & disabled children are being denied their basic right to dignity and inclusion. Thanks! cerebra.org.uk/latest-news/...

Urgent Call for Action: Support Disabled Children’s Right to Dignified, Accessible Continence Care - Cerebra

Our groundbreaking new report reveals a shocking failure by health and social care bodies across England, Wales, and Scotland to provide adequate paediatric continence supplies for disabled children. ...

cerebra.org.uk

Great day networking with the WellChild nurses and team. Full programme of interesting speakers focusing on CYP with complex needs being able to thrive at home. Lovely to catch up with @becksbdaniels.bsky.social good luck with the challenges!

And they're off! First challenge of the #12in12: #LondonWinterWalk. Led by #ExtraordinaryQN Becks Daniel, who's doing an activity each month in 2025 to raise money for the QNI's #Support for #Nurses programme. Find out more & donate here👇: justgiving.com/page/rebecca... Thank you!

On my way to the WellChild nurse meet up, looking forward to seeing everyone 😃

Nurses hope app will improve care for babies with heart conditions A “game-changing” new app for monitoring babies with complex congenital heart diseases has been developed by a team of specialists including nurses. #nursing #nurses #cardiovascular #innovation www.nursingtimes.net/cardiovascul...

Nurses hope app will improve care for babies with heart conditions

A “game-changing” new app for monitoring babies with complex congenital heart diseases has been ...

nursingtimes.net

Dear Parents/Caregivers, I am still seeking parents/caregivers with lived experience of cancer or cancer pain to join our public involvement group. If you/your child is interested, please email me, Betül Bay 👇. And importantly, each hour of their contribution will be compensated!