@phendran.bsky.social

Debilitating tinnitus since 2016. Trying to raise awareness of the ailment and ongoing research, in the hopes that a cure will be developed as soon as possible.

Today is #RareDiseaseDay Through EB Research Partnership, families, scientists, and supporters are pushing research forward, pioneering progress in EB and helping reshape what’s possible for rare diseases. It’s not a matter of if. It’s a matter of time. 🦋 Learn more: ebresearch.org

The world-serpent, ouroborically coiled around the cosmos, has eyes sharp enough to perceive half the universe at once. And as he glides in his low gyre, the cosmic seasons turn: soon we will pass from unseen to seen